fatigue

[Guest guest]

>

> Hi, I'm Ellaina. I dont post a lot but I sit in the background and read every

post. I'm new to the fight against Hep C. I found out I had it over two years

ago, but I wanted to ignore it for a while - so I did. I finally got up enough

courage to call the hepatologist for my first visit. My appt is in three weeks.

> I'm very nervous about it. My primary care physician wants me to have a biopsy

and I'm scared to death. Not about the biopsy procedure, but the results

themselves. I was an active alcoholic for the past 20years but am now in

recovery.

> So to the reason I'm posting...fatigue. I am having an internal battle in my

head all day long over this fatigue I'm having. I'll attempt a walk to the store

and I have to battle with my will over every step. my mind says I can do it and

my body does not want to cooperate. Is this normal fatigue? It seems so

overwhelming at times.

> Is there anything I can do or take that will help this fatigue?

______________

Ellaina - You are not alone. I too am in recovery, found out just over 2 yrs ago

I have HCV and didn't exactly choose to ignore it but my Gastroenterologist told

me I was fine and had nothing to worry about since my liver enzymes were only

slightly elevated and I had recently had an ultrasound after a car accident that

showed no enlargement of my liver. I chose not to have a biopsy partly because

of the risk but mostly because big needles and pain scare the hell out of me. My

doc said my increasing fatigue and joint pain was unrelated to my HCV and that I

didn't need to change my diet, just avoid iron in my multivitamin...I believed

him. My bad. I now believe doctors don't know as much as they think they do. I

know my body and what is normal for it better than they do. You have to take

charge of your own treatment/health care and keep searching the web. There is a

lot of info out there. Some just want to cash in on our desperation and fear

with claims of quick or easy cures but some genuinely want to help. I was very

sceptical of people like Lloyd but I have emailed him several times with

questions and he always answers quickly even though I have not purchased any of

the products he sells on his site. I recently asked him if a hyberbaric chamber

might help (I have access to one but it's a 3 hour drive so I don't want to do

it unless I know it will help). He didn't know and told me so but asked me to

keep him informed of how successful it is if I do use it.

Anyway, I ignored my disease until I became so fatigued I had to force every

step I took. At first I thought it was withdrawal from Kratom, an herb I was

using for the joint pain, which acts like hydrocodone and is addictive. I wasn't

taking that much of it but something was making me feel bad all the time so I

quit. After two weeks, I didn't seem to be getting better and my energy wasn't

returning.

I began researching HCV, alternative treatments, read Lloyd Wrigth's book,

" Triumph Over Hepatitis C " and looked at the recommendations in " Prescription

For Nutritional Healing " . I searched for what seems to help others with this

disease and found so many herbs, supplements, diets, etc. that I don't know

which to try. I began taking Milk Thistle in larger doses than recommended on

the bottle, Dandelion Root capsules and making Dandelion root tea, Licorice Root

capsules and tea (you can't take licorice every day so 4 or 5 days on and 2 or 3

days off), Alpha Lipoic Acid, Vitamin C and several other vitamins and herbs I

would be glad to share if you are interested. You really have to find the

combination that works for you. You have to pay close attention to what you put

in your body and how it makes you feel. I started forcing myself to ride my

bicycle every day. Even if I only went to the end of my street and back (after a

month I am up to 3 miles each morning). Exercise is so important and I hate

exercise but it came down to did I want to suffer slowly declining or did I want

to start having some quality of life. I gave up several times. The problem with

giving up is that you don't just die...you slowly get worse, lose muscle tone,

get weaker and more depressed but the human body won't give up and it won't die

that easy.

I am also working on eating more fruits and vegetables. If you are healthy

enough to eat raw foods they are the best for you (I know some people with HCV

have to steam veggies and cannot eat them raw). It makes sense that what you put

in your body that is alive will have the most nutrients and that what you eat 3

or more times a day is the most important aspect of fighting this disease, at

least for me. I cannot afford all organic but I get what I can. I rarely eat red

meat and have cut back on all meat. I am starting to get some energy back but it

is a slow process and I am having to learn a great deal of patience because

nothing seems to work quickly.

I am not a big believer in Western Medicine for myself although I will go to a

doctor in a heartbeat for things I cannot heal with the abundance of medicine

that nature provides. I have genotype 1b, am prone to depression (possible

because of the HCV) and feel my body would be unlikely to tolerate standard

treatment so interferon is not an option for me.

I hope this helps, if nothing else, to know you are not alone. I am not anti-TX

for those who choose to go that route. It's just not for me.

Dianne

[Guest guest]

Thanks. I do try to eat well and I get plenty of sleep (there's no helping that at this point). I'm going to take Vickies advice and try to drink more water. I have been avoiding that because I've had bladder urgency issues lately. But have cleared it up.

Since I was a heavy drinker, I'm not sure my body ever got used to being adequately hydrated, so it will be interesting to see a change, if any.

Is herbal tea hydrating or dehydrating?

-- [ ] Fatigue> > > > Date: Saturday, June 27, 2009, 7:57 AM> > > > > > Hi, I'm Ellaina. I dont post a lot but I sit in the background and read every post. I'm new to the fight against Hep C. I found out I had it over two years ago, but I wanted to ignore it for a while - so I did. I finally got up enough courage to call the hepatologist for my first visit. My appt is in three weeks.> > I'm very nervous about it. My primary care physician wants me to have a biopsy and I'm scared to death. Not about the biopsy procedure, but the results themselves. I was an active alcoholic for the past 20years but am now in recovery. > > So to the reason I'm posting...fatigue. I am having an internal battle in my head all day long over this fatigue I'm having. I'll attempt a walk to the store and I have to battle with my will over every step. my mind says I can do it and my body does not want to cooperate. Is this normal fatigue? It seems so overwhelming at times.> > Is there anything I can do or take that will help this fatigue?> > > > > > > > ------------------------------------> > > >

[Guest guest]

Hi Ellaina

I think like this:

'Demons may take my body, but they will NEVER take my heart and soul'.

[My body belongs to the earth, but my heart and soul are mine forever.]

'Quality' of life resides in your mind, not in what you do, or have.

love

don in ks

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Fatigue Date: Sunday, June 28, 2009, 1:44 AM

Ellaina:The absolute very best thing you could have down for yourself was admit you are an alcoholic and that you are not still damaging your liver with King Alcohol. I too was an alcoholic and will be counting 23 years clean mid next month. I figure that if I had not quit drinking when I did - I wouldn't be here typing this and yet I didn't quit drinking because of Hep C. In fact, I didn't find out that I was even afflicted with Hep C until I was sober 15 or 16 years. Still, that first biopsy might as well have been that of a currently practising alcoholic.There is really no rhyme or reason to the damage alcohol will play on an individuals liver!! My hubby actually had his liver cut in half and sown back together in the early 60's and still went on to become a daily drinker and shows hardly any liver concerns to this day. Meantime, even though I was sober for so many years it was the Hep obviously

that continued to do the damage.So, try to go through the biopsy with a positive outlook and it's just information anyway... It's what you choose to do with that information that matters.As for the fatigue - I actually only had occasionally bouts of it prior to being diagnosed. So it was a shock needless to say. However, the TX certainly did bring out mind boggling fatigue that continue even post TX. Now that I'm on a second go with TX and past the 16 weeks of possibly taking the Protease Inhibitor, I'm finding the fatigue has lightened up quite a bit. I simply don't go shopping much thanks to the support I get from my hubby; however, I never would be able to walk to a store. I have trouble getting around Wal-Mart without using the cart as a walker. You should be tested by an Arthritis specialist ASAP !! I have a very good case of Fibromyalgia as a result of TX I think or could have been

that TX just hastened the Fibro that I was going to get anyway. Who knows???Gloria

From: edreifach <ellaina_dreifach@ hotmail.com> Sent: Saturday, June 27, 2009 7:57:39 AMSubject: [ ] Fatigue

Hi, I'm Ellaina. I dont post a lot but I sit in the background and read every post. I'm new to the fight against Hep C. I found out I had it over two years ago, but I wanted to ignore it for a while - so I did. I finally got up enough courage to call the hepatologist for my first visit. My appt is in three weeks.I'm very nervous about it. My primary care physician wants me to have a biopsy and I'm scared to death. Not about the biopsy procedure, but the results themselves. I was an active alcoholic for the past 20years but am now in recovery. So to the reason I'm posting...fatigue. I am having an internal battle in my head all day long over this fatigue I'm having. I'll attempt a walk to the store and I have to battle with my will over every step. my mind says I can do it and my body does not want to cooperate. Is this normal fatigue? It seems so overwhelming at times.Is there anything I can do or take that will help this

fatigue?

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

[Guest guest]

> > >

> > >

> > > From: edreifach <ellaina_dreifach@>

> > > Subject: [ ] Fatigue

> > >

> > > Date: Saturday, June 27, 2009, 7:57 AM

> > >

> > >

> > > Hi, I'm Ellaina. I dont post a lot but I sit in the background and read

> every post. I'm new to the fight against Hep C. I found out I had it over

> two years ago, but I wanted to ignore it for a while - so I did. I finally

> got up enough courage to call the hepatologist for my first visit. My appt

> is in three weeks.

> > > I'm very nervous about it. My primary care physician wants me to have a

> biopsy and I'm scared to death. Not about the biopsy procedure, but the

> results themselves. I was an active alcoholic for the past 20years but am

> now in recovery.

> > > So to the reason I'm posting...fatigue. I am having an internal battle

> in my head all day long over this fatigue I'm having. I'll attempt a walk to

> the store and I have to battle with my will over every step. my mind says I

> can do it and my body does not want to cooperate. Is this normal fatigue? It

> seems so overwhelming at times.

> > > Is there anything I can do or take that will help this fatigue?

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >

[Guest guest]

Hi Don,

Just wondering if you have tried colloidal silver?

Ress Felton, CA

want a healing, an answer.

Come on medical science.

Come on God.

Meanwhile....Im one hell of a happy guy.

I love helping out here, and running my other groups.

Im thankful I have the internet, and can help give back to the world.

Im blessed, even in the middle of my own personal storm.

Life is still good.

love

don in ks

[Guest guest]

Hi

Yes, I have used CS...but cant say it has ever done anything for me.

My old Dad swears by it.

So do a lot of other people.

It has been around for a long time.

I have read a lot about it, both the pros and cons.

I have never come across any scientific studies proving its benefits.

I have read where it has negative sides.

I have links to it in the LINKS for the group, in the menu on the homepage, in the folder...ALTERNATIVE INFO.

http://www./group/ /

love

don in ks

From: M Ress <Safoocat@...>Subject: Re: [ ] Fatigue Date: Sunday, June 28, 2009, 3:18 PM

Hi Don,

Just wondering if you have tried colloidal silver?

Ress Felton, CA

want a healing, an answer. Come on medical science.

Come on God.

Meanwhile....Im one hell of a happy guy.

I love helping out here, and running my other groups.

Im thankful I have the internet, and can help give back to the world.

Im blessed, even in the middle of my own personal storm.

Life is still good.

love

don in ks

[Guest guest]

I have tried colloidal silver and found no benefit. I stayed on it for 6 weeks

-- Re: [ ] Fatigue

Hi Don,

Just wondering if you have tried colloidal silver?

Ress Felton, CA

want a healing, an answer. Come on medical science.

Come on God.

Meanwhile....Im one hell of a happy guy.

I love helping out here, and running my other groups.

Im thankful I have the internet, and can help give back to the world.

Im blessed, even in the middle of my own personal storm.

Life is still good.

love

don in ks

[Guest guest]

yeah, CS is indeed a godsend.

strangely, this mssg got sent to my spam folder, where links aren't

clickable, but the address is.

these links for s photo collection don't show up and aren't active

AFAIK when moved to another folder where the mssg is displayed normally.

anywyas... a very cool bunch of pics to browse.

> Re: [ ] Fatigue

>

>

>

> Hi Don,

> Just wondering if you have tried colloidal silver?

>

>

> Ress Felton, CA

> <http://www.flickriver.com/photos/safoocat/popular-interesting/>

> <http://safoocat.blogspot.com/>

> <http://www.flickriver.com/photos/safoocat/>

> <http://www.flickr.com/photos/safoocat/>

> <http://safoocat.blogspot.com/>

> <http://us.f359.mail./ym/Signature?YY=88792 & y5beta=ye

s> <http://amazon.com/shops/safoocat>

>

>

> want a healing, an answer.

> Come on medical science.

> Come on God.

> Meanwhile....Im one hell of a happy guy.

> I love helping out here, and running my other groups.

> Im thankful I have the internet, and can help give back to the world.

> Im blessed, even in the middle of my own personal storm.

> Life is still good.

> love

> don in ks

>

>

>

>

>

[Guest guest]

All good ideas. I find happiness with my dogs and they certainly give me

exercise and a reason to live. I'd be lost without em.

Ress Felton, CA

From: Gach <gary.gach@...>Subject: [ ] fatiguehepatitis Date: Sunday, June 28, 2009, 8:10 PM

I've found that a minimal amount of aerobics (race-walking, say; swimming is great; a bicycle; stair-master, etc) can dissipate exhaustion and bring back a second wind, provided it's not overdone. Seems to get everything flowing that was stagnant.Diet is key too: the urge to spike energy with sugar or fructose is a trap because it only causes a bigger dip later on. Likewise, whole grains only is really good.Good sleep patterns, including a nap, really help.In retrospect, depression can play a contributing part in fatigue; authentic happiness is thus good medicine.There are other factors of course.

[Guest guest]

I try to work out each day. I do yoga and lift weights. I don't have the energy for aerobics. I can get through a set of lifting weights by convincing myself its just for a few seconds each time. Aerobics is too much of a commitment:)

I do feel better (mentally) when I'm done, but physically I still find myself exhausted.

-- [ ] fatiguehepatitis Date: Sunday, June 28, 2009, 8:10 PM

I've found that a minimal amount of aerobics (race-walking, say; swimming is great; a bicycle; stair-master, etc) can dissipate exhaustion and bring back a second wind, provided it's not overdone. Seems to get everything flowing that was stagnant.Diet is key too: the urge to spike energy with sugar or fructose is a trap because it only causes a bigger dip later on. Likewise, whole grains only is really good.Good sleep patterns, including a nap, really help.In retrospect, depression can play a contributing part in fatigue; authentic happiness is thus good medicine.There are other factors of course.

[Guest guest]

Aside from walking the dogs I get exercise by scavenging firewood all year.

We heat with a wood stove and basically never buy any fuel, so we get plenty

of exercise bringing home any wood we find, then cutting it and putting it in the

wood shed.

In the winter exercise is much harder since the weather keeps us indoors much of the time.

We go through a lot of different exercise machines with freecycle.org.

We'll use one until we're tired of it then offer it and ask for another one.

That seems to work and doesn't cost anything.

Ress Felton, CA

http://www.flickr.com/photos/safoocat/--- On Mon, 6/29/09, Ellaina Dreifach <ellaina_dreifach@...> wrote:

From: Ellaina Dreifach <ellaina_dreifach@...>Subject: Re: [ ] fatigue Date: Monday, June 29, 2009, 4:21 AM

I try to work out each day. I do yoga and lift weights. I don't have the energy for aerobics. I can get through a set of lifting weights by convincing myself its just for a few seconds each time. Aerobics is too much of a commitment:)

I do feel better (mentally) when I'm done, but physically I still find myself exhausted.

[Guest guest]

>

>

> From: M Ress <Safoocat@...>

> Subject: Re: [ ] Fatigue

>

> Date: Sunday, June 28, 2009, 3:18 PM

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Hi Don,

> Just wondering if you have tried colloidal silver?

>

>

> Ress Felton, CA

>  

>  

>

>  want a healing, an answer.

> Come on medical science.

> Come on God.

> Meanwhile....Im one hell of a happy guy.

> I love helping out here, and running my other groups.

> Im thankful I have the internet, and can help give back to the world.

> Im blessed, even in the middle of my own personal storm.

> Life is still good.

> love

> don in ks

>

>Hi ,

>This is Vickie and I use Silver Biotics. I first tried it when I had

>pneumonia and the doctor gave me two different antibiotics that did

>not help.

> After taking Silver Biotics, I went back in a week and my

>chest X-ray was clear. It is one of the silver colloids that have

>been scientifically tested. When I run out I can tell the difference

>in how I feel. A lot of people are under the impression their skin

>will turn blue if they take if for an extended period, and there is

>some being sold that have way too much silver in them and they have

>turned blue! If the silver solution is made so the silver particles

>are small enough to enter the RBC's this won't happen and not a lot

>of silver is needed to be effective. Silver Biotics is a brand name

> and is quite expensive, but I found a site that sells it at a very

>reasonable price. I'm not sure if we are allowed to put the names in

>these posts but I will tell you if you want to purchase some. I am

>not an affiliate of the site I am speaking of and do not make any

>kind of profit if someone buys from them. Anything I talk about being

>helpful to people with hep c I wouldn't want to profit from in any

>way at all. Some of the natural meds are pretty expensive and I am

>living on disability because of this disease as I imagine so are

>others, so if I can find somewhere it costs less I just want to

>share with others just getting by as I am. I would feel ashamed to

>profit from people that are sick. The pharmaceutical companies do

>that. The main meds I take are: Himalaya liver care, super enzymes,

>silver biotics, virgin coconut oil, alpha lipoic acid, vit C (3g)

>about 100oz of a good bottled water (NOT DISTILLED). I have been

>aware of having hep c for about 15 yrs. I believe I contracted it

>while working as a back office Medical assistant for 8 doctors in

>in SanFrancisco. Putting in IV's, doing blood draws and other

>procedures where I was in contact with blood is my best guess for

>where I acquired this disease. My previous affair with alcohol

>most likely already damaged my liver anyway. I have tried numerous

>combos of meds and the ones I am taking right now seem to be helping

>the most. If I was told I had to give up one of the meds I am taking

>the last one would be the water. Without the water I don't think

>the others would be so effective. Everyone reacts differently to

>medications, so I think we all just need to try different things

>until we find what works and use it. The only one I think will help

>everyone is drinking water.

>God help and bless all,

>Vickie

[Guest guest]

Vickie...high-dollar CSilver isn't needed, although it's nice if you can

afford it.

home-brew works just fine.

BTW,see how easy it is to find what i wrote here?

and how i snipped out most of the stuff i'm not addressing now?

i had to work to find whatyou added in your reply, down at the bottome and

with " > " in front of for some reason.

> [ ] Re: Fatigue

> >Hi ,

> >This is Vickie and I use Silver Biotics. I first tried it when I had

> >pneumonia and the doctor gave me two different antibiotics that did

> >not help.

> > After taking Silver Biotics, I went back in a week and my

> >chest X-ray was clear. It is one of the silver colloids that have

> >been scientifically tested. When I run out I can tell the difference

> >in how I feel. A lot of people are under the impression their skin

> >will turn blue if they take if for an extended period, and there is

> >some being sold that have way too much silver in them and they have

> >turned blue! If the silver solution is made so the silver particles

> >are small enough to enter the RBC's this won't happen and not a lot

> >of silver is needed to be effective. Silver Biotics is a brand name

> > and is quite expensive,

[Guest guest]

>

> Vickie...high-dollar CSilver isn't needed, although it's nice if you can

> afford it.

> home-brew works just fine.

>

> BTW,see how easy it is to find what i wrote here?

> and how i snipped out most of the stuff i'm not addressing now?

> i had to work to find whatyou added in your reply, down at the bottome and

> with " > " in front of for some reason.

>

> > [ ] Re: Fatigue

> > >Hi ,

> > >This is Vickie and I use Silver Biotics. I first tried it when I had

> > >pneumonia and the doctor gave me two different antibiotics that did

> > >not help.

> > > After taking Silver Biotics, I went back in a week and my

> > >chest X-ray was clear. It is one of the silver colloids that have

> > >been scientifically tested. When I run out I can tell the difference

> > >in how I feel. A lot of people are under the impression their skin

> > >will turn blue if they take if for an extended period, and there is

> > >some being sold that have way too much silver in them and they have

> > >turned blue! If the silver solution is made so the silver particles

> > >are small enough to enter the RBC's this won't happen and not a lot

> > >of silver is needed to be effective. Silver Biotics is a brand name

> > > and is quite expensive,

>Hi Bob,

When I replied to a message there was already a >. But only one. I'm not sure

why how 2 appeared. But you are right this is much easier.

There is a place called Water Oz that makes ionic silver and all the other

minerals you can think of, and it's in Grangeville,ID only about an hours drive

from where I live. I tried it for a while before I started using silver Biotics

and didn't notice any difference in how I felt. It is very inexpensive and I'm

thinking of trying it again. I don't think I want to try making it at home just

yet.

[Guest guest]

....WaterOz CSilver might be good these days. in years past they sold silver

citrate (wouldn't reveal what it was, but someone had it analyzed) that

allegedly turned a couple people blue. i think they backed off on the

aggression and now sell simple ionic CS. before buying any from them i'd

make them swear on the fate of the souls of their children that's what it is

and nothing else.

> -----Original Message-----

> >Hi Bob,

> When I replied to a message there was already a >. But only

> one. I'm not sure why how 2 appeared. But you are right this

> is much easier.

> There is a place called Water Oz that makes ionic silver and

> all the other minerals you can think of, and it's in

> Grangeville,ID only about an hours drive from where I live. I

> tried it for a while before I started using silver Biotics

> and didn't notice any difference in how I felt. It is very

> inexpensive and I'm thinking of trying it again. I don't

> think I want to try making it at home just yet.

[Guest guest]

W.,

Got Coil...Rifed 3 times & then a few days later I'm sick...I do NOT feel

interconnected...dated someone who just recovering from Flu........What are your

thoughts?

Jay

[ ] File - Reminder - Don't Forget

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owner

[Guest guest]

OK, 3 days later, you're sick. Sounds like a herx to me.

To detox, are you doing CE, milk thistle and glutithione?

I am down to rifing once a week and only for 10 minutes at 420. Just got

info on rifing gallbladder as it appears they are hiding there. Weren't you

rifing your gut?

RX - sleep, sleep, sleep! Seems to work the best for me (which is why I rife

on TH eve),

W.

_____

From:

[mailto: ] On Behalf Of Jay A. Rovert

Sent: Monday, July 13, 2009 2:14 PM

Subject: Re: [ ] fatigue

W.,

Got Coil...Rifed 3 times & then a few days later I'm sick...I do NOT feel

interconnected...dated someone who just recovering from Flu........What are

your thoughts?

Jay

[ ] File - Reminder - Don't Forget

Don't forget about the other functions available to group members!

All of these features and an archive of past messages can be accessed from

the main web site here:

http://health. <http://health.

< />

/group/ />

/group/ /

Our Links section is full of resources to help you learn more about Lyme,

Buhner and other aspects of the Buhner protocol:

http://health. <http://health.

< /links>

/group/ /links>

/group/ /links

This includes links to Planet Thrive where Buhner writes a column

and answers questions.

It also includes a links folder full of companies members have recommended

for buying herbs.

Our Files section has a folder for Members' Personal Histories. These

histories can provide you insight, information and hope on a very personal

level:

http://health. <http://health.

< /files/>

/group/ /files/>

/group/ /files/

If you wish to add your own story, please email it to

- <mailto: -owner%40>

ownergroups (DOT) <mailto:owner%40> com .

New members will find much of this information imperative and everyone can

use these links as resources for continued knowledge.

If you ever have any questions please feel free to email me!

Be well,

Robynn

- <mailto: -owner%40>

ownergroups (DOT) <mailto:owner%40> com

[Guest guest]

4 MINUTES with 432......

Now has " Powdered Kelp " in granular form....great detoxer and source of Iodine.

[ ] File - Reminder - Don't Forget

Don't forget about the other functions available to group members!

All of these features and an archive of past messages can be accessed from

the main web site here:

http://health. <http://health.

< />

/group/ />

/group/ /

Our Links section is full of resources to help you learn more about Lyme,

Buhner and other aspects of the Buhner protocol:

http://health. <http://health.

< /links>

/group/ /links>

/group/ /links

This includes links to Planet Thrive where Buhner writes a column

and answers questions.

It also includes a links folder full of companies members have recommended

for buying herbs.

Our Files section has a folder for Members' Personal Histories. These

histories can provide you insight, information and hope on a very personal

level:

http://health. <http://health.

< /files/>

/group/ /files/>

/group/ /files/

If you wish to add your own story, please email it to

- <mailto: -owner%40>

ownergroups (DOT) <mailto:owner%40> com .

New members will find much of this information imperative and everyone can

use these links as resources for continued knowledge.

If you ever have any questions please feel free to email me!

Be well,

Robynn

- <mailto: -owner%40>

ownergroups (DOT) <mailto:owner%40> com

[Guest guest]

Is she consuming enough CHO?

Amy

Long Carrera MS, RD, CNSC

Clinical

Dietitian

Northridge Hospital Medical Center &

Center for

Weight Loss Surgery

818-885-8500 x

4034

amy.long@...

From:

[mailto: ] On Behalf Of anne_marquart

Sent: Friday, November 13, 2009

12:13 PM

To:

Subject:

Fatigue

Good afternoon!

I have a very compliant patient who complains of fatigue. She appears to be

eating appropriately (meeting protein and fluid needs), is compliant with her

supplements and her lab work is all normal. She lost down to her goal weight within

6 months of exercise, I know this can lead to fatigue, but how long would that

fatigue last? Any other ideas?

Enjoy the weekend,

Anne Marquart, MS, RD, LD

Roller Weight Loss Institute

Springdale, AR

[Guest guest]

You may want to think about trialing a carnitine prescription. See the handout on this topic from our PhD dietitian specialist, Breedon. http://www.meritcare.com/healtheducation/speakers/cathy_breedon/pdfList.aspx We are starting this with some of our patients and some have good energy improvements (and blood sugar control for the DB patients). Bartholomay, LRDManager, Nutrition TherapyMeritCare Health Systems.Bartholomay@...(701) 234-6166Strengths: Arranger, Ideation, Adaptability, Empathy, Maximizer>>> "Long, Amy - NHMC" <Amy.Long@...> 11/23/2009 11:49 AM >>> Is she consuming enough CHO?Amy Long Carrera MS, RD, CNSCClinical DietitianNorthridge Hospital Medical Center & Center for Weight Loss Surgery818-885-8500 x 4034amy.longchw (DOT) eduFrom: [mailto: ] On Behalf Of anne_marquartSent: Friday, November 13, 2009 12:13 PM Subject: Fatigue Good afternoon!I have a very compliant patient who complains of fatigue. She appears to be eating appropriately (meeting protein and fluid needs), is compliant with her supplements and her lab work is all normal. She lost down to her goal weight within 6 months of exercise, I know this can lead to fatigue, but how long would that fatigue last? Any other ideas?Enjoy the weekend,Anne Marquart, MS, RD, LDRoller Weight Loss InstituteSpringdale, AR

This e-mail message is intended only for the named recipient(s) above and is covered by the Electronic Communications Privacy Act 18 U.S.C. Section 2510-2521. This e-mail is confidential and may contain information that is privileged or exempt from disclosure under applicable law. If you have received this message in error please immediately notify the sender by return e-mail and delete this e-mail message from your computer.

[Guest guest]

Fatigue goes with liver disease. Sigh. However, make sure your doctors know

about it, know how severe it is. They may have some suggestions. You may feel

better soon.

Many people on Prednisone feel over-active at night and are exhausted in the

daytime. Or they may feel exhausted in the daytime even if they sleep well at

night. Take naps whenever you can; it won't hurt your ability to sleep at night,

according to what people here have reported, and according to my experience.

Naps are really useful for us.

Don't take any supplements, medications, even OTC, without discussing them with

your doctor. This is important.

Re bones: Be sure to take your calcium with vitamin D. Dietary calcium is even

better, and weight-bearing exercise is helpful in maintaining bone density. This

is definitely the time to get a bone density scan as a baseline for the future.

Don't let it go.

Accept any help that's offered. Let your family and close friends know that

you're tired, that you could use helping hands.

Best wishes.

Harper

AIH dx 2009

[ ] Re: ?AIH

Hi ,

I am also new to this group. I was dx with AIH and PBC in Sept 2009. I have been

on a medication named Urso for the PBC but my doctor at Duke has not put me on

any medication for the AIH. From what limited knowledge I have, there are

different degrees of AIH and some people's disease level is not high enough to

take medication. The medication for AIH can have unpleasent side effects and I

personally would rather not take it unless I have to.

I think the doctors at Duke are good and will give you the best care they can.

Good luck. We are in this together.

Liz

Dx PBC stage 1. AIH. 9/2009

Sent from my iPhone

[Guest guest]

Ditto on the sigh regarding fatigue, Harper! For me it comes it comes and goes.

Last week I was full of pep and suddenly today, I'm dragging. When this

happens, I take naps no matter what time of the day it is.

I was diagnosed in June 2009. It took eight days in the hospital and finally a

liver biopsy to figure out why my liver was failing. For a while there, the

doctors thought I might need a transplant. I started with the usual round of

prednisone (20mg) and Imuran. Had to try a couple of immunosuppressants because

of bad side effects, but my current meds are keeping my numbers down. I was

told that if I hadn't started treatment, I would be dead in 10 years. Yes, my

current side effects of hair loss, moon face and numb hands are a pain in the

you know what. BUT, I am grateful that there are medications that are keeping

me alive!

Have a wonderful weekend everyone!!

Janet

AIH dx 2009

5mg Prednisone

250mg Cellcept

>

> Fatigue goes with liver disease. Sigh. However, make sure your doctors know

about it, know how severe it is. They may have some suggestions. You may feel

better soon.

>

>

> Many people on Prednisone feel over-active at night and are exhausted in the

daytime. Or they may feel exhausted in the daytime even if they sleep well at

night. Take naps whenever you can; it won't hurt your ability to sleep at night,

according to what people here have reported, and according to my experience.

Naps are really useful for us.

>

>

> Don't take any supplements, medications, even OTC, without discussing them

with your doctor. This is important.

>

>

> Re bones: Be sure to take your calcium with vitamin D. Dietary calcium is even

better, and weight-bearing exercise is helpful in maintaining bone density. This

is definitely the time to get a bone density scan as a baseline for the future.

Don't let it go.

>

>

> Accept any help that's offered. Let your family and close friends know that

you're tired, that you could use helping hands.

>

>

> Best wishes.

>

>

> Harper

> AIH dx 2009

>

>

>

>

>

> [ ] Re: ?AIH

>

> Hi ,

> I am also new to this group. I was dx with AIH and PBC in Sept 2009. I have

been on a medication named Urso for the PBC but my doctor at Duke has not put me

on any medication for the AIH. From what limited knowledge I have, there are

different degrees of AIH and some people's disease level is not high enough to

take medication. The medication for AIH can have unpleasent side effects and I

personally would rather not take it unless I have to.

>

> I think the doctors at Duke are good and will give you the best care they can.

Good luck. We are in this together.

>

> Liz

> Dx PBC stage 1. AIH. 9/2009

>

> Sent from my iPhone

>

>

[Guest guest]

Wow

Thanks so much for that that makes you cry and also feel like they talking

about me.

Helena

From: [mailto: ]

On Behalf Of Kay

Sent: Sunday, 17 January 2010 12:53 p.m.

Subject: [ ] Fatigue

Also, Helena, if you haven't it is good to read the Spoon Theory (But You

Don't Look Sick), and print it out to give anyone close to you who doesn't

understand how your " fatigue " is different from their feeling tired. Here

is the link:

http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf

Kay_TX, AIH/PBC

[Guest guest]

________________________________

From: Billie-jo Jary <Beamjary@...>

*JRA List < >

Sent: Sat, March 27, 2010 8:51:32 AM

Subject: Fatigue

 

Hello all! So far this year has been full of flares for a. March started off

good for her, but this last week she has been exhausted! She said she's " a

little achy, but not bad " , but she's actually falling asleep on the couch at

8:00 every night. Last night we had company and we were all playing games in the

basement. a just wanted to sit on the couch and watch. It was very loud...

her sister was very wound up, and a fell asleep! This is very unlike her. It

seems that her fatigue is getting worse. Our Rheumy sent us to an

endocrinologist because of the extreme fatigue, but the endo said she thinks

it's all JIA related... although we have not received all of her bloodwork back

(it's all repeat bloodwork). I know there is nothing " normal " about this

disease, but are your kidos this tired during a flare? Also, noone other than

close family notices, but when she is flaring she gets very pale... it's usually

my first sign.

Thanks again for all your support! This list helps keep me sane!!

Billie-jo and a (12 poly)

[Guest guest]

Hi Billie-Jo,

n is the same. The fatigue is a huge issue! She will get pale

with black circles under her eyes. We have found over the years that

rest is very, very important to n. It is sad to say and it does

hurt me as a mother, but I get some of the best visiting time in with

n when she is in bed. She might go do something and then she

comes home tired so she goes to her bed and will lie there playing on

her computer. I tell her to move over and a lie next beside her. I

visit with her, and we might watch a movie together. My number two

daughter wouldn't let me do that in a million years. So that time is

very special to me, but it hurts me to see my daughter struggle with

the disease. (n, 21, systemic)

On Mar 27, 2010, at 5:51 AM, Billie-jo Jary wrote:

> Hello all! So far this year has been full of flares for a.

> March started off good for her, but this last week she has been

> exhausted! She said she's " a little achy, but not bad " , but she's

> actually falling asleep on the couch at 8:00 every night. Last

> night we had company and we were all playing games in the basement.

> a just wanted to sit on the couch and watch. It was very

> loud... her sister was very wound up, and a fell asleep! This

> is very unlike her. It seems that her fatigue is getting worse. Our

> Rheumy sent us to an endocrinologist because of the extreme

> fatigue, but the endo said she thinks it's all JIA related...

> although we have not received all of her bloodwork back (it's all

> repeat bloodwork). I know there is nothing " normal " about this

> disease, but are your kidos this tired during a flare? Also, noone

> other than close family notices, but when she is flaring she gets

> very pale... it's usually my first sign.

> Thanks again for all your support! This list helps keep me sane!!

> Billie-jo and a (12 poly)

>

>