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  • 3 months later...
Guest guest

Hi :

Is this the from the other list I was on...?

the Chattingourlivesaway list?

God Bless, Bonnie

--------------------------------------------------

ICQ #14826055

Name: nana_bonnie

AIM Name: gmabonny

PalTalk name 007grandma

BeeCall name 007grandma

Birthday 1-16-47

___________________________________________________________________

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Guest guest

Hi Bonnie.....

No. I am not on that list :)

I am from PA. My hubby has been diagnosed with RA for about 2 years now. I

joined the group to help him find things out about RA and also to have a

support system. This is a great group of friends!

Take care.......

----- Original Message -----

From: " Bonnie F. " <007grandma@...>

< >

Sent: Monday, May 14, 2001 4:52 PM

Subject: Re: [ ] ?

> Hi :

> Is this the from the other list I was on...?

> the Chattingourlivesaway list?

> God Bless, Bonnie

> --------------------------------------------------

> ICQ #14826055

> Name: nana_bonnie

> AIM Name: gmabonny

> PalTalk name 007grandma

> BeeCall name 007grandma

> Birthday 1-16-47

>

>

> ___________________________________________________________________

> To get your own FREE ZDNet Onebox - FREE voicemail, email, and fax,

> all in one place - sign up today at http://www.zdnetonebox.com

>

>

>

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  • 4 months later...

Fwd: ?

>

>

> > In a message dated 9/19/01 4:22:39 PM Pacific Daylight Time, GWD75

writes:

> >

> > <<

> > > NOW that the President has called us to

> > > prayer.....

> > > NOW that Congress has called us to prayer.....

> > > NOW that our Governor has called us to

> > > prayer....

> > > NOW that the city Mayor has called us to

> > > prayer....

> > > NOW that the " liberal " media and most other

> > > branches of our American society

> > > have called us to prayer.....

> > > AND NOW that our churches are assembling in

> > > special prayer....

> >

> > > " Honorable " Justices of the Supreme Court,

> > > I have only one question...

> > > Would it be okay to pray in our

> > > schools........??

> > >

> > > An American Citizen

> > >>

> >

> >

>

> NOW that the President has called us to > prayer..... > NOW that Congress has called us to prayer..... > NOW that our Governor has called us to > prayer.... > NOW that the city Mayor has called us to > prayer.... > NOW that the "liberal" media and most other > branches of our American society > have called us to prayer..... > AND NOW that our churches are assembling in > special prayer....

> "Honorable" Justices of the Supreme Court, > I have only one question... > Would it be okay to pray in our > schools........?? > > An American Citizen

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Deano:

I don't believe that anyone in our group uses it as a pulpit. If you are so offended by Elsie's post then hit your DELETE button. I enjoyed her post - as I enjoy having the OPTION to read everyone's post in this support group. I think you are way out of line concerning prayer in the wake of all the tragedy in our country.

Carol*

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Hello group:

I have appreciated all the supportive messages during the recent tragedy. I

think we all needed to support each other through this and everyone has been

wonderful. However, I have noticed an increasing religious slant to these

postings, and while I support everyone's right to connect with their higher

power in their own way, I don't believe this group should be used as a

pulpit.

I think it's totally appropriate when people thank God for the healing

they've received from their pain, but pushing school prayer and the like

moves the discussions into a political realm that is not appropriate here. I

don't mean to offend anyone, but I think we need to be mindful of the topic

at hand.

Thank you for your time,

deano

From: " elsie " <Elsie@...>

Date: Mon, 24 Sep 2001 21:42:32 -0700

" support group " <rheumatic >

Subject: rheumatic Fw: ?

Fwd: ?

>

>

> > In a message dated 9/19/01 4:22:39 PM Pacific Daylight Time, GWD75

writes:

> >

> > <<

> > > NOW that the President has called us to

> > > prayer.....

> > > NOW that Congress has called us to prayer.....

> > > NOW that our Governor has called us to

> > > prayer....

> > > NOW that the city Mayor has called us to

> > > prayer....

> > > NOW that the " liberal " media and most other

> > > branches of our American society

> > > have called us to prayer.....

> > > AND NOW that our churches are assembling in

> > > special prayer....

> >

> > > " Honorable " Justices of the Supreme Court,

> > > I have only one question...

> > > Would it be okay to pray in our

> > > schools........??

> > >

> > > An American Citizen

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  • 8 months later...
Guest guest

: I hope you are OK..havent seen much of you this week...I hope

you are out in your garden...digging in the dirt, and it is not

something else.....Kathi in OK

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Guest guest

Hello, Kathi!

Sorry that I've been silent (although it could be blessed relief for

some!). If I were digging right now, I'd be shoveling mud and

probably washed down the storm sewer. We've been having very strong

storms since yesterday. I am WAY behind in my gardening chores.

Forget about the fun stuff. I hope you've been able to do some

interesting things in the yard.

There have been several events, some expected and others unexpected,

that have kept me from writing. I've been reading when I can, and I

hope to be caught up and back to normal very soon. And I do read

every post!

Some of what has been going on: My daughter recently graduated from

high school and so did her cousin. My youngest's last day of fourth

grade was today, yesterday was the middle child's final school day.

My daughter was in a golf tournament today and I was there until it

looked like I would get drenched or whisked away in a tornado.

Thankfully, she made it back without being struck by lightning (only

made it to nine holes, then they cancelled it). My nephew's birthday

is tomorrow. A friend had an emergency and needed my help nearly all

day yesterday. A few days ago, I had a plumbing problem including

some water damage. I've spent many hours trying to diagnose the

problem and repair the ceiling that got wet. My NY sister is coming

in Sunday ... Calgon, take me away!!!!!!

As always, I'm thinking of you and everyone. I will be back as soon

as I can.

Thanks for asking,

> : I hope you are OK..havent seen much of you this week...I hope

> you are out in your garden...digging in the dirt, and it is not

> something else.....Kathi in OK

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  • 1 month later...
Guest guest

>>I'm not trying to be nosy-just concerned. Not to mention I miss

all the helpful info :-)

Hi all. I just got back last night from the Autism Society of

America conference! We had a booth there for information on enzymes.

My head was simply spinning and full of all there was. It was a

fantastic event and experience. I will be posting on that over the

coming days and catching up. was there too. I met about a

dozen people from this group which was great. And loads of wonderful

people and some interesting perspectives...including some views of

how the " enzyme issue " appears to some others. I will also give an

update on the some of the legal wranglings just so anyone interested

won't be in the dark. Those will be marked ENZY as usual and are

completely optional.

.

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  • 3 months later...

hi Tess!

Namaste is a Sanskrit word (used a lot in yoga circles, often at the

end of a class). I don't have the exact translation, but its essence

is similar to that of " peace be with you. " Hope that helps :)

Camille.

>

> Hi...what does 'namaste' mean?

>

> Love...

>

> Tess

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Camille--how is the word pronounced? I'd like to use it, as I often

end my letters with " peace and grace " or meetings with " shalom. "

Judi

>

> Namaste is a Sanskrit word (used a lot in yoga circles, often at

the

> end of a class). I don't have the exact translation, but its

essence

> is similar to that of " peace be with you. " Hope that helps :)

>

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Hi Judi,

It's pronounced " nah-mah-stay. " Hope it helps! Take care,

Camille.

> Camille--how is the word pronounced? I'd like to use it, as I

often

> end my letters with " peace and grace " or meetings with " shalom. "

>

> Judi

> >

> > Namaste is a Sanskrit word (used a lot in yoga circles, often at

> the

> > end of a class). I don't have the exact translation, but its

> essence

> > is similar to that of " peace be with you. " Hope that helps :)

> >

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  • 2 months later...

It is fine to refrigerate the Chemet as long as you keep it dry (keep

it in a sealed container).

Andy. . .. . . . . . . .. . .

> My husband is a pharmacist and says that sometimes refridgerating

(sp)

> medicine will eliminate the odor. Do you know if Chemet can be

> chilled? Or does it lose its potency?

> Thanks in advance!

> Ani

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  • 11 months later...

Thanks Carol! I missed your post -sorry about that. OK so there

are a few issues to address -and yes I do have suggestions. How is

Micah at Nintendo type games? You say he was going to go the

Nintendo till you drop party -but didn't say how good he was at

it. What about chess, music, painting, computers? If you had to

write a list of 5 things he excels in what would number one through

three be? Are there teams/clubs for any of the activities he excels

at?

How often does Micah get to swim -especially since he enjoys it? I

know you can't do much of that outside now a days unless you fly

down by me -but there is always the Y? I'm from the school of

thought that swimming and karate and activities such as this help

with motor planning. Awhile back I posted about how incredible most

karate schools can be with our children -and the awards/medals and

all that they give the children -just amazing! Have you looked into

that? There are also community theaters -call one up and explain

Micah's situation -they may have a part he can play -even if it's

primarily a group or background part -he may glow from being part of

the show! Another part of his brain may kick in -after all there

are lots of stutterers in the media.

Also thanks for the info about the moon shoes -I will look into them

then. And yes -your kids are going to just love the trampoline -our

neighbor when we lived in NJ had one which was huge with a net all

around it. My kids loved to fall sit and then bounce up to a stand -

my neighbor's daughter's were a bit older and did all kind of

stunts. Make sure they don't get too close to each other and band

heads.

You say Micah's energy is low -can't remember -does he also have

hypotonia? You mentioned high weight too however -which could also

tire a child down. Have you spoken to his pediatrician about a

healthy diet? Does Micah want to lose some weight? Is he sneaking

food? Can you keep his favorite snack foods out of the house? Well

the trampoline will help with all of this anyway. About the

constipation -did you try any of the suggestions I posted here from

Tanner's MD -the nectars? If so did they work?

Since the EFAs are not working for Micah -it would be hard for me

to know if the carnaware will or won't work -but only one way to

know! When I tried it I did find the powder helpful for Tanner -but

I found the carn-aware and/or carnosine to help on an off and off

schedule with Tanner for some reason. I don't have Dakota on it -

just Tanner. Please do let us know if that helps.

There is information that can help Micah more. He needs to overcome

whatever was put into him by the teachers before you pulled him out

during his first grade year.

I find the research by Dr. Rosenthal to be extremely relevant to

our " learning disabled " speech impaired children.

" For ethical reasons, the Oak School experiment only focused on

favorable or positive expectations and their impact on intellectual

competence, but it is reasonable to infer that unfavorable

expectations could also lead to a corresponding decrease in

performance. Often, these negative expectations are based on

appearances and other factors that have little to do with

actual intellectual ability "

http://www.psych.ucr.edu/faculty/rosenthal/

In speaking with Dr. Rosenthal -he feels my theory should be

investigated as a study -I told him it's been done already in real

life. It's why our children are today known as at risk for learning

disabilities. For ethical reasons a clinical study would never be

done the way it's done to our kids. Due to low expectations of

them -and inappropriate testing -the odds are they will have a

learning disability/won't do well in school. You have to step up

and break the pattern...and Carol you did that with Micah! As you

said you had to pull him out of first grade due to the way they

treated him -and now you are doing amazing things with him at home.

But...what if his school experience was a positive one?

There are a handful of us now posting how well our children are

doing in school -and with learning. Not just doing well actually -

excelling according to all standards. So my question is not what do

we call it -but how can we help all children become A students? How

do we break the mold?

I guess the first thing we need to know is what is everyone's

definition of a learning disability. My sister has dyslexia -

and in spite of being very intelligent -she struggled through school

while my brother and I were honor roll students. Now my brother has

ADHD -which is also considered a " learning disability " and in

addition to being a top student throughout HS -he went on to the

Merchant Marine Academy and became one of the youngest captains -and

is now a partner in a maritime law firm...so...are you talking about

differences in learning -or are you talking about a child who has

trouble learning in a traditional mainstream classroom, or both?

Both my sister and brother were schooled in the mainstream -and in

spite of differences in learning -and that both may today be viewed

as " learning disabled " one excelled and one struggled.

To me when someone says " learning disability " it means that like my

sister -they are not performing to their full potential -or

struggling to do so. If a child is in the mainstream and not

struggling, like my brother, or like my son Tanner -even if they

have a different learning style in some way -is that a learning

disability?

To me this is not much different than the autism/late talker issue.

I'm not saying we can't label kids -I'm saying let's make sure we

know what the label means and that it fits. CAPD for example -

because Dakota is suspected of ADHD and/or CAPD -and because I have

friends who have kids who 'have' CAPD -I know that's not what Tanner

has for example. To me so little research has gone into our

children with multifaceted communication impairments that I'm OK

with not jumping to any conclusions just based on Tanner -or Tanner

and Micah -or even Tanner, Micah and 2 or 3 other kids from this

group. At some point hundreds will post about this -since up

till...what -a few months ago? most don't share anything but early

stages of late talking on apraxia grouplists. School issues have

primarily been based on IEP rights and goals -and if your child is

getting straight A's than...well good for you and move on. I want

to say (again) that I don't think that Tanner is unusual -I think

he 'can be' the norm. I again am seeing -and probably before anyone

else which is not unusual and par for the course for me -that most

of our children have amazing memories which don't always show up on

standardized testing as " amazing " but do in 'real life " I again

believe that our children have these strong memory skills due to

their lack of communication abilities -and that these strong memory

skills give our children as added bonus in school -and not one that

is 'just' memorizing without understanding either.

I think for now until research is done the best thing we can

continue to do is post our experiences and share them -and not be so

quick to want to massage those reports into the square hole or the

circle hole -just because there isn't a perfect fit right now -may

not be a bad thing.

Well -that's what I've been doing with Tanner. I refuse to believe

that the fact that he can, as a new reader, sound out and read words

like " miniature " and " circulatory " or " St. " without

hesitation, but hesitates at 2 letter words at times a classic

reading problem. And just like as always with apraxia -because it

happens once doesn't mean it always happens. And for example when

you wrote " we need to be able to decode brand new words we have

never seen before or shorter words that look so much like each other

e.g. slaps slips sips lips pills ,etc. For these words they

really need to be able to hear where the sounds come in the sequence

in order to read it right the first time....and eventually become

fluent readers "

Tanner has no problem with reading brand new words -or decoding, and

he's sleeping now -but reading " slaps slips sips lips pills " would

be easy for him. I do agree with the theory that the longer words

give him clues that the two letter words don't always trigger -but

again -this is not an always thing. And again -he's not

just " getting by " in school. Tanner is in an accelerated academics

program and still getting straight A's in all subjects. Will it

continue? We believe it will -and so does his teacher.

Tanner is apraxic and he's a good student -he does not process

information like most of us -that's for sure -but would I say he has

a learning disability? No. I'd even go so far to say he has the

potential for being a better learner than most -is that a disability?

And yes I do believe in Tanner -and he believes in himself. So as

far as Micah saying " I'm stupid " that's something to work on. I was

just reading this month's (don't laugh I like this magazine) Allure

and there was an article about unhealthy high self esteem (I don't

think there is such a thing - I found that the people I became

friends with when I was a model that acted like they are all that -

confided in me all these doubts they had in themselves - had low

self esteems they hid from almost all -and then there are also

those " just " unhealthy people)

So forget about too high self esteems -I learned about what may be

a very interesting game for all of us!

From the website:

" Healthy Self-Esteem is of critical importance to the development

and well being of both children and adults. Most of our belief

systems about ourselves, whether we perceive ourselves as good or

bad people, is learned unconsciously when we are children. Play

serves as a child's most individualized form of self-expression.

There is no other manner by which a child's thoughts, feelings, and

actions can take form so spontaneously or creatively.

With The Self-Esteem Gameâ„¢ we can enter a child's belief system

through game play. All to often kids focus their attention on the

negative things that are being said about them. The Self-Esteem

Gameâ„¢ allows children to learn to think of themselves as precious,

valuable, human beings that deserve to feel good about themselves

while having fun. In addition many cards focus on being responsible

for your own behavior and accepting the consequences of your actions.

The Self-Esteem Gameâ„¢ was developed by R. Sheehan Ph.D., a

clinical psychologist to assist parents, teachers, and therapists in

teaching the principals of healthy self-esteem. The Self-Esteem

Gameâ„¢ is really too good a tool for use just in therapy and

counseling situations. Every kid ought to be exposed to a game that

teaches him or her how to feel good about who they are as an

individual. If you're interested in more information please contact

us. "

http://www.selfesteeminc.com/

Today as a group children with communication impairments are at risk

for learning disabilities -but that can change. And again -Tanner

is not the exception -he also tested on standardized tests to be

receptively impaired. The tests only proved the obvious -you can't

test a verbal disabled child with a verbal based receptive/ IQ test.

http://www.cherab.org/news/verbaldisabledtest.html

Carol -I can't remember, do you have a dog? There is so much on

that as well for helping our children. The other day when I went on

the school trip to the Humane Society with Tanner's class I fell in

love with this cute sweetheart of a " 18 month old " dog who is a mix

of " yellow lab, golden retriever, and a bit of chow " (cute mutt)

that we are going to pick up tomorrow. (no more class trips for me

to the Humane Society!)

=====

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  • 1 year later...

Hi ,

My mom has Pd and that was my incentive for seeking this website for possible solutions. However, I noticed that for the most part most of the emails are in regards to MS.

YOURS is the first Pd reference. I had written a general email to this format asking about the persons with Pd. Got no response.

I am so glad to have seen your email. I had questions about the real help that ldn may offer to Pd persons. If you have experience/thoughts on this matter, I would so appreciate whatever you might choose to share.

My mom is 75, not on alot of allopathic meds. We got the Pd diagnosis in June 2004. She commented today about the limbs being slow and not responding to situations ie: getting into te car, she said her legs don't pull in very well.

I'm sure we are not sharing unfamiliar challenges with yoiu.

Thank youo for whatever youi may feel is apropro on our behalf.

Best Wishes To You,

Terry

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  • 2 weeks later...

I am relatively new to the protocol with Dr. G. I have noticed after

reading supportive emails, that we are in for a ride. My question is can I

expect

a life time of ups and downs with ? If autism is not curable then is the

protocol just making our children feel better? I understand that feeling

better is a win in itself. However, I have seen many children not on the

protocol doing very well. So if you get your child feeling when is it time to

move

on? When do you know that this is the best it can be and just feel

blessed that you have this child in your life? I have tried to find

information on

young adults with who started like my son... mild in his symptoms but

not really connecting with his peers. Any thoughts as always would be

wonderful.

Be Blessed,

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Hi ,

I've inserted my answers into the body of your post. I hope they help:

> I am relatively new to the protocol with Dr. G. I have noticed after

> reading supportive emails, that we are in for a ride. My question

is can I expect

> a life time of ups and downs with ?

Although it may seem like it sometimes :-), no, it won't be a

*lifetime*. Your son is only 4 1/2. You have every reason to believe

and expect that he will experience a full recovery in terms of health

functioning, although many children continue to need some form of

medication to function optimally. There used to be some parents of

teenaged patients of Dr. G's who are now recovered on this list, but

they have opted to leave and go on with their lives. I wish they were

still here, but I can't really blame them for wanting to just enjoy

being parents of " regular " kids for a change!

If autism is not curable then is the

> protocol just making our children feel better?

First of all, **Our children are not autistic**. We all have to try

to stop using that word " autism " in the same sentence as " cure " .

They were born perfectly normal and developed the disease process that

Dr. Goldberg calls . They -- and we -- have a right to hope and

expect that a cure will eventually be found. The protocol is the

best means of *restoring* and *maintaining* the kids' health until

newer treatments (the immune modulators that Dr. G talks about needing

research funding for) are available. Although there are some children

who do recover to the point that they function very well without

medication, for many children, the long-term treatment is for

maintenance in the same way that people stay on medication to control

illnesses like diabetes.

I understand that feeling

> better is a win in itself. However, I have seen many children not

on the

> protocol doing very well. So if you get your child feeling when is

it time to move

> on?

Some children do recover spontaneously as they mature and their immune

systems get stronger. Others do not and continue to need help. When

you move on is really dependent upon how well your child responds to

the protocol, what you observe, and your instincts. Once your child's

labs are in the normal ranges, Dr. G will try weaning him from the

meds to see how his body handles things on it's own. My own son is

very close to recovery, but so far he continues to need medication to

function well.

Hope that helps a bit.

Donna

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Also , it really helps to be informed and understand what is

wrong with your child. Is it viral? Is it mostly fungal? Is there

a bacterial component to it? Just my approach....and that is my

child is ILL...he's sick....you can see it in his eyes some days.

The reason...he is high viral which is keeping his immune system

very active, and he has a high ANA, which as I understand makes his

body have the tendancy to attack itself.

Try to focus on the medical and physiological problems with your

child, not so much the mental or emotional. When the body starts

healing, then you will see the improvement in the brain, emotions,

and development. Be determined!

>

>

> Hi ,

>

> I've inserted my answers into the body of your post. I hope they

help:

>

> > I am relatively new to the protocol with Dr. G. I have noticed

after

> > reading supportive emails, that we are in for a ride. My

question

> is can I expect

> > a life time of ups and downs with ?

>

> Although it may seem like it sometimes :-), no, it won't be a

> *lifetime*. Your son is only 4 1/2. You have every reason to

believe

> and expect that he will experience a full recovery in terms of

health

> functioning, although many children continue to need some form of

> medication to function optimally. There used to be some parents of

> teenaged patients of Dr. G's who are now recovered on this list,

but

> they have opted to leave and go on with their lives. I wish they

were

> still here, but I can't really blame them for wanting to just enjoy

> being parents of " regular " kids for a change!

>

> If autism is not curable then is the

> > protocol just making our children feel better?

>

> First of all, **Our children are not autistic**. We all have to

try

> to stop using that word " autism " in the same sentence as " cure " .

> They were born perfectly normal and developed the disease process

that

> Dr. Goldberg calls . They -- and we -- have a right to hope

and

> expect that a cure will eventually be found. The protocol is

the

> best means of *restoring* and *maintaining* the kids' health until

> newer treatments (the immune modulators that Dr. G talks about

needing

> research funding for) are available. Although there are some

children

> who do recover to the point that they function very well without

> medication, for many children, the long-term treatment is for

> maintenance in the same way that people stay on medication to

control

> illnesses like diabetes.

>

> I understand that feeling

> > better is a win in itself. However, I have seen many children

not

> on the

> > protocol doing very well. So if you get your child feeling

when is

> it time to move

> > on?

>

> Some children do recover spontaneously as they mature and their

immune

> systems get stronger. Others do not and continue to need help.

When

> you move on is really dependent upon how well your child responds

to

> the protocol, what you observe, and your instincts. Once your

child's

> labs are in the normal ranges, Dr. G will try weaning him from the

> meds to see how his body handles things on it's own. My own son is

> very close to recovery, but so far he continues to need medication

to

> function well.

>

> Hope that helps a bit.

>

> Donna

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  • 2 months later...
Guest guest

As of yesterday, he has quit school. He was being forced to take the Missouri

Map test or spend the rest of the year in ISS. He chose not to go back today.

Now I have an unsupervised 17 year old at home with a significant other who has

no interest in battling with him.

Any suggestions?

AndiB <cca1960@...> wrote:

Roxanna, I have a new set of (sigh) issues to deal with daily it seems. Sam

thrives on discontent. Everyont thought " I " did, but he beats me all to heck!

They are going to keep him until probably Wednesday. Medically, he is stable.

The psychologist we had Thursday night saw the jerk side of Sam then and he had

not yet had time to discuss with the team Sam's behaviors.

The school is going to work with him however they can. It is a small school and

my home school and the principal grew up with us all. So, he is concerned too.

His options for school are to take his GED at the end of this year and take

regular classes with a tutor for the rest of the year and he can have a tutor

for this year and next. He only has History to finish, English to pass and then

to take one more English credit to finish high school. But he wants OUT, so

there's my problem. What to do with him when he gets out?

Or IF.

The second option is to put him in a BRAVE classroom with kids who are behavior

disordered. That would give him a teacher with an aide for the day and give him

math instruction one hour per day. PROBLEM is he is takign trig...not general

math.

Third option is to be homebound and meet with a teacher two times per week. In

my opinion, BAD IDEA.

Then the last option is the Alternative School. Any options he takes jerks him

out of his Computer Tech class. EXCEPT the regular classes with a tutor.

My daughter is thinking about guardianship and she is the best one to handle it.

I fear her distance will be a factor that will not be positive, but who knows?

Roxanna Neely wrote:

AndiB wrote:

am beginning to think that all shrinks are from MARS. My son Sam is 17 and he

didn't get a dx of BPD until he was 12 or 13. Then when I was having him

evaluated for an IEP, the evaluator dx'd him as having Aspergers. When I took

him to a hospital and a team evaluated him for a couple of hours, they took the

AS away but supported BPD. After that, I had two more dx's of AS which I had to

have to get his IEP.

He was a Sophomore before we got it.

Last week, he chose to go cold turkey off his meds and stop going to school. He

is going to fail this semester from absences anyway at this point and I told him

he was going to CHANGE the way he does things or he is not going to live with me

any longer. That was after I took his keys away from him. I couldn't believe he

gave them to me when I said, " Give them to me now, or at the police station. "

lol I guess that did it eh?

Then later he asked me to take him to the hospital. He slept the entire time he

was there. But, since I told them he was suicidal, they had to take him

somewhere.

So, now the pdoc up there has taken the BPD away and just given him the AS dx.

He is going to be non compliant with his meds but they are going to give him

something he can take when he feels agitated....what the heck? I don't want him

having Ativan to take at will...HECK NO.

He will likely be discharged on Monday or Tuesday. He may quit school and go for

his GED. That is a disaster happening!

So, I am prepared to take his electricity away from him in his room and have the

breaker taken OUT of the breaker box b/c he knows how to turn it back on if it

is off at the box...been there and done that.

ALSO, I am planning to take all of his books and distractions out of his room

because he is NOT going to do nothing in my house!

there I feel better. lol

Oh, you poor thing! Sounds like he is driving you insane! Maybe let him try the

ativan and see how it works. Does he say why he won't take meds? My ds also hit

about 12 and said he refused to take his meds any longer. So I know that

routine.

Instead of taking everything away, why not give him a few days to cool off and

then perhaps you can work with him on ideas to make this work. For instance, one

way is to focus on his future plans. What does he ultimately want to do to

support himself as an adult? Does he want to get a factory job, learn a skill or

go to college? Each of these things has a path leading to it. A lot of times, I

could encourage my ds to move just by telling him, " You have to do this before

you can go to college " or " before you can get your high school diploma " He

wouldn't like it but he would do it because it was ultimately his own future. We

got through jr. high english doing that. lol.

Also, school sounds like a big problem. What are ways to make going to school

doable for him? What parts of school are problems? If you go to school and work

with them to make it something he can do, maybe he will see that and agree to

give it another shot. sometimes just knowing we are on their side helps.

Roxanna

Look alive. Here comes a buzzard.

-- Pogo

__________________________________________________

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In a message dated 4/5/2005 4:04:52 PM Eastern Daylight Time,

casadecruz@... writes:

**A continuation school. What kinds of programs are available? The

school failed him and they need to step up to the plate, period. How

long before he graduates? If he can't make it at public school, they

need to help him. Private school? District funded, of course.

it isn't really that simple to be honest. Some states legally allow

children to drop out of school at age 16 and up. That is why the transition

plan

for children with IEPs starting at age 14 is so important. Usually if the

parties can come to some kind of an alternative program (sometimes as simple as

getting creative with the IEP) with accommodations for a child early, then the

chances of them dropping out are less likely to occur.

I think if I was in a similar situation, I would contact the school and try

to get the team together for some kind of emergency meeting. Perhaps there

is a way for him to get some accommodations on the MAP test and get him on

board with a vocational component.

Here are a few links that might have useful information. Pam :)

_Infosheet About Transition-The Council for Learning Disabilities_

(http://www.cldinternational.org/c/@eQpD720.NP1.k/Pages/transition.html)

_Strategies and Successes in School Dropout Prevention_

(http://www.aypf.org/forumbriefs/1995/fb100695.htm)

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I'm sorry he quit school this close to the end of the year. Is your son in

counseling? Does he have a group of friends and activities that he enjoys?

My son is small, so I regret not having more wisdom. I'm just sorry your

son is struggling right now. How are you holding up?

T.

mom of Sasha, 7

At 08:51 AM 4/5/2005 -0700, you wrote:

>As of yesterday, he has quit school. He was being forced to take the

>Missouri Map test or spend the rest of the year in ISS. He chose not to

>go back today.

>

>Now I have an unsupervised 17 year old at home with a significant other

>who has no interest in battling with him.

>

>Any suggestions?

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On Apr 5, 2005, at 8:51 AM, AndiB wrote:

>

> As of yesterday, he has quit school. He was being forced to take the

> Missouri Map test or spend the rest of the year in ISS. He chose not

> to go back today.

>

> Now I have an unsupervised 17 year old at home with a significant

> other who has no interest in battling with him.

>

> Any suggestions?

**A continuation school. What kinds of programs are available? The

school failed him and they need to step up to the plate, period. How

long before he graduates? If he can't make it at public school, they

need to help him. Private school? District funded, of course.

Tina

livin' in Alphabet Soup with:

, 6, AS/HFA , anxiety

Jordan 10, GAD, BP, OCD

Jasmine as NT as it gets, for now

dw to Jon- AS but fixated on computers= $$

" The three most important voices: the voice of your heart, the voice of

your gut and the voice of your child. " -Heidi Lissauer -adult with

autism who has autistic children, as well

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My son stopped going to school one day during his sophomore year, too.

It was just too overwhelming. I think there were a lot of reasons,

including bullying, classes that were too large, volumes upon volumes

of homework, work that was too easy, stupid work, the work that was at

the right level came in huge waves. So one day he just quit. I called

an immediate IEP and told them that it wasn't working and that I wanted

him to go to a school for gifted kids with learning disabilities. I

paid the first month myself so we could get him started right away. The

school district picked up the tab starting the second month.

Liz

What's a Missouri Map test?

On Apr 5, 2005, at 1:00 PM, Tina Cruz wrote:

>

>

> On Apr 5, 2005, at 8:51 AM, AndiB wrote:

>

>>

>> As of yesterday, he has quit school. He was being forced to take the

>> Missouri Map test or spend the rest of the year in ISS. He chose not

>> to go back today.

>>

>> Now I have an unsupervised 17 year old at home with a significant

>> other who has no interest in battling with him.

>>

>> Any suggestions?

>

> **A continuation school. What kinds of programs are available? The

> school failed him and they need to step up to the plate, period. How

> long before he graduates? If he can't make it at public school, they

> need to help him. Private school? District funded, of course.

>

>

>

> Tina

> livin' in Alphabet Soup with:

> , 6, AS/HFA , anxiety

> Jordan 10, GAD, BP, OCD

> Jasmine as NT as it gets, for now

> dw to Jon- AS but fixated on computers= $$

>

> " The three most important voices: the voice of your heart, the voice of

> your gut and the voice of your child. " -Heidi Lissauer -adult with

> autism who has autistic children, as well

>

>

>

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