New Here..

[Guest guest]

Welcome to the group Meena,

You don't sound stupid at all and you have every right to be paranoid.

Our daughter also has CP and had her first seizure at age 13. They

automatically wanted to put her on medication but we choose not to as

we had no way of knowing if this was just a freak occurrence.

(possibly brought on by hormonal changes...she started her period

exactly one month after ??). Turned out she went seizure free for 3

years after that intial seizure. However, at age 16 they started

again beginning with abstentee seizures. The seizures were few and

far between so we kept her off the meds. while I began the exhaustive

search for causes and alternatives. Then one day she went into a

status seizure and at that point we began medication. They choose

Lamictal for her and she has been on a small dose ever since...that

was about 3 years ago now.

It wasn't until after that incident that I found this site. There

are other options to try before using medication and hopefully you

will hear about some of them from other members.

I would try Homeopathy, Traditional Chinese Medicine, Supplements,

anything before resorting to medication especially at the onset.

Pay attention to what he's eating and do your best to avoid all the

neurotoxins...aspartame,msg,sulphites etc.

The best thing you can do is keep reading. Read Read Read.

Best of luck to you and your family.

Sophie

>

> Hi,

> I joined this group today and have few questions.

>

> My son has cerebral palsy and is 9 years old. He started having

> seizures now frequently and the neuro recommends Trileptal. I have

been

> reading about the various side effects of Anti seizure meds

including

> Trileptal, Lamictal. One such terrible fatal side effect is

> Syndrome (SJS). I developed SJS and had third degree burns

and

> I am now severely allergic to many medications.. I am wondering if

my

> son would react the same way like me. I may be paranoid and sound

> stupid, but it's a question of life and death.

>

> Any one has any input, please email me.

>

> Thanks in adance

>

> Meena

>

[Guest guest]

Meena,

You might want to go to the Life Extension site and review their protocol for

Epilepsy. It is in the book you receive when you become a member of the

organization. It addresses the nutritional needs of seizure patients. You might

want to also consider twice yearly amino acid profile blood tests that give you

an indication of which ones are low and the general status of these very

important factors in seizure control. Taurine, L-theanine, manganese, Vit E, and

others are all involved with seizure control. Be careful where you get your

amino acids because not all suppliers give you what is on the label. Life

Extension and VitaCost are good suppliers that I have used for years because

they have ethical policies that they talk about and seem to have ongoing quality

control. You will also need to know what the level of vitamins and minerals are

for you children. I will be posting a source for this kind of blood test in the

coming weeks when I get the information at the end of

this month. I have found the amino acid profile tests from Quest Labs in CA to

be consistent over the years and seem to make some kind of sense in relation to

the my supplementation. These are the things that I do personally and I do not

recommend them as medical or diagnosis tic suggestions.

Good Luck

Meena <nkmeena@...> wrote:

Hi,

I joined this group today and have few questions.

My son has cerebral palsy and is 9 years old. He started having

seizures now frequently and the neuro recommends Trileptal. I have been

reading about the various side effects of Anti seizure meds including

Trileptal, Lamictal. One such terrible fatal side effect is

Syndrome (SJS). I developed SJS and had third degree burns and

I am now severely allergic to many medications.. I am wondering if my

son would react the same way like me. I may be paranoid and sound

stupid, but it's a question of life and death.

Any one has any input, please email me.

Thanks in adance

Meena

[Guest guest]

Hi Meena-

I don't think you are paranoid at all. I'm not a doctor, but based on

experience I would be wary of having your son take the medication. I

take Lamictal--I also hate it by the way, but maybe ask your doctor

about Keppra. It didn't work for me, (it worked for the seizures--it

just made me extremely emotional), but I don't think SJS is a side

effect.

>

[Guest guest]

Thank you all for your reply... Last two days, I wasn't able to brwose

net and so took some time to reply.

We had our neuro appt (2nd opinion)..We discussed in length about my

allergic raction to Tegretol and the concerns regd the risk factor SJS.

Also, in the clinic, my son went into a freezing mode and the Dr said

that was a seizure. We were all along thinking that he was scared or

having some kind of phobia. My son is non verbal and so by his face

expression, I try to understand if he is in pain or in distress.If this

was called as seizure, then this has been happening atleast 50 times a

day at different intervals. So the Dr highly recommended us to go for

seizure medications. We are not interested in medicating him until

today's visot. But if he is getting seizures 50 times a day, we felt

that he should be on medication to control them to some extent. Am I

right ?.

Now the medication which he recommeds is Keppra.. any input or thoughts

on keppra?.

Also he is already on supplements like Vit B 6(follinic acid), Mag

citrate, Omega 3 DHA, Vit E which the Dr said would be fine to give

along with keppra.. Until yesterday we have been giving him homeopathic

medicines.. Now I am not sure how keppra and homeo meds would react. My

homeo is from India.. Will need to check with him, since the

neurologist may not welcome this.. Any one giving both seizure med and

Homeo together for their child

I am glad to see many replies for my email. Thanks so much for your

support.

Regards,

Meena

>

> Hi Meena-

>

> I don't think you are paranoid at all. I'm not a doctor, but based

on

> experience I would be wary of having your son take the medication. I

> take Lamictal--I also hate it by the way, but maybe ask your doctor

> about Keppra. It didn't work for me, (it worked for the seizures--it

> just made me extremely emotional), but I don't think SJS is a side

> effect.

> >

>

[Guest guest]

Meena ,I am on Keppa I have taken almost all the meds to be taken for seizure I

was having at least 2-3 a day same type blank on my face and some other things.

I have had a good experience with Keppa I have had little side affects not much

I think the side affect are from the other drug I take which is also for my

seizures. I was told I had seizures 3 years ago have not been able to drive for

2 years and won't even take the chance to. I have seizures about once a month

and are able to work for how long I have no Idea.

As far as your son I can only tell you for myself but I am happy with the

medicines I take now. I feel normal which has not happened in a very long time

as long as I get my sleep and I eat right that is a big part of it all I

think.As far as homepathic I have taken some other vitamins I thought were

helping me but once they ran out I stoped for a while and I notice no difference

that is me now I wish you good luck on your son and yourself my peace be with

you .

Meena <nkmeena@...> wrote:

Thank you all for your reply... Last two days, I wasn't able to brwose

net and so took some time to reply.

We had our neuro appt (2nd opinion)..We discussed in length about my

allergic raction to Tegretol and the concerns regd the risk factor SJS.

Also, in the clinic, my son went into a freezing mode and the Dr said

that was a seizure. We were all along thinking that he was scared or

having some kind of phobia. My son is non verbal and so by his face

expression, I try to understand if he is in pain or in distress.If this

was called as seizure, then this has been happening atleast 50 times a

day at different intervals. So the Dr highly recommended us to go for

seizure medications. We are not interested in medicating him until

today's visot. But if he is getting seizures 50 times a day, we felt

that he should be on medication to control them to some extent. Am I

right ?.

Now the medication which he recommeds is Keppra.. any input or thoughts

on keppra?.

Also he is already on supplements like Vit B 6(follinic acid), Mag

citrate, Omega 3 DHA, Vit E which the Dr said would be fine to give

along with keppra.. Until yesterday we have been giving him homeopathic

medicines.. Now I am not sure how keppra and homeo meds would react. My

homeo is from India.. Will need to check with him, since the

neurologist may not welcome this.. Any one giving both seizure med and

Homeo together for their child

I am glad to see many replies for my email. Thanks so much for your

support.

Regards,

Meena

>

> Hi Meena-

>

> I don't think you are paranoid at all. I'm not a doctor, but based

on

> experience I would be wary of having your son take the medication. I

> take Lamictal--I also hate it by the way, but maybe ask your doctor

> about Keppra. It didn't work for me, (it worked for the seizures--it

> just made me extremely emotional), but I don't think SJS is a side

> effect.

> >

>

---------------------------------

Food fight? Enjoy some healthy debate

in the Answers Food & Drink Q & A.

[Guest guest]

Hi Meena,

I do homeopathy along iwth AED's for my son. My personal opinion is that the

homeo stuff has allowed his body to be as healthy as possible, which then allows

the meds to work. No med worked on him until we got him healthy.

The vit's you're doing are great for the brain. Sometimes kids need a little

more help than just homeo stuff. Keppra did not work for my son and gave him

horrible rage, but for other kids it's a lifesaver. Unfortunately, it's all

trial and error. I hope you have better luck than we did. But, you're starting

out in a much better place than we did.

I would keep up with the homeo stuff and slowly try the AED.

Just curious, what type of sz did the neuro dx your son with?

Take care,

[Guest guest]

Dear Meena,

My son too sufferes from seziures but Homeopathy has really helped him. My

homeo too is from India. Best of luck.

Sush

Meena <nkmeena@...> wrote:

Thank you all for your reply... Last two days, I wasn't able to brwose

net and so took some time to reply.

We had our neuro appt (2nd opinion)..We discussed in length about my

allergic raction to Tegretol and the concerns regd the risk factor SJS.

Also, in the clinic, my son went into a freezing mode and the Dr said

that was a seizure. We were all along thinking that he was scared or

having some kind of phobia. My son is non verbal and so by his face

expression, I try to understand if he is in pain or in distress.If this

was called as seizure, then this has been happening atleast 50 times a

day at different intervals. So the Dr highly recommended us to go for

seizure medications. We are not interested in medicating him until

today's visot. But if he is getting seizures 50 times a day, we felt

that he should be on medication to control them to some extent. Am I

right ?.

Now the medication which he recommeds is Keppra.. any input or thoughts

on keppra?.

Also he is already on supplements like Vit B 6(follinic acid), Mag

citrate, Omega 3 DHA, Vit E which the Dr said would be fine to give

along with keppra.. Until yesterday we have been giving him homeopathic

medicines.. Now I am not sure how keppra and homeo meds would react. My

homeo is from India.. Will need to check with him, since the

neurologist may not welcome this.. Any one giving both seizure med and

Homeo together for their child

I am glad to see many replies for my email. Thanks so much for your

support.

Regards,

Meena

>

> Hi Meena-

>

> I don't think you are paranoid at all. I'm not a doctor, but based

on

> experience I would be wary of having your son take the medication. I

> take Lamictal--I also hate it by the way, but maybe ask your doctor

> about Keppra. It didn't work for me, (it worked for the seizures--it

> just made me extremely emotional), but I don't think SJS is a side

> effect.

> >

>

Sushmaa

---------------------------------

Here’s a new way to find what you're looking for - Answers

[Guest guest]

Hi Meena,

My son Nishanth is on Trileptal from the past 12 months and is doing

great.Only that when

ever he has an infection cold or fever he tends to have a seizure and

Trileptal is not working for him during infections.

But according to my neurologist Trileptal is the most latest and wonderful

drug with least side effects.

So for him right now we are using a combination of Trileptal and Keppra and he

is doing good.

But we beleive that the medicines what ever they may be do cause delays in

their over all development.

Regards,

Suma

Meena <nkmeena@...> wrote:

Hi,

I joined this group today and have few questions.

My son has cerebral palsy and is 9 years old. He started having

seizures now frequently and the neuro recommends Trileptal. I have been

reading about the various side effects of Anti seizure meds including

Trileptal, Lamictal. One such terrible fatal side effect is

Syndrome (SJS). I developed SJS and had third degree burns and

I am now severely allergic to many medications.. I am wondering if my

son would react the same way like me. I may be paranoid and sound

stupid, but it's a question of life and death.

Any one has any input, please email me.

Thanks in adance

Meena

---------------------------------

8:00? 8:25? 8:40? Find a flick in no time

with the Search movie showtime shortcut.

[Guest guest]

My son is also on Trileptal for over a year now and hasn't had a seizure

since he started the medication. I was told that after two years seizure free

he goes off the medication. I am nervous about this. Has anybody taken there

kid off seizure meds and did they start seizuring again?

Kim

************************************** See what's free at http://www.aol.com.

[Guest guest]

km,

Be careful of this kind of black and white thinking about medications for your

son. The medical model and most neurologists think something this: " I have a

particular training that I am sure or almost sure is the right approach to take.

It is sanctified by the AMA and many of my colleagues, who I respect and agree

with. We are medical doctors with a great deal of training and we basically know

what we can do in relation to the drug information and statistics that we

receive from the studies that are often sponsored or paid for by the drug

companies. We will take your son off the medication after he has reach a certain

period of time without any seizures. If he has anymore seizure than we will put

him back on the medications and wait again until he goes through another period

without seizures. "

There are three hugh holes in this kind of thinking. One, the cause of the

seizures are never addressed with this medication approach. Two, the doctor

probably has little or no experience with nutritional supports or approaches to

seizure control as well as other alternative approaches that are common in other

countries. And three, the doctor is usually limited in his knowledge of other

medications that are not being presented to him by the drug company reps or the

American publications that deal with epilepsy. He or she might read other

English publications but they would almost never try any medication that is not

approved by the FDA, which is highly impacted and compromised by the drug

industry pressures. And probably the most obvious problem with this thinking is

what I like to call the " Drop them off the cliff " approach of titration and then

elimination of highly powerful medications without any other support or

buffering supports for the body. If you took Dilantin

and then stopped it, even if you did not have seizure before you starting

taking it, you probably would have seizures. Of course, if you stopped it slowly

this may or may not happen.

The period of time that starts with the withdraw of the Trileptal (I take this

medication) and its final days of use should be filled with alternative and

supportive addon's for your son. This is a time when his body will go through a

major realignment. You would have to support him in all the ways that this site

talks about. You have to have a program in place long before you withdraw the

Trileptal. You also have to realize that this medication will have a

PSYCHOLOGICAL affect on him and his social and educational life. If he really

does not have any side effects than I would be very surprised. Depression is

very common with AED's. The alternative medications and other approaches that

are talked about on this site as well any other logical, sane approaches that

seem to be appropriate could continue after he is off the Trileptal. For

instance, Taurine, Vit E, B-Complex, L-Theanine and many other supports that

address both the anxieties and support the inhibitory functions

of the brain can be investigated. Many of these can be started safely when he

is on the Trileptal.The good news is that after two years without seizure you

have an excellent chance that he will not have anymore. Also, you have two years

to formulate a plan of attack that would take him for the years to follow. If

you are lucky your doctor will work with you in creating a program of this

nature that is tailored to your son's needs.

These are just thoughts that I have had over the years and do not represent

any medical advice on my part, Most of them I have tried or are using

personally.

Good Hunting,

km359@... wrote:

My son is also on Trileptal for over a year now and hasn't had a

seizure

since he started the medication. I was told that after two years seizure free

he goes off the medication. I am nervous about this. Has anybody taken there

kid off seizure meds and did they start seizuring again?

Kim

************************************** See what's free at http://www.aol.com.

[Guest guest]

,

I could not have said it better myself. One thing to

add; You will NEVER hear a neuro tell you about ALL

the causes of seizures, like simple allergies,

chemicals to avoid, vit deficiencies- These are things

that do not require a prescription.....

--- <mindcb45@...> wrote:

> km,

>

> Be careful of this kind of black and white

> thinking about medications for your son. The medical

> model and most neurologists think something this: " I

> have a particular training that I am sure or almost

> sure is the right approach to take. It is sanctified

> by the AMA and many of my colleagues, who I respect

> and agree with. We are medical doctors with a great

> deal of training and we basically know what we can

> do in relation to the drug information and

> statistics that we receive from the studies that are

> often sponsored or paid for by the drug companies.

> We will take your son off the medication after he

> has reach a certain period of time without any

> seizures. If he has anymore seizure than we will put

> him back on the medications and wait again until he

> goes through another period without seizures. "

>

> There are three hugh holes in this kind of

> thinking. One, the cause of the seizures are never

> addressed with this medication approach. Two, the

> doctor probably has little or no experience with

> nutritional supports or approaches to seizure

> control as well as other alternative approaches that

> are common in other countries. And three, the

> doctor is usually limited in his knowledge of other

> medications that are not being presented to him by

> the drug company reps or the American publications

> that deal with epilepsy. He or she might read other

> English publications but they would almost never try

> any medication that is not approved by the FDA,

> which is highly impacted and compromised by the drug

> industry pressures. And probably the most obvious

> problem with this thinking is what I like to call

> the " Drop them off the cliff " approach of titration

> and then elimination of highly powerful medications

> without any other support or buffering supports for

> the body. If you took Dilantin

> and then stopped it, even if you did not have

> seizure before you starting taking it, you probably

> would have seizures. Of course, if you stopped it

> slowly this may or may not happen.

>

> The period of time that starts with the withdraw

> of the Trileptal (I take this medication) and its

> final days of use should be filled with alternative

> and supportive addon's for your son. This is a time

> when his body will go through a major realignment.

> You would have to support him in all the ways that

> this site talks about. You have to have a program in

> place long before you withdraw the Trileptal. You

> also have to realize that this medication will have

> a PSYCHOLOGICAL affect on him and his social and

> educational life. If he really does not have any

> side effects than I would be very surprised.

> Depression is very common with AED's. The

> alternative medications and other approaches that

> are talked about on this site as well any other

> logical, sane approaches that seem to be appropriate

> could continue after he is off the Trileptal. For

> instance, Taurine, Vit E, B-Complex, L-Theanine and

> many other supports that address both the anxieties

> and support the inhibitory functions

> of the brain can be investigated. Many of these can

> be started safely when he is on the Trileptal.The

> good news is that after two years without seizure

> you have an excellent chance that he will not have

> anymore. Also, you have two years to formulate a

> plan of attack that would take him for the years to

> follow. If you are lucky your doctor will work with

> you in creating a program of this nature that is

> tailored to your son's needs.

>

> These are just thoughts that I have had over the

> years and do not represent any medical advice on my

> part, Most of them I have tried or are using

> personally.

>

> Good Hunting,

>

>

>

>

>

> km359@... wrote:

> My son is also on Trileptal for over a

> year now and hasn't had a seizure

> since he started the medication. I was told that

> after two years seizure free

> he goes off the medication. I am nervous about this.

> Has anybody taken there

> kid off seizure meds and did they start seizuring

> again?

>

> Kim

>

> ************************************** See what's

> free at http://www.aol.com.

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and

lay it on us. http://surveylink./gmrs/_panel_invite.asp?a=7

[Guest guest]

Hi!

I am just adding to your comment about how dr's wean people off

drugs too quickly. Our son had a severe problem develop in his bone

marrow due to what was believed to be Depakote about a year or more

ago. He had been seizure free for 3 months and was on lots of

supplements and we did want to try reducing meds, but never believed

he was able to get rid totally of all of it or even all of one of

the 3 he was/is on. Anyhow, it was decided to take him all the way

off Depakote, his main defense, and then try something else if he

started having problems. He wanted me to take him down by 250 mg a

week and that was just TOO fast. I lagged way behind and did not do

it that way. I also used his Valium, of which he only takes .5 at

night, to help buffer the effects. I used instinct and gut feelings

all the way. And, of course, I knew his body very well and

could " read " him and adjust to meet what I knew he needed. Instead

of dropping him 250 mg at one time I took about 10 days to break the

pill down gradually 250 mg. I would write down each day what I did

that day and how I thought I should break the pill the next day. I

tended to take him down 12.5 mg at a time and keep him there for at

least 2 days with a 1/2 of a .5 valium on the first night, 1/4th

of .5 the next. It was kind of tricky because as useful as Valium

is, it can lose its effectiveness with seizures at such low doses if

overused. I believe God showed me what to do as I went - I asked.

He made it through with very few seizures. After he was completely

off Depakote for about 2 weeks he began to Grand mal all over the

place and he had to have meds added. I was expecting that, though,

whereas you have good reason NOT to expect trouble. I really hope

that it works out well.

joanie

[Guest guest]

Joanie,

If you have pills you can use a nail file and reduce one pass a week and that

will be very slow but it worked for me. The big cheap ones at Walgreen's worked

in this case. You might want to look into two products that I have tried for

sleep and anxiety reduction.

Picamilon and Natural Stress Relief. The picamilon I get from a Dutch company

called Smart City and the other from Life Extension. The Natural Stress Relief

has 200 mgs of L-Theanine and I already take 200 so now I'm taking 400 at night.

It also has Lemon Balm in it. I also use a product called Slumber Spray from

Pure Focus Products, 1-800-819-5631.

The combination of the Slumber Spray and the Stress Relief have improved my

sleep noticeable without any side effects.

Good Hunting,

joanie46115 <bjwilson@...> wrote:

Hi!

I am just adding to your comment about how dr's wean people off

drugs too quickly. Our son had a severe problem develop in his bone

marrow due to what was believed to be Depakote about a year or more

ago. He had been seizure free for 3 months and was on lots of

supplements and we did want to try reducing meds, but never believed

he was able to get rid totally of all of it or even all of one of

the 3 he was/is on. Anyhow, it was decided to take him all the way

off Depakote, his main defense, and then try something else if he

started having problems. He wanted me to take him down by 250 mg a

week and that was just TOO fast. I lagged way behind and did not do

it that way. I also used his Valium, of which he only takes .5 at

night, to help buffer the effects. I used instinct and gut feelings

all the way. And, of course, I knew his body very well and

could " read " him and adjust to meet what I knew he needed. Instead

of dropping him 250 mg at one time I took about 10 days to break the

pill down gradually 250 mg. I would write down each day what I did

that day and how I thought I should break the pill the next day. I

tended to take him down 12.5 mg at a time and keep him there for at

least 2 days with a 1/2 of a .5 valium on the first night, 1/4th

of .5 the next. It was kind of tricky because as useful as Valium

is, it can lose its effectiveness with seizures at such low doses if

overused. I believe God showed me what to do as I went - I asked.

He made it through with very few seizures. After he was completely

off Depakote for about 2 weeks he began to Grand mal all over the

place and he had to have meds added. I was expecting that, though,

whereas you have good reason NOT to expect trouble. I really hope

that it works out well.

joanie

[Guest guest]

Pragya, according to your most recent labs, it looks like you may need more

medication. Did you ever say how your TPO test came back? If you did have

antibodies that means you have hashimoto's thyroisitis which is auto-immune.

As I am sure you are aware that a lot of us here like Armour. Will your

doc rx it? Sorry your doc treated you so harshly. Women should never be

treated with such a disrespect no matter where you live. I thought it was

mainstream in other countries to have non-epidural births. Guess I thought

wrong. As for the periods, I'm sure there will be some relief when you get

on the right dose of meds.

CW

-- new here..

hi all,

i joined around the end of last month & i have been following the various

conversations for a few days now.. i must say that i'm very lucky to have

found y'all.. everyone is so friendly & nice and is genuinely interested &

concerned about the well being of the other members! Its a privilege to be a

part of such communities, as no one else can better understand what we're

going thru, than the people who're facing the same probs themselves!

recently i think someone who just got pregnant had asked to hear a similar

experience, so i thought i would write..

just wanted to introduce myself first.. i'm 34 yrs old & i moved to nj, usa

in feb'97 after marriage, as my husband was working there. we planned our

first child in 2001 & she was born in apr 2002 (foreceps delivery). it was

during the tests done during this pregnancy that i got to know i'm

hypothyroid.. however, i have always been sluggish in the mornings, so maybe

the tendency was there.. (also, i'm a vegetarian.)

my tsh was 8 @ this time & there was no response from the doc on this, so i

brought it up, but he said no medication was reqd.. when i visited my

parents after the delivery, i consulted an endo there (new delhi, india.) he

put me on thyronorm 50 mcg (thyroxine sodium tablets.) i kept getting labs

done every 6 months over the yrs & i was in touch with my doc on phone.

whenever i went to visit my parents, i would consult him in person. the max

dose i have ever been on is 100 mcg, which didnt suit me, so he put me on 75

mcg, which i was on till recently.

in feb 2006, we moved to bangalore, india. we planned our second child in

2007 & she was born in feb this yr.(normal delivery.) this time i had issues

all along like low lying placenta etc. and was very uncomfortable the whole

time. my obgyn here was totally unsupportive, rude & detached.. i kept going

back to him, as he's supposed to be the best doc here for complicated cases

& he goes to all the good hospitals.. even if i had switched, he would have

found out right away!

he didn't order any bloodwork for me all thru the pregnancy. out here its

possible to get any test done without a docs prescription, so on my family's

advice, i went ahead & got a few tests done (including a thyroid profile) in

the hospital which i was registered to deliver in. this was a mistake as i

soon found out.. i should have gone somewhere else for the bloodwork, but

these guys were reputed & all.. they notified the doctor that i had got some

tests done, as they knew i was his patient. this made him really mad @ me

for the rest of my pregnancy ; to the point that he even refused to give me

an epidural when i was in labor!

anyways, the lab results were all fine & within normal ranges all thru the

pregnancy.. i was on thyronorm 75 mcg all this time. 3 months after delivery

(15th may '08), i got my thyroid profile done again & the results were -

T3 - 0.79 ng/ml (0.7-2.0)

T4 - 5.94 mcg/dl (4.5 - 11.0)

TSH - 0.10 mcIu/ml (0.4 - 4.2)

this time i went with my results to an endo in the same hospital where i

delivered & she changed my dose from thyronorm 75 mcg (which i was on for

many yrs) to 50 mcg. she diagnosed postpartum thyroditis & asked me to

repeat my tests after 6 weeks of the dose change. she also recommended a

test called TPO, which i had never had before.

within a month, i was much worse & i figured out the reduced dose didnt suit

me. i was feverish everyday with body aches, extreme fatigue & brain fog,

sleep probs, my neck has got a bit swollen i think, many more greying hair

etc.. after my second delivery, i had very heavy bleeding for a long time,

much heavier than my first time. this has contd in every period i've had

since then. also my periods have always been & still are very painful for

the first 3 days.

also, this time my breastmilk supply was very low & i couldn't continue much

beyond the first 2 months, that too with lactation medications & pumping.

after about 6 weeks of the change in dosage, i got the bloodwork done again

(24th july '08). my results this time were -

T3 - 0.82 ng/ml (0.7- 2.0)

T4 - 5.78 mcg/dl (4.5 - 11.0)

TSH - 48.73 mcIU/ ml (0.4 - 4.2)

free T4 - 13.79 pmol/L (11.5 - 22.7)

free T3 - 4.15 pmol/L (3.1-6.8)

TPO - more than 600.0 IU/ml (upto 34 IU/ml) (the name of this test is anti

thyroperoxidase antibody)

haemoglobin - 15.3 gm/dl (11-16) (female)

random blood sugar - 82 mg/dl (70-140)

i got a call from the hospital's lab to say my results were in & i couldn't

believe the tsh & tpo figures the lady read out to me.. she recommended i

see a doc right away, but the endo i first saw was out on leave. they found

someone else i could see that day & she put me back on 75 mcg. she was not

very surprised or concerned though! i will get the tests done again in 6

weeks to recheck.

thanks for reading so far.. any inputs/advice will be greatly appreciated!

thanks so much in advance! looking fwd to hearing from y'all..

pragya.

[Guest guest]

Honest to God seeing things like that sometimes makes my embarrassed to

be a male...

> tests done, as they knew i was his patient. this made him really mad @ me

> for the rest of my pregnancy ; to the point that he even refused to

> give me

> an epidural when i was in labor!

[Guest guest]

>

> Hello Everyone!

>

> I am new here, and I am so thankful to have found all of you. I am

> newly dx with candia yeast (yesterday actually) I am having a hard

> time with it but relieved to have answers at the same time.

+++Hi . You just answered my previous questions about your DX.

>

> I am a 32 year old, a stay at home mom, of 4 and a new fulltime

> college student. I was dx with Fibromyalgia last year and the list

> goes on and on. I am upset over the dx but excited to start living

> again. I recently started with a holistic DR as I ended up

> fustgerated with traditional medicine. I have started the b-12

> injections a few weeks ago with mega vitamins and not a ton of

> supplements, the yeast/sugar free diet and nystatin (getting it

> tomorrow, I have heard it taste gross) I have been reading here and

> elsewhere about the " dye off stage " and I have to admit I am a

little

> afraid? Is it really as bad as it seems?

+++Some people experience worse die-off symptoms than others. You

can regulate it by changing over to the diet gradually and by

starting with small amount of antifungal, which is unrefined coconut

oil, taken when you first start on the diet and supplements -

see " Curing Candida, How to Get Started " -

http://www.healingnaturallybybee.com/articles/intro1.php

+++Most holistic doctor don't understand that the only way to cure

candida is by building up the immune system. That is done

with " proper nutrients " (my diet plus supplements), by cutting off

foods and toxins that feed candida, and by eliminating other toxins.

+++They often perscribe supplements that are not necessary when you

follow this diet, so please read " How to Successfully Overcome

Candida " so you can correct things accordingly - it's on my website

in the Candida Section:

http://www.healingnaturallybybee.com/candida/index.php

+++You would not start on Nystatin or any other type of antifungal

until you can take 6 tbls. of coconut oil without getting severe die-

off symptoms. Coconut oil is a very important part of the diet

because of the nutrients it provides. Antifungals are actually very

unimportant when it comes to curing candida, compared to the diet.

> (The hardest part for me is the fast that I have pretty much been

a carb/sugar freak for many years.) In some small way I feel like I

just lost my best friend. However I am trying to stay positive for

the future changes and how great I am going to feel:)

+++You can help your food cravings and withdrawal symptoms by not

changing over to the diet too quickly. Also see these articles on

cravings, etc.:

http://www.healingnaturallybybee.com/articles/menu_2_5_3.php

>

> I am very very busy so I think I will have to disapline myself to

do my weeks cooking on Sundays. Well enough about me, but I look

> forward too meeting so many of you. Feel free to contact me off

the board also (especially if you have the same dx's and kids like

me) it sure would be nice to have a friend that TRULY understands. I

look forward to new ways of learning to cook and having new friends.

+++I suggest you have Bee's Egg Drink for breakfast, which is a great

way to start on coconut oil since you can adjust the recipe to the

amount you can tolerate:

http://www.healingnaturallybybee.com/recipes/recipe167.php

We are all here to help and support you so you, too, can get well!

The best in health, Bee

[Guest guest]

>

> Hello Everyone!

>

> I am new here, and I am so thankful to have found all of you. I am

> newly dx with candia yeast (yesterday actually) I am having a hard

> time with it but relieved to have answers at the same time.

+++Hi . You just answered my previous questions about your DX.

>

> I am a 32 year old, a stay at home mom, of 4 and a new fulltime

> college student. I was dx with Fibromyalgia last year and the list

> goes on and on. I am upset over the dx but excited to start living

> again. I recently started with a holistic DR as I ended up

> fustgerated with traditional medicine. I have started the b-12

> injections a few weeks ago with mega vitamins and not a ton of

> supplements, the yeast/sugar free diet and nystatin (getting it

> tomorrow, I have heard it taste gross) I have been reading here and

> elsewhere about the " dye off stage " and I have to admit I am a

little

> afraid? Is it really as bad as it seems?

+++Some people experience worse die-off symptoms than others. You

can regulate it by changing over to the diet gradually and by

starting with small amount of antifungal, which is unrefined coconut

oil, taken when you first start on the diet and supplements -

see " Curing Candida, How to Get Started " -

http://www.healingnaturallybybee.com/articles/intro1.php

+++Most holistic doctor don't understand that the only way to cure

candida is by building up the immune system. That is done

with " proper nutrients " (my diet plus supplements), by cutting off

foods and toxins that feed candida, and by eliminating other toxins.

+++They often perscribe supplements that are not necessary when you

follow this diet, so please read " How to Successfully Overcome

Candida " so you can correct things accordingly - it's on my website

in the Candida Section:

http://www.healingnaturallybybee.com/candida/index.php

+++You would not start on Nystatin or any other type of antifungal

until you can take 6 tbls. of coconut oil without getting severe die-

off symptoms. Coconut oil is a very important part of the diet

because of the nutrients it provides. Antifungals are actually very

unimportant when it comes to curing candida, compared to the diet.

> (The hardest part for me is the fast that I have pretty much been

a carb/sugar freak for many years.) In some small way I feel like I

just lost my best friend. However I am trying to stay positive for

the future changes and how great I am going to feel:)

+++You can help your food cravings and withdrawal symptoms by not

changing over to the diet too quickly. Also see these articles on

cravings, etc.:

http://www.healingnaturallybybee.com/articles/menu_2_5_3.php

>

> I am very very busy so I think I will have to disapline myself to

do my weeks cooking on Sundays. Well enough about me, but I look

> forward too meeting so many of you. Feel free to contact me off

the board also (especially if you have the same dx's and kids like

me) it sure would be nice to have a friend that TRULY understands. I

look forward to new ways of learning to cook and having new friends.

+++I suggest you have Bee's Egg Drink for breakfast, which is a great

way to start on coconut oil since you can adjust the recipe to the

amount you can tolerate:

http://www.healingnaturallybybee.com/recipes/recipe167.php

We are all here to help and support you so you, too, can get well!

The best in health, Bee

[Guest guest]

>

> Hello Everyone!

>

> I am new here, and I am so thankful to have found all of you. I am

> newly dx with candia yeast (yesterday actually) I am having a hard

> time with it but relieved to have answers at the same time.

+++Hi . You just answered my previous questions about your DX.

>

> I am a 32 year old, a stay at home mom, of 4 and a new fulltime

> college student. I was dx with Fibromyalgia last year and the list

> goes on and on. I am upset over the dx but excited to start living

> again. I recently started with a holistic DR as I ended up

> fustgerated with traditional medicine. I have started the b-12

> injections a few weeks ago with mega vitamins and not a ton of

> supplements, the yeast/sugar free diet and nystatin (getting it

> tomorrow, I have heard it taste gross) I have been reading here and

> elsewhere about the " dye off stage " and I have to admit I am a

little

> afraid? Is it really as bad as it seems?

+++Some people experience worse die-off symptoms than others. You

can regulate it by changing over to the diet gradually and by

starting with small amount of antifungal, which is unrefined coconut

oil, taken when you first start on the diet and supplements -

see " Curing Candida, How to Get Started " -

http://www.healingnaturallybybee.com/articles/intro1.php

+++Most holistic doctor don't understand that the only way to cure

candida is by building up the immune system. That is done

with " proper nutrients " (my diet plus supplements), by cutting off

foods and toxins that feed candida, and by eliminating other toxins.

+++They often perscribe supplements that are not necessary when you

follow this diet, so please read " How to Successfully Overcome

Candida " so you can correct things accordingly - it's on my website

in the Candida Section:

http://www.healingnaturallybybee.com/candida/index.php

+++You would not start on Nystatin or any other type of antifungal

until you can take 6 tbls. of coconut oil without getting severe die-

off symptoms. Coconut oil is a very important part of the diet

because of the nutrients it provides. Antifungals are actually very

unimportant when it comes to curing candida, compared to the diet.

> (The hardest part for me is the fast that I have pretty much been

a carb/sugar freak for many years.) In some small way I feel like I

just lost my best friend. However I am trying to stay positive for

the future changes and how great I am going to feel:)

+++You can help your food cravings and withdrawal symptoms by not

changing over to the diet too quickly. Also see these articles on

cravings, etc.:

http://www.healingnaturallybybee.com/articles/menu_2_5_3.php

>

> I am very very busy so I think I will have to disapline myself to

do my weeks cooking on Sundays. Well enough about me, but I look

> forward too meeting so many of you. Feel free to contact me off

the board also (especially if you have the same dx's and kids like

me) it sure would be nice to have a friend that TRULY understands. I

look forward to new ways of learning to cook and having new friends.

+++I suggest you have Bee's Egg Drink for breakfast, which is a great

way to start on coconut oil since you can adjust the recipe to the

amount you can tolerate:

http://www.healingnaturallybybee.com/recipes/recipe167.php

We are all here to help and support you so you, too, can get well!

The best in health, Bee

[Guest guest]

Thanks for all of those that posted a response, it means alot and you can never

have enough support. I just got back yesterday from a doc in Austin, Texas, he

sent testing off to IGENEX and did a lot of other bloodwork to see how the lyme

may have affected thyroid, etc...He wants me to start on ABX...Omnicef first,

then add Zithromax and then alternate with Flagyl...also he asked me to start

Buhner's Protocol.. I feel herbs are best for me as a practicing herbalist, I

have not used conventional meds since I was a little girl. So I will try the

initial dose of abx and start buhner's along with...any opposition to that

anyone...I don't have the book in yet to see if Buhner recommends not to do abx

with herbs? Your wisdom is appreciated... Also, they say I may be in the 2nd

degree phase of lyme, although I am functioning pretty well, he was

surprised...i really think the eating healthy, and the herbs I am currently

taking is what is maintaining this until i can get a little more aggressive..

[Guest guest]

>

> I don't have the book in yet to see if Buhner recommends not to do abx with

herbs?

definitely buy the book before starting herbs treatment! Yes, you can combine

ABX and herbs. Buhner is not a fan of ABX, but Lyme is one of the few cases for

which he makes an exception.

> Also, they say I may be in the 2nd degree phase of lyme, although I am

functioning pretty well, he was surprised...

I think the three phases of lyme exist only in the mind of some Lyme

researchers; some people go from tick byte to third stage in a very short time,

others have symptoms from 1st to 3d stage at the same time, others never go

further than stage 1. Some people with 3d stage lyme are very ill, and others

seem healthier than the average healthy person...

[Guest guest]

this is the first time i have heard of " three stages of lyme " i have only

heard like initial & chronic, or lyme & neuro lyme. what are the stages?

On Wed, Jan 19, 2011 at 6:07 AM, knot_weed <tek0nik@...> wrote:

>

>

>

>

>

> >

> > I don't have the book in yet to see if Buhner recommends not to do abx

> with herbs?

>

> definitely buy the book before starting herbs treatment! Yes, you can

> combine ABX and herbs. Buhner is not a fan of ABX, but Lyme is one of the

> few cases for which he makes an exception.

>

>

> > Also, they say I may be in the 2nd degree phase of lyme, although I am

> functioning pretty well, he was surprised...

>

> I think the three phases of lyme exist only in the mind of some Lyme

> researchers; some people go from tick byte to third stage in a very short

> time, others have symptoms from 1st to 3d stage at the same time, others

> never go further than stage 1. Some people with 3d stage lyme are very ill,

> and others seem healthier than the average healthy person...

>

>

>

<#> <#>

<#> <#>

[Guest guest]

>

> this is the first time i have heard of " three stages of lyme " i have only

> heard like initial & chronic, or lyme & neuro lyme. what are the stages?

The stages are early localised (first, primary; EM stage), early dissipated

(second) and systemic/chronic/persistent (third). The exact definitions depend

on who you ask, and the three stages are arbitrary IMHO.

e.g. EM is by definition dissipated IMHO, because the spirochete is dissipating

within the skin and in order to do that it usually has gone into the blood

vessels as well. So even in this stage it might already be everywhere in the

bloodstream, including the brain - you just don't see it yet.

[Guest guest]

some also refer to stage 3 as late stage Lyme. I hate that term!

> >

> > this is the first time i have heard of " three stages of lyme " i have only

> > heard like initial & chronic, or lyme & neuro lyme. what are the stages?

>

> The stages are early localised (first, primary; EM stage), early dissipated

(second) and systemic/chronic/persistent (third). The exact definitions depend

on who you ask, and the three stages are arbitrary IMHO.

>

> e.g. EM is by definition dissipated IMHO, because the spirochete is

dissipating within the skin and in order to do that it usually has gone into the

blood vessels as well. So even in this stage it might already be everywhere in

the bloodstream, including the brain - you just don't see it yet.

>

[Guest guest]

I am on day 30 and so far lost 33 lbs woohooI basically eat the same thing everyday just to eating simplyCoffee for breakfast 4amOne apple at 8am3.5 ounces of chicken or shrimp with garlic powder and pepper Cucumber or tomatoes with a dressing I make of wine vinegar garlic powder onion powder and stevia330pm appleAnd then the same thing I had for lunchAnd at least 1.5 gallons of water ok I will admit I can't drink plain water so I make a very very very weak solution of water and crystal light just to give it some flavor then I have no problemThe scale does not go down everyday but it always seems to drop after a couple daysI have never done an apple dayIt was only the first couple of days I had a little hunger but after that nothingI have not cheated once not even a lick of a spoonThe desire to get this weight off has. Been my driving forceI only had some weekness the first week and then after that my energy level has been great Sent via BlackBerry by AT&TFrom: "patti_fulton" <irishpdf@...>Sender: Date: Mon, 31 Oct 2011 20:50:11 -0000< >Reply Subject: New here.. Hi there, I am Patti and this is my first day of 500 calories after loading for 2 days with drops. I have studied this up and bought drops on ebay...hCG from Professional Complimentary Health Foundation.I am following the Simeons, Pounds and Inches. Can anyone tell me the amounts of vegetables allowed? Do I weigh those too? I have a house full of 5 boys and am always baking or cooking.Temptations.... I had the first meal today and am totally wanting to eat more. I am a huge emotional eater. Any suggestions on coping? I am doing the water, coffee and tea.

[Guest guest]

Awesome thanks! Is there a weight on vegetables?

From: dlcfanny@...Date: Mon, 31 Oct 2011 21:03:00 +0000Subject: Re: New here..

I am on day 30 and so far lost 33 lbs woohooI basically eat the same thing everyday just to eating simplyCoffee for breakfast 4amOne apple at 8am3.5 ounces of chicken or shrimp with garlic powder and pepper Cucumber or tomatoes with a dressing I make of wine vinegar garlic powder onion powder and stevia330pm appleAnd then the same thing I had for lunchAnd at least 1.5 gallons of water ok I will admit I can't drink plain water so I make a very very very weak solution of water and crystal light just to give it some flavor then I have no problemThe scale does not go down everyday but it always seems to drop after a couple daysI have never done an apple dayIt was only the first couple of days I had a little hunger but after that nothingI have not cheated once not even a lick of a spoonThe desire to get this weight off has. Been my driving forceI only had some weekness the first week and then after that my energy level has been great

Sent via BlackBerry by AT & T

From: "patti_fulton" <irishpdf@...>

Sender:

Date: Mon, 31 Oct 2011 20:50:11 -0000

< >

Reply

Subject: New here..

Hi there, I am Patti and this is my first day of 500 calories after loading for 2 days with drops. I have studied this up and bought drops on ebay...hCG from Professional Complimentary Health Foundation.I am following the Simeons, Pounds and Inches. Can anyone tell me the amounts of vegetables allowed? Do I weigh those too? I have a house full of 5 boys and am always baking or cooking.Temptations.... I had the first meal today and am totally wanting to eat more. I am a huge emotional eater. Any suggestions on coping? I am doing the water, coffee and tea.