Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 nice to have you here mike...so many people in wisconsin! we really should get together...you guys (you and lauren and I know there are more out there I can't think of names right now) are really close. I'm only a short distance away. anyone else near madison wisconsin...I work at UW-Madison and the short version of this is that I was able to convince another research group to include SMA in their brain study. (beck was in the study until she passed away) Their research does not directly help sma, but it will hopefully make living with sma easier in the near future. They need more volunteers to participate in the study. if you want more information just email me privately. (_tstefonek@..._ (mailto:tstefonek@...) ) They compensate monetarily. (not a lot, but enough I think to cover any costs to you) the study involves using a computer with your thoughts only...it's really cool. my husband (john) is also in the study and can probably answer questions you might have related to what it's like. tj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 Whats up mike!! My name`s Tammia. *WELCOME!!* - Greetings and Salutations 'Sup everybody! The name's Mike, I'm new to this group. I've kind of been lurking around and reading, just trying to get a feel for what I was getting myself into, and I've decided an introduction was in order. It seems you all are great people, and I look forward to getting to know you all better. As I said my name is Mike, and I'm a fellow SMA guy. I have type II, and was diagnosed about 21 years ago somewhere around 6 months of age. My older sister, , is 24, that's three years older than me for those not so good at math, and was diagnosed with SMA II at about age 1. I also have a younger brother, , 20, who doesn't have any clinical disabilities, although he's does have a severe case of laziness. My parents, Jim and , are wonderful people, who have sacrificed a ton to raise three children, two with severe disabilities, although they would never look at it that way. Talking about my family reminds of something. I want to give a quick, but sincere, thank you to all of you parents/friends of people with SMA out there. Those of us affected by this disease depend on you so much, and although we don't necessarily always show it, we appreciate it and love you more than you could ever know! Sorry for that mushy interlude, I just wanted to make sure everyone knows that. Now that you all know about my family, I can tell you all a little bit about the rest of my life. Currently I attend the University of Wisconsin - Whitewater, and am in my fourth year pursuing a B.S. in Management Computer Systems (basically computer programming). I'm living on my own in an apartment, that is without any ABs (able-bodies if you don't understand my lingo) and have been doing so for almost a year now. I have two roommates, both have different forms of MD sd well. One has SMA II, of whom you all should know as she also just recently joined this group. You should know her as O or sweetleo03. The other is Matt, who has Duchenne. I've written entirely too much about myself, so I'm going to stop before you all think I'm full of it. (to : no comments!) If you want to know anything else about me though feel free to ask. I'd be happy to share experiences about anything. Thanks for reading, and I look forward to speaking with all of you more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 Whats up mike!! My name`s Tammia. *WELCOME!!* - Greetings and Salutations 'Sup everybody! The name's Mike, I'm new to this group. I've kind of been lurking around and reading, just trying to get a feel for what I was getting myself into, and I've decided an introduction was in order. It seems you all are great people, and I look forward to getting to know you all better. As I said my name is Mike, and I'm a fellow SMA guy. I have type II, and was diagnosed about 21 years ago somewhere around 6 months of age. My older sister, , is 24, that's three years older than me for those not so good at math, and was diagnosed with SMA II at about age 1. I also have a younger brother, , 20, who doesn't have any clinical disabilities, although he's does have a severe case of laziness. My parents, Jim and , are wonderful people, who have sacrificed a ton to raise three children, two with severe disabilities, although they would never look at it that way. Talking about my family reminds of something. I want to give a quick, but sincere, thank you to all of you parents/friends of people with SMA out there. Those of us affected by this disease depend on you so much, and although we don't necessarily always show it, we appreciate it and love you more than you could ever know! Sorry for that mushy interlude, I just wanted to make sure everyone knows that. Now that you all know about my family, I can tell you all a little bit about the rest of my life. Currently I attend the University of Wisconsin - Whitewater, and am in my fourth year pursuing a B.S. in Management Computer Systems (basically computer programming). I'm living on my own in an apartment, that is without any ABs (able-bodies if you don't understand my lingo) and have been doing so for almost a year now. I have two roommates, both have different forms of MD sd well. One has SMA II, of whom you all should know as she also just recently joined this group. You should know her as O or sweetleo03. The other is Matt, who has Duchenne. I've written entirely too much about myself, so I'm going to stop before you all think I'm full of it. (to : no comments!) If you want to know anything else about me though feel free to ask. I'd be happy to share experiences about anything. Thanks for reading, and I look forward to speaking with all of you more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 Hello Mike! My name is and I have SMA Type I. I am married and we are expecting our first child. Welcome! Milinovich Greetings and Salutations 'Sup everybody! The name's Mike, I'm new to this group. I've kind of been lurking around and reading, just trying to get a feel for what I was getting myself into, and I've decided an introduction was in order. It seems you all are great people, and I look forward to getting to know you all better. As I said my name is Mike, and I'm a fellow SMA guy. I have type II, and was diagnosed about 21 years ago somewhere around 6 months of age. My older sister, , is 24, that's three years older than me for those not so good at math, and was diagnosed with SMA II at about age 1. I also have a younger brother, , 20, who doesn't have any clinical disabilities, although he's does have a severe case of laziness. My parents, Jim and , are wonderful people, who have sacrificed a ton to raise three children, two with severe disabilities, although they would never look at it that way. Talking about my family reminds of something. I want to give a quick, but sincere, thank you to all of you parents/friends of people with SMA out there. Those of us affected by this disease depend on you so much, and although we don't necessarily always show it, we appreciate it and love you more than you could ever know! Sorry for that mushy interlude, I just wanted to make sure everyone knows that. Now that you all know about my family, I can tell you all a little bit about the rest of my life. Currently I attend the University of Wisconsin - Whitewater, and am in my fourth year pursuing a B.S. in Management Computer Systems (basically computer programming) . I'm living on my own in an apartment, that is without any ABs (able-bodies if you don't understand my lingo) and have been doing so for almost a year now. I have two roommates, both have different forms of MD sd well. One has SMA II, of whom you all should know as she also just recently joined this group. You should know her as O or sweetleo03. The other is Matt, who has Duchenne. I've written entirely too much about myself, so I'm going to stop before you all think I'm full of it. (to : no comments!) If you want to know anything else about me though feel free to ask. I'd be happy to share experiences about anything. Thanks for reading, and I look forward to speaking with all of you more! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 Hi Mike, Welcome to the group. Lori pronto_r2 wrote: > > 'Sup everybody! The name's Mike, I'm new to this group. I've > kind of been lurking around and reading, just trying to get a feel for > what I was getting myself into, and I've decided an introduction was > in order. It seems you all are great people, and I look forward to > getting to know you all better. > > As I said my name is Mike, and I'm a fellow SMA guy. I have type II, > and was diagnosed about 21 years ago somewhere around 6 months of age. > My older sister, , is 24, that's three years older than me for > those not so good at math, and was diagnosed with SMA II at about age > 1. I also have a younger brother, , 20, who doesn't have any > clinical disabilities, although he's does have a severe case of > laziness. My parents, Jim and , are wonderful people, who have > sacrificed a ton to raise three children, two with severe > disabilities, although they would never look at it that way. > > Talking about my family reminds of something. I want to give a quick, > but sincere, thank you to all of you parents/friends of people with > SMA out there. Those of us affected by this disease depend on you so > much, and although we don't necessarily always show it, we appreciate > it and love you more than you could ever know! Sorry for that mushy > interlude, I just wanted to make sure everyone knows that. > > Now that you all know about my family, I can tell you all a little bit > about the rest of my life. Currently I attend the University of > Wisconsin - Whitewater, and am in my fourth year pursuing a B.S. in > Management Computer Systems (basically computer programming). I'm > living on my own in an apartment, that is without any ABs (able-bodies > if you don't understand my lingo) and have been doing so for almost a > year now. I have two roommates, both have different forms of MD sd > well. One has SMA II, of whom you all should know as she also just > recently joined this group. You should know her as O or > sweetleo03. The other is Matt, who has Duchenne. > > I've written entirely too much about myself, so I'm going to stop > before you all think I'm full of it. (to : no comments!) If > you want to know anything else about me though feel free to ask. I'd > be happy to share experiences about anything. > > Thanks for reading, and I look forward to speaking with all of you more! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 > Talking about my family reminds of something. I want to give a quick, > but sincere, thank you to all of you parents/friends of people with > SMA out there. Those of us affected by this disease depend on you so > much, and although we don't necessarily always show it, we appreciate > it and love you more than you could ever know! Sorry for that mushy > interlude, I just wanted to make sure everyone knows that. Amen to that! Welcome, Mike and ! Jenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Welcome to the group! My name is Camilla, 35, SMS II from Germany. Have a nice day! Camilla > > 'Sup everybody! The name's Mike, I'm new to this group. I've > kind of been lurking around and reading, just trying to get a feel for > what I was getting myself into, and I've decided an introduction was > in order. It seems you all are great people, and I look forward to > getting to know you all better. > > As I said my name is Mike, and I'm a fellow SMA guy. I have type II, > and was diagnosed about 21 years ago somewhere around 6 months of age. > My older sister, , is 24, that's three years older than me for > those not so good at math, and was diagnosed with SMA II at about age > 1. I also have a younger brother, , 20, who doesn't have any > clinical disabilities, although he's does have a severe case of > laziness. My parents, Jim and , are wonderful people, who have > sacrificed a ton to raise three children, two with severe > disabilities, although they would never look at it that way. > > Talking about my family reminds of something. I want to give a quick, > but sincere, thank you to all of you parents/friends of people with > SMA out there. Those of us affected by this disease depend on you so > much, and although we don't necessarily always show it, we appreciate > it and love you more than you could ever know! Sorry for that mushy > interlude, I just wanted to make sure everyone knows that. > > Now that you all know about my family, I can tell you all a little bit > about the rest of my life. Currently I attend the University of > Wisconsin - Whitewater, and am in my fourth year pursuing a B.S. in > Management Computer Systems (basically computer programming). I'm > living on my own in an apartment, that is without any ABs (able- bodies > if you don't understand my lingo) and have been doing so for almost a > year now. I have two roommates, both have different forms of MD sd > well. One has SMA II, of whom you all should know as she also just > recently joined this group. You should know her as O or > sweetleo03. The other is Matt, who has Duchenne. > > I've written entirely too much about myself, so I'm going to stop > before you all think I'm full of it. (to : no comments!) If > you want to know anything else about me though feel free to ask. I'd > be happy to share experiences about anything. > > Thanks for reading, and I look forward to speaking with all of you more! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Hey Mike, welcome to the group, its great to see another guy here. We are vastly outnumbered LOL. Take care, Doug (SMAII) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Welcome, ,You must have a very interesting and different perspective. I look forward to hearing from you. Barrowpozbod@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Welcome, ,You must have a very interesting and different perspective. I look forward to hearing from you. Barrowpozbod@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2009 Report Share Posted June 7, 2009 Greetings and Salutations! Hello All! I've been gone for a bit, and glad to be back! During that time I have missed this group! Majitha, how are you? Curtis in Hawaii, how are you? I took a class on grounding and shielding 1 week ago today. I can post some of the info if any of you out there is interested in it. Namaste'! Love, Light, & Blessings, , Reiki Practioner, Traditional Usui Ryoho Quote Link to comment Share on other sites More sharing options...
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