OT: Kim

[Guest guest]

Hi Kim,

They did put me on an antidepress. sleep meds (ambien) which after awhile

didn't work, I'm not on anything anymore.

The IV rocephrin actually made my anxiety better, go figure.

I'm going to try melatonin and also L-tryptophan, I hear good things about

both of them.

Thanks!

From:

Kim Ovrutsky <KTOvrutsky@...>

To:

Date:

03/11/2011 10:16 AM

Subject:

Re: [ ] OT: painful soles-

Sent by:

,

I seem to only have Lyme (through testing & symptoms) and I was diagnosed

(finally after 6 years) because of mood swings and crying jags.

Psychiatric symptoms are very common with late stage Neuro Lyme. In fact

one of the foremost LLMDs is a Neuro-Psychiatrist. And Buhner is

an herbalist and a psychotherapist.

I used to get anxiety attacks and severe depression (especially on IV

rocephin). I was convinced to go on an antidepressant by LLMD. Hope to

wean myself this spring.

Would you consider going on Rx for anxiety and mood swings? Would

melatonin help with insomnia?

Wishing you better days and nights ahead

Kim

[ ] painful soles

Sent by:

>

> you maybe right in many things.

> I am 36 years old now and I am sure that I have been ill since 2007 but

that

> time I had minor problems only but very specific to bart or lyme,

painful soles,

> especially in the morning, profound fatigue, sleep disorders and so on.

I don't think fatigue, sleep disorders are specific enough to point to

lyme - they can occur with many diseases (including vitamin deficits and

several other infections).

Don't know about painful soles, depending on where the pain is it seems to

be specific for Bart indeed.

I have had painful soles for a long time myself, also mostly in the

morning. It is important where the pain is, some sites (pain radiating

from joints, tendons) point to Borrelia, and others to Bart. I have been

tested two times for Bart infection, but nothing has been found, I only

have a proven Borrelia (garinii) infection.

My soles look weird when standing on a hard floor for a short time.

Initially the soles of hand and feet got very red when light pressure was

applied. Same symptom for the rest of my skin with even light pressure.

This problem started right after ABX treatment with doxy and plaquenil;

the redness gradually got less intense when I stopped the plaquenil

treatment.

After standing for a minute or so it looks like all the blood in my soles

has disappeared and the soles looks mostly yellow, but with a very

irregular, blotchy pattern. The soles get completely flat and if I'm not

careful they really 'stick' to the bathroom floor. Looks pretty scary, but

when sitting down it returns to normal quickly, within a few minutes.

After about 4 years the pain is now mostly gone, but it sometimes appears

again for some weeks, often in a slightly different part of the pads. The

effect of blood (?) disappearing when standing etc. is still there. I

don't know what it is and doctors don't know either, they don't seem

interested in figuring out. I'm guessing something is wrong with the blood

flow in the small veins, damage to the autonomous nervous system or the

smallest veins maybe (could be caused by both Bart and Bb).

For the pads on my hands/fingers this used to be a severe problem, I was

unable to handle small tools or knives, forks etc. without damaging my

pads. This has improved, but I still have to be careful and use leather

gloves when I have to use some force.

Does that description sound familiar, or do you only have pain in the pads

of the feet?

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