Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 could be yeast. see if Diflucan or Sporanox do the trick; Nystatin is less liver toxic but breaks open the yeast cells and that is a mess if you are allergic to your own yeast. Louise in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 Dear Jeannie, It may be Lyme brain over here (LOL) but I can't remember if you said you were currently on IV - or how long you had been. When I was on IV Claforan, I had the most awful and uncontrollable sadness and crying spells - I would hit the black pits of despair for no reason - and then just as inexplicably it would stop - only to come back. Also, the first summer I was sick w. Lyme and Bartonella (way before I knew what it really was) I would start crying if someone so much as told me I had blue eyes. It was torturous. So, I see it as a symptom of Lyme, and, paradoxically, something that happened during my *treatment* for Lyme, on IVs. (I am now back on Orals). Ativan was the most helpful thing that I found, altho admittedly I didn't try much besides it. I found, contrary to all the wisdom of Lyme diets, that green tea and a bit of chocolate helped, too. So did crying, oddly enough - just getting it out. (Do we release toxins in tears?) It's awful - I sympathize. One friend on this list (who I hope is still on the list!) told me that these crying spells were part of getting better, and that the awful roller coaster ride would wind itself to its end. I'm sorry I can't help much w. drug suggestions. But I have been there. Hang on - we're with ya. Sincerely, Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 hi jeannie regular exercise (i guess that means aerobic exercise) is the most powerful antidepressant known over a span greater than three months. you could try SAMe which protects the liver as well as scoring as high as prozac (i believe) in a comparative study. -- sincerely william meyer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 As for possible reaction to Prozac and uncontrollable crying: My heart really goes out to you. What I think a lot of people don't realize is that uncontrollable crying can be a part of Lyme disease. My son, age 15, had uncontrollable sobbing for several days and nights back in December. He has NEVER been one to cry, and these body-wracking sobs were so scary to witness. He had never been on Prozac, though they had tried Zoloft to " snap him out of his depression so he could get back to school. " (He was physically sick...THAT's why he was missing school!) The sobbing was so awful. He would say, " I don't know WHY I am crying! I just can't stop! " After he started on I.V. Rocephin, this symptom went away. Along with the sobbing, he also had hallucinations, body tremors that were so intense he would fall from his bed. It was so terribly frightening, and my heart goes out to you to find yourself in this same awful circle of sadness. I can honestly tell you that the crying and hallucinations were the first things to let up when my son started on I.V. Rocephin... the anti-depressants never seemed to do anything, and it is understandable. If the body is fighting a horrid bacterial infection, all the anti-depressants in the arsenal won't make the neurological problems go away. I wish so much I had known that such heart-wrenching sobbing and scary hallucinations could be a part of Lyme. I was told this when we finally landed with a Lyme-literate doctor in January. I still have never found it written up in anything, so I wanted to be sure I shared this with you. I hope it somehow makes you feel a little better... I wish you the best. ~Judie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 , Thanks! One of the reasons I didn't try the SAMe is because the docs didn't know if it would help with " anxiety " & we have to wean me off the Ativan eventually. The Alternative Doc, who found the Lyme's & treated me for the Mercury, wanted mt to try the SAMe, but I had started seeing the Psych Doc & he asked me to hold off since he wouldn't know what was helping or hurting what. Later on, he said he learned more about the SAMe & I could try it, but he didn't know too much about side effects, etc. It is also very costly! Not that I wouldn't try it if I knew it would help. What is bothering me is that I took the Prozac to help stop the crying spells & first it made me really sleepy & know the crying spells have seemed to pick (they are scary), yet he asks me to hang in & give it time-since it made me sleepy, it calmed the anxiety, so the doc, & even the pharmacist, who has been a big help, seems to think it is helping lesson the Ativan-but then there is the crying-UGH! --- william meyer <wmeyer@...> wrote: > hi jeannie > regular exercise (i guess that means aerobic > exercise) is the most > powerful antidepressant known over a span greater > than three months. > you could try SAMe which protects the liver as well > as scoring as > high as prozac (i believe) in a comparative study. > -- > sincerely > william meyer > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 Marie, I had 2 rounds of 56 days of IV Rocephin, the 2nd with oral Zithromax, back in 2001-second IV was pulled 9/11! NO IV since then. Was very sick, worse, after all that, but when I startd detoxing the Mercury through oral chelation in 2/02, I physically started feeling better, but went into the depression/anxiety-both illnesses could do this, but the Altern Doc is leaning toward a too fast detox to Mercury-who knows, right? We never know what the Lyme's is doing/has done, but I have had 14 negative PCRs since the IV-could mean anything, I know. for awhile, I was on the Ativan only & doing OK, not so much crying (if I remember correctly), but then started again. Just wondering if I should stop the Prozac, but fear for my mood. Thanks, Jeannie --- Marie Henson <henson2@...> wrote: > Dear Jeannie, > > It may be Lyme brain over here (LOL) but I can't > remember if you said you > were currently on IV - or how long you had been. > When I was on IV > Claforan, I had the most awful and uncontrollable > sadness and crying > spells - I would hit the black pits of despair for > no reason - and then > just as inexplicably it would stop - only to come > back. > > Also, the first summer I was sick w. Lyme and > Bartonella (way before I > knew what it really was) I would start crying if > someone so much as told > me I had blue eyes. It was torturous. > > So, I see it as a symptom of Lyme, and, > paradoxically, something that > happened during my *treatment* for Lyme, on IVs. (I > am now back on > Orals). > > Ativan was the most helpful thing that I found, > altho admittedly I didn't > try much besides it. I found, contrary to all the > wisdom of Lyme diets, > that green tea and a bit of chocolate helped, too. > So did crying, oddly > enough - just getting it out. (Do we release toxins > in tears?) > > It's awful - I sympathize. One friend on this list > (who I hope is still > on the list!) told me that these crying spells were > part of getting > better, and that the awful roller coaster ride would > wind itself to its > end. > > I'm sorry I can't help much w. drug suggestions. > But I have been there. > Hang on - we're with ya. > > Sincerely, > Marie > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 , By the way, I KNOW exercise would help, but the anxiety/depression is holding me back. I know I have to push myself, but it is also taking all my energy to take care of my daughters, house, laundry, or just be too tired/jittery to do anything! I was too sick to do any exercise for so long due to the Lyme's & maybe Mercury- I did walk at night a little while I was feeling better, physically & mentally, then anxiety/depression set in. I was working at home & I know that would help too but haven't felt well enough to start up again-if the company would have work for me-I'm kind of on hold for now. Have you tried SAMe? Any side effects? I am extremely checmically sensitive, even to vitamins, supplements, anti-depressants, etc. Did it work quickly? Thanks, if you know, Jeannie --- william meyer <wmeyer@...> wrote: > hi jeannie > regular exercise (i guess that means aerobic > exercise) is the most > powerful antidepressant known over a span greater > than three months. > you could try SAMe which protects the liver as well > as scoring as > high as prozac (i believe) in a comparative study. > -- > sincerely > william meyer > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Jeannie- I have read the posts of what is going on and will throw in my .02. Been there, done it. I believe you have said you have been off antibiotics since last year??? Guess what, girlfriend, if I were you, I would get back on abx ASAP. These little critters are what is causing your depression and anxiety. I was on Wellbutrin for over 19 mos. when I was at my worst. Cried, had hallucinations, paranoia, severe mood swings, etc. and LONG-TERM abx is what does it, PERIOD. For the duration of time, many people try various Rx for depression/anxiety. Wellbutrin, Prozac, Paxil, Zoloft, Effexor, Xanax for anxiety, etc. There are natural alternatives but be careful, you do have to take them at least 1 hr apart from Rx. sue in nj sue massie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Hi Jeannie.. I had similar reactions with Paxil and zoloft years ago.... and severe fatigue with xanax and ativan. My doctor finally found something that works for me about 3 years ago and I am still on low maintenance dose. EFFEXOR XR. Great drug. None of the side effects I had with the others. No weight gain, sexual dysfunction, etc. My daughter who is a lymie is also on it and doing so much better. The severe anxiety, crying bouts and depression are all very much a part of lyme for us so to have these down to a minimum is wonderful. I tried weaning off my very low dose of Effexor because I no longer had the anxiety and depression, but after a month all the symptoms returned. Not worth it. It's working! Obviously my body/brain needs the extra chemicals in the effexor to get me through this Lymie time. Effexor XR makes me feel " normal " . Yet when I am off it... I am very depressed. So to me it's worth it and I don't even think about it. Just take it with my antibiotic in the morning. Speak to your doctor about it. It's been a Godsend for me and my daughter. Blessings, Lorraine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Sue, Why are you so sure it is the Lyme's? I stopped IV 9/11, I know it stays in your system awhile, but why would depression/anxiety hit now? Plus it is not an uncomen reaction to a fast Mercury Drop & it hit while I was going through that, yet I was feeling better physically. Curious as to what you are basing it on. Jeannie --- Ssadlermas@... wrote: > Jeannie- > I have read the posts of what is going on and will > throw in my .02. > Been there, done it. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 i have ti admit, there is a macho guy i know who had lyme around 1990. he said he would find his car stuck in traffic and break down sobbing. this guy does not seem the type to cry a lot. the good news is he is symptom free. i believe he did 6 mos. IV back then. -- sincerely william meyer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 dear jeannie haven't tried SAMe. for those who are interested in highest quality supplements and practically ALL the scientific literature relating to them, i strongly believe in: http://www.lef.org -- sincerely william meyer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Thanks , The frustrating part is that I started doing physcially better after 7 yrs-maybe IV kicked in? Maybe Mercury Detox? then the anxiety/depression hits hard-can't win. Psychiatrist does believe in meds (i'd rather not take them-side effects or make matters worse, but may have to)but says the depression would eventually pass, but I'm not sure I can handle the sad mood-it is scary! I see Mercury Doc & Lyme's Doc this week, so I'll see what they think. Mercury Doc likes to use Alternative, but lot of unknowns & I can't mix his stuff with the Psych Doc-won't know whast is doing what. Thanks again, Jeannie --- william meyer <wmeyer@...> wrote: > i have ti admit, there is a macho guy i know who had > lyme around 1990. > he said he would find his car stuck in traffic and > break down sobbing. > this guy does not seem the type to cry a lot. the > good news is he is > symptom free. > i believe he did 6 mos. IV back then. > -- > sincerely > william meyer > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 I was on Prozac.............it was the only thing that worked.........actually gave me a good kick start in the morning. It alerted me, as opposed to some who feel sleepy. I took it early in the morning upon awakening. I started to feel better in about 2-3 weeks. I would hang in there a little longer. I was on 40mg a day, each morning. If I forgot to take it..........I would never take it during the day, because it would keep me awake. I had tried a ton of anti-depressants through-out my lyme disease, Prozac was the only one to work for me. Give it a little longer..........just sounds like your brain chemistry is out of whack, and needs something to put it back in order again. You may even find after a time, that you only need 20 mg............I ended up doing that. Conniek nwnj leave no stone unturned...............and ask questions!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 You are right about the exercise...............but a majority of the people in this group have difficulty just getting dressed, eating, and taking care of there personal needs.............and then collapsing on to the bed or couch. At my sickest, most tearful moments, I had absolutely no energy to even go for a walk............and if she truly has an imbalance, depression will prevent you from doing lots of things. Exercise, is wonderful to kick in those endorphins, get that adrenalin pumping, hence feeling better...........but its not useful in all situations.............this may be one of them. Connieknwnj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 as far as exercise -it is something to shoot for- and it is something you probably will not recover completely (from depression) without. exercise can be done in bed in whatever form you are capable. -- sincerely william meyer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Connie, Your message regarding anti-depressants (exercise and all) really helped me. This is why posting is so great -- you all are helping many of us rookies out here! I hadn't pressed for an anti-depressant for my son, age 15, because I had been told the antibiotics would help the depression as well as the other horrid Lyme problems. I can see that as months go by and he is not getting better, he is certainly fighting depression along with many neuro problems. Thanks to your great way of putting it, I now know I need to pursue this. ~Judie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Yes, , I agree, Exercise can be an important component of helping with depression. However, it all depends on the level of depression you have. If its a lesser degree, then all means, get out and walk. Unfortunately, if it is severe, you want to get out and walk, but you can't, and the frustration of knowing you should be out there exercising, only causes you to slip deeper into that depression. In its severest form.......Its like being in a deep fog, nothing matters, and you don't think clearly any more........and many times its someone else that identifies you are in a depression. Many times it goes un-noticed........and people just feel the person has lyme disease and they are sick..................without noticing the added illness of depression. People want to say, just stick with the abx and the depression will go away. That's like saying, if you don't put a Band-Aid on the cut, eventually it will coagulate and heal itself..........well in the meantime, the blood is trickling down your arm from your finger. It has to have a Band-Aid, until the bleeding stops.......or it causes quite a mess. The same with depression, it needs some medication, until, things straighten out chemically in the brain, or it totally messes up your functioning in life..........then when things start to correct itself........ it can be reduced and removed. (now of course the band-aid only needs a day or two), the anti-depressant needs a little longer than that!!! Conniek nwnj Leave no stone unturned............and ask questions! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Judie: I have heard that lyme bugs interfere with neurotransmission...espec. serotonin. I can't take the antidepressants myself anymore due to my liver problems that got very serious over the past couple months. I am trying St. 's Wort and at night 5 HTP which is holding me somewhat. Before that, I had to get off most of my meds cold turkey, including morphine, paxil, and xanax. That experience was terrible and I really thought I would lose my hold on this existence....but the days passed and a helpful owner of a local health food store did what he could to help me with supplements. Hope this story helps. Best wishes, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Donna, Thanks for that...I am so glad you hung in there through a very tough transition, going off of some mighty strong meds...I wish you the best and appreciate your sharing your story. ~Judie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 Thanks Judie: The battle with the paxil goes on but I stand resolute not to ever go back on these. I am helped personally by the neurontin I take but sometimes, my neuronic transmitters are imbalanced and I have to resort to sleep with klonapin as a help. When the younger teen gets hard and my emotions are raw, it seems my adrenals really exhaust rapidly and the onset of my pain...neuropathic intense head and neck pain and joint pain exascerbate terribly. I wish I wouldn't need any pharmaceuticals...truly...but I am trying my best to keep as much load off my damaged liver from the IV antibx. Blessings to all, Donna Quote Link to comment Share on other sites More sharing options...
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