Newbie here

[Guest guest]

Do the hair test with Doctors Data, costs less than 50

bucks and may give you a lot of info. Basis this info

you can then see f you have a potential metals problem

and make your own decision which problem needs your

more immediate attention.

DONT tell goldberg what you are doing as he is really

against the whole mercury idea - see replies to some

questions in 'Ask Goldberg' on his webiste.

rgds

paul

--- Fred+jenn <hornfam@...> wrote:

> Hi,

> I have recently joined your list,and to be honest

> I'm totally lost (I barely made it through high

> school chem). I'll keep studying.Any suggestions on

> where to begin?

> My son Nick is 5.5 and is a late regression kiddo.

> At 18mon he spoke in short sentences, asked where

> and what questions,lots of pretend play.At 22mon he

> went mute,in a matter of days.To make a long story

> short (besides it isn't like you all don't know this

> one). I have questioned the vaccine connection.The

> problem was I couldn't pin it on the MMR, because he

> received it June of 96 and didn't lose his language

> until Dec of 96.What he did receive in the fall of

> 96 was a flu shot.

> Anyway, I have a lot of questions. I was hoping

> maybe you guys would be kind enough to to shine the

> light for me. We have been seeing Dr.Goldberg and

> Nick is currently taking diflucan, and

> Famvir.According to the lab test Nicks HHV6 levels

> were very high. Goldberg wants us to use the Famvir

> for about 4mon and then possibly to add an SSRI.

> We have lab work ran about every 6wks and lately

> Nick's eosophinols(sp?) keep getting higher.

> Everyone, medical and educational, says Nick's a

> hard nut to crack. He just doesn't seem to fit in

> anywhere.I'm sorry I am rambling.

> 1.Does anyone know why his HHV6 levels would be

> high, and is Famvir effective?

> 2.To date I have heard many bad things about SSRI's

> for our kids,has anyone had experiences with these?

> 3.Should I just do the hair test to find out if

> chelation is necc?

> 4.Does anyone have a good doc they would reccommend

> for chelation in Ohio?

> 5.Would the meds he is on effect chelation?

> 6.What if any supps should I start now?

> Thanks in advance,

> Jenn Horn (Mom to 3 beautiful kids,Becky 13,Nick 5,

> and 3)

> P.S. He is already GFCF

>

__________________________________________________

[Guest guest]

Hi Bren, and welcome to the group! What a relief it is that the X-

rays came back ok! Your son is at a terrific age to achieve some

wonderful improvement if he does end up needing a helmet. I'm so

happy to hear that you were able to learn from this group already, it

really is a wonderful resource of information! Good luck to you and

Aiden in two weeks, and please let us know how it goes!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

--- In Plagiocephaly@y..., " erikaidansmommy " <bobbrendaradder@y...>

wrote:

> Hello, I'm Bren, mommy to Aidan who was born January 14th of

> this year. We noticed that his head never rounded out afterr birth

> and have been watching it closely since he was 2 weeks old. The

ped

> said not to worry but after propping and constantly turning his

head

> for 2 months we asked for x-rays and such. X-rays came back ok and

> we werre sent to a physical therapist for measurements. We have

been

> taking him in monthly since and haven't seeen a whole lot of

> improvement. At his 6 month appontment in 2 weeks she will decide

> weather or not to cast for banding. I'm so glad I found this

club.

> I have already learned allot just after reading a few dozen posts.

I

> hope to get to know you better.

>

> Bren

> Aidan 1-14-02

[Guest guest]

Hello Bren and welcome. Sounds like your doctor has been right on top of things

and that is great! I'm glad your doctor told you about repositioning. It has

proven to be quite effective for many moms and dads in the group. Some parents

have gotten all the correction they wanted from repositioning and some have

gotten some correction with repositioning and then went ahead with the

band/helmet to finish the job. Either way, repositioning is a valuable tool. If

you are advised to get the band then I feel confident in saying you will

probably never regret that decision. Do you know what kind of device you would

be getting? DOCband, STARband or locally made helmet? All of these are good for

treating plagio, but you should thoroughly interview the ortho first and make

sure they have a lot of experience.

Best of wishes to you and please keep us posted on Aidan's progress. (I

love that name!)

Marci (mom to )

Oklahoma

[Guest guest]

Hi Bren & welcome to our group!!!

We're glad you found us too & are happy you've already learned a

lot. You sound like you've been on top of 's head shape from day

one & have been doing a great job keeping a close eye on it.

We'd love to see a picture of little if you have one you could

email us .

Good luck at your appt in 2 wks.. Do you know what type of helmet or

band would get if needed (STAR, DOC, local helmet)?

Please keep us posted on - we look frward to hearing more from

you.

Debbie Abby's mom DOCGrad

MI

--- In Plagiocephaly@y..., " erikaidansmommy " <bobbrendaradder@y...>

wrote:

> Hello, I'm Bren, mommy to Aidan who was born January 14th of

> this year. We noticed that his head never rounded out afterr birth

> and have been watching it closely since he was 2 weeks old. The

ped

> said not to worry but after propping and constantly turning his

head

> for 2 months we asked for x-rays and such. X-rays came back ok and

> we werre sent to a physical therapist for measurements. We have

been

> taking him in monthly since and haven't seeen a whole lot of

> improvement. At his 6 month appontment in 2 weeks she will decide

> weather or not to cast for banding. I'm so glad I found this

club.

> I have already learned allot just after reading a few dozen posts.

I

> hope to get to know you better.

>

> Bren

> Aidan 1-14-02

[Guest guest]

In a message dated 7/2/2002 10:13:41 PM Eastern Daylight Time, bobbrendaradder@... writes:

X-rays came back ok and

we werre sent to a physical therapist for measurements. We have been

taking him in monthly since and haven't seeen a whole lot of

improvement.

Hi Bren,

Welcome to the club! You sound like great parents pushing to get to the bottom of what's happening with - your on the right track! Are you seeing a pt once a month for measurements, or is that the Doctor your referring to? Have you noticed any problems with looking in both directions? Does he tilt his head a lot? It may be tort, but I really can't say without hearing more and even seeing a picture of would be great. Lots of times when you see a pic, you can either say, that looks like my child, or no, that's not it. Also, do some research on plagio and decide for yourselves if your child needs a helmet, sometimes your Doctor will either be totally for it or very much against it- so you should also be educated enough to know what to look for and be able to make a decision for yourselves- just in case you need to push for that referral like you pushed for those x-rays (good job!). And the earlier the better if you do opt to go that route (you can check out before and after pics of kids that may look similar at www.cranialtech.com). Look forward to getting to know you better and I hope to see a pic of too! Keep us posted.

' Mom

[Guest guest]

Bren it is so nice to have you and aiden (what a great name) Its so

great tht you have been on top of this from the get go-you sound like a

wonderful parent. We woudl love to hear more about you and aiden- please

fill us in. Let us know how your appointment goes in 2 weeks.

beck Mom to

Memphis

doc grad

[Guest guest]

that is it? wow.. that is good to hear.. it looks like it would weigh way more

than that.. guess i have a lot to learn ;O)

Hi Jenn,

Nope, there not heavy at all! 6 oz for the DOCband and 6-8 oz for the

STARband. I'm not sure about the locally made helmets. It is amazing

how fast and how well the babies take to them. My daughter is

considered an " older " baby she is 14 months old, her band doesn't

bother her at all!

[Guest guest]

his head is flat on the right hand side in the back, he had a flat spot when he

was born but i thought nothing of it at the time.. i am attempting to try the

whole repositioning thing but he favors that side of his head.. so he screams

when he cannot turn his head that way.. when feeding him i tried switching the

arm i hold him in.. and he still turns his head the other way.. i tried last

night to put a blanket near his head to position him so he was laying on the

other side of his head.. i literally watched him wiggle and wiggle till he

somehow moved the blanket so he could lay on that side of his head.. he hates

his tummy.. so i am at a loss.. i would just keep him his little strap on

carrier.. but i have a 1 year old that i have to contend with too.. so i cannot

always be wearing him

jenn

virginia beach, va

" Where abouts is your son's head flat, left, right, back? Have you

tried any type of repositioning to keep him off his flat spot? "

[Guest guest]

Jenn,

It sounds like your son has torticollis. It's a tight neck muscle.

It sometimes goes hand in hand with plagio. I'm sure our tort

lady will chime in here and give you some really good links and

advice about tort. My daughter had it and was in physical therapy

twice a week for 3 months. Here's a web site for you to check out.

http://www.pedisurg.com/PtEduc/Torticollis.htm

> his head is flat on the right hand side in the back, he had a flat

spot when he was born but i thought nothing of it at the time.. i am

attempting to try the whole repositioning thing but he favors that

side of his head.. so he screams when he cannot turn his head that

way.. when feeding him i tried switching the arm i hold him in.. and

he still turns his head the other way.. i tried last night to put a

blanket near his head to position him so he was laying on the other

side of his head.. i literally watched him wiggle and wiggle till he

somehow moved the blanket so he could lay on that side of his head..

he hates his tummy.. so i am at a loss.. i would just keep him his

little strap on carrier.. but i have a 1 year old that i have to

contend with too.. so i cannot always be wearing him

> jenn

> virginia beach, va

> " Where abouts is your son's head flat, left, right, back? Have you

> tried any type of repositioning to keep him off his flat spot? "

[Guest guest]

Jenn-

I agree with that you might want to look into tort playing a

factor in all of this. That tort makes repo so hard!

Can't believe you have a one year old too! Wow! My daughter is 22

months older than Dane. I can relate to how hard it is to repo

while you are carrying for a toddler who is into everything!

Dane's mom DOC Grad

> his head is flat on the right hand side in the back, he had a flat

spot when he was born but i thought nothing of it at the time.. i am

attempting to try the whole repositioning thing but he favors that

side of his head.. so he screams when he cannot turn his head that

way.. when feeding him i tried switching the arm i hold him in.. and

he still turns his head the other way.. i tried last night to put a

blanket near his head to position him so he was laying on the other

side of his head.. i literally watched him wiggle and wiggle till he

somehow moved the blanket so he could lay on that side of his head..

he hates his tummy.. so i am at a loss.. i would just keep him his

little strap on carrier.. but i have a 1 year old that i have to

contend with too.. so i cannot always be wearing him

> jenn

> virginia beach, va

> " Where abouts is your son's head flat, left, right, back? Have

you

> tried any type of repositioning to keep him off his flat spot? "

[Guest guest]

Jenn:

I agree with , it definitely sounds like he has torticollis.

Tort. is a leading cause of plagio, and with your description of him

being unable to turn his head in the other direction, that is a sure

sign of tort. Tort. is corrected thru physical therapy with

stretches & such. Check out the great link sent with you.

Has your ped. ever mentioned tort to you? (doesn't sounds like he

has)

Sounds like you're a busy busy mom with 2 little ones.

Good luck to you.

Debbie Abby's mom DOCGrad

MI

> > his head is flat on the right hand side in the back, he had a

flat

> spot when he was born but i thought nothing of it at the time.. i

am

> attempting to try the whole repositioning thing but he favors that

> side of his head.. so he screams when he cannot turn his head that

> way.. when feeding him i tried switching the arm i hold him in..

and

> he still turns his head the other way.. i tried last night to put a

> blanket near his head to position him so he was laying on the other

> side of his head.. i literally watched him wiggle and wiggle till

he

> somehow moved the blanket so he could lay on that side of his

head..

> he hates his tummy.. so i am at a loss.. i would just keep him his

> little strap on carrier.. but i have a 1 year old that i have to

> contend with too.. so i cannot always be wearing him

> > jenn

> > virginia beach, va

> > " Where abouts is your son's head flat, left, right, back? Have

you

> > tried any type of repositioning to keep him off his flat spot? "

[Guest guest]

Hi and welcome I know what you re going thru I have a one and a half year old and a 6 month old. I am really glad you have found us and am going to give you a few links to take a look at........

Beck

Memphis. TN

whats tort

tortstretches

babymassage

files

head shapes

Repositioning Techniques

COMPAREHELMET

Butterfly Support Pillow, positioning aid for premature infants

Baby Pillow, Baby Gift, Prevent Flat head, Baby Gear, Infant Pillow

Boppy Nursing and Infant Support Pillows, Play Mats and Activity Gyms

[Guest guest]

RL, Thanks for posting this.

Cranial Tech. (CT) is not just making a sales quota!! They have sent

many of parents home to try repositioning. They give an honest

opinion. They specialize in Plagiocephaly of all shapes and are the

true experts. This is all they do! Family members are normally your

worst critic when it comes to banding. Deciding to band is the

hardest part of the whole process! It is a personal decision that no

one here will ride you about. NOBODY can tell you not to band or

not. Trust your mommy instincts and go from there. You certainly

have done a great job up to this point, 1st the trip to CT, and 2nd,

finding us! Be sure and let us know what y'all decide to do.

Dustie

> Hello everyone. I just found this group today. My

> daughter had a consulation with Cranial

> Technologies today. They said she needs the band.

> I didn't realize how badly shaped her head was, but

> I did notice the flat spot on the back of her head.

>

> I am going to sit down with my husband today so we

> can discuss it, but I feel she will be better off

> with the band. He feels that the office was just

> trying to make a sales quota. (He is thick headed

> sometimes!)

>

> I feel guilty about this whole thing, but I being

> this is my first child, I put her " back to sleep "

> as the slogan says. I cried all the way home from

> our appointment. We are going for an MRI on Friday

> because our Ped thinks her head is growing too fast.

>

> After the MRI results come in I am going to try to

> convice my husband we need to do this. I just hope

> that the insurance company will cover this.

>

> Thanks for listening.

>

> RL

> New Jersey

[Guest guest]

Hi RL & welcome to our group!

PLEASE don't feel guilty about your daughter's plagio for one more second. This is truly an epidemic ever since the "back to sleep" campaign began. I've seen many more babies spend more time on their back than my daughter, but yet, have a perfectly round head. Why it happens to some & not others, is a question we'll never have the answer to It's very frustrating.

I can assure you, Cranial Technologies would not band your daughter if she truly did not need one. I've read of Cranial Tech turning away parents who wanted a band, but CT did not feel they were severe enough. They are honest, caring people who have the child's best interest in mind, not their profit margin Your daughter will be in the best hands possible for treatment! I've heard GREAT reviews about the NJ clinic & their OT Charlotte!! They are the plagio experts

How old is your daughter now?

Good luck w/the MRI Friday. Please keep us posted, good luck w/your husband hehe.

Debbie Abby's mom DOCGrad MIrrmovie <rrmovie@...> wrote:

Hello everyone. I just found this group today. My daughter had a consulation with Cranial Technologies today. They said she needs the band.I didn't realize how badly shaped her head was, butI did notice the flat spot on the back of her head.I am going to sit down with my husband today so we can discuss it, but I feel she will be better off with the band. He feels that the office was justtrying to make a sales quota. (He is thick headedsometimes!)I feel guilty about this whole thing, but I beingthis is my first child, I put her "back to sleep"as the slogan says. I cried all the way home fromour appointment. We are going for an MRI on Fridaybecause our Ped thinks her head is growing too fast.After the MRI results come in I am going to try toconvice my husband we need to do this. I just hopethat the insurance company will cover this.Thanks for listening.RLNew JerseyFor more plagio info

[Guest guest]

> >

> I feel guilty about this whole thing, but I being

> this is my first child, I put her " back to sleep "

> as the slogan says. I cried all the way home from

> our appointment.

Ditto! I felt the same way when I found out my little boy was going

to have to be banded too! I cried all the way home for doc's office

too! Which is 40 minutes from our home! (LOL!!)

I felt guilty too! But I realize now that I was not educated on

plagio and either was my doctor. My doctor kept saying " he will

outgrow it! " Yeah, right!

Grady just got his band on Monday He is 8 months old. He doesn't

mind it during the day. Night time he is still adjusting a little.

Good Luck and know you are not alone in this. Please keep us posted.

How old is your daughter?

Debbi

Happy to be a Mom!

ds, Grady, 8 months, banded 5/19/03

[Guest guest]

Hello and welcome to the group. This is a great place to ask

questions and vent! I felt very guilty also, it's part of being a

mother. But now that my son Jake has finished with his band and his

head is looking great, I feel much better about all of this. We went

to Cranial Tech in Paramus and they are all great there. If

Charlotte says your daughter would benefit from the band I'd take her

advise. You can also check out the pictures other parents have

posted here. Also check out www.cranialtech.com there are some

good research articles there for your husband to read. Keep us

updated.

> Hello everyone. I just found this group today. My

> daughter had a consulation with Cranial

> Technologies today. They said she needs the band.

> I didn't realize how badly shaped her head was, but

> I did notice the flat spot on the back of her head.

>

> I am going to sit down with my husband today so we

> can discuss it, but I feel she will be better off

> with the band. He feels that the office was just

> trying to make a sales quota. (He is thick headed

> sometimes!)

>

> I feel guilty about this whole thing, but I being

> this is my first child, I put her " back to sleep "

> as the slogan says. I cried all the way home from

> our appointment. We are going for an MRI on Friday

> because our Ped thinks her head is growing too fast.

>

> After the MRI results come in I am going to try to

> convice my husband we need to do this. I just hope

> that the insurance company will cover this.

>

> Thanks for listening.

>

> RL

> New Jersey

[Guest guest]

In a message dated 11/22/2004 11:39:16 PM Eastern Standard Time,

kelticvamp@... writes:

> I am

> taking two seperate pills called Stone Free and GallstoneX, both I

> got from a healthfood store in my home town

Dear Jen

Welcome. You have come to the right place for information.

Get a comfortable chair and free up an hour or two and read the archives.

The posters I would search for in the archives are : holistic@visi,

new_man85@hotmail , mllebondgirl007@, janne@rock3 and a gentleman named Jay

Townsend, whose email address escapes me. If you read all their posts as well as

whatever else catches your eye you will gain quite an education and ALL of your

questions will be answered.

Many people have tried GCG and Gallstonex and Stone Free and discussed their

experiences at legnth. Just search those words and you should find plenty.

BTW Janne (aka Mama) also posts under another email address. Wittfamily, I

think. Anyway, search in the archives for " nz " There cannot be too many people

posting from New Zealand.

Start there and good luck.

(Atlanta)

[Guest guest]

Hi Jen,

I have take Gold Coin Grass in the past and from my experience I felt it worked.

However, I will say the taste is not good at all. I had a hard time taking it

but I knew it would benefit me in the long run. After taking the Gold Coin

Grass I had a very successful cleanse where I purged over 140 stones. I would

definitely recommend using it.

Craig

>

> From: " kelticvamp " <kelticvamp@...>

> Date: 2004/11/21 Sun PM 11:51:27 EST

> gallstones

> Subject: Newbie here

>

>

[Guest guest]

Hi,

I have not done the flush yet, but suffered extreme gallbladder attacks. To

prepare for the cleanse I did use Gold Coin, I have also completely changed my

way of eating as a way of life, I have not had another attack upon

completing the Gold Coin and change in diet.

[Guest guest]

The thing with gallstone pain is that it's hard to tell when you're going to get

it next. Sometimes it can be years before it returns. I've been dianoised as

having gall stones by my doctor, and they've also shown up twice on xrays. I've

had them for years.

For me, the pain is caused by eating fatty meals. When I feel the pain, I'll

try to drink about 2-3 glasses of simple tap water. That will dull the pain.

I'm trying to avoid the surgery too. Besides that, I don't do anything

else(except trying to loose a few pounds). I haven't had serious pain in over 3

years, but when I feel the beginning of that pain these days I just start

drinking water.

Ironically I discovered that water did the trick when I was given medication to

dull that pain. The medication never really had much effect, but I discovered

when I drank more of the water, the pain stopped! Simple, but effective!

Have you tried that?

kelticvamp <kelticvamp@...> wrote:

Hello folks I wanted to introduce myself. I was referred to this

group after seeing a post at Curezone. I am a 31 year old female with

problems with my gallbladder. I am avoiding surgery at all costs and

I am currently taking the herbal route to aid me with this. I am

taking two seperate pills called Stone Free and GallstoneX, both I

got from a healthfood store in my home town, in the States. (I am

currently living in Canada. Here are my questions to you all and I

appreciate any feed back that you can share. Has anyone taken any of

these products? Also has anyone heard of or taken Gold Coin Grass?

My questions on that is does it work? What does it taste like?

ETC? Every thing I have read on Gold Coin Grass seems like an

informersial on the product. Its like it's too good to be true but I

am becoming deseperate in my quest to stay far away from the doctor

of any kind.

Thanks for any input you can give me.

Peace and Blessings

Jen

Learn more from our experience, over 7.000 liver flush stories:

http://curezone.com/forums/fd50.asp?f=4

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http://curezone.com/forums/fd50.asp?f=112

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Have a nice day !

[Guest guest]

Hi ,

For a few weeks straight I had attacks almost every night. So I had an ultra

sound, Yes I have a gallstone. I was told what foods to avoid comletely (

fatty, fried, white flour, sugar, sweets etc.) The list is endless. Anyway I

drink alot of distilled water, and I took the Gold Coin Grass to break down what

the technition was a very large stone which explains the extreme pain. It has

helped and during an attack I did castor oil fomentations, used the heating pad

alot, And at all costs avoid the foods you know set the attacks in

action...keep track of the foods you are eating and drink alot of organic apple

juice.

Especially if you are considering a flush. Which I will be embarking on real

soon. I will not have my GB removed no matter what. Read s Moritz's

amazing Liver cleanse. Good Luck.

[Guest guest]

Hi Jen...I was in my late 20's when I was dx'd with sero-negative lupus and

mixed connective tissue disease. In my thirties I was dx'd with chronic fatigue

syndrome, then fibromyalgia. In my forties I was dx'd with rheumatoid

arthritis, psoriatic arthritis and sjogren's syndrome. I, too, am not sure

" what " exactly I have...I call it " autoimmune potpourri " though my doctors are

settled on Ra, PsA, FMS and Sjogren's. My children were very small when I was

first dx'd. All this to say I do understand your situation, and I am glad you

are here to receive all the good blessings from this great groups of fellow

survivors.

Hugs...

Tess in Oregon

[Guest guest]

Hi Tess,

Thanks for the welcome! My PM doctor suggested that maybe I have some

sort of mixed connective tissue disorder, but when I read about it, I

really don't have any of the diseases that meet that criteria. It's

just kinda frustrating going ahead into the unknown....which I'm sure

you know well. My girls were older, 9 and 11, when I started getting

sick, so they unfortunately got to see me change right before their

eyes. That was hard. I'm glad I'm here too...this feels like a very

good group!

Jen

[Guest guest]

JoJo: Welcome to the group.

Losing 12 pounds is 3 weeks is not a good idea. Too much weight loss in a short time. Believe it or not such rapid weight loss can damage your health. Also forget fad diets like the cabbage soup diet - they don't work and you are robbing your body by not eating a wide variety of healthy foods. No doubt you're missing nutrients by eating that way.

Read Walford's " Beyond the 120 Year Diet " (available in most public libraries). And slow down. This is a lifelong endeavor.

on 1/24/2006 12:35 AM, jojo46580 at jojo46580@... wrote:

I have changed my eating habits since the first of this year. And I

have lost 12 pounds since January 1st, which feels real good. I did it

by going on the CSD - the Cabbage Soup Diet. I am taking a break from

it right now, but in the meantime, I have totally eliminated ALL white

sugar, white flour, and fried foods from my diet. It seems to me that

this is a good start for me.

[Guest guest]

JoJo: Welcome to the group.

Losing 12 pounds is 3 weeks is not a good idea. Too much weight loss in a short time. Believe it or not such rapid weight loss can damage your health. Also forget fad diets like the cabbage soup diet - they don't work and you are robbing your body by not eating a wide variety of healthy foods. No doubt you're missing nutrients by eating that way.

Read Walford's " Beyond the 120 Year Diet " (available in most public libraries). And slow down. This is a lifelong endeavor.

on 1/24/2006 12:35 AM, jojo46580 at jojo46580@... wrote:

I have changed my eating habits since the first of this year. And I

have lost 12 pounds since January 1st, which feels real good. I did it

by going on the CSD - the Cabbage Soup Diet. I am taking a break from

it right now, but in the meantime, I have totally eliminated ALL white

sugar, white flour, and fried foods from my diet. It seems to me that

this is a good start for me.