Guest guest Posted July 10, 2003 Report Share Posted July 10, 2003 Thank you for the information. I am so glad I found this group.Barb ----- Original Message ----- From: *~Patty~* barbsul2002 Sent: Thursday, July 10, 2003 8:19 AM Subject: Re: questions Hi Barb, My breasts were feverish--meaning that they became hot to the touch while the rest of my body did not seem to be hot. I didn't actually have a fever myself, but my breasts certainly did. It was odd, because with my saline implants, my breasts were usually cold to the touch or cooler than the rest of my body. (One particular feature that I didn't like, I might add). I had called the p/s because I was alarmed by it, but he blew it off. It was right after that that I became really ill. Hashimoto's is autoimmune thyroid disease. I was diagnosed with that last year, and as a result, I have to take thyroid meds the rest of my life. Hashimoto's, since it is autoimmune, means that my body has produced and is continuing to produce antibodies to my own thryoid gland, it is attacking it, so my thyroid can't work well. My symptoms before explant were many and varied: "Brain Fog" --feeling of cobwebs and cloudiness in my head, slowed mental functioning, spacy, distant feelings, feeling of inflammation or chemical dysfunction in the brain, accompanied by listlessness and tiredness. Often fall into trance-like mode, or zone out. Feels like I am looking at the world through a bottle. Eyeball weakness and pain behind eyeballs. Slowed eye movement. Bright lights produce eyeball pain. Cognitive dysfunction. Saying wrong words. Slowed information processing. Memory problems Muscle weakness Sleeplessness Nightsweats Heart Palpitations Muscle Twitching Cold hands and feet Swollen Lymph glands Stiff neck, sore on right side Horrible, debilitating fatigue Tingling in hands, waking me up at night Low body temperature Visual Disturbances Crawly Feeling in Leg Joint Pain Jerky leg movements at night, spasm Bumped into walls more often Fire-ant like lesion on skin (one, on chest) Small red spots all over legs (in first weeks after implant surgery) Flaking eyelids All these symptoms are gone now! There are two reasons to have your implants analyzed by a lab, versus bringing them home with you after explant. The first would be that you intend to pursue some legal action, and you need a proper analysis of your implant to determine their manufacture, their model and style, and if they are contaminated. The second would be to know what kind of pathogens may be contaminating your implants so that you can properly treat for whatever infection may be in your body. However, this is a precaution, not a necessity, as you can just assume that you have to detox and try to eliminate all problematic bacterial or viral infections that you can. It is a matter of money, really, or how much you intend to be able to do on your own. If you prefer full medical treatment, you may want to have them analyzed to know what antibiotic to use, BUT I need to say that most doctors don't understand our illness at all, so you will have to find an expert on this. I did not have my implants analyzed formally, as they were mishandled, but Dr. Blais did look at them and he told me that they were definitely contaminated with mycoplasma. The decision is basically up to you, and depends on what you intend to do after explant. Generally the longer you have had your implants, the better your chances of being in the Dow lawsuit, (pre 1993). Hope this helps. Patty ----- Original Message ----- From: "barbsul2002" <BARBY4271@...> <fdp@...> Sent: Thursday, July 10, 2003 7:56 AM Subject: questions > I was reading some of your messages and I had some questions because > I am new at this. I was wondering what the 2 following things were > feverish breasts and Hashimoto? Also, what were your symptoms before > explantation? Were they saline filled or silicone filled? I have > saline and I have been ill and I am in the process of finding the > right P/S to remove mine. I know they have to be removed En Bloc but > do I ask for the implants back or send them to a lab? I need some > help.> thanks,> Barb> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 I don't think most muscle relaxants have an opioid basis. (I'm using baclofen right now.) I've also been in need of opiates in the ER while on LDN. It is my understanding that at such a low dosage, the receptors are blocked for only a short period of time, and fairly weakly, at that. I was also told by the ER docs that they'd simply give me more of the drug than usual, if necessary. So thus far I have not had any conflict with LDN and other drugs. Galoux Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Hi y. Only opiad based pain meds are to be avoided, and that is only because the opiad pain meds supposedly won't work for your pain. They include morphine, codene, certain pain patches...etc.... Over the counter pain meds are ok and muscle relaxants are usually not opiad based, so not to worry. Good luck to you. Love, SallyC " fmppc " <e.pauly@j...> wrote: > This may be a simple question, but I am confused about pain meds. I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Okay see that’s why I was asking why Tylenol #3’s are working for my pain aren’t they codeine based? Can someone answer this? Or is it because it’s so low dose it doesn’t interfere like I said when I got my script I asked the pharmacist if there were any interactions I should look out for and they said NONE because it’s such a low dose… UGH I am confused! From: Sally [mailto:salpal@...] Sent: Sunday, January 25, 2004 9:28 PM To: low dose naltrexone Subject: [low dose naltrexone] Re: Questions Hi y. Only opiad based pain meds are to be avoided, and that is only because the opiad pain meds supposedly won't work for your pain. They include morphine, codene, certain pain patches...etc.... Over the counter pain meds are ok and muscle relaxants are usually not opiad based, so not to worry. Good luck to you. Love, SallyC " fmppc " <e.pauly@j...> wrote: > This may be a simple question, but I am confused about pain meds. I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 I would recommend that in the case of scheduled surgery to stop taking LDN 3-4 days prior to the surgery just to be certain that it was completely out of your system eventho it theoretically leaves your system every day. In the case of an accident, I would think the only problem you might have, if any, would be that you would require more of the narcotic pain killers to overcome LDN effects. My understanding is that most pain medications are narcotic based. Noland ----- Original Message ----- From: " fmppc " <e.pauly@...> <low dose naltrexone > Sent: Sunday, January 25, 2004 5:56 PM Subject: [low dose naltrexone] Questions > This may be a simple question, but I am confused about pain meds. I > know there are some that don't work with LDN, so which ones can we > use? And what about surgery? Do you go off the ldn? Aren't most > muscle relaxants narcotic based? This is kind of a crazy question > but if ldn blocks opiate based drugs which they usually use in an > ER, what happens if you're in an accident and can't tell them you > are on an opiate blocker...? Does anyone wear a medical braclet > stating your current meds? > > Does anyone think I have too much time on my hands? ha ha > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2005 Report Share Posted September 23, 2005 Toni, I think the biggest problem here is commiting yourself to quitting. There are many "aids" but the biggest thing is you and your commitment... Do you really want to quit? Are you willing to do what it takes..? I know this sounds harsh, but wanting good health and turning around and eating alot of chocolate or buying another pack, etc... is not really wanting good health... Are you following me here? It is not an easy road.. Start by elminating one bad habit, then go to the next... I don't know about the baking soda... 2 and 5 sound good. SuziTone <tone102@...> wrote: Hi all, Surfing about and trying to keep sane here. Think I gained 5lbs since yesterday with junk. ugh not good but... Came across this and wondered what you thought: 1. Taking 1/2 teaspoon of baking soda 3 times a day will help you quit smoking. The soda neutralizes the body acids, retains nicotine in the blood, and thus reduces the desire for tobacco.Do you think this would work?2. Eat plenty of fresh lemons and lemon juice to reduce your desire for cigarettes. Eating lots of salads and other fruits will also help. Avoid meat and alcohol. duh this I know and am drinking lemon water3. To avoid irritability: take 1 tryptophan (667 mg.) tablet 3 times a day, plus 1 Vitamin B complex (100 mg., time release) with your evening meal. tryptophan is a supplement of it's own? I did get tension tamer tea to sip on.4. Before breakfast, take 1/2 teaspoon each of Rochelle Salts and Cream of Tartar. Huh? what is Rochelle salts?5. Try chewing Ginseng Root; swallow the juice.doesn't that burn? I can handle ginger in my super tonic but not a big fan of that. I was going to get licorice but I recall years back being told that it causes kidney trouble plus it will put weight on for sure. I had other questions but thinking is not my greatest asset right now. Hope everyone is well. Do we have members in the path of Rita? Wishing everyone a wonderful night Tone for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2005 Report Share Posted September 23, 2005 Hey Toni, Try this site.....I heard about it on NPR and it's got a good success rate for help. http://www.quitnet.com/ It's really helpful with support since these ARE smokers.... " don't quit alone " . Oh...and the corresponding finger is your thumb....maybe you could suck your thumb instead!!! ...make sure it's clean!! tee-hee. Seriously, tho....I know someone who took up sucking a pipe (a smoking pipe ..not a lead one!!!) ...empty and unlit, of course. Kit > Hi all, > > Surfing about and trying to keep sane here. Think I gained 5lbs since yesterday with junk. ugh not good but... > > Came across this and wondered what you thought: > 1. Taking 1/2 teaspoon of baking soda 3 times a day will help you quit smoking. The soda neutralizes the body acids, retains nicotine in the blood, and thus reduces the desire for tobacco.Do you think this would work? > > 2. Eat plenty of fresh lemons and lemon juice to reduce your desire for cigarettes. Eating lots of salads and other fruits will also help. Avoid meat and alcohol. duh this I know and am drinking lemon water > > 3. To avoid irritability: take 1 tryptophan (667 mg.) tablet 3 times a day, plus 1 Vitamin B complex (100 mg., time release) with your evening meal. tryptophan is a supplement of it's own? I did get tension tamer tea to sip on. > > 4. Before breakfast, take 1/2 teaspoon each of Rochelle Salts and Cream of Tartar. Huh? what is Rochelle salts? > > 5. Try chewing Ginseng Root; swallow the juice.doesn't that burn? I can handle ginger in my super tonic but not a big fan of that. > I was going to get licorice but I recall years back being told that it causes kidney trouble plus it will put Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2005 Report Share Posted September 23, 2005 Glad you're passing on this one!! Maybe try instead, if you can, to obsess about detoxing.....maybeeee, if possible, it will take your mind off the withdrawal. You've got something major in your life that you are trying to replace....emotionally, physically. The positive emotion for the lungs is COURAGE...the negative is grief. I hope you can stay positive. Keep me infoed on what they tell you on quitnet, please. The faster you detox the faster it will be over. Kit > LOL Kit I was going to see about getting some coltsfoot to roll and smoke. Imagine me getting arrested...haha Not sure how that is smoked anyway > My pot days are well over and I am nuerotic enough so I don't need that (not even thinking just kidding of course) > > Thanks Kit! > Tone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2005 Report Share Posted September 23, 2005 Hi Toni, Here is an item: every time you want a ciggie, take deep breaths. if you still want one, continue to take deep breaths. I hate giving lectures! Best, Sue ----- Original Message ----- From: Tone health Sent: Friday, September 23, 2005 6:44 AM Subject: Re: Re: questions LOL Kit I was going to see about getting some coltsfoot to roll and smoke. Imagine me getting arrested...haha Not sure how that is smoked anyway My pot days are well over and I am nuerotic enough so I don't need that (not even thinking just kidding of course) Thanks Kit! ToneI am using the free version of SPAMfighter for private users.It has removed 131 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2005 Report Share Posted September 23, 2005 Uh...I think you missed the point, Toni. I mean deeeeepppp breaths,, not breathing! It is the utter distraction. It works because it seems that is what one want to do when reaching for a cigarette--- take deep breaths to inhale that (wonderful) smoke. Breathe, sigh. y'know! A big smile to you, Tone! Sue Hi Sue, Hope all is well. I bet you hate giving lectures as much as I hate getting them lol I take deep breaths as often as I am able to. Sorry but it just does not substitute but I will keep breathing onward as long as the good Lord allows Thanks Sue, Have a fantastic day! ToniI am using the free version of SPAMfighter for private users.It has removed 131 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2005 Report Share Posted September 23, 2005 That IS a good idea, Sue/Toni!! And,it alkalinizes the blood and helps the detox process. Smoking acidifies the blood so does junk food....alkalinizing contributes to weight loss. So you are taking care of a whole lot with deeeeeep breathing. Here another great " distraction " ,Toni ....alternate nostril breathing...EXCELLENT for stress....when you're feeling deprived..now that's stress!! ;-P ;-) http://www.abc-of-yoga.com/pranayama/basic/viloma.asp Kit > Uh...I think you missed the point, Toni. > I mean deeeeepppp breaths,, not breathing! > It is the utter distraction. It works because it seems > that is what one want to do when reaching for a cigarette--- > take deep breaths to inhale that (wonderful) smoke. > Breathe, sigh. y'know! > > A big smile to you, Tone! > Sue > > > > Hi Sue, > > Hope all is well. I bet you hate giving lectures as much as I hate getting them lol > > I take deep breaths as often as I am able to. Sorry but it just does not substitute but I will keep breathing onward as long as the good Lord allows > > Thanks Sue, Have a fantastic day! > Toni > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Dear Helen- I think you might have a hyperthyroid. Most people with RA get it. I would get a referral to and Endocrinologist. I have had a growth on my right side of thyroid and recently they found another much larger one on my left side. Hyperthyroid can causes palpitations which is what yours sounds like. I have been on prednisone since 1994. How much are you on. Prednisone is adrenaline or cortisol. Your body makes 5mg naturally but once you start taking prednisone it alters that level and your body metabolism changes drastically. There are several side effects from prednisone. When taken artificially, it will affect your hormone levels making you " manic " or over-emotional. It will also causes extra pituitary levels so you will gain weight because it triggers your bodies starvation response. Doctors advocate taper doses but those are highly dangerous to your heart. You should start at 1mg and take that for a week before bedtime. Increase a milligram per week. Your diet is very important. Prednisone needs energy from food to work. It will turn sugar into fat to be stored later. Eating one lean protein, one vegetable and one dairy without bread or pasta will help. If you split up the dose called (BID) that will help also. You may feel hyper and do more than you normally would because it does help with pain. It is a great drug but must be respected. Its harder to go off that to start. In addition, you should be on a biologic to halt disease progression. Are you on one? Being unemployed, you should start looking into suing for disability or (SSDI). You will need a statement and your medical records from your doctor and take them to a disability lawyer. Your award will be retroactive from symptom onset and firm diagnosis via blood tests. Your lawyer will take a small percentage of the award. It will be sustantial if you have had RA since 2003. The amount you will receive is based on previous work you have done in the past. If you are married you will receive disability and I believe medicare A & B or stay on your spouses insurance. The most important thing is being treated to avoid damage to your joints. Biologics will do that. They are costly but most are provided by medicare for little or no cost. If you have other questions please email me anytime. Yours, Deborah On Wed, Jul 2, 2008 at 10:56 AM, Helen <helen050959@...> wrote: Hi, I used to belong to this group a few years ago when I first got hit with this. Symptoms started in Feb '03, got diagnosed Aug '03, started seeing rheumy Oct '03. He started me on methotrexate, took several weeks for me to notice that I was slowly improving. However, by May '04, I could barely move so I broke down and started taking prednisone - didn't want to take it because of side effects. Anyway, I have a few side effects that I'd like to see if anyone here has advice on how to counteract or why it is happening. I have an issue now regarding irregular heartbeat, doc just said pred would do that and didn't offer any advice on how to counteract. Does anyone know what I might be able to use to lessen these? Calcium seems to help - electrolytes issue? Any other suggestions? I don't have any insurance and I've been unemployed since Feb of this year. My other question is - Why do I get an achy throat if I don't take my pred on time? This throat issued also occurred when I would go off of nazonex (sp?) for nasal congestion. I don't use that anymore as I don't need it, but i get the same pain if late with pred. Any thoughts? Helen P nw Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 P.S. Under the rules of disability, you will receive Part A-B- and Drug coverage completely under the rules. Apply for it straight away. You will have a biologic paid for . Your meds will be covered except for a tiny co-pay. You are known as dual eligible. You may also be eligible for state aid right away. Go to your local DHS office (health and human services). If you are low or no income then you can receive fuel assistance, and food subsidy as well as apply for low cost state housing should you need it. Yours, Deborah Bargad On Tue, Jul 8, 2008 at 5:54 PM, Deborah Bargad <dbargad@...> wrote: Dear Helen- I think you might have a hyperthyroid. Most people with RA get it. I would get a referral to and Endocrinologist. I have had a growth on my right side of thyroid and recently they found another much larger one on my left side. Hyperthyroid can causes palpitations which is what yours sounds like. I have been on prednisone since 1994. How much are you on. Prednisone is adrenaline or cortisol. Your body makes 5mg naturally but once you start taking prednisone it alters that level and your body metabolism changes drastically. There are several side effects from prednisone. When taken artificially, it will affect your hormone levels making you " manic " or over-emotional. It will also causes extra pituitary levels so you will gain weight because it triggers your bodies starvation response. Doctors advocate taper doses but those are highly dangerous to your heart. You should start at 1mg and take that for a week before bedtime. Increase a milligram per week. Your diet is very important. Prednisone needs energy from food to work. It will turn sugar into fat to be stored later. Eating one lean protein, one vegetable and one dairy without bread or pasta will help. If you split up the dose called (BID) that will help also. You may feel hyper and do more than you normally would because it does help with pain. It is a great drug but must be respected. Its harder to go off that to start. In addition, you should be on a biologic to halt disease progression. Are you on one? Being unemployed, you should start looking into suing for disability or (SSDI). You will need a statement and your medical records from your doctor and take them to a disability lawyer. Your award will be retroactive from symptom onset and firm diagnosis via blood tests. Your lawyer will take a small percentage of the award. It will be sustantial if you have had RA since 2003. The amount you will receive is based on previous work you have done in the past. If you are married you will receive disability and I believe medicare A & B or stay on your spouses insurance. The most important thing is being treated to avoid damage to your joints. Biologics will do that. They are costly but most are provided by medicare for little or no cost. If you have other questions please email me anytime. Yours, Deborah On Wed, Jul 2, 2008 at 10:56 AM, Helen <helen050959@...> wrote: Hi, I used to belong to this group a few years ago when I first got hit with this. Symptoms started in Feb '03, got diagnosed Aug '03, started seeing rheumy Oct '03. He started me on methotrexate, took several weeks for me to notice that I was slowly improving. However, by May '04, I could barely move so I broke down and started taking prednisone - didn't want to take it because of side effects. Anyway, I have a few side effects that I'd like to see if anyone here has advice on how to counteract or why it is happening. I have an issue now regarding irregular heartbeat, doc just said pred would do that and didn't offer any advice on how to counteract. Does anyone know what I might be able to use to lessen these? Calcium seems to help - electrolytes issue? Any other suggestions? I don't have any insurance and I've been unemployed since Feb of this year. My other question is - Why do I get an achy throat if I don't take my pred on time? This throat issued also occurred when I would go off of nazonex (sp?) for nasal congestion. I don't use that anymore as I don't need it, but i get the same pain if late with pred. Any thoughts? Helen P nw Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 Dear HH Family, Is there anyone who knows HTML and or knows how to create banners? Please let me know, I would be most grateful. Thank You, Blessings, Peacie Quote Link to comment Share on other sites More sharing options...
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