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Knotweed - Re: OT: painful soles

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> Everything you talk about I have, I don't think the broken veins/vein pain

> is age, I'm the same age as you and have all the same problems, a few

> years ago I had none of this and no blemishes on my body. My 22 y/o

> daughter is experiencing the same problems, so I believe it's not age

> related but Bartonella, etc.

thanks, interesting ... it seems to be a relatively rare combination of

symptoms. I don't know anyone in my country who has this. Maybe I should check

again if there are better/other Bartonella tests available (previous two

negative Bart tests were both from the lab in Cologne, that has a good

reputation for tickborne infection diagnosis).

> The spiros like to hide in the jaw on some people, I'm one of those lucky

> one's. I've heard it all, you have tmj, the cracking/popping is normal,

> you need a root canal (did it, it didn't make the pain go away), had teeth

> pulled, had all kinds of nightguards made, etc. not working.

I had a root canal about 5 years ago (with nothing visible on X-rays). I already

had obvious lyme symptoms then like shooting pains (radiculitis), but the root

canal really got things started.

They get

> into the nerves running along the jaw (5th cranial I believe) and just

> under the teeth, for a few days I have no pain and then I have pain for a

> few days, I think it's a cycle that they're feeding, then the pain stops

> for a few days, it actually moves around my mouth to different areas. I

> believe it's bartonella.

maybe some cycle in your immune system? My experience is that many Lyme pains

move around after a few days, and reappear in another spot. Does Bart have a

known cycle? (I know very little about Bart ...).

> I believe every

> step I've taken along the way has helped in some way, but I can't seem to

> get over the hump and get to that 80 or 90% recovery rate that people talk

> about.

same story here. I think everyone has clostridium diff., but in some persons it

tends to get out of control easily. Probably related to the 'microbiome'

(bacterial population in the gut etc.) or immune system. For me ABX is now also

for when I'm really desperate, because of the side effects. I haven't used them

for 3.5 years.

Trouble is, there are so many things that are wrong that you don't know where to

start :(

> I'd love to know how to block the QS so the little buggers can't

> communicate anymore and die!

we need a lot more research there, e.g. we still don't know for sure if Borrelia

uses QS (it has all the machinery to use it, so why not ...). Several of the

tick coinfections use QS (which means they could reinforce each other).

For the moment the only option is using QS blockers like garlic and andrographis

to 'silence' the bugs and possibly disrupt their communications and biofilm

protection. But we don't know what treatment would work (dose, duration etc.).

Although it doesn't directly kill, QS can also disrupt friendly bacteria e.g. in

the gut or skin, so you still have to be cautious.

I think that in ten years or so we will know a lot more about QS, and be able to

use more targeted communications for specific bacteria. That will probably prove

that a lot of the old herbal wisdom has a solid foundation that science has just

started to discover ;)

The Chinese are really starting to pick up this type of research so I'm hopefull

(they are very open about Lyme, and not under the IDSA spell like researchers in

US and most of Europe).

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