Re: Help....Bad Drug Change?

July 9, 2002

Rocephin and Claforan do not work for every patient. There is a doctor who

treats Lyme disease, Erlichia and Babesia who feels Claforan works better in

patients who are co-infected with Lyme disease and Babesiosis.

Martha A.

July 9, 2002

In a message dated 7/9/2002 9:09:49 AM Eastern Daylight Time,

csxtbonevalley@... writes:

> my LLMD had to take me off my Rocephin because my liver

> was turning into a doorstop. He's put me on IV Claforan, and my liver

> seems to

> have calmed down. The bad news: My Lyme symptoms are back,

Dear Dave,

It may not be as bad as you think.

I had to stop IV Rocephin because of my gallbladder, which I was able to

save.

I then went on IV Claforan, which can be a very difficult med to tolerate.

Because of a great LLMD & nurse, I was able to stay on the Claforan, and, in

the end, the Claforan gave me even more help than the Rocephin,

so,.... give it a chance.

Good luck,

Hugs,

a in NJ

July 9, 2002

Claforan may not work for you...my old LLMD in PA would

not use it. He said it simply did not work or work as

well as Rocephin.

You can always try the home remedies for problems with

Rocephin ( my doc's was a tablespoon of apple cidar

vinegar and a tablespoon of olive oil every day), or

take Actigall, which is a medication that helps prevent

gallstones from forming, which is the main problem that

is associated with Rocephin intake.

Or, you could get really drastic and have your

gallbladder removed, as I had to when the Rocephin

caused gallstones and bile blockage and a sky-high liver

reading. You won't have any problems with Rocephin

after that, though it is a rather drastic move

> Greetings Listers:

> About 10 days ago, my LLMD had to take me off my Rocephin because my liver

> was turning into a doorstop. He's put me on IV Claforan, and my liver seems

to

> have calmed down. The bad news: My Lyme symptoms are back, just like they

were

> before I ever started any of my IV therapy. The twitches, the arthritis, the

> sleeplessness, and the forgetfulness. Does anyone else have any experience

> with this? I see my doctor next Tuesday. Oh to have my Rocephin back....I was

> feeling so good....

July 9, 2002

Actually, I think my doctor goes WAY too high on drug dosages. He

had me on 4g/day of the Ro, and now he has me on 8g/day of the

Claforan. I may discuss with him the possibilities of going back to

Ro but at a lower dose. My liver enzyme never really got all that

high (doc said normal is up to 60, and I never went over 70), but I

definately had a strange sensation where the liver/gall bladder is.

Can anyone shed some light on what's happening to all those fun

bacteria being switched from one drug to another?

Dave

>

> Hi Dave:

> Is it possible that your Claforan dose isn't high enough; what dose

are you

> on?

> Best wishes,

> lea

>

July 9, 2002

Hi Dave,

Sorry to hear of your symptoms coming back. My insurance company stopped my

rocephin. I had lost 8 days worth and my symptoms came back too. I got worse

within 2 days of stopping the rocephin. My LLMD gave me some more so have been

on it again for about 6 days. I got REALLY<REALLY sick at first, with an

exhaberation of my encephalitis. I am geting slowly better but owuld love to

have the neregy to sue my insurance company. Sometimes I feel like I am never

going to get better.

Darcie

csxtbonevalley@... wrote: Greetings Listers:

About 10 days ago, my LLMD had to take me off my Rocephin because my liver

was turning into a doorstop. He's put me on IV Claforan, and my liver seems to

have calmed down. The bad news: My Lyme symptoms are back, just like they were

before I ever started any of my IV therapy. The twitches, the arthritis, the

sleeplessness, and the forgetfulness. Does anyone else have any experience

with this? I see my doctor next Tuesday. Oh to have my Rocephin back....I was

feeling so good....

Regards, Dave S.

Naples, FL (where there supposedly isn't Lyme)

csxtbonevalley@...

July 9, 2002

Please dear friends be careful with your bodies and too high doses of

antibiotics....we are living creatures and need to consider our precious

livers/gall bladders/pancreas and brains....I have just come through sky high

liver enzymes and almost commiting suicide because I was so depressed when my

doctors had to take me off all opioids immediately. The brain and liver are

two organs that have enormous dependence ... especially the brain from the

well being of the liver.

My suicide would have been disaster for my soul, and the lives of my children

and husband. It is nothing I have ever wanted to do when my liver was

healthy. I don't know the connection...I don't know who really does but

please please get two or three opinions before going on high dose anything

that will effect the liver. I say this only with divine love for each of you

and not to scare you or take you from treatment that could help you. I pray

for each one of you because I know this disease for 7 years and know its toll

on the mind and body. I place all of us in the light of our heavenly Father

that we will all improve or at least find that we will tolerate our days

with less pain and discomfort.

God bless you all,

Donna

July 9, 2002

My doctor does not believe that intracellular lyme will be killed by rocephin

and now that I have been through my own personal hades, I believe he is

right.

God bless you all

Donna

July 9, 2002

4grams/day is supposed to be the max. Unless you are in

very serious condition and are a large person, that

would seem to be pushing your organs too much. I take

3grams/day and I weight 215 pounds. I have had Lyme for

nearly ten years but I don't think I would take 4 grams

just for the toxicity of it.

> Actually, I think my doctor goes WAY too high on drug dosages. He

> had me on 4g/day of the Ro, and now he has me on 8g/day of the

> Claforan. I may discuss with him the possibilities of going back to

> Ro but at a lower dose. My liver enzyme never really got all that

> high (doc said normal is up to 60, and I never went over 70), but I

> definately had a strange sensation where the liver/gall bladder is.

>

July 9, 2002

In a message dated 07/09/2002 10:55:06 AM Eastern Daylight Time,

copeland.cole@... writes:

> Or, you could get really drastic and have your

> gallbladder removed, as I had to when the Rocephin

> caused gallstones and bile blockage and a sky-high liver

> reading. You won't have any problems with Rocephin

> after that, though it is a rather drastic move

>

Yes....i had the gall bladder problems also on the rocephin when i was using

it IV at high dose twice a day. After a couple months my gallbladder started

to hurt like heck. Ultrasound showed " sludge " , no stones. My liver was also

enlarged and tender. The doc offered to have my GB removed right away...said

it would stop the pain right away! Of course it does! But i have this thing

about having body parts removed unless absolutely needed...just my quirk. SO

i went on actigall and switched to zithromax IV....worked for me just as well

as the rocephin. After about two weeks the pain went away, and later all

the sludge was gone, still no stones, and liver calmed down. So...solved

that problem for me. But i do know people who just had the GB removed to

avoid any future problems. Guess it depends on the person, and how bad the

pain is.

DrSkip2

July 9, 2002

Thank you Donna for your concerning words and prayers! Yes we are all in this

together.............

God Bless you too Donna,

Darcie

alopeztcr@... wrote: Please dear friends be careful with your bodies and

too high doses of