Re: Re: Is Post Lyme Disease Syndrome the same as Chronic Lyme or distinct from it?

March 22, 2011

My LLMD, Cameron, recently published research which supports the theory

that Bb can persistent despite abx treatment.. Unfortunately, I can't remember

how I found it. He's probably doing research at Columbia in NYC, though his

practice is in the suburbs.

In fact ILADS has a printable brochure entitled " Top Ten Tips To Prevent Chronic

Lyme Disease " , edited by Dr. Cameron. You can probably find it through ILADS

website.

[ ] Re: Is Post Lyme Disease Syndrome the same as Chronic

Lyme or distinct from it?

>

> I've had PLDS that's flared up and down for 17 years and have constantly treid

to find treatment though GPs in New York, took part in a Stoneybrook University

Hospital Chronic Lyme study, where Western Blots and a spinal tap returned

negative results.

just to be sure: with PLDS you mean you had Lyme (EM/positive test), were

treated with ABX for some time and still have complaints many years later? For

me it's just chronic Lyme, PLDS is an invention of some people who don't want to

accept the reality of Lyme disease.

> Are there any options for people with PLDS. Indeed, is there anything credible

written on the topic?

IMHO there is hardly any good research, mostly thanks (NOT ...) to some of the

people who wrote the article you mention. At least Wormser now admits that PLDS

is not 'just in the mind' and that there is something objectively different

(wrong?) with these patients that can be tested.

The bad thing is that he still talks about 'antecedent infection' etc., meaning

that they are convinced the Borrelia infection is gone, which is nonsense IMHO

(too much evidence of the contrary for most chronic patients). And because of

this, they are still doing the wrong research. I fear that there will be no real

progress until Wormser, Marques etc. retire from the research community

At the moment I think your only options are 'lifestyle changes' and trying

different ABX, herbs and detox protocols until you find a combination that works

for you ...

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