?

[Guest guest]

,

Sent a message few hours ago to help me out advising furtheron empty

digest members since last weekend. No answer here. Seems to have gone through.

Wanita

downwardog7 <illneverbecool@...> wrote:

Where you at?

I tried to send one email off list and all I got was the mailer demon.

B.

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[Guest guest]

The young that I know of was about 24 and passed away in his

sleep about 5 months ago. I also knew him as Triplecow.

>

> Can someone tell me which it was that passed away? I'm very

sorry to hear this. I remember a couple of s that I haven't heard

from for quite a while. Both have been missed. I'm so sorry to hear

that one of them may be really gone.

>

> penny

>

[Guest guest]

Wow, this really sucks. I had no idea. was a passionate young guy who was trying to do anything he could to figure this illness out. It's a crime that his life threatening illness was missed because he wasn't taken any more seriously than the rest of us are. A 24 year old guy and they completely overlook a heart problem? I hope his family is suing. pennyjellybelly92008 <herranenb@...> wrote: The young that I know of was about 24 and passed away in his sleep about 5 months ago. I

also knew him as Triplecow.>> Can someone tell me which it was that passed away? I'm very sorry to hear this. I remember a couple of s that I haven't heard from for quite a while. Both have been missed. I'm so sorry to hear that one of them may be really gone. > > penny>

[Guest guest]

Breckenridge was his name. A frequenter of CFS-Experimental too, with a mind not yet damaged by this disease. Cause of death per autopsy was a seizure. (He had a history of grand mal seizures, but I don't think they were a pre-CFIDS issue, but a post CFIDS development issue.) A nice guy.

Donna in NC

Re: [infections] Re: ?

Wow, this really sucks. I had no idea. was a passionate young guy who was trying to do anything he could to figure this illness out. It's a crime that his life threatening illness was missed because he wasn't taken any more seriously than the rest of us are. A 24 year old guy and they completely overlook a heart problem? I hope his family is suing.

pennyjellybelly92008 <herranenb@...> wrote:

The young that I know of was about 24 and passed away in his sleep about 5 months ago. I also knew him as Triplecow.>> Can someone tell me which it was that passed away? I'm very sorry to hear this. I remember a couple of s that I haven't heard from for quite a while. Both have been missed. I'm so sorry to hear that one of them may be really gone. > > penny>

[Guest guest]

Hmm, another guy I knew, a doctor in the prime of his life, died of a seizure, which he'd never experienced in his entire life until bad jaw surgery that let the infection carve a channel right to his brain. pennyDonna Pruitt <donnap@...> wrote: Breckenridge was his name. A frequenter of CFS-Experimental too, with a mind not yet damaged by this disease. Cause of death per autopsy was a seizure. (He had a history of grand mal seizures, but I don't think they were a pre-CFIDS issue,

but a post CFIDS development issue.) A nice guy. Donna in NC Re: [infections] Re: ? Wow, this really sucks. I had no idea. was a passionate young guy who was trying to do anything he could to figure this illness out. It's a crime that his life threatening

illness was missed because he wasn't taken any more seriously than the rest of us are. A 24 year old guy and they completely overlook a heart problem? I hope his family is suing. pennyjellybelly92008 <herranenb@...> wrote: The young that I know of was about 24 and passed away in his sleep about 5 months ago. I also knew him as Triplecow.>> Can someone tell me which it was that passed away? I'm very sorry to hear this. I remember a couple of s that I haven't heard from for quite a while. Both have been missed. I'm so sorry to hear that one of them may be really gone. >

> penny>

[Guest guest]

Donna, Thanks. I used to talk to all the time. I was absent from the forums during the time of his death. I feel I knew him and am really sad to hear this. Sad & mad. penny Donna Pruitt <donnap@...> wrote: Breckenridge was his name. A frequenter of CFS-Experimental too, with a mind not yet damaged by this disease. Cause of death per autopsy was a seizure. (He had a history of grand mal seizures, but I don't think they were a pre-CFIDS issue, but a post CFIDS

development issue.) A nice guy. Donna in NC Re: [infections] Re: ? Wow, this really sucks. I had no idea. was a passionate young guy who was trying to do anything he could to figure this illness out. It's a crime that his life threatening illness was missed

because he wasn't taken any more seriously than the rest of us are. A 24 year old guy and they completely overlook a heart problem? I hope his family is suing. pennyjellybelly92008 <herranenb@...> wrote: The young that I know of was about 24 and passed away in his sleep about 5 months ago. I also knew him as Triplecow.>> Can someone tell me which it was that passed away? I'm very sorry to hear this. I remember a couple of s that I haven't heard from for quite a while. Both have been missed. I'm so sorry to hear that one of them may be really gone. > >

penny>

[Guest guest]

Penny, it was Breckinridge. The other

with Lyme is doing well.

a

Can someone tell me which it was that passed away? I'm very sorry

to hear this. I remember a couple of s that I haven't heard from for quite

a while. Both have been missed. I'm so sorry to hear that one of them may be

really gone.

penny

[Guest guest]

,

I'd be interested in reading 'The Curious Incident of The Dog in The

Nightmare'...can you tell me more? Author's name?

I couldn't find the title on amazon.com.

Thanks,

Marsha

Amber <tootsanderson@...> wrote:

My 5-y-o has an enormous vocabulary as well. At 15 months he handed

me a bag of fruit snacks and said, " These make me poop. " Everyday he

tells me things like " Evie (his NT 2-y-o sister) is purposely

aggrevating me! " and " Well, it did take me a while but I eventually

found my legos in this box. " His really obvious problems have been

mostly socially related. He now tries to mimic the emotions of the

other children. Liek if they seem excited to see their mothers he

will act the same toward me although it is patently artifical and is

painfully obvious to even the most casual observer. He very rarely

gets excited unless the matter is his obsessions or he sees the other

children get excited, then he mimics them. It's a little disconcerting.

Amber

>

> Hi ,

> My son also has an advanced vocabulary. He has what one Dr. referred

to as " professor language " He uses a lot of big words. He is very

intelligent. He knew all his shapes colours letter and numbers by

sight at 18months old. He just has a lot of quirks and tantrums over

the smallest of things. He memorizes everything and has no concept of

feelings- Other than his own happiness and anger. I read a book

recommended by our child psychiatrist called. " the curious incident of

the dog in the nighttime. " I really enjoyed it because it is written

though the eyes of a boy with asperger's. It was really good and an

easy read. Talk to you soon.

>

> ( ) Hi, new here (m)

>

>

> I took my 7-y/o son to a child psychiatrist Monday evening and he

> suggested the possibility of Aspergers. Until now we've had

> diagnosis of ADHD, Tourette's Syndrome, OCD and ODD. The

> developmental pediatrician we've been seeing questioned the

> Tourette's Diagnosis and the psychiatrist flat out said there was no

> way and explained why.

>

> The " homework " from the psychiatrist this week was to research

> Aspergers and report back to him on Monday any traits my husband and

> I observed or thought applied to our son. So far the only

> information I've been able to locate is the diagnositic criteria for

> Aspergers. My husband and I read over that several times and our son

> seems to have most of those traits.

>

> I'm just not sure I'm understanding everything. Our son has tested

> into the gifted program at school (when they finally got him on a

> day he'd cooperate and not sit there and stare at floor during the

> test) and he has a very advanced vocabulary for his age. I'm reading

> that Aspergers is a form of autism and he just totally doesn't fit

> with the image of autistic I seem to have in my mind.

>

> I'm kind of hoping someone here with more experience can explain

> Aspergers a bit better to me.

>

> Any input would be greatly appreciated.

>

> ~

>

>

>

>

>

>

>

[Guest guest]

Marsha,

Hi I am not (obviously) lol but I think the book might be.

The Curious Incident of the Dog in the Night-Time by Mark Haddon ...

I just finished it and highly recommend to everyone. I loved it! My daughters

teacher was talking about it so I bought it.

Tammie

( ) Hi, new here (m)

>

>

> I took my 7-y/o son to a child psychiatrist Monday evening and he

> suggested the possibility of Aspergers. Until now we've had

> diagnosis of ADHD, Tourette's Syndrome, OCD and ODD. The

> developmental pediatrician we've been seeing questioned the

> Tourette's Diagnosis and the psychiatrist flat out said there was no

> way and explained why.

>

> The " homework " from the psychiatrist this week was to research

> Aspergers and report back to him on Monday any traits my husband and

> I observed or thought applied to our son. So far the only

> information I've been able to locate is the diagnositic criteria for

> Aspergers. My husband and I read over that several times and our son

> seems to have most of those traits.

>

> I'm just not sure I'm understanding everything. Our son has tested

> into the gifted program at school (when they finally got him on a

> day he'd cooperate and not sit there and stare at floor during the

> test) and he has a very advanced vocabulary for his age. I'm reading

> that Aspergers is a form of autism and he just totally doesn't fit

> with the image of autistic I seem to have in my mind.

>

> I'm kind of hoping someone here with more experience can explain

> Aspergers a bit better to me.

>

> Any input would be greatly appreciated.

>

> ~

>

>

>

>

>

>

>

[Guest guest]

You are correct . I too just finished that book and it is amazing. I

think every one with an Austic child should read that book. it givesyou a great

insite of how these kids think.

Leanne

Tammie <trloe06@...> wrote:

Marsha,

Hi I am not (obviously) lol but I think the book might be.

The Curious Incident of the Dog in the Night-Time by Mark Haddon ...

I just finished it and highly recommend to everyone. I loved it! My daughters

teacher was talking about it so I bought it.

Tammie

( ) Hi, new here (m)

>

>

> I took my 7-y/o son to a child psychiatrist Monday evening and he

> suggested the possibility of Aspergers. Until now we've had

> diagnosis of ADHD, Tourette's Syndrome, OCD and ODD. The

> developmental pediatrician we've been seeing questioned the

> Tourette's Diagnosis and the psychiatrist flat out said there was no

> way and explained why.

>

> The " homework " from the psychiatrist this week was to research

> Aspergers and report back to him on Monday any traits my husband and

> I observed or thought applied to our son. So far the only

> information I've been able to locate is the diagnositic criteria for

> Aspergers. My husband and I read over that several times and our son

> seems to have most of those traits.

>

> I'm just not sure I'm understanding everything. Our son has tested

> into the gifted program at school (when they finally got him on a

> day he'd cooperate and not sit there and stare at floor during the

> test) and he has a very advanced vocabulary for his age. I'm reading

> that Aspergers is a form of autism and he just totally doesn't fit

> with the image of autistic I seem to have in my mind.

>

> I'm kind of hoping someone here with more experience can explain

> Aspergers a bit better to me.

>

> Any input would be greatly appreciated.

>

> ~

>

>

>

>

>

>

>

[Guest guest]

Vig have your daughter read some of the stuff on our website ...I have a 29 yr old daughter and after all I've been thru she wouldn't think twice about implants !

[Guest guest]

Dad,

Since you are a man you can tell her what is more important to men is

how a woman that loves herself for who she is is far more attractive

than someone who is insecure about herself. A woman who has alot to

offer the world in the way of helping people and becoming a good person

on the inside is what God wants us to do. Just my opinion of course.

That is what I tell my Lilia who is 9, As cnterfold I had more men who

came to see me say that they liked me more for the fact that I was a

real person and treated them with kindness than how I looked, and that

I was so genuine. I was a centerfold Penthouse 1987 October. Over and

over through the years I received letters that I had made a real

connection because of my background in foster homes and my sad family

life I guess. I always felt God gave me alot of gifts and to help

others was a huge one. I did get a little misguided during my twenties

and thought being a centerfold would help me fullfil my dreams of being

an actress,Now I want to help young women to love themselves for who

they are. My story is at Humantics foundation, Good luck dad

aloha,

Terri P

>

> I'm a single Father of 2 girls one 14 and an other 6 I know you women

> have all had problems with implants. In a world that pushes

perfection

> how do I get the truth across. Their Mother is large breasted and

> somtimes makes my 14 yr old feel bad and says that is what men want.

I

> tell her different. I tell her that one a guy likes her that will not

> matter. What more can I say or do

>

> Virg

>

[Guest guest]

One could point out positive female role models, , et al,

that are not big busted but are very sexy.

And, it would help if male friends also echoed your words.

I do not believe it is helpful to developing children to put expectations

on them that they need large breasts to get by in the world. Perhaps a

school counselor can help.

Lynda

> I'm a single Father of 2 girls one 14 and an other 6 I know you women

> have all had problems with implants. In a world that pushes perfection

> how do I get the truth across. Their Mother is large breasted and

> somtimes makes my 14 yr old feel bad and says that is what men want. I

> tell her different. I tell her that one a guy likes her that will not

> matter. What more can I say or do

>

> Virg

>

>

>

[Guest guest]

-I just wanted to say Thank you for your reply. I think I should

have put I have a strong Christain Faith and I'm a Ghetto kid grew

up around San Diego area so I have a rough manner not demeaning just

rough. I don't have a possitive female role I can think of I also

come from a abusive back ground and My Father passed when I was 10.

That is why I am asking right now I'm not dating and I really am not

planning for awhile. My daughter was also a cutter. We talk but

still I'm not a women. My daughters name is Ariel. I just remember

some of the women I dated what they would say. I thank you very much

and please if any thing else comes to mind please let me know. The

Bible Says that Children are a Gift from God and I believe that with

all my heart!

Virg

-- In , " Peake "

<peaketeresa@...> wrote:

>

> Dad,

> Since you are a man you can tell her what is more important to men

is

> how a woman that loves herself for who she is is far more

attractive

> than someone who is insecure about herself. A woman who has alot

to

> offer the world in the way of helping people and becoming a good

person

> on the inside is what God wants us to do. Just my opinion of

course.

> That is what I tell my Lilia who is 9, As cnterfold I had more

men who

> came to see me say that they liked me more for the fact that I was

a

> real person and treated them with kindness than how I looked, and

that

> I was so genuine. I was a centerfold Penthouse 1987 October. Over

and

> over through the years I received letters that I had made a real

> connection because of my background in foster homes and my sad

family

> life I guess. I always felt God gave me alot of gifts and to help

> others was a huge one. I did get a little misguided during my

twenties

> and thought being a centerfold would help me fullfil my dreams of

being

> an actress,Now I want to help young women to love themselves for

who

> they are. My story is at Humantics foundation, Good luck dad

> aloha,

> Terri P

>

>

>

>

>

> --- In , " hellodadda " <virgtom@>

wrote:

> >

> > I'm a single Father of 2 girls one 14 and an other 6 I know you

women

> > have all had problems with implants. In a world that pushes

> perfection

> > how do I get the truth across. Their Mother is large breasted

and

> > somtimes makes my 14 yr old feel bad and says that is what men

want.

> I

> > tell her different. I tell her that one a guy likes her that

will not

> > matter. What more can I say or do

> >

> > Virg

> >

>

[Guest guest]

Virg, I commend you for being such a caring father.

From what I've learned, girls get their self-image (body)mostly from

the way their father treats them and by what he says. Sounds like

you've done great so far....just keep complementing them and

reminding them to love themselves just the way they are! Real men

don't pressure their girlfriend or wife to " get " bigger

boobs...you're right. When someone cares for you, that doesn't

matter. I found out the hard way by ruining my health. I am now

explant-free and on the road to health.

Keep up the good parenting...it's awesome!

Love, Sunny Grandma of 4

--- In , " hellodadda " <virgtom@...>

wrote:

>

> I'm a single Father of 2 girls one 14 and an other 6 I know you

women

> have all had problems with implants. In a world that pushes

perfection

> how do I get the truth across. Their Mother is large breasted and

> somtimes makes my 14 yr old feel bad and says that is what men

want. I

> tell her different. I tell her that one a guy likes her that will

not

> matter. What more can I say or do

>

> Virg

>

[Guest guest]

Once again, Virg, God bless you for loving your daughters like you

do. I will pray for strength for you and healing for all.

Love & Much Healing, Sunny

> > >

> > > I'm a single Father of 2 girls one 14 and an other 6 I know you

> women

> > > have all had problems with implants. In a world that pushes

> > perfection

> > > how do I get the truth across. Their Mother is large breasted

> and

> > > somtimes makes my 14 yr old feel bad and says that is what men

> want.

> > I

> > > tell her different. I tell her that one a guy likes her that

> will not

> > > matter. What more can I say or do

> > >

> > > Virg

> > >

> >

>

[Guest guest]

Hey Virgil,

I am from East San Diego also. I went to Crawford High. I grew up on

Bates st. So I know what it is to grow up poor.I grew up with a very

sick mom who died at 41. I lived in and out of foster homes. I forgot

to mention my story is at breastimplantawareness.org/Terrihtm. Have

her read my story. And some of the others.Maybe it will help get a

dialogue going. It is nice to talk with a concerned dad good for you

for reaching out this way!!!

Good luck feel free to e-mail me agin at the site.

Terri P

> > >

> > > I'm a single Father of 2 girls one 14 and an other 6 I know you

> women

> > > have all had problems with implants. In a world that pushes

> > perfection

> > > how do I get the truth across. Their Mother is large breasted

> and

> > > somtimes makes my 14 yr old feel bad and says that is what men

> want.

> > I

> > > tell her different. I tell her that one a guy likes her that

> will not

> > > matter. What more can I say or do

> > >

> > > Virg

> > >

> >

>

[Guest guest]

Virg, You are already a wonderful father by being concerned about your children. In my honest opinion you as a father would go further by what you do than by what you say to your girls. This is speaking from a woman who has always felt distance from my dad. I longed for my father to show interest in who I was and want to spend time with me. My father never told me I was beautiful inside or out. He never praised me for making good choices in goals or friends. He never guided me in anything, especially what really makes a woman truely beautiful. He didn't encourage me to have a heart and to love others as myself. He was in my home, but never there. Because of this void I had in my life, I looked for other males to fill it. I was a child that learned fast, watching TV and listening to radio, I soon found what was the fastest way to get this attention....through my body. My

father never told me I was worth more. He never told me, or showed me, that men can love a woman for who she was. Virg, I know you worry about your girls' views of their bodies, which is a wonderful place to start, If I could recommend anything, it would be to always be available to share your views and concerns and always be honest and open to talk. Show them you value the beauty they have just as they are, now and as they grow. If you are concerned about the health aspects that women face, speak with them gently and accuately with facts. As a Christian man, find verses in the Bible that support your views and share them with your girls. Give them this...Beauty is in the eye of the beholder, and them ask them...What kind of man do they want beholding them? You will do well, I am sure. Prayerfully, hellodadda <virgtom@...> wrote: -I just wanted to say Thank you for your reply. I think I should have put I have a strong Christain Faith and I'm a Ghetto kid grew up around San Diego area so I have a rough manner not demeaning just rough. I don't have a possitive female role I can think of I also come from a abusive back ground and My Father passed when I was 10. That is why I am asking right now I'm not dating and I really am not planning for awhile. My daughter was also a

cutter. We talk but still I'm not a women. My daughters name is Ariel. I just remember some of the women I dated what they would say. I thank you very much and please if any thing else comes to mind please let me know. The Bible Says that Children are a Gift from God and I believe that with all my heart!Virg-- In , " Peake" <peaketeresa@...> wrote:>> Dad,> Since you are a man you can tell her what is more important to men is > how a woman that loves herself for who she is is far more attractive > than someone who is insecure about herself. A woman who has alot to > offer the world in the way of helping people and becoming a good person > on the inside is what God wants us to do. Just my opinion of course. > That is what I tell my Lilia who is 9, As

cnterfold I had more men who > came to see me say that they liked me more for the fact that I was a > real person and treated them with kindness than how I looked, and that > I was so genuine. I was a centerfold Penthouse 1987 October. Over and > over through the years I received letters that I had made a real > connection because of my background in foster homes and my sad family > life I guess. I always felt God gave me alot of gifts and to help > others was a huge one. I did get a little misguided during my twenties > and thought being a centerfold would help me fullfil my dreams of being > an actress,Now I want to help young women to love themselves for who > they are. My story is at Humantics foundation, Good luck dad> aloha,> Terri P> > > > > > > >> > I'm a single Father of 2 girls one 14 and an other 6 I know you women > > have all had problems with implants. In a world that pushes > perfection > > how do I get the truth across. Their Mother is large breasted and > > somtimes makes my 14 yr old feel bad and says that is what men want. > I > > tell her different. I tell her that one a guy likes her that will not > > matter. What more can I say or do> > > > Virg> >>

Stay in the know. Pulse on the new .com. Check it out.

[Guest guest]

-,

This is so beautiful!!

Terri P

-- In , Lamse

<wannabe_proverbs31@...> wrote:

>

> Virg,

>

> You are already a wonderful father by being concerned about your

children. In my honest opinion you as a father would go further by

what you do than by what you say to your girls. This is speaking

from a woman who has always felt distance from my dad. I longed for

my father to show interest in who I was and want to spend time with

me. My father never told me I was beautiful inside or out. He never

praised me for making good choices in goals or friends. He never

guided me in anything, especially what really makes a woman truely

beautiful. He didn't encourage me to have a heart and to love others

as myself. He was in my home, but never there. Because of this void

I had in my life, I looked for other males to fill it. I was a child

that learned fast, watching TV and listening to radio, I soon found

what was the fastest way to get this attention....through my body.

My father never told me I was worth more. He never told me, or

showed me, that men can love a woman

> for who she was.

>

> Virg, I know you worry about your girls' views of their bodies,

which is a wonderful place to start, If I could recommend anything,

it would be to always be available to share your views and concerns

and always be honest and open to talk. Show them you value the

beauty they have just as they are, now and as they grow. If you are

concerned about the health aspects that women face, speak with them

gently and accuately with facts. As a Christian man, find verses in

the Bible that support your views and share them with your girls.

Give them this...Beauty is in the eye of the beholder, and them ask

them...What kind of man do they want beholding them?

>

> You will do well, I am sure.

>

> Prayerfully,

>

>

>

> hellodadda <virgtom@...> wrote:

> -I just wanted to say Thank you for your reply. I think I

should

> have put I have a strong Christain Faith and I'm a Ghetto kid grew

> up around San Diego area so I have a rough manner not demeaning

just

> rough. I don't have a possitive female role I can think of I also

> come from a abusive back ground and My Father passed when I was 10.

> That is why I am asking right now I'm not dating and I really am

not

> planning for awhile. My daughter was also a cutter. We talk but

> still I'm not a women. My daughters name is Ariel. I just remember

> some of the women I dated what they would say. I thank you very

much

> and please if any thing else comes to mind please let me know. The

> Bible Says that Children are a Gift from God and I believe that

with

> all my heart!

> Virg

>

> -- In , " Peake "

> <peaketeresa@> wrote:

> >

> > Dad,

> > Since you are a man you can tell her what is more important to

men

> is

> > how a woman that loves herself for who she is is far more

> attractive

> > than someone who is insecure about herself. A woman who has alot

> to

> > offer the world in the way of helping people and becoming a good

> person

> > on the inside is what God wants us to do. Just my opinion of

> course.

> > That is what I tell my Lilia who is 9, As cnterfold I had more

> men who

> > came to see me say that they liked me more for the fact that I

was

> a

> > real person and treated them with kindness than how I looked, and

> that

> > I was so genuine. I was a centerfold Penthouse 1987 October. Over

> and

> > over through the years I received letters that I had made a real

> > connection because of my background in foster homes and my sad

> family

> > life I guess. I always felt God gave me alot of gifts and to help

> > others was a huge one. I did get a little misguided during my

> twenties

> > and thought being a centerfold would help me fullfil my dreams of

> being

> > an actress,Now I want to help young women to love themselves for

> who

> > they are. My story is at Humantics foundation, Good luck dad

> > aloha,

> > Terri P

> >

> >

> >

> >

> >

> >

> > >

> > > I'm a single Father of 2 girls one 14 and an other 6 I know you

> women

> > > have all had problems with implants. In a world that pushes

> > perfection

> > > how do I get the truth across. Their Mother is large breasted

> and

> > > somtimes makes my 14 yr old feel bad and says that is what men

> want.

> > I

> > > tell her different. I tell her that one a guy likes her that

> will not

> > > matter. What more can I say or do

> > >

> > > Virg

> > >

> >

>

>

>

>

>

>

> ---------------------------------

> Stay in the know. Pulse on the new .com. Check it out.

>

[Guest guest]

I have been on again off again with what to do for my son. I stay awake

night after night wanting to do the right thing for him. I know that most

people on this site believe Dr. G to be right. Although I know he must be on

to

something I have so many doctors telling me that this protocol is wrong for my

son. All know of Dr. G. Not one has said anything nice. How can all of

them (top in the field of their expertise) be wrong. Although they agree with

some things they have all said treating it this way is dangerous.

We decided to take some time off and see how my son would do. At first no

change good or bad. Then some good things happened he started eating and

gaining weight. Until recently (now 4 months off everything but the ssri)

there

has been little change. He is still moving forward in his in-home program

and school are fine except for social which on or off medication has always

been his problem.

I read all the emails from many groups and each group has their success

stories. Although I guess you could say my son is doing well he is not what

Dr.

G. told me he would be. After 2 years I thought things would be different.

Now once again I am second guessing my decision to take him off the protocol

because even on Celexa his fears and OCD are back. He shyer and afraid. I

have been told that is what happens with Autism sometimes. So my question is

has this happened to anyone else trying to back off the protocol.

I will be talking to a doctor who practices Dr. Amy Yasko protocol. I do

not know what that will bring.

I am not sure Dr. G. would take us back. I must also say the few times I

have emailed I have gotten just as many emails of line about they had a bad

expertises with Dr. G.

I would love some thoughts if anyone has them.

Thanks

************************************** See what's free at http://www.aol.com.

[Guest guest]

Alica, I don't often respond to posts on this list as my daughter is not a

patient of Dr. G's she is a patient of Dr. 's. But I wanted to share

with you my thoughts and experiences. I am the mother of 2 special needs

children. My biological son has albinism and as a result is legally blind our

daughter has albinism (she is legally blind) and she has autism as well.

I had talked with many many pediatric ophthalmologists about things that could

be done to improve their vision but all of them told me that nothing could be

done and that I needed to just accept their being legally blind. I then heard

about a procedure that would dampen their nystagmus. I followed the doctor's

work for 2 years before mentioning it to my son who was then 12. Zack and I

talked about the pro's and con's of the procedure and I let it go telling him

that if he wanted more information all he needed to do was tell me and I would

take him to see the doctor. I left the decision up to him as he is a very

mature child who is gifted. Zack thought about it and 3 months after I told him

he asked to see the doctor. A few months later Zack had the surgery. It was

horribly painful but the minute he opened his eyes he could see better. He was

thrilled!!! As his eyes healed his acuity went from 20/200 to 20/70 with best

correction. That means that Zack is now

legal to drive in the state of NY with an unrestricted drivers license. At his

6 week check up Zack told us to schedule for surgery as he believed that

it was a miracle. She had surgery a few months later and although she could not

talk you could clearly see that she could see things that she could not before.

The day before the surgery got her autism diagnosis and we were told

that we should not take her to see any of the DAN doctor's or nothing of the

sort. I had been told that diet would not help and that the only thing that

would help was therapy.

I had already decided to take to see Dr. in NY. began

treatment. 10 months into treatment is now recognizing words, she has

about 40 words in her vocabulary and her receptive language is nearly on age

level. She knows her body parts, shapes and colors. She is dressing herself,

putting on her shoes and we can take her in public with out her screaming like a

fool. LIFE IS GOOD!!!!!!

Bottom line is that it takes the medical community a very long time to accept

something and I believe that if we sit on our back sides and wait for these

things to become accepted our children may never know what it is like to be at

their full potential. My children are living proof that sometimes doctor's do

not know best and some do. Follow your GUT!!!!!! If your gut tells you that

their is something that you can do then do it!!! NO ONE KNOWS YOUR CHILD BETTER

THAN YOU!!!! Sheri

dazseaton@... wrote:

I have been on again off again with what to do for my son. I stay

awake

night after night wanting to do the right thing for him. I know that most

people on this site believe Dr. G to be right. Although I know he must be on to

something I have so many doctors telling me that this protocol is wrong for my

son. All know of Dr. G. Not one has said anything nice. How can all of

them (top in the field of their expertise) be wrong. Although they agree with

some things they have all said treating it this way is dangerous.

We decided to take some time off and see how my son would do. At first no

change good or bad. Then some good things happened he started eating and

gaining weight. Until recently (now 4 months off everything but the ssri) there

has been little change. He is still moving forward in his in-home program

and school are fine except for social which on or off medication has always

been his problem.

I read all the emails from many groups and each group has their success

stories. Although I guess you could say my son is doing well he is not what Dr.

G. told me he would be. After 2 years I thought things would be different.

Now once again I am second guessing my decision to take him off the protocol

because even on Celexa his fears and OCD are back. He shyer and afraid. I

have been told that is what happens with Autism sometimes. So my question is

has this happened to anyone else trying to back off the protocol.

I will be talking to a doctor who practices Dr. Amy Yasko protocol. I do

not know what that will bring.

I am not sure Dr. G. would take us back. I must also say the few times I

have emailed I have gotten just as many emails of line about they had a bad

expertises with Dr. G.

I would love some thoughts if anyone has them.

Thanks

************************************** See what's free at http://www.aol.com.

[Guest guest]

Being in the top of your field doesn't necessarily mean much,

especially when it comes to autism. I can't tell you what to do

other than to follow your heart and gut but I will say this:

I, too, got a lot of e-mails saying they had a bad experience with

Dr. G. *But* I followed my gut as my gut told me this was the first

protocol to try. Gryffin fit it to " T " so it made perfect sense for

me to start here. DAN! was too " hit and miss " and Yasko was simply

to expensive to start when something else seemed to fit much better.

I chose to listen to what others said, take it all into consideration

and go from there. I took it all into consideration and still

decided this was right for us to try first. I'm glad we did but I

certainly don't believe that all protocols work for all kids. You

just have to try one and see what happens and move from there.

Most traditional doctors will say biomed doesn't work because there

is very little data. Medicine is still a science and science

requires data. We don't get data until someone comes along and

thinks outside the box. This is what Dr. G, Dr. Rimland, and a few

others have been trying to do. They've been trying to collect data.

The problem with collecting data is funding. Very few people/

corporations are willing to fund the studies on a large scale. There

aren't many doctors that are going to read a study of 25 children and

call that good data. So when you go to that top notch neurologist or

the top psychiatrist or whatever, you aren't seeing someone that

cares about what we don't have evidence to support. They also aren't

looking for what little evidence there is. These are people that are

mostly scholarly in nature, they wait for the new advances to be

proven before studying them. They develop their treatments based on

what's already known and when they develop new treatments, they do

the same thing of working within the confines of what's already

known. Much of what we have for any type of biomed intervention is

anecdotal, meaning it's parent reported. You won't find many doctors

that agree with Dr. G or any other " fringe medicine " because that's

what they are, they are on the outside looking in. The tide is

*slowly* turning as we start to see major publications (ie, the

discover magazine article) but it's still a long haul yet. Right

now, all they will say works is therapy and even then, they don't see

it as something that will improve *how* they function biologically,

just how the *appear* to function. Most doctors will simply tell you

to do what you can with therapy and accept your child's lot in life.

They are hung up on the concept that this is a psychological disorder

when in fact, it's not. But as long as people see it as a

psychological disorder, they will not look at the immunological and

metabolic reasons for their symptoms. This doesn't just occur in

autism, it occurs in many diseases/disorders/syndromes and you have

to *look* for someone willing to look outside the box. Many of these

doctors that are at the top of their field are also connected to

major hospitals. From experience, I can say that it really depends

on the school's view, too. For instance, we have many " top " autism

doctors at UCLA. *But* UCLA is the home of Lovaas, so they basically

only endorse ABA. That's where they focus their time and energy and

they also deny any biomed connection. If there was a biomed

connection, ABA wouldn't get the attention they want.

This probably didn't help much but I do hope you realize that there

aren't many doctors that are going to agree with any of the

protocols, be it , DAN! or Yasko.

There are good things about all 3 protocols and all 3 have helped

many children and adults but if you are looking for support from the

major medical community, you won't find it. You'll be lucky to find

one traditional that will *tolerate* it.

By the way, I do know of a lot of people doing Yasko with great

success. You have to do what you think is best for your child. If

you know that you're child is regressing while off the protocol,

that should tell you that there is something going on that can be

medically treated by the right person. Choosing the right person is

where you need to be comfortable. Are you going to see Dr. Mullan in

Burbank? I've heard good things about her. She's the one I would

see I think if I ever left . I don't think about it too much,

though since I'm pretty happy with our results with . I think

she also does DAN! so that's a plus as you wouldn't have to change

docs if Yasko doesn't fit right, either. Keep in mind with Yasko,

it's something you'll likely do for life. It is treating the genes

and genes aren't going to change so for the most part, it's lifelong.

Our pediatrician does not believe in biomed (and he has a son that is

autistic) but he certainly is willing to tolerate it and he does a

pretty decent job of it. He monitors what my son is taking and has

*never* told me he felt any of it was dangerous. As a matter of

fact, he views much of it as something that isn't going to hurt him

to do. He knows what my son is on and has no issues with it. His

issues with biomed, again, stem from data.

So do what you feel is right. If you feel you need a change of

protocol, then change. But don't let the naysayers keep you up at

night anymore. If you listened to them in the first place he

wouldn't have made the progress he has made.

Good luck and I hope you find what you need.

Cheryl

On Apr 30, 2007, at 12:25 PM, dazseaton@... wrote:

> I have been on again off again with what to do for my son. I stay

> awake

> night after night wanting to do the right thing for him. I know

> that most

> people on this site believe Dr. G to be right. Although I know he

> must be on to

> something I have so many doctors telling me that this protocol is

> wrong for my

> son. All know of Dr. G. Not one has said anything nice. How can all of

> them (top in the field of their expertise) be wrong. Although they

> agree with

> some things they have all said treating it this way is dangerous.

>

> We decided to take some time off and see how my son would do. At

> first no

> change good or bad. Then some good things happened he started

> eating and

> gaining weight. Until recently (now 4 months off everything but the

> ssri) there

> has been little change. He is still moving forward in his in-home

> program

> and school are fine except for social which on or off medication

> has always

> been his problem.

>

> I read all the emails from many groups and each group has their

> success

> stories. Although I guess you could say my son is doing well he is

> not what Dr.

> G. told me he would be. After 2 years I thought things would be

> different.

>

> Now once again I am second guessing my decision to take him off the

> protocol

> because even on Celexa his fears and OCD are back. He shyer and

> afraid. I

> have been told that is what happens with Autism sometimes. So my

> question is

> has this happened to anyone else trying to back off the protocol.

>

> I will be talking to a doctor who practices Dr. Amy Yasko protocol.

> I do

> not know what that will bring.

>

> I am not sure Dr. G. would take us back. I must also say the few

> times I

> have emailed I have gotten just as many emails of line about they

> had a bad

> expertises with Dr. G.

>

> I would love some thoughts if anyone has them.

>

> Thanks

>

>

>

>

> ************************************** See what's free at http://

> www.aol.com.

>

>

[Guest guest]

Sheri:

If you don't mind further sharing, I am curious about 's improvements,

what medical treatments were instrumental in your opinion to bringing one such

quick responses? Was it the eye surgery or something Dr. prescribed,

the combination? Feel free to e-mail me off list if you prefer. Thanks.

Re: Re: ?

Alica, I don't often respond to posts on this list as my daughter is not a

patient of Dr. G's she is a patient of Dr. 's. But I wanted to share with

you my thoughts and experiences. I am the mother of 2 special needs children. My

biological son has albinism and as a result is legally blind our daughter has

albinism (she is legally blind) and she has autism as well.

I had talked with many many pediatric ophthalmologists about things that could

be done to improve their vision but all of them told me that nothing could be

done and that I needed to just accept their being legally blind. I then heard

about a procedure that would dampen their nystagmus. I followed the doctor's

work for 2 years before mentioning it to my son who was then 12. Zack and I

talked about the pro's and con's of the procedure and I let it go telling him

that if he wanted more information all he needed to do was tell me and I would

take him to see the doctor. I left the decision up to him as he is a very mature

child who is gifted. Zack thought about it and 3 months after I told him he

asked to see the doctor. A few months later Zack had the surgery. It was

horribly painful but the minute he opened his eyes he could see better. He was

thrilled!!! As his eyes healed his acuity went from 20/200 to 20/70 with best

correction. That means that Zack is now

legal to drive in the state of NY with an unrestricted drivers license. At his

6 week check up Zack told us to schedule for surgery as he believed that

it was a miracle. She had surgery a few months later and although she could not

talk you could clearly see that she could see things that she could not before.

The day before the surgery got her autism diagnosis and we were told

that we should not take her to see any of the DAN doctor's or nothing of the

sort. I had been told that diet would not help and that the only thing that

would help was therapy.

I had already decided to take to see Dr. in NY. began

treatment. 10 months into treatment is now recognizing words, she has

about 40 words in her vocabulary and her receptive language is nearly on age

level. She knows her body parts, shapes and colors. She is dressing herself,

putting on her shoes and we can take her in public with out her screaming like a

fool. LIFE IS GOOD!!!!!!

Bottom line is that it takes the medical community a very long time to accept

something and I believe that if we sit on our back sides and wait for these

things to become accepted our children may never know what it is like to be at

their full potential. My children are living proof that sometimes doctor's do

not know best and some do. Follow your GUT!!!!!! If your gut tells you that

their is something that you can do then do it!!! NO ONE KNOWS YOUR CHILD BETTER

THAN YOU!!!! Sheri

dazseaton@... wrote:

I have been on again off again with what to do for my son. I stay awake

night after night wanting to do the right thing for him. I know that most

people on this site believe Dr. G to be right. Although I know he must be on

to

something I have so many doctors telling me that this protocol is wrong for my

son. All know of Dr. G. Not one has said anything nice. How can all of

them (top in the field of their expertise) be wrong. Although they agree with

some things they have all said treating it this way is dangerous.

We decided to take some time off and see how my son would do. At first no

change good or bad. Then some good things happened he started eating and

gaining weight. Until recently (now 4 months off everything but the ssri)

there

has been little change. He is still moving forward in his in-home program

and school are fine except for social which on or off medication has always

been his problem.

I read all the emails from many groups and each group has their success

stories. Although I guess you could say my son is doing well he is not what

Dr.

G. told me he would be. After 2 years I thought things would be different.

Now once again I am second guessing my decision to take him off the protocol

because even on Celexa his fears and OCD are back. He shyer and afraid. I

have been told that is what happens with Autism sometimes. So my question is

has this happened to anyone else trying to back off the protocol.

I will be talking to a doctor who practices Dr. Amy Yasko protocol. I do

not know what that will bring.

I am not sure Dr. G. would take us back. I must also say the few times I

have emailed I have gotten just as many emails of line about they had a bad

expertises with Dr. G.

I would love some thoughts if anyone has them.

Thanks

************************************** See what's free at http://www.aol.com.

[Guest guest]

Most of the people who have bad things to say about Dr. Goldberg are

because they view his passion as anger. He knows the damage some of

the therapy's used do damage to the brain and yet as parents it is our

choice to decide and we have to live with our choice.

I know and Have checked out that Dr. Goldberg's treatment does no harm!

The first rule of medicine. Past that he truly believed he would have

access to drugs by now that have been slowed down. Very sad for our

children but still not too late. I have met remarkable children in his

office with accomplishments I only hope for my child.

Just my two cents,

[Guest guest]

Hi Kim,

This group is just that. Please feel welcome and don't let one or 2 negative posts chase you off. I don't know what was said, but I will look to see what was written in the previous threads.

We are a very helpful and supportive group and we are happy you are here. Just ignore anything that does not sound supportive and know that many here are very caring.

My best

Aletha

[low dose naltrexone] ?

Im sorry I must have joined the wrong group, I am not looking for sympathy from anyone and I am a strong person and will get myself better, no doubt about that, but I thought this group was for helping and understanding and learning, I guess I misjudged, but that happens in life and you go on, sorry you feel as you do, but I would not make someone feel as you do, but then Im a compassionate person towards people. thank everyone for all their info.kim