fatigue

May 11, 2010

Whoops...again I hit send in error. Anyway, is now finishing up kindy (2nd

time around by my choice...he has a summer b-day and his JIA was not controlled

in his first year of kindy.). Once he turned 6, last summer, the developmental

delay could no longer be the reason for his IEP...and we now realized his delays

were directly related to his JIA...so we changed it. The IEP now covers his

physical 'disability' and future potential physical disabilities, as well as his

speech, vision, and sensory processing issues.

Within the IEP, his attendence is covered. My suggestion is to begin the fight

for an IEP or 504...and yes it can be a fight...especially now with all the

budget cuts. But the school can not discriminate against our kids..luckily we

are blessed with a great home elementary school. I have never had much of a

battle...but I basically researched the heck out of this and went in with tons

of documentation and knew my and his rights.

Good luck,

& , 6, poly (04/09) plus a bunch of other stuff

Sent from my iPhone

May 11, 2010

ï»¿

has the revlimid improved your cll other than fatigue and have you ever had other treatment. Did you have enlarged nodes as well.

Yes, The Revlimid improved everything except platelets. The wbc is 4.9, and the red blood counts are in the low normal range. Most all my counts have been stabilized in normal ranges for about a year. I did have enlarged nodes, and the first few month on the Revlimid they enlarged even more. Revlimid is the only treatment I have been on.

May 11, 2010

ï»¿

Re: Fatigue

ï»¿ Thanks for all the suggestions. I will speak with my family doctor. I have an appointment Thursday, and then get in contact with Dr. O'Brien. I must do something. I find myself going back to bed most mornings.If I must get out during the day, I must rest up to manage it. I then come in and immediately rest for a couple of hours. Ruth

May 11, 2010

ï»¿

Congratulations it seems you are one of the few people that went to MDA and didn't do FCR. I'm happy it seems there is a less toxic alternative for cll now. Thank you

Re: Fatigue

ï»¿

has the revlimid improved your cll other than fatigue and have you ever had other treatment. Did you have enlarged nodes as well.

Yes, The Revlimid improved everything except platelets. The wbc is 4.9, and the red blood counts are in the low normal range. Most all my counts have been stabilized in normal ranges for about a year. I did have enlarged nodes, and the first few month on the Revlimid they enlarged even more. Revlimid is the only treatment I have been on.

May 11, 2010

How did you do your research? How do I find out my son's rights ?I have an IEP

meeting coming up and I would like to go in with documentation.

From: ahna08@...

Date: Tue, 11 May 2010 03:47:17 -0700

Subject: Re: Fatigue

Whoops...again I hit send in error. Anyway, is now finishing up kindy (2nd

time around by my choice...he has a summer b-day and his JIA was not controlled

in his first year of kindy.). Once he turned 6, last summer, the developmental

delay could no longer be the reason for his IEP...and we now realized his delays

were directly related to his JIA...so we changed it. The IEP now covers his

physical 'disability' and future potential physical disabilities, as well as his

speech, vision, and sensory processing issues.

Within the IEP, his attendence is covered. My suggestion is to begin the fight

for an IEP or 504...and yes it can be a fight...especially now with all the

budget cuts. But the school can not discriminate against our kids..luckily we

are blessed with a great home elementary school. I have never had much of a

battle...but I basically researched the heck out of this and went in with tons

of documentation and knew my and his rights.

Good luck,

& , 6, poly (04/09) plus a bunch of other stuff

Sent from my iPhone

_________________________________________________________________

Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox.

http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\

-US:WM_HMP:042010_1

May 11, 2010

()it seems you are one of the few people that went to MDA and didn't do

FCR.

I've been going to MDA and Revlimid was offered to me when I told them I would

not take FCR;which has too many permanent toxic effects, IMO.

I have SCLL and have not had treatment yet.

Thanks to all of the Revlimid alums for their input on this treatment.

evelyn

> Congratulations it seems you are one of the few people that went to MDA and

didn't do FCR. I'm happy it seems there is a less toxic alternative for cll now.

Thank you

> Re: Fatigue

>

> ï»¿

>

> has the revlimid improved your cll other than fatigue and have you ever had

other treatment. Did you have enlarged nodes as well.

>

> Yes, The Revlimid improved everything except platelets. The wbc is 4.9, and

the red blood counts are in the low normal range. Most all my counts have been

stabilized in normal ranges for about a year. I did have enlarged nodes, and the

first few month on the Revlimid they enlarged even more. Revlimid is the only

treatment I have been on.

>

June 14, 2010

I dont eat too many carbs. And the others arent a problem for me. I think

my problem is candida and/or adrenal exhaustion that is causing my fatigue

but im really not sure. My md is running some blood work but regular MD's

run basic stuff and really dont help me. I feel like a mess.

In a message dated 6/14/2010 2:52:42 P.M. Eastern Daylight Time,

bonnieview@... writes:

In my humble opinion FATIGUE can be caused by -

Blood pressure meds

Candida overgrowth in the Gut.

Antidepresant meds

Sleeping pills

Too many Carbs in the diet.

Malabsorption (and this one if often overlooked) possibly from undiagnosed

Celiac Disease.

ADRENAL EXHAUSTION caused from Stress.

Bonnie

[Non-text portions of this message have been removed]

June 14, 2010

:

All you need to do is have your doctor order A REAL ADRENAL TEST from

DignosTechs Lab near Seattle, Washington. It's not that expensive and is

covered by some plans.

It maps out your Adrenal Function for the entire day, from waking, noon,

afternoon and bedtime. Done very easily with 4 little WADS of COTTON, that

you set in your mouth for 5 minutes and it soaks up your saliva. Each one is

put in a VIAL and in the fridge. Shipped overnight, you'll have your results

within a week and you can go from there.

Adrenal Fatigue which I had 2 years ago is DEBILITATING. I couldn't get out

of bed in the mornings. Now I'm much better and have learned EXACTLY WHAT I

NEED TO TAKE FOR THIS.

ABSOLUTELY AMAZING at how much better I feel. All your doctor needs to do

is CALL THE LAB and sign up with them to have an account. Blood tests for

Adrenal Function are not that accurate.

GO FOR IT.

Bonnie

_____

From: candidiasis [mailto:candidiasis ] On

Behalf Of daisytiff228@...

Sent: June 14, 2010 4:13 PM

candidiasis

Subject: Re: Fatigue

I dont eat too many carbs. And the others arent a problem for me. I think

my problem is candida and/or adrenal exhaustion that is causing my fatigue

but im really not sure. My md is running some blood work but regular MD's

run basic stuff and really dont help me. I feel like a mess.

In a message dated 6/14/2010 2:52:42 P.M. Eastern Daylight Time,

bonnieview@... <mailto:bonnieview%40sympatico.ca> writes:

In my humble opinion FATIGUE can be caused by -

Blood pressure meds

Candida overgrowth in the Gut.

Antidepresant meds

Sleeping pills

Too many Carbs in the diet.

Malabsorption (and this one if often overlooked) possibly from undiagnosed

Celiac Disease.

ADRENAL EXHAUSTION caused from Stress.

Bonnie

June 14, 2010

Bonnie,

What sorts of things did you take for adrenal fatigue?

I suspect some of that here as well.

I'm taking iodine for starters.

>

> :

>

> All you need to do is have your doctor order A REAL ADRENAL TEST from

> DignosTechs Lab near Seattle, Washington. It's not that expensive and is

> covered by some plans.

>

> It maps out your Adrenal Function for the entire day, from waking, noon,

> afternoon and bedtime. Done very easily with 4 little WADS of COTTON, that

> you set in your mouth for 5 minutes and it soaks up your saliva. Each one is

> put in a VIAL and in the fridge. Shipped overnight, you'll have your results

> within a week and you can go from there.

>

> Adrenal Fatigue which I had 2 years ago is DEBILITATING. I couldn't get out

> of bed in the mornings. Now I'm much better and have learned EXACTLY WHAT I

> NEED TO TAKE FOR THIS.

>

> ABSOLUTELY AMAZING at how much better I feel. All your doctor needs to do

> is CALL THE LAB and sign up with them to have an account. Blood tests for

> Adrenal Function are not that accurate.

>

> GO FOR IT.

>

> Bonnie

>

> _____

>

> From: candidiasis [mailto:candidiasis ] On

> Behalf Of daisytiff228@...

> Sent: June 14, 2010 4:13 PM

> candidiasis

> Subject: Re: Fatigue

>

> I dont eat too many carbs. And the others arent a problem for me. I think

> my problem is candida and/or adrenal exhaustion that is causing my fatigue

> but im really not sure. My md is running some blood work but regular MD's

> run basic stuff and really dont help me. I feel like a mess.

>

> In a message dated 6/14/2010 2:52:42 P.M. Eastern Daylight Time,

> bonnieview@... <mailto:bonnieview%40sympatico.ca> writes:

>

> In my humble opinion FATIGUE can be caused by -

>

> Blood pressure meds

> Candida overgrowth in the Gut.

> Antidepresant meds

> Sleeping pills

> Too many Carbs in the diet.

> Malabsorption (and this one if often overlooked) possibly from undiagnosed

> Celiac Disease.

> ADRENAL EXHAUSTION caused from Stress.

>

> Bonnie

>

June 15, 2010

Bonnie

I have adrenal burnout . What did you do to get them back working again

Thanks brad

From: Bonnie Cole <bonnieview@...>

Subject: RE: Fatigue

candidiasis

Date: Monday, June 14, 2010, 4:40 PM

Â

:

All you need to do is have your doctor order A REAL ADRENAL TEST from

DignosTechs Lab near Seattle, Washington. It's not that expensive and is

covered by some plans.

It maps out your Adrenal Function for the entire day, from waking, noon,

afternoon and bedtime. Done very easily with 4 little WADS of COTTON, that

you set in your mouth for 5 minutes and it soaks up your saliva. Each one is

put in a VIAL and in the fridge. Shipped overnight, you'll have your results

within a week and you can go from there.

Adrenal Fatigue which I had 2 years ago is DEBILITATING. I couldn't get out

of bed in the mornings. Now I'm much better and have learned EXACTLY WHAT I

NEED TO TAKE FOR THIS.

ABSOLUTELY AMAZING at how much better I feel. All your doctor needs to do

is CALL THE LAB and sign up with them to have an account. Blood tests for

Adrenal Function are not that accurate.

GO FOR IT.

Bonnie

_____

From: candidiasis [mailto:candidiasis ] On

Behalf Of daisytiff228@...

Sent: June 14, 2010 4:13 PM

candidiasis

Subject: Re: Fatigue

I dont eat too many carbs. And the others arent a problem for me. I think

my problem is candida and/or adrenal exhaustion that is causing my fatigue

but im really not sure. My md is running some blood work but regular MD's

run basic stuff and really dont help me. I feel like a mess.

In a message dated 6/14/2010 2:52:42 P.M. Eastern Daylight Time,

bonnieview@... <mailto:bonnieview%40sympatico.ca> writes:

In my humble opinion FATIGUE can be caused by -

Blood pressure meds

Candida overgrowth in the Gut.

Antidepresant meds

Sleeping pills

Too many Carbs in the diet.

Malabsorption (and this one if often overlooked) possibly from undiagnosed

Celiac Disease.

ADRENAL EXHAUSTION caused from Stress.

Bonnie

December 21, 2010

Earlier in the year there was a claim that the chronic fatigue syndrome

was cause by the XMRV virus and there was concern that the fatigue in CLL

patients might have a similar cause. I have just spotted this report in the

Independent, which blows the thing out of the water.

British researchers, led by Professor Greg Towers of University College

London, believe that the DNA techniques used in the US research were so

sensitive that they inadvertently picked up laboratory contaminants that had

been in contact with XMRV, which normally infects mice.

" Our conclusion is quite simple: XMRV is not the cause of chronic fatigue

syndrome. Our evidence shows that the sequences from the virus genome in

cell culture have contaminated human chronic fatigue syndrome samples, "

Professor Towers said.

" It is vital to understand that we are not saying chronic fatigue syndrome

does not have a virus cause â€“ we cannot answer that yet â€“ but we know it

is not this virus causing it. "

Terry Hamblin MD

February 2, 2011

Hi Joe, your 24 hour urine thyroid function tests look fine. These

show the amount of thyroid hormone your body has used in the last 24 hours,

rather than the amount of thyroid hormone that is in the blood so are more

reliable than blood tests. Your cortisol level is high. What supplements are

you taking?

Did you ask your doctor to check your levels of ferritin,

vitamin B12, vitamin D3, magnesium, folate, copper and zinc?

Luv - Sheila

These are the results for my thyroid and adrenal. They were from a 24

hour urine test. These were done January 12, 2011. Is the 24 hour urine

test good for testing thyroid? There were other tests for Hematology,

Urinalysis, and Routine Chemistry.

Thyroid

Units Reference Range

Free T3 4.1 pmol/L 2.7 - 5.7

Free T4 15.6 pmol/L 10.0 - 25.0

TSH 1.16 mIU/L 0.20 - 6.0

Adrenal

Units Reference Range

Cortisol 343.1 H nmol/day 25.0 - 220.0

February 2, 2011

Thanks for the levothyroxine attachment. I thind I was doing a lot of

things wrong in taking it. How can a person tell if the thyroid hormone

is getting into and being used by the cells? Is the 24 hour urine as

as the saliva for thyroid?

On February 2, 2011 02:53:01 am Sheila wrote:

> From: Sheila <sheila@...>

> thyroid treatment

> Date:Today 02:53:01 am

> Â

> > What supplements are you taking?

Mega Halibut Liver Oil:

Vitamin A(Palmitate) 5500mcg(10,000 IU)

Vitamin D2(Ergocalciferol) 10mcg(400 IU)

Iodine (Trophic) 2 drops

Vitamin C 2000 mg

Vitamin B Complex

Zinc 50mg

Salmon Oil

Calcium Citrate 250 mg

Magnesium Citrate 1000mg

Acidophilus & Bifidus

> Did you ask your doctor to check your levels of ferritin, vitamin

> B12, vitamin D3, magnesium, folate, copper and zinc?

I have attached a pdf. She tested for some of those.

I saw a Naturopath and he gave me a few suggestions. I would like your

input on these. it was a short consult, and I'm wondering if it is

worth seeing further.

He suggested:

1. He thought the most important thing was chelation and detox and

suggested 'Ultra Clear Renewal from Metagenics. I didn't find this on

their website, but he says it can be ordered by practitioners.

What would you suggest for Chelation or detox?

2. B Complex Shots.

3. Gaba to bring down Cortisol levels.

4. For digestion: digestive enzymes, pineapple, apple cider vinegar.

I probably won't be able to start with all at once because of cost.

I'm am looking into seeing a Osteopathic doctor. I only found a couple

of places in Calgary, Alberta. Also a couple that do Chelation.

I also have an apointment to have a test for Lyme Disease to rule that

out.

1 of 1 File(s)

chemistry.pdf

March 10, 2011

knotweed - I have been using the CC and KW for a couple of yrs now. I can

only tolerate very low doses.

What would you say caused your fatigue problems and what do you think caused

them to cease?

My understanding is fatigue is part of the detoxing function - I added

UltraClear to help with my detoxing and fatigue. However, the fatigue and

general weakness have been going on for awhile.

_____

From:

[mailto: ] On Behalf Of knot_weed

Sent: Thursday, March 10, 2011 7:44 AM

Subject: [ ] Re: how long? Knotweed

>

> I've put myself on the core Buhner protocol for a month. It has caused an

increase in my symptoms, especially fatigue and drowsiness.

Are you on the full protocol now or just starting to build up? I think you

have to be on the full dose for 2 months before you can really tell if it is

working. It works much slower than ABX, an increase of symptoms in the first

weeks/months seems normal to me.

I had good improvement with Buhner herbs for neuro issues within a few weeks

(while still building up the dose). But some other problems gradually

dissolved over 1-2 years. e.g. I have been severely underweight from the

time I got Lyme, which got even worse after using ABX for a year (probably

damaged my gut ...). Using Buhner protocol and low gluten diet gradually

improved things.

I went from +/- 64kg before Lyme (low already for my size), to 55kg after

ABX, currently about 61.5 kg. I'm still very skinny and most of the

connective tissue under the skin etc. is still missing. It really takes

time. My fatigue problems started after a year of Buhner protocol (before

that I had very little fatigue problems). Almost 2 years later it's now

gradually disappearing. Very difficult to say what is working ...

March 10, 2011

>

> What would you say caused your fatigue problems and what do you think caused

> them to cease?

>

> My understanding is fatigue is part of the detoxing function - I added

> UltraClear to help with my detoxing and fatigue. However, the fatigue and

> general weakness have been going on for awhile.

good question, I don't know. But I agree that detox (and overstretched liver,

kidneys etc. related to that?) is a possible explanation.

From what I know many lymies have severe fatigue before they start treatment.

Maybe that is a sign that their body is trying to detox?

Maybe we will learn more in a few years with new research into CFS, MS and other

diseases where fatigue can be a major issue.

I have Eleuthero for the fatigue, but used it on a daily basis for only four

weeks. I was planning to continue taking it, but at the moment I'm not so good

at sticking to protocols ;(

September 9, 2011

grace,

After doing research, I have added Braggs Raw, Unfiltered Apple Cider Vinegar (ACV) with the Mother, and cayenne pepper daily along with the Iodine protocol. I get up at 4:30am to go to work and this has stopped me from the fatigue I have been experiencing.

Both ACV and cayenne pepper have many health benefits. Cayenne pepper helps improve blood circulation and even digestion among other benefits. Both are good for energy.

For any further discussion, this would have to be taken off topic. However, it is working for me.

Kathy T.

From: tobdncng@... <tobdncng@...>Subject: Topical Iodine use took away arm/wrist/hand pain in one day!Iodine Date: Thursday, September 8, 2011, 3:58 PM

Hi,I used some coconut oil last nite on my arm that has been numb when I wake up in the morning. I already had a C5-6 fusion 10 years ago and I think things are getting worse again. However, after putting the iodine/coconut oil on it, I don't know, I may just not even need the MRI the doctor is contemplating. I did have an MRI of my left hand and wrist yesterday and my right hand. I couldn't take any more holding it still because of the pain. So I scheduled the wrist part for next week. I only gave in to doing it because the pain was getting so bad and the numbness was going more and more up my arm. It was up to my elbow.

Now, maybe I won't even need anything more than the iodine! I also put some more on this morning and now it feels great. Using the mouse a lot causes strain on my right forearm too, and hopefully that won't hurt so much anymore either.

I also decided that since it helped my arm that I would put some on my neck, near where they did the fusion. I use my Cold Laser on it at times and on my hands, but it beeps loudly and is just too much for me at times, with all my fatigue. I know that sounds lame, but the fatigue is the reason I decided to add the Iodine Protocol to the LDN because it had helped so much and others who took it had been helped by the Iodine.

I am mystified as to why I still don't have more energy, but I hope with time that things will get better. I did add DMSO with my morning drink now and I seem to feel a bit better. I was saving some of my green drink (where I put the DMSO) for the evening and it kept me awake. So this AM I decided to put the portion for the evening in a glass first and then put the DMSO in the rest of the drink for the AM. I hope that helps. I am putting the TLC, salt, Vit. D and coconut oil in my drink as well.

OK, enough from me for now. Be well! And in case anyone asks again, I listed the supplements I take below. Along with all the companion nutrients. Glowing,grace~

5HTP, 100 mg

Adrenal Rebuilder

Alpha Lipoic Acid 300 mg

B-12 5000 mcg

Chelated Molybdenum

CoQ10 200 mg

D â€“ 20,000 IU

D-Phenalynine 500 mg

Dandelion Rt, 500 mg

GS Extract, 250 mg

HCL with Pepsin

Krill Oil,

LDN, 3 mg

Magnesium 1000 mg

Magnesium Oil

Malic Acid Complex

Melatonin, 5 mg

Melatonin, 10 mg, SR

Milk Thistle, 250 mg

Oregano Oil, 55%

Papapya Digestive Enz.

Resveratrol, 200 mg

Valerian Root, 500 mg

September 9, 2011

Kathy,

How much of each do you use?

Thanks,

From: tobdncng@... <tobdncng@...>Subject: Topical Iodine use took away arm/wrist/hand pain in one day!Iodine Date: Thursday, September 8, 2011, 3:58 PM

Hi,I used some coconut oil last nite on my arm that has been numb when I wake up in the morning. I already had a C5-6 fusion 10 years ago and I think things are getting worse again. However, after putting the iodine/coconut oil on it, I don't know, I may just not even need the MRI the doctor is contemplating. I did have an MRI of my left hand and wrist yesterday and my right hand. I couldn't take any more holding it still because of the pain. So I scheduled the wrist part for next week. I only gave in to doing it because the pain was getting so bad and the numbness was going more and more up my arm. It was up to my elbow.

Now, maybe I won't even need anything more than the iodine! I also put some more on this morning and now it feels great. Using the mouse a lot causes strain on my right forearm too, and hopefully that won't hurt so much anymore either.

I also decided that since it helped my arm that I would put some on my neck, near where they did the fusion. I use my Cold Laser on it at times and on my hands, but it beeps loudly and is just too much for me at times, with all my fatigue. I know that sounds lame, but the fatigue is the reason I decided to add the Iodine Protocol to the LDN because it had helped so much and others who took it had been helped by the Iodine.

I am mystified as to why I still don't have more energy, but I hope with time that things will get better. I did add DMSO with my morning drink now and I seem to feel a bit better. I was saving some of my green drink (where I put the DMSO) for the evening and it kept me awake. So this AM I decided to put the portion for the evening in a glass first and then put the DMSO in the rest of the drink for the AM. I hope that helps. I am putting the TLC, salt, Vit. D and coconut oil in my drink as well.

OK, enough from me for now. Be well! And in case anyone asks again, I listed the supplements I take below. Along with all the companion nutrients. Glowing,grace~

5HTP, 100 mg

Adrenal Rebuilder

Alpha Lipoic Acid 300 mg

B-12 5000 mcg

Chelated Molybdenum

CoQ10 200 mg

D â€“ 20,000 IU

D-Phenalynine 500 mg

Dandelion Rt, 500 mg

GS Extract, 250 mg

HCL with Pepsin

Krill Oil,

LDN, 3 mg

Magnesium 1000 mg

Magnesium Oil

Malic Acid Complex

Melatonin, 5 mg

Melatonin, 10 mg, SR

Milk Thistle, 250 mg

Oregano Oil, 55%

Papapya Digestive Enz.

Resveratrol, 200 mg

Valerian Root, 500 mg

September 9, 2011

Hi,First, thanks for getting my name right! And yes, I did have good Catholic parents. I gave it up for Lent though. (wink)

I have ACV and will add that in. It was really hard on my stomach though when I tried it before. I will try adding it to my green drink. It is getting fuller and fuller. I will have to get some cayenne pepper. Do you just use the kind from the grocery store? I will do a search on iherb since I am doing an order today.

Thanks for the info.

Glowing,grace~From: tobdncngaol <tobdncngaol>Subject: Topical Iodine use took away arm/wrist/hand pain in one day!Iodine Date: Thursday, September 8, 2011, 3:58 PMHi,I used some coconut oil last nite on my arm that has been numb when I wake up in the morning. I already had a C5-6 fusion 10 years ago and I think things are getting worse again. However, after putting the iodine/coconut oil on it, I don't know, I may just not even need the MRI the doctor is contemplating. I did have an MRI of my left hand and wrist yesterday and my right hand. I couldn't take any more holding it still because of the pain. So I scheduled the wrist part for next week. I only gave in to doing it because the pain was getting so bad and the numbness was going more and more up my arm. It was up to my elbow. Now, maybe I won't even need anything more than the iodine! I also put some more on this morning and now it feels great. Using the mouse a lot causes strain on my right forearm too, and hopefully that won't hurt so much anymore either. I also decided that since it helped my arm that I would put some on my neck, near where they did the fusion. I use my Cold Laser on it at times and on my hands, but it beeps loudly and is just too much for me at times, with all my fatigue. I know that sounds lame, but the fatigue is the reason I decided to add the Iodine Protocol to the LDN because it had helped so much and others who took it had been helped by the Iodine. I am mystified as to why I still don't have more energy, but I hope with time that things will get better. I did add DMSO with my morning drink now and I seem to feel a bit better. I was saving some of my green drink (where I put the DMSO) for the evening and it kept me awake. So this AM I decided to put the portion for the evening in a glass first and then put the DMSO in the rest of the drink for the AM. I hope that helps. I am putting the TLC, salt, Vit. D and coconut oil in my drink as well. OK, enough from me for now. Be well! And in case anyone asks again, I listed the supplements I take below. Along with all the companion nutrients. Glowing,grace~

October 5, 2011

I'm fine, work everyday in my shop, no restrictions on food, all the

tests the doctors have run are perfect, no heart damage at all

I'm down to a 81mg aspirin and a quarter tablet of 25mg Atenolol

once per day....plus Serrapeptase, C0Q10 & Krill Oil.

How about you?

Lee...

On 10/5/2011 3:30 AM, Jay Selberg wrote:

Thanks so much, Lee, good to hear

from you. How is your heart now and are you taking anything

to prevent future issues? That, of course, is my big

concern. thanks, Jay

One solution is to stop taking Lipitor....that stuff damned

near killed me...Once I stopped (two years ago) the aches

and pains stopped, a good night's rest returned and my

strength started to get back to normal......Cholesterol does

NOT cause plaque buildup. I've had two heart attacks since

1991 and my cholesterol has never exceeded 147....

Lee...

October 6, 2011

Substitute K2 for the aspirin, too much bad press on aspirin coming out.Mike From: Lipitor [mailto:Lipitor ] On Behalf Of Lee SchelinSent: Wednesday, October 05, 2011 10:38 AMLipitor Subject: Re: fatigue I'm fine, work everyday in my shop, no restrictions on food, all the tests the doctors have run are perfect, no heart damage at allI'm down to a 81mg aspirin and a quarter tablet of 25mg Atenolol once per day....plus Serrapeptase, C0Q10 & Krill Oil.How about you?Lee...On 10/5/2011 3:30 AM, Jay Selberg wrote: Thanks so much, Lee, good to hear from you. How is your heart now and are you taking anything to prevent future issues? That, of course, is my big concern. thanks, Jay One solution is to stop taking Lipitor....that stuff damned near killed me...Once I stopped (two years ago) the aches and pains stopped, a good night's rest returned and my strength started to get back to normal......Cholesterol does NOT cause plaque buildup. I've had two heart attacks since 1991 and my cholesterol has never exceeded 147....Lee...

October 6, 2011

Jay:Please have your testosterone level checked. It is well known that statins interfere with the body's hormone production processes, especially testosterone. A low testosterone level lowers your metabolic rate, which results in weight gain. It also affect your mood. In my case, statins (Lipitor) resulted in a clinical level of depression, in addition to the following: constant fatigue, muscle weakness, weight gain, mental fog, tinnitus, and morning stiffness in both hands, among other symptoms. Testosterone replacement therapy worked wonders for the mood disorder and the fatigue issues. I also stopped all statin use and 4 months later have begun to see real improvements in all symptoms.Good luck,Dave. On 2-Oct-11, at 6:32 PM, stephen ottridge wrote: good luck Jay. I stopped my statins back in 2003 after they caused severe nerve damage. I take a regular aspirin when I remember, about once every 2 weeks. I also take every day Serrapeptase, a 60,000 IU capsule and 500mg Vitamin C. My sense of balance is still somewhat shot but I have no problem with energy other than being a man of 69.From: Jay <jselber1@...>Lipitor Sent: Wednesday, September 28, 2011 6:45 AMSubject: fatigue Hi, I am a new member of this group and in search of more information. I was just given info last weekend concerning the statin controversy and now I am intrigued. I have been on Lipitor since the late 1990s and have suffered major and chronic fatigue since the early 2000s. As I grew more fatigued, I gained weight, developed sleep apnea, then type 2 diabetes, and then, despite the Lipitor having kept my cholesterol low, I had 2 heart attacks 3 years ago within 2 hours of each other, then a quadruple bypass 3 days later, having had a 90% blockage in one artery and a 70% in the other. I am still on Lipitor and still have low cholesterol. And still sleep excessively, 9-11 hours a night. During the day, I feel at about 70% capacity. When I asked my doctor how could I possibly have had such plaque build up despite my very low cholesterol, he said it was "probably genetic." I am at wits end about the quality of life issue with the fatigue and excessive sleeping. I work 9 hours a day, commute 2 hours a day, and so you can see there's not much time for anything else after working and sleeping. My social life has become nil. After reading that 50% of those who suffered heart attacks had low cholesterol, I figured what the heck. Low cholesterol doesn't SEEM to control plaque build up. Is this right? I stopped taking my Lipitor last Saturday and take my aspirin, still am taking my Tricor (not a statin) and am now taking vitamin supplements and CoQ10 (300mgs). IF my chronic fatigue is statin induced, can anyone tell me what the possibility of reversing this scourge? I feel strongly at this point that if by stopping my statin AND if I start to get a better quality of life back, it's a good thing. But, if there is no change, then I will have to reconsider my actions. I have been tested for everything possible--Lyme disease, thyroid, anemia, etc. Still have not discussed with my PCP. I see my pulmonoligist in 2 weeks to discuss my sleep apnea. I had lapband surgery 2 years ago and have dropped from 250 pounds to 185 (I am 5'5") and despite the weight loss, I need more sleep than ever and still have no more energy. She isn't sure why... At any rate, what a relief to discover this site and the info you provide. I am reading as fast as my little eyes can go! Please, if someone who also has any thoughts to share, I am wide open to hear them! best, Jay in Maine.

October 7, 2011

Testosterone is produced from cholesterol, so it makes sense. Same thing happened to me. Alternate email: marooned@...Bobby- Your Caribbean Travel Plannerwww.pinkystravel.com International Destinations, Resorts, Vacation PackagesPhilippine Destination SpecialistFrom: davidturgeon <davidturgeon@...>Lipitor Sent: Thursday, October 6, 2011 6:38 PMSubject: Re: fatigue

Jay:Please have your testosterone level checked. It is well known that statins interfere with the body's hormone production processes, especially testosterone. A low testosterone level lowers your metabolic rate, which results in weight gain. It also affect your mood. In my case, statins (Lipitor) resulted in a clinical level of depression, in addition to the following: constant fatigue, muscle weakness, weight gain, mental fog, tinnitus, and morning stiffness in both hands, among other symptoms. Testosterone replacement therapy worked wonders for the mood disorder and the fatigue issues. I also stopped all statin use and 4 months later have begun to see real improvements in all symptoms.Good luck,Dave. On 2-Oct-11, at 6:32 PM, stephen ottridge wrote: good luck Jay. I stopped my statins back in 2003 after they caused severe nerve damage. I take a regular aspirin when I remember, about once every 2 weeks. I also take every day Serrapeptase, a 60,000 IU capsule and 500mg Vitamin C. My sense of balance is still somewhat shot but I have no problem with energy other than being a man of 69.From: Jay <jselber1@...>Lipitor Sent: Wednesday, September 28, 2011 6:45 AMSubject: fatigue Hi, I am a new member of this group and in search of more information. I was just given info last weekend concerning the statin controversy and now I am intrigued. I have been on Lipitor since the late 1990s and have

suffered major and chronic fatigue since the early 2000s. As I grew more fatigued, I gained weight, developed sleep apnea, then type 2 diabetes, and then, despite the Lipitor having kept my cholesterol low, I had 2 heart attacks 3 years ago within 2 hours of each other, then a quadruple bypass 3 days later, having had a 90% blockage in one artery and a 70% in the other. I am still on Lipitor and still have low cholesterol. And still sleep excessively, 9-11 hours a night. During the day, I feel at about 70% capacity. When I asked my doctor how could I possibly have had such plaque build up despite my very low cholesterol, he said it was "probably genetic." I am at wits end about the quality of life issue with the fatigue and excessive sleeping. I work 9 hours a day, commute 2 hours a day, and so you can see there's not much time for anything else after working and sleeping. My social life has become nil. After reading

that 50% of those who suffered heart attacks had low cholesterol, I figured what the heck. Low cholesterol doesn't SEEM to control plaque build up. Is this right? I stopped taking my Lipitor last Saturday and take my aspirin, still am taking my Tricor (not a statin) and am now taking vitamin supplements and CoQ10 (300mgs). IF my chronic fatigue is statin induced, can anyone tell me what the possibility of reversing this scourge? I feel strongly at this point that if by stopping my statin AND if I start to get a better quality of life back, it's a good thing. But, if there is no change, then I will have to reconsider my actions. I have been tested for everything possible--Lyme disease, thyroid, anemia, etc. Still have not discussed with my PCP. I see my pulmonoligist in 2 weeks to discuss my sleep apnea. I had lapband surgery 2 years ago and have dropped from 250 pounds to 185 (I am 5'5") and despite the weight loss, I

need more sleep than ever and still have no more energy. She isn't sure why... At any rate, what a relief to discover this site and the info you provide. I am reading as fast as my little eyes can go! Please, if someone who also has any thoughts to share, I am wide open to hear them! best, Jay in Maine.

2-Oct-11, at 6:32 PM, stephen ottridge wrote: good luck Jay. I stopped my statins back in 2003 after they caused severe nerve damage. I take a regular aspirin when I remember, about once every 2 weeks. I also take every day Serrapeptase, a 60,000 IU capsule and 500mg Vitamin C. My sense of balance is still somewhat shot but I have no problem with energy other than being a man of 69.From: Jay <jselber1@...>Lipitor Sent: Wednesday, September 28, 2011 6:45 AMSubject: fatigue Hi, I am a new member of this group and in search of more information. I was just given info last weekend concerning the statin controversy and now I am

intrigued. I have been on Lipitor since the late 1990s and have suffered major and chronic fatigue since the early 2000s. As I grew more fatigued, I gained weight, developed sleep apnea, then type 2 diabetes, and then, despite the Lipitor having kept my cholesterol low, I had 2 heart attacks 3 years ago within 2 hours of each other, then a quadruple bypass 3 days later, having had a 90% blockage in one artery and a 70% in the other. I am still on Lipitor and still have low cholesterol. And still sleep excessively, 9-11 hours a night. During the day, I feel at about 70% capacity. When I asked my doctor how could I possibly have had such plaque build up despite my very low cholesterol, he said it was "probably genetic." I am at wits end about the quality of life issue with the fatigue and excessive sleeping. I work 9 hours a day, commute 2 hours a day, and so you can see there's not much time for anything else after working and

sleeping. My social life has become nil. After reading that 50% of those who suffered heart attacks had low cholesterol, I figured what the heck. Low cholesterol doesn't SEEM to control plaque build up. Is this right? I stopped taking my Lipitor last Saturday and take my aspirin, still am taking my Tricor (not a statin) and am now taking vitamin supplements and CoQ10 (300mgs). IF my chronic fatigue is statin induced, can anyone tell me what the possibility of reversing this scourge? I feel strongly at this point that if by stopping my statin AND if I start to get a better quality of life back, it's a good thing. But, if there is no change, then I will have to reconsider my actions. I have been tested for everything possible--Lyme disease, thyroid, anemia, etc. Still have not discussed with my PCP. I see my pulmonoligist in 2 weeks to discuss my sleep apnea. I had lapband surgery 2 years ago and have dropped

from 250 pounds to 185 (I am 5'5") and despite the weight loss, I need more sleep than ever and still have no more energy. She isn't sure why... At any rate, what a relief to discover this site and the info you provide. I am reading as fast as my little eyes can go! Please, if someone who also has any thoughts to share, I am wide open to hear them! best, Jay in Maine.

October 7, 2011