fatigue

[Guest guest]

Hi,

Casey is definitely not alone with this. Fatigue has always been one of the

most prominent features of my son's arthritis symptoms, too. Like said

of n, he seems to need a lot more rest and sleep ... especially when

he's having a flare but even when he's not. Like your daughter, Josh gets

at least 9 1/2 hours of sleep every night and will often have a nap right

after getting home from school, too. There's a form of anemia that often

goes along with chronic illness, one that doesn't seem as able to be treated

the usual way - with additional iron supplementation. The body, when experiencing

active arthritis, often just doesn't process or absorb iron in the regular

way. When the arthritis isn't so active anymore, this often clears up again.

We used to joke with about being the new Rip van Winkle. Especially

during the period when he was having fevers with regularity, he sometimes

seemed to spend more time sleeping than in an awake state. His body needed

the rest. Weirdly enough, also seems to feel more tired after his

MTX shot. Even into the next day, sometimes. Not so much, now that he's taking

it just every other week, but that's another one of the side effects that

not too many people have that he did. How long has Casey been taking Methotrexate?

Maybe you'll see some positive effects from the higher dose, in getting her

symptoms under control. I sure hope so. You'll both be in our thoughts.

Take Care,

Georgina

WILLIAM PRICE wrote:

When n is flaring she will go to bed right after school. When n

is doing well, she still doesn't have the same amount of energy as a normal

teenager. She fatigues easy. (n, 14, systemic)

----- Original Message -----

From: "ChiaOwl" <chiaowl@...>

Besides the physical pain and inflammation and stiffness problems, Casey's

having a LOT of problems with fatigue. By lunchtime she's leaning sideways

in her w/c, she falls asleep in school, sleeps at least a couple of hours

after school, and 10 hours/night. She's on vitamins and eats VERY well (she

prefers green peppers to chocolate, just to give you an idea <G>). Dr. D

said there's no reason for her to be so fatigued, she's on 5 mg. of pred/day

(tapering, will be off in a few days altogether), 225 naproxin a.m. and p.m. with 500 mg. acetaminophen in the afternoon, and 15 mg. mtx/week (will be

20 mg subQ starting next dose). My question is, is fatigue a problem with others as well, or is there something else I should be looking at/for?

Sherry (Casey - 12 today - poly)

[Guest guest]

Sherry,

I can remember when I was first sick and all with the jra the docs thought I had mono and that is what they decided it was that when it wasnt but , thanks to my wonderful mom she wouldnt give up and kept taking me to diffrent docs so needless to say after numerous numerous hospitilations it was finally at OSU Hospital that I was diagnosed with jra and cmv as well. I did have my record s from then but they were lost I'm wondering if well they could helped now in 's case in any event his rheumy is out of the conutry and will be till June 2nd week in June .

Bye,

Teena, 13 jra

[Guest guest]

Thanks for everyone's input on this, parents and vets both . When I

mentioned it to Dr. D., he said that fatigue isn't part of JRA. But I knew

that Casey was very active and some nights would get by on 7-8 hours of

sleep because she couldn't stop yet...suddenly (within a few days) start

wanting to sleep ALL the time. I had also wondered if it was an escape, one

way she was coping with suddenly being " grounded " , also... But I'm also

aware that often we're told something SHOULDN'T be, when it is obviously IS.

I will follow my instincts - as it sounds like you all do - and let her

sleep as she needs to, I guess that's about all I can do anyway .

Thanks very much! Great group here...I'm so glad I found you!

Sherry

http://www.ittybittybirdiebites.com

MAY SPECIALS - http://www.ittybittybirdiebites.com/special0305.html

NEW!! Berry Birdie Bites© www.ittybittybirdiebites.com/BerryBites.html

[Guest guest]

Yes it does help . Casey's neck is also affected. Her teacher assigns

someone to help her each day in class with things, but she has to learn to

make her needs known. For example, the other day she was seated at a table

and the teacher was talking to the class behind her. Rather than ask for

someone to turn her chair around, she was trying to twist her head to see.

I work at home but can't leave the house during the day. Pete works nights

and has been spending a great deal of time in her classroom, he walked in to

see that, and we've been working on ways that she can make her needs known

to her " assistant " without feeling like she's asking for too much.

The other kids in the class actually argue over who gets to be her assistant

each day, and when Pete drops her off in the mornings, there is her group of

girlfriends at the door, waiting to escort her in . So I think her fears

of being too " demanding " are somewhat unfounded, she's got such a kind heart

and has always been a " giver " , she's having a hard time asking for help for

herself.

But I regress...just wanted to mention the bit about turning to see the

teacher, and her neck involvement, and got all carried away .

Thanks for your post Janette!

Sherry

http://www.ittybittybirdiebites.com

MAY SPECIALS - http://www.ittybittybirdiebites.com/special0305.html

NEW!! Berry Birdie Bites© www.ittybittybirdiebites.com/BerryBites.html

----- Original Message -----

From: " Janette McKinnie " <j.mckinnie@...>

My son Mark is 7, and he would have problems with fatigue. I think it's

exhausting having pain a lot of the time. Mark's JRA is in his neck, and I

think carrying around that burden all day is very tiring. i hope it helps

to know that other have this problem too.

[Guest guest]

airlinerg was u on aldacton for a while or r u still and how long was it . i am on it and it just wears me out.

i quit the novasc cuz of the side afects i hate that stuff!!

Fatigue

I am tired all the time, and I am currently taking:Midamor (amiloride) 5 mg.Norvasc (amlipodine) 5 mg.My doctor recently prescribed a medication which was approved in December for attention deficit disorder called Strattera (atomoxetine.)Can anyone advise?Does Norvasc cause drowsiness from your experience?Thanks.

[Guest guest]

In training myself at T3T4, I found that if I got sleepy/fatigued,

the setting was too low. If I continued to train at that setting or

lower, I would be dragging for the rest of the day and the next, and

would also be somewhat depressed. I learned not to train at a

setting in which I was fighting falling asleep.

Cyd

[Guest guest]

In a message dated 6/19/04 4:09:55 PM Pacific Daylight Time,

lakes25@... writes:

> Does anyone else have this problem with fatigue and if so what can

> be done about it. Also what are the effects that I would feel if I

> stop taking the Lexapro?

i don't know about getting off lexapro, but i think it is best to do it

gradually. if you have mono, i'd advise getting your thyroid and adrenal

functions

checked. the hypo can be done with a blood test. i say this because i had it

too, and epstien barr, and now, years later, i was just diagnosed with

hypothyroidism. the fatigue and depression have been so debilitating and

devastating

that i started taking wellbutrin a week before i got my thyroid test back. i

don't know if i'm depressed or suffering from the thyroid (depression and

fatigue are serious symptoms of hypothyroid). this is not to say that you are

not

depressed and in need of extra help, but please look into additional causes, as

ruling out other illnesses can never hurt. plus, it will empower you to know

the truth. if you are hypo thyroid, i also recommend signing onto the " thyroid "

group. i have learned so much from these members. they are caring and

educated and could answer many of your questions. good luck. you could also try

going to google.com and looking up lexapro, in particular, decreasing dosage

or sife effects. best, peg

[Guest guest]

In a message dated 6/19/04 6:33:33 PM Pacific Daylight Time,

lakes25@... writes:

> Peg,

> Thanks for the advise. I am a 27 male so I don't really think that

> hypothyroidism would be something that I would need to worry about.

> Thanks again and good luck to you!

> Steve

steve, hypothyroidism can effect men. it's not just a woman's disease. my

doctor is a man, and he suffered from it for years. my father also had it. maybe

keep it in mind. good luck to you. peg

[Guest guest]

Oh yes, big time fatigue--where you need toothpicks to hold open your eyes! Ha!

Mine lasted about 8 weeks but now it's finally gone. So give it some time. I

know it stinks, but it may really help you. I'm also on Xanax which also helps

with the anxiety. I haven't tried stopping Lex yet, so I can't tell you about

those effects. Good luck!

Deb

Fatigue

I was diagnaosed with mono about 2 months ago. About 5 weeks ago

during a visit to my doctor I told him I started to have anxiety.

No sooner did the words come out of my mouth did he hand me a 3 week

supply of Lexapro. I took it for the 3 weeks and he then gave me a

prescription for another 3 months. I have pretty much experienced

each of the side effects that people describe here but my biggest

problem is fatigue. Obviously fatigue is the number 1 result of

mono but I am begining to think that a lot of it has to do with the

Lexapro. I have never taken any anti-depression medication nor have

I ever had anxiety before. I am begining to wonder if the doctor

was too quick to give me this medicine.

Some days I feel as though I just can't get myself to wake up. I

feel like I walk around in a fog all day.

Does anyone else have this problem with fatigue and if so what can

be done about it. Also what are the effects that I would feel if I

stop taking the Lexapro?

Any advice is appreciated.

Thank you

[Guest guest]

Thanks for your help Deb!

I'm going to stick it out and hope that it will go away.

Thanks again,

Steve

> Oh yes, big time fatigue--where you need toothpicks to hold open

your eyes! Ha! Mine lasted about 8 weeks but now it's finally

gone. So give it some time. I know it stinks, but it may really

help you. I'm also on Xanax which also helps with the anxiety. I

haven't tried stopping Lex yet, so I can't tell you about those

effects. Good luck!

>

> Deb

> Fatigue

>

>

> I was diagnaosed with mono about 2 months ago. About 5 weeks

ago

> during a visit to my doctor I told him I started to have

anxiety.

> No sooner did the words come out of my mouth did he hand me a 3

week

> supply of Lexapro. I took it for the 3 weeks and he then gave

me a

> prescription for another 3 months. I have pretty much

experienced

> each of the side effects that people describe here but my

biggest

> problem is fatigue. Obviously fatigue is the number 1 result of

> mono but I am begining to think that a lot of it has to do with

the

> Lexapro. I have never taken any anti-depression medication nor

have

> I ever had anxiety before. I am begining to wonder if the

doctor

> was too quick to give me this medicine.

> Some days I feel as though I just can't get myself to wake up.

I

> feel like I walk around in a fog all day.

> Does anyone else have this problem with fatigue and if so what

can

> be done about it. Also what are the effects that I would feel

if I

> stop taking the Lexapro?

> Any advice is appreciated.

> Thank you

>

>

>

[Guest guest]

Peg,

Thanks for the advise. I am a 27 male so I don't really think that

hypothyroidism would be something that I would need to worry about.

Thanks again and good luck to you!

Steve

> In a message dated 6/19/04 4:09:55 PM Pacific Daylight Time,

> lakes25@y... writes:

>

>

> > Does anyone else have this problem with fatigue and if so what

can

> > be done about it. Also what are the effects that I would feel

if I

> > stop taking the Lexapro?

>

> i don't know about getting off lexapro, but i think it is best to

do it

> gradually. if you have mono, i'd advise getting your thyroid and

adrenal functions

> checked. the hypo can be done with a blood test. i say this

because i had it

> too, and epstien barr, and now, years later, i was just diagnosed

with

> hypothyroidism. the fatigue and depression have been so

debilitating and devastating

> that i started taking wellbutrin a week before i got my thyroid

test back. i

> don't know if i'm depressed or suffering from the thyroid

(depression and

> fatigue are serious symptoms of hypothyroid). this is not to say

that you are not

> depressed and in need of extra help, but please look into

additional causes, as

> ruling out other illnesses can never hurt. plus, it will empower

you to know

> the truth. if you are hypo thyroid, i also recommend signing onto

the " thyroid "

> group. i have learned so much from these members. they are

caring and

> educated and could answer many of your questions. good luck. you

could also try

> going to google.com and looking up lexapro, in particular,

decreasing dosage

> or sife effects. best, peg

>

>

>

[Guest guest]

In a message dated 6/20/04 1:44:45 AM Pacific Daylight Time,

lifeisbeautiful2004@... writes:

> When I had Mono, I was sick for almost three months. I am almost 5ft-7 and

> I dropped to 95 pounds! I was bedridden and so tired I missed a trimester of

> school. It took me many weeks after the 3 months to get back on my feet, so I

> bet a lot of the fatigue may be related to the mono. I take Lexapro now (I

> use to take Zoloft) and I also take Wellbutrin and Effexor. I noticed a lot of

> fatigue with the Zoloft.

goodness! that's a lot of weight loss. were you eating? did you have energy

to eat? i had epstein barr in college and lost a ton of weight too. i have

hypothyroid now and just lay around my house, totally exhausted. i'm on

wellbutrin

to help with the energy and depression. xx peg

[Guest guest]

I had that fog all day on Paxil but not on Lexapro.

As with all medication, weaning should be a slow process. Take your time

getting off of it or you'll get some nasty withdrawal effects.

Thea

Fatigue

> I was diagnaosed with mono about 2 months ago. About 5 weeks ago

> during a visit to my doctor I told him I started to have anxiety.

> No sooner did the words come out of my mouth did he hand me a 3 week

> supply of Lexapro. I took it for the 3 weeks and he then gave me a

> prescription for another 3 months. I have pretty much experienced

> each of the side effects that people describe here but my biggest

> problem is fatigue. Obviously fatigue is the number 1 result of

> mono but I am begining to think that a lot of it has to do with the

> Lexapro. I have never taken any anti-depression medication nor have

> I ever had anxiety before. I am begining to wonder if the doctor

> was too quick to give me this medicine.

> Some days I feel as though I just can't get myself to wake up. I

> feel like I walk around in a fog all day.

> Does anyone else have this problem with fatigue and if so what can

> be done about it. Also what are the effects that I would feel if I

> stop taking the Lexapro?

> Any advice is appreciated.

> Thank you

>

>

>

>

>

>

[Guest guest]

Thea, thanks for the input.

I saw my dr yesterday and told him that I want off. He told me to

take the same does (10 mg) every other day for the next few days.

Has anyone found this as a good way to taper off of Lexapro? I have

only been taking 10 mg a day for about 5 weeks or so.

Thanks,

Steve

> I had that fog all day on Paxil but not on Lexapro.

> As with all medication, weaning should be a slow process. Take

your time

> getting off of it or you'll get some nasty withdrawal effects.

> Thea

> Fatigue

>

>

> > I was diagnaosed with mono about 2 months ago. About 5 weeks ago

> > during a visit to my doctor I told him I started to have anxiety.

> > No sooner did the words come out of my mouth did he hand me a 3

week

> > supply of Lexapro. I took it for the 3 weeks and he then gave

me a

> > prescription for another 3 months. I have pretty much

experienced

> > each of the side effects that people describe here but my biggest

> > problem is fatigue. Obviously fatigue is the number 1 result of

> > mono but I am begining to think that a lot of it has to do with

the

> > Lexapro. I have never taken any anti-depression medication nor

have

> > I ever had anxiety before. I am begining to wonder if the doctor

> > was too quick to give me this medicine.

> > Some days I feel as though I just can't get myself to wake up. I

> > feel like I walk around in a fog all day.

> > Does anyone else have this problem with fatigue and if so what

can

> > be done about it. Also what are the effects that I would feel

if I

> > stop taking the Lexapro?

> > Any advice is appreciated.

> > Thank you

> >

> >

> >

> >

> >

> >

[Guest guest]

You said any advice welcome, and I have been fighting this demon

fatigue for a long time. Along with candi, have Hemochromatosis

which causes profound fatigue, and 3 strains of Mycoplasma bacteria

that has come back, but am dealing with via Doxycycline.

Here's what I've learned, take it with a grain of salt:

Got to take probiotics DAILY.

Got to have B vitamins, with extra B-6 and extra B-12. Injectible

B-12 is available from Canadian drug stores w/o a prescription, so I

give myself a shot twice a week.

With this eating, fainting thing, could be something like low blood

sugar. You might want to research that.

Got to replenish Glutathione. If you research this, you will find

that body stores get used up with chronic health issues, and your

body's level of glutathione determines how long you will live. This

is available in Whey powders. There are lots to choose from, just be

sure it hasn't been heated.

Got to supply amino acids. I take Enzymatic Therapy Fatigued to

Fantastic citrus fruit drink mix, and can tell a big difference if I

miss even one day. I would recommend this product to anyone with

fatigue issues.

Do some reading on nitric acid. This is a big issue in fatigue. You

may need alpha-ketoglutarate acid. I highly recommend Source

Naturals K-Mag, which has that along with potassium & magnesium.

Hope any little bit of this helps!

> Hi, anyone can give me advice on fatigue? I'm extremely fatigued

all

> the time, is this candida itself or am I doing something wrong?

What

> can I do to help with this? I was thinking of doing a liver flush

> but if I don't eat at least every 4 hours I feel faint. I'm having

> an operation to remove a lump of my breast and I know that the

> anaesthetic is going to make me even more tired and I'm a bit

> concerned about it. Any feedback would be great. Thanks.

[Guest guest]

Fatigue has been my biggest issue for more than 2 years. What is your lifestyle

like? How many things do you have on the go?

Treat the candida problem but also take time to address your lifestyle and

stress management techniques.

Also, consider your adrenal glands. they pump out the hormones needs to keep us

awake.. when they ahve been overused they do not work properly and can result in

tiredness, hypoglicimia type symptomes etc..... When I started to eat more

protein throughout the day, took time for myself every day...... did less....

and took adrenal bovine supplements to get them stronger... it make a BIG

difference.

All the liver flushes and supplements can get you back to a better state.. but

in the end life changes make hte difference.....

student with fatigue issues and candida

Fatigue

Hi, anyone can give me advice on fatigue? I'm extremely fatigued all

the time, is this candida itself or am I doing something wrong? What

can I do to help with this? I was thinking of doing a liver flush

but if I don't eat at least every 4 hours I feel faint. I'm having

an operation to remove a lump of my breast and I know that the

anaesthetic is going to make me even more tired and I'm a bit

concerned about it. Any feedback would be great. Thanks.

[Guest guest]

Hi ,

I'm actually off work at the moment and yes, I do feel stress about the whole

recovery process despite not doing much at the moment.

My kinesiologist tells me that my adrenals are fine, but perhaps I should try

the bovine supplements as you say that way I can do the liver flush cause at the

moment I can't as I get really weak if I don't eat.

I do eat a lot of protein and get as much sleep as I can although I do get

sleepless nights every now and again.

Thanks for your tips

Sara

Rose <heather.rose@...> wrote:

Fatigue has been my biggest issue for more than 2 years. What is your lifestyle

like? How many things do you have on the go?

Treat the candida problem but also take time to address your lifestyle and

stress management techniques.

Also, consider your adrenal glands. they pump out the hormones needs to keep us

awake.. when they ahve been overused they do not work properly and can result in

tiredness, hypoglicimia type symptomes etc..... When I started to eat more

protein throughout the day, took time for myself every day...... did less....

and took adrenal bovine supplements to get them stronger... it make a BIG

difference.

All the liver flushes and supplements can get you back to a better state.. but

in the end life changes make hte difference.....

student with fatigue issues and candida

---------------------------------

ALL-NEW Messenger - all new features - even more fun!

[Guest guest]

Patriot,

> With this eating, fainting thing, could be something like low blood

> sugar. You might want to research that.

>

> Do some reading on nitric acid. This is a big issue in fatigue. You

Would that be nitric OXIDE?

> may need alpha-ketoglutarate acid. I highly recommend Source Naturals

> K-Mag, which has that along with potassium & magnesium.

>

> Hope any little bit of this helps!

Another big issue in fatigue is low HGH secretion. Increasing HGH

secretion works wonders in most disorders by allowing energy reserves

to recover more quickly, allowing healing to occur too, ect.... HGH

is a requirement for healing.

One clue besides illness that someone needs HGH increase is age; if

one is over 35 the person could probably benefit; if one is over 45

definitely, and that's even in healthy people with no energy deficit.

In order to make best use of increased HGH release, bring up oxygen

levels and use mineral supplements too, and you're already taking

steps to reduce toxin load.

Duncan Crow

[Guest guest]

Hi there,

Where in Canada do you live?

I've never heard you could get B shots from the pharmacy here in Toronto.

Where did you get this?? Enzymatic Therapy Fatigued & the Fantastic citrus

fruit drink mix

How long have you been on it & can you ever go off it?

Thanks

Re: Fatigue

You said any advice welcome, and I have been fighting this demon

fatigue for a long time. Along with candi, have Hemochromatosis

which causes profound fatigue, and 3 strains of Mycoplasma bacteria

that has come back, but am dealing with via Doxycycline.

Here's what I've learned, take it with a grain of salt:

Got to take probiotics DAILY.

Got to have B vitamins, with extra B-6 and extra B-12. Injectible

B-12 is available from Canadian drug stores w/o a prescription, so I

give myself a shot twice a week.

With this eating, fainting thing, could be something like low blood

sugar. You might want to research that.

Got to replenish Glutathione. If you research this, you will find

that body stores get used up with chronic health issues, and your

body's level of glutathione determines how long you will live. This

is available in Whey powders. There are lots to choose from, just be

sure it hasn't been heated.

Got to supply amino acids. I take Enzymatic Therapy Fatigued to

Fantastic citrus fruit drink mix, and can tell a big difference if I

miss even one day. I would recommend this product to anyone with

fatigue issues.

Do some reading on nitric acid. This is a big issue in fatigue. You

may need alpha-ketoglutarate acid. I highly recommend Source

Naturals K-Mag, which has that along with potassium & magnesium.

Hope any little bit of this helps!

> Hi, anyone can give me advice on fatigue? I'm extremely fatigued

all

> the time, is this candida itself or am I doing something wrong?

What

> can I do to help with this? I was thinking of doing a liver flush

> but if I don't eat at least every 4 hours I feel faint. I'm having

> an operation to remove a lump of my breast and I know that the

> anaesthetic is going to make me even more tired and I'm a bit

> concerned about it. Any feedback would be great. Thanks.

[Guest guest]

Sierra, I live with fatique every day, I think it's just one of the

symptoms with RA. I would sure talk to the rheumy see if there are

any idea's, take care T

>

> Anyone have a problem with fatigue that they were able to overcome?

> I wish I could accomplish more, but fatigue holds me back. I'll be

> seeing my rheumy in a few weeks.

>

> Sierra

[Guest guest]

Sierra,

Like RA and fibro, people like me with Dercum's have to deal with

fatigue too. Yesterday I bottomed out and slept most of the day but

today I'm feeling more like myself. I think part of the problem

comes from trying to do the things like I used to do " before " and

that makes me more tired. I started taking MSM with Glucosamine

several weeks ago and it has helped some with my energy level.

I don't think the fatigue ever really leaves, we just have to learn

how to deal with it differently. Just learn to rest when you feel

the need, and save up energy for things that you need to do.

Patience!

Judi

[Guest guest]

Eliminating dairy from my diet seemed to make a big difference for me,

Sierra.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] fatigue

>

>

> Anyone have a problem with fatigue that they were able to overcome?

> I wish I could accomplish more, but fatigue holds me back. I'll be

> seeing my rheumy in a few weeks.

>

> Sierra

[Guest guest]

> Eliminating dairy from my diet seemed to make a big difference for

me,

> Sierra.

>

>

>

Thanks, . I'm off dairy products, too. RA made me examine and

overhaul my dietary habits like never before.

Three things helped with the fatigue yesterday: a visit to the

chiropractor, time spent on artwork (an activity I love), and a swim

at the YMCA (with requisite whirlpool soak and steambath). I realized

yesterday that I'm overdue for acupuncture--that really increases

energy.

Someone here wrote " Be patient, " that's advice I took to heart. I do

need to be patient and accepting of the gap between my desire to do

certain things and my actual capacity. When I posted, I had just

returned from someone's very (amazingly) clean house, and I was

feeling sort of down about not being to keep up with my housework.

Sierra

[Guest guest]

When I get in a bad flare it is almost like I took a sleeping pill or something.

I have even fallen asleep right in the middle of singing in the choir!

Semalee

[ ] fatigue

Anyone have a problem with fatigue that they were able to overcome?

I wish I could accomplish more, but fatigue holds me back. I'll be

seeing my rheumy in a few weeks.

Sierra

[Guest guest]

How long have you felt this fatique?

Has it been for the entire three years, or just recently?

Fatique accompanies so many conditions...it may or may

not be completely related to your thyroid condition.

Chronic infection, adrenal problems and poor nutrition

just to name a few...could be underlying.

C.