Finding help in PA

[Guest guest]

Is anyone aware of an LLMD in central PA? My experience has been with: family

docs who failed to diagnose the really obvious (and sent to ER for suspected

appendicitis, a CAT scan we refused, and Avelox for ear infections), a great DO

who gets it, but whose practice is so overwhelmed she cannot take on Lyme's, and

an Infectious Disease Specialist who talked about himself 45 minutes, didn't

examine me or take a close look at my med records, and assured me I did not have

Lyme's because I'd taken two weeks of Doxycycline...but sure seemed excited to

have another patient on the roles. My summer 'positive' western blot went

through Quest, I believe, when 10 weeks into extremely debilitating illness &

was read as early Lyme's. By the time Doxycycline was started, I'd lost muscle

tone/control of half my face and hands were numb. I feel unusually good -

normal - after a round of Doxycycline, and start getting fatigued about 7-8 days

later. Resveratrol & Andrographis definitely help, yet for four months I've had

to resume antibiotics after a couple more weeks. This month I ran out of

Andrographis while taking Ceftin and now seem to be back at a very low point

with muscles exhausted from the slightest exertion. The only time I've ever

experienced this was with last year's Lyme's.

I've been on a metal chelation program several years and have well documented

low immune function. The doctor I see needs to have some grasp of genetic

issues relating to hay metal accumulation. We have a specialist on the east

coast, but the time-cost-distance involved make it very hard to get in as

needed.

Distance is an issue. I have a hard time driving more than 1 1/2 hrs,

especially when doing poorly. Maybe this is common to the group, but my local

doc visits & lab work usually happen on days I'm doing better, which is probably

counterproductive.

Thanks,

Joanne