RE: - Roe - I have a PiCC - suggestions add end

[Guest guest]

Gee,

I have a PICC line..............and NO meds.........

I just keep flushing.........and fighting the insurance company.

You need to keep fighting the insurance company.

I am still in review can you believe that, they put the PICC line in, did a

week of Rocephen, and I am sitting in Review.........12 days now without any

abx. I have had every person possible send info to the case manager. One

of my friends bless her sole, doesn't dump her mail regularly, and had my

mail that I sent to her before the tick bite and after the tick bite, it was

well documented, how I felt before and all my symptoms afterwards........how

can an email lie, it has the date, time, etc.......can't go back and make

those up...It included how I was feeling the symptoms........my case manager

said, you have great friends, because she was getting emails and letters.

One from the woman who removed the tick, one from the person who emailed the

tick, one from the Eye Dr who examined my eyes after the tick bite, and saw

all the inflammation of anterior uveitis, and of course all the LLMD

info......not to mention the lab results stating the embedded tick was

positive.

Now, can I still be denied............probably. We will have to wait and

see on Monday.

As for you Roe,

I was told that Rochephen lasts longer if put in the freezer..........now

that kind of made me a little skeptical........since these are pressurized

balls.........would the medication freeze and expand? Pop? other wise, just

in the refrigerator I was told 10 days. But we all know, it can last a

little longer. I would call the Home Care service who delivered the meds

and ask how long it is good for, and the best way to preserve it.

I wish I could send you my PICC LINE..............sorry....... (

In the mean time,(by pass the home health care service) letters to the Case

Manager that is representing the insurance company (many times it isn't even

the insurance company its someone else like Care Advantage), she or he gives

them to the Dr. (if you can get the Drs. name at the company who is

handling the review even better). Get a lawyer to send a letter to that

Phantom, Dr.

That will be my next step, if I am denied. They don't like that stuff.

Have friend in the family that is a Lawyer? One through work? Have you

talked to your Insruance representative at your work? Get that person

fighting.......get them to send a letter.........the more they get tired

with your letters, and phone calls..........the sooner, they will overturn

their decision, and approve you. My nurse told me yesterday, more lyme

patients are getting approved for IV then before, the ones that aren't, are

the one that accept the DENIED STAMP!! So DON'T STOP FIGHTING!!!!!

good luck

Connie

Conniek nwnj

Leave no stone unturned!

It must happen in your mind before it happens in your life !

[Guest guest]

Thanks Connie, but I am not working, I am on SSD, have been for 4 years.

have been in such denial for a year, refused oral antibiotics for a year.

just didn't think they were working so what was the point. I was and am on

anti-seizure medication, on paxil, and was just miserable, by the end of

the year my entire system freaked out. my seizures where worse, my

medication was increased. I wound up at a urologist, I am on my 3rd. I

love whenever I each of them give me a neurological test its like a marvel,

everyone looks at the machine and their eyes widen and they all get so

shocked, " wow " look at that, she has no brain activity to the muscle,

something like that, whatever. there is no real cure. except the IV. but

who is going to admit that. ok, at this point I cant remember who I am and

I need the iv.

So, you are fighting the insurance company for the meds? ok, I have the

meds, you have the pic. great! this all makes sense. I was searching on

line yesterday and the powder like I have cost about 187.00 for a weeks

supply. I didn't think that was too expensive. I could never afford it.

but I think its cheaper than the one with the saline already in it. and the

lidacaine that Rose was talking about was 2.00 a bottle. just another

option. I don't remember where I put that page. I thought I saved it.

what a flake.

now, what the heck am I trying to say now........ the rocephen I have is in

powder, so it will last a few years in the refrigerator.

I don't have recent proof, because, its been awhile since I had to prove I

had lyme, that was like 2 years ago when I had to prove it to SSD and LTD.

one nightmare after another. this hell is going to be life long isn't it.

I have positive test. I have a letter from the department of heath. but

since I don't test positive any more, oxford claims I have been cured. how

funny is that! I am going to continue my fight, but I also want options so

I am going to continue to look. I asked my Neurologist to help, and on

Monday I hope to have a letter from her stating that the IV is necessary to

help my neurological problem. and that along with my LLMD's pleading might

work.

Now since I am on Oxford Medicare, if I am denied again, then it goes to an

arbitrator or something at Medicare. and they review, and then they get to

deny it or approve it. and then that's the end of that. then I get the

lawyer, go to the TV station. I don't know what the next step would be.

one day at a time. I am happy when I don't put the coffee pot in the

refrigerator!

Connie I hope things go well for you next week. I know this has been a

roller coaster for you too. good luck.

roe

[Guest guest]

Now I understand...............guess I missed a post in there somewhere.

You are fighting..............keep fighting.

What state are you fighting in Roe I forget?

Conniek nwnj

Leave no stone unturned!

It must happen in your mind before it happens in your life !

[Guest guest]

Staten island, NY