Thank You

[Guest guest]

Thanks to everyone that replied to my " believe " post. They were all very

helpful. We decided to continue with Dr. G and worked out a few things. Does

anyone know why people are washing the blue off the Valtrex? Tom

[Guest guest]

Hi Tom,

Glad to hear that you are feeling better about things. We wash the dye off

of Valtrex because alot of our kids are sensitive to dyes. Valtrex has a

tremendous coating of dye on it.

Cheryl

> From: Tom DeWitt <dewitts@...>

>

> Thanks to everyone that replied to my " believe " post. They were all very

> helpful. We decided to continue with Dr. G and worked out a few things.

Does

> anyone know why people are washing the blue off the Valtrex? Tom

[Guest guest]

It makes some kids hyper. Good luck. we are with you in spirit! Kathy

[Guest guest]

Some brands of Valtrex have less blue dye - the one we get in Singapore is

from Wellcome in the UK and has only the brand name " Valtrex " and the dosage

" 200mg " in blue. We still wiped that off.

switched to FamVir later - does a lot better and there's no dye to

wipe off!

Re: Re: Thank you

From: " 1raptor " <1raptor@...>

Hi Tom,

Glad to hear that you are feeling better about things. We wash the dye off

of Valtrex because alot of our kids are sensitive to dyes. Valtrex has a

tremendous coating of dye on it.

Cheryl

> From: Tom DeWitt <dewitts@...>

>

> Thanks to everyone that replied to my " believe " post. They were all very

> helpful. We decided to continue with Dr. G and worked out a few things.

Does

> anyone know why people are washing the blue off the Valtrex? Tom

------------------------------------------------------------------------

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[Guest guest]

,

WC will still try to say it wasn't caused by an injury. Your lawyers will

know how to fight them. Keep collecting information and give it to your

lawyer. I hope this is over for you soon. Thanks for the kind words. I

hope you have a pain free day too.

a

----- Original Message -----

From: Valued Compaq Customer <ruf-caimi@...>

< egroups>

Sent: Wednesday, June 07, 2000 8:18 AM

Subject: [ ] thank you

> a,

> You are such a doll, thank you for the sites. I am printing anything that

> has to do with trauma, injury, and RA. I worry so much the WC will try

and

> say the injury had nothing to do with anything.

> I look at my Granddaughters, and pray I have not passed this on to them.

> I really believe it is from the injury, but know no one will ever be able

> to tell me for sure.

> I hope today is special and pain free for you.

>

>

> ------------------------------------------------------------------------

> Remember four years of good friends, bad clothes, explosive chemistry

> experiments.

> 1/4051/6/_/478567/_/960379867/

> ------------------------------------------------------------------------

>

> URL to change your membership options:

/group/

> RA-support website: http://www.rasupport.webprovider.com/

> Our chat room: www.delphi.com/RheumatoidArth1/start

>

[Guest guest]

Hi and Donna Marie

What is WC?

ICQ - 53662031

AOL Instant Messenger (Screen name: crohn)

[Guest guest]

Hi

I first thought it couldn't be WC - Wheelchair or toilet.. so I was lost. In

my introductory, I used initials.. here is what I have Crohn's Disease,

Rheumatoid Arthritis, Fibromyalgia, Chronic Myofascial syndrome and

Trigeminal Neuralgia.

ICQ - 53662031

AOL Instant Messenger (Screen name: crohn)

[Guest guest]

- WC is Workman's Compensation.

Donna Marie

> Hi and Donna Marie

> What is WC?

>

>

>

> ICQ - 53662031

> AOL Instant Messenger (Screen name: crohn)

[Guest guest]

From one old-timer to another: I feel the same way, Tery. Thanks to you,

too, for helping to make this marvelous group what it is. Hey, who says we

won't meet face to face?

----- Original Message -----

From: <tpeppergirl@...>

< egroups>

Sent: Sunday, December 31, 2000 5:17 PM

Subject: [ ] Thank You

> As this year comes to a close I just wanted to say thank you to everyone

on

> this list for all of your support throughout this last year. I think I've

> been on this list not too long after it was started from another list and

to

> me this is the best support group I've found.

>

> Everyone here genuinely cares for each other and what is happening in

their

> live, not just RA or other related illness. It's not often to find that

kind

> of support over the internet from a bunch of people that you will most

likely

> never meet " face to face " . I feel I know everyone here and consider all

my

> friends. So again a big THANK YOU. Tery - FL

[Guest guest]

Tery,

Thank you Tery. You are one of our most treasured members and we feel the

same about you. Happy New Year to you and your family.

a

----- Original Message -----

From: <tpeppergirl@...>

< egroups>

Sent: Sunday, December 31, 2000 6:17 PM

Subject: [ ] Thank You

> As this year comes to a close I just wanted to say thank you to everyone

on

> this list for all of your support throughout this last year. I think I've

> been on this list not too long after it was started from another list and

to

> me this is the best support group I've found.

>

> Everyone here genuinely cares for each other and what is happening in

their

> live, not just RA or other related illness. It's not often to find that

kind

> of support over the internet from a bunch of people that you will most

likely

> never meet " face to face " . I feel I know everyone here and consider all

my

> friends. So again a big THANK YOU. Tery - FL

>

[Guest guest]

Dear ,

I'm happy that you let us know what the results of your echocardiogram are.

I'm glad that the doctor believes that you shouldn't have a serious problem

with your aortic stenosis. You've got enough to handle already!

Here is a really excellent cardiology site where you can learn all kinds of

things about the heart, including aortic stenosis:

http://www.cardiologychannel.com/aorticstenosis/

I've visited the site a few times myself because I have a few questions

about my own heart.

Hope this information helps you. I'm glad that you find the group to be of

comfort to you. You're a gentle, kind soul, and I wish you weren't

suffering. Please let me know what else I or anyone can do.

----- Original Message -----

From: <ANJILLAH@...>

<RA-Support >

Sent: Wednesday, February 21, 2001 1:00 PM

Subject: [ ] Thank You

>

>

> Dear and everyone:

> Hi everyone. I got my results yesterday from my Doctor. Thank God it's

not

> so bad. He said I have a slight amount Aortic Stenosis and that it is not

> serious. It should not be a problem. The Echo also shows that I did not

> have a heart attack. He said it is a calcification developed when I was

on

> dialysis, since I was on so long is why I have it. I was on 18 years.

> However, like I said it is only slight. Thank God. Thank you and

> everyone for all your emails and your concern. I couldn't have gotten

> through this week if it wasn't for your help and support. I appreciate it

> very much. I hope you all have a good pain free day.

> Sincerely,

> Anjillah@...

[Guest guest]

,

I second 's post. I'm glad that your results were more serious. If I can

help in any way please let me know. Tery - FL

wrote:

>

> Dear ,

>

> I'm happy that you let us know what the results of your echocardiogram are.

> I'm glad that the doctor believes that you shouldn't have a serious problem

> with your aortic stenosis. You've got enough to handle already!

>

> Here is a really excellent cardiology site where you can learn all kinds of

> things about the heart, including aortic stenosis:

>

> http://www.cardiologychannel.com/aorticstenosis/

>

> I've visited the site a few times myself because I have a few questions

> about my own heart.

>

> Hope this information helps you. I'm glad that you find the group to be of

> comfort to you. You're a gentle, kind soul, and I wish you weren't

> suffering. Please let me know what else I or anyone can do.

>

>

>

> ----- Original Message -----

> From: <ANJILLAH@...>

> <RA-Support >

> Sent: Wednesday, February 21, 2001 1:00 PM

> Subject: [ ] Thank You

>

>

> >

> >

> > Dear and everyone:

> > Hi everyone.  I got my results yesterday from my Doctor.  Thank God it's

> not

> > so bad.  He said I have a slight amount Aortic Stenosis and that it is not

> > serious.  It should not be a problem.  The Echo also shows that I did not

> > have a heart attack.  He said it is a calcification developed when I was

> on

> > dialysis, since I was on so long is why I have it.  I was on 18 years.

> > However, like I said it is only slight.  Thank God.  Thank you and

> > everyone for all your emails and your concern.  I couldn't have gotten

> > through this week if it wasn't for your help and support.  I appreciate it

> > very much.  I hope you all have a good pain free day.

> > Sincerely,

> > Anjillah@...

>

>

>

>

>

>

[Guest guest]

,

I am so relieved to hear this! As I know you are! So, now that you know the

test results, did the doc suggest anything for you to do? Do you have to

keep an eye on it? Could it be a problem later on?

Hugs, Rainy Sue

> Dear and everyone:

> Hi everyone. I got my results yesterday from my Doctor. Thank God it's

not

> so bad. He said I have a slight amount Aortic Stenosis and that it is not

> serious. It should not be a problem. The Echo also shows that I did not

> have a heart attack. He said it is a calcification developed when I was

on

> dialysis, since I was on so long is why I have it. I was on 18 years.

> However, like I said it is only slight. Thank God. Thank you and

> everyone for all your emails and your concern. I couldn't have gotten

> through this week if it wasn't for your help and support. I appreciate it

> very much. I hope you all have a good pain free day.

> Sincerely,

> Anjillah@...

[Guest guest]

Elaine,

I miss you so much. You are such an inspiration to me. When I start feeling

sorry for myself I think of you and all you were (and still are) going through

and everything you did and continue to do. Please know I'm praying for you and

hope God will answer our prayers for you soon. We do understand that you can't

be here and that's ok, just think about you and getting yourself better. Love

to ya. Tery

wrote:

>

> Thanks to all of you who have asked about and expressed concern during my long

absences. Thank you, a, for bringing people up to date with a lot of what

has happened over the past year. Thanks to each of you who have sent your well

wishes, prayers, words of encouragement and expressions of concern.

>

> I apologize that I have not responded individually. a was kind enough to

forward your messages to me to make sure I did not miss them. Thank you, a.

Unfortunately, try as I might, I am not able to read everything. I am on digest

which makes it a little easier, but sometimes even that is more than I can

handle.

>

> I think of all of you, care about and for each of you, and wish with all my

heart there was a way for all of to be free of whatever type of arthritic

disease each of us have.

>

> Elaine (in Vegas)

>

>

>

[Guest guest]

Elaine,

You're very welcome for anything I've done. I only wish I could do more

for you. It is you I must thank for your wonderfully written runny finger post

to the group with all of your infinate wisdom. I'm sorry that you've learned

this lesson from experience. It's great to see you post, but we understand why

you aren't here as often as you'd like to be. I hope this means you're feeling

better. Sending lots of hugs your way.

Love ya,

a

[Guest guest]

andra,

Good luck with your casting this weekend! Let us know how it goes!!!

Marci (Mom to - helmet grad)

Oklahoma

[Guest guest]

Good luck this weekend, andra!! Please let us know how it goes.

Kendra in CanadaFor more plagio info, go towww.plagiocephaly.org/support

----- Original Message -----

From: aleqsandra@...

Plagiocephaly

Sent: Wednesday, April 11, 2001 3:33 PM

Subject: Thank you

Kendra,Jaya,Ann and all other mums, I just want to thank you all for supporting me and helping me finding this great doctor here in UK.I could never do this without your help. We'll do the the casting this weekend.I already think about decorating his band! Love you all! andra

[Guest guest]

Elyse...

Please look into the " Iridodial " (ant extract from Germany as discussed by

Dr. Nieper in the book " The Curious Man " , The Life & Works of Dr. Hans

Nieper). It has been available in the U. S. through Nutrient rs,

Santa , NM under the Advanced Research Label for one or two months.

Dr. Haltiwanger, an M.D. from Germany who practiced with Dr. Nieper for

several years, is now on Staff at Nutrient rs. I am sure your husband

is aware of it's current availability and it's effectiveness with breast

cancer, but I just had to make sure.

God Bless You!

Pat

Thank you

Most of you know I am having bi-lateral mastectomies tomorrow

(Tue.) Where I have not had the time to thank you individually I can

not tell you how much I appreciate all the cards and letters and

pictures of the children that have been sent. You know who you are

and I won't embarrass anyone with extra thanks … Because of the work

with your children over the last years many of my friends never

understood why I did not have time for them… I can not tell you

enough that the cards, prays and well wishes and especially seeing

pictures of some of your children that I have not seen in a while

tells me what I have given up has been more than worth it!

Thanks for all the support… And for all of the support you have shone

my husband ( Dr. G) it is a really a tough time for him.

Please hug the kids for me

Elyse Goldberg

Responsibility for the content of this message lies strictly with

the original author, and is not necessarily endorsed by or the

opinion of the Research Institute.

[Guest guest]

sir,

i am sending mails since number of times. i just want

the information that my son undergone some medical

test to diagnosie his autism, as not so much qualities

are appeared in his behaviour except speech devt and

social interaction. please suggest us what can we do

next.

--- Source One Naturals <immune1@...> wrote:

> Elyse...

>

> Please look into the " Iridodial " (ant extract from

> Germany as discussed by

> Dr. Nieper in the book " The Curious Man " , The Life &

> Works of Dr. Hans

> Nieper). It has been available in the U. S. through

> Nutrient rs,

> Santa , NM under the Advanced Research Label

> for one or two months.

> Dr. Haltiwanger, an M.D. from Germany who practiced

> with Dr. Nieper for

> several years, is now on Staff at Nutrient rs.

> I am sure your husband

> is aware of it's current availability and it's

> effectiveness with breast

> cancer, but I just had to make sure.

>

> God Bless You!

>

> Pat

>

> Thank you

>

>

> Most of you know I am having bi-lateral mastectomies

> tomorrow

> (Tue.) Where I have not had the time to thank you

> individually I can

> not tell you how much I appreciate all the cards and

> letters and

> pictures of the children that have been sent. You

> know who you are

> and I won't embarrass anyone with extra thanks …

> Because of the work

> with your children over the last years many of my

> friends never

> understood why I did not have time for them… I can

> not tell you

> enough that the cards, prays and well wishes and

> especially seeing

> pictures of some of your children that I have not

> seen in a while

> tells me what I have given up has been more than

> worth it!

>

> Thanks for all the support… And for all of the

> support you have shone

> my husband ( Dr. G) it is a really a tough time for

> him.

>

> Please hug the kids for me

> Elyse Goldberg

>

>

>

>

>

> Responsibility for the content of this message lies

> strictly with

> the original author, and is not necessarily endorsed

> by or the

> opinion of the Research Institute.

>

>

>

[Guest guest]

Elyse,

All of our prayers are with you and your family at this time.

Coalition-Northern New York Chapter

[Guest guest]

We love you, Elyse! God Bless you and your family.

[Guest guest]

Doris,

I have a recommended place to stay. It is called Summerfield INNS and

Suites by Wyndam resorts. There is one located in Torrance near Harbor

UCLA where you will have the SPECT scan done. I do recommend that, my

girls recently had theirs done. The suites are two bedroom two baths.

Full kitchen including dishwasher, oven microwave, full refrigerator,

and fully stocked with pots, pans, etc. Great to maintain diet regimen.

There is also a full complimentary breakfast. It is pricey, at $200 per

night, but it is a mini apartment. I got the price down by bringing my

mother and got a rate of $119 with her AARP membership. I can't find

the number but should you want it you should be able to find it through

the 800 directory. You might belong to other organizations that will

offer a discount. It is further from Dr. G., but I love this place and

have stayed there twice.

I don't know about GFCF but there are larger chain grocery stores close

by and the selection was good.

Hope this helps.

Lici

Thank you

First - I want to thank everyone for the excellent ideas and suggestions

on

'traveling with your child' !!

We're visiting Dr G in August and (hopefully) having a

neurospect done

(talking to Dr G about this in July)

We're flying on America West (tried for TWA but seats are

going fast).

Suggestions on places to stay, GFCF-friendly places and food

stores

are welcomed! We're going to take some hour hoppers to N.C.

and Ohio

to prime for flying. And I'm going to call BWI and see

if

we can get a tour of a plane there (I figure if their planes

can buzz the

house

they can give us a tour of one).

Second - I want to apologize for my frazzled-nerve posting earlier in

the week.

But as an analyst, I needed information. As a mom, security.

After waving the white SOS flag earlier in the week, things

are much calmer

now.

The puzzle pieces are starting to click into place:

appts - plane tix - POCs .......

If one more 'coincidence' happens, I'm going to start to look

for Rod

Stieger.

Things happen for a reason, and I guess you need to stand back

every

now and then and look.

Not to mention has had a really good week (in all of

this 95 degree

HHH weather

we're having here) )

Thanks for all the words of reassurance and support!

doris

sville MD

Responsibility for the content of this message lies strictly with

the original author, and is not necessarily endorsed by or the

opinion of the Research Institute.

[Guest guest]

Doris,

The Whole Food Markets are all over the LA area. They really helped me out

when we went last year. Also, if you need something specific they might be

able to order it for you. I believe there's one right in Torrance.

Good luck!

[Guest guest]

Doris

There's a Whole Foods on Venture Bvd at Canoga in Woodland Hills, so if you

stay at the Marriott there or the Holiday Inn on Ventura its very close.

This is about 2 miles from Dr G - Wilbur Ave runs off Ventura Blvd. We

ordered special GF/CF cake there at the bakery section - I even got to speak

to the bakery supplier on the other side of town!!

We stayed in the Marriott at Woodland Hills each time, which while not the

cheapest, was easier to organise from overseas, and easy for transport from

the Airport. Also, the hotel were willing to order some special foods like

GF/CF bread, or meats you might need, - speak to Colleen Busch - head of

restaurants X. 6139 (1-818-887 4800) she is very helpful - explain the

situation - you will need to advise her to pre-brief the kitchens that you

will be ordering off-menu items, plain (no fancy sauces etc. whatever your

child needs). Then when you do order either room service or in the

restaurants, you will need to be double sure that they know what is going

on - a bit of staff training is necessary. Also consider adjoining rooms if

the family is going.

There is a Hertz desk right there as well so you can book a car. End of week

rates are cheaper, and try to avoid peak times anyway. Cheapest rate we have

had was $89 but when we went last August it was $144 - in the middle of

the Democrat Convention!!

We've done three trips now, and now we know the area a bit better, will

consider cheaper accommodation where we might have a small kitchenette or

something. The first time is a bit daunting, but each tripe gets easier.

regards,

Re: Thank you

Doris,

The Whole Food Markets are all over the LA area. They really helped me out

when we went last year. Also, if you need something specific they might be

able to order it for you. I believe there's one right in Torrance.

Good luck!

Responsibility for the content of this message lies strictly with

the original author, and is not necessarily endorsed by or the

opinion of the Research Institute.

[Guest guest]

We need to approach a hotel or two out there for special rates. There are

enough of us coming though that we should be able to make a deal- for

example if the group recommends a particular hotel. Also with

the possibility of conferences on the horizon there is even more reason for

this kind of thing. Business do it why shouldn't we???? Does anyone have

good contacts in tt or another chain that is our there? --- Original

Message -----

From: " R M " <rmwilson@...>

< >

Sent: Friday, July 13, 2001 10:22 AM

Subject: RE: Thank you

> Doris

> There's a Whole Foods on Venture Bvd at Canoga in Woodland Hills, so if

you

> stay at the Marriott there or the Holiday Inn on Ventura its very close.

> This is about 2 miles from Dr G - Wilbur Ave runs off Ventura Blvd. We

> ordered special GF/CF cake there at the bakery section - I even got to

speak

> to the bakery supplier on the other side of town!!

>

> We stayed in the Marriott at Woodland Hills each time, which while not the

> cheapest, was easier to organise from overseas, and easy for transport

from

> the Airport. Also, the hotel were willing to order some special foods

like

> GF/CF bread, or meats you might need, - speak to Colleen Busch - head of

> restaurants X. 6139 (1-818-887 4800) she is very helpful - explain the

> situation - you will need to advise her to pre-brief the kitchens that you

> will be ordering off-menu items, plain (no fancy sauces etc. whatever your

> child needs). Then when you do order either room service or in the

> restaurants, you will need to be double sure that they know what is going

> on - a bit of staff training is necessary. Also consider adjoining rooms

if

> the family is going.

> There is a Hertz desk right there as well so you can book a car. End of

week

> rates are cheaper, and try to avoid peak times anyway. Cheapest rate we

have

> had was $89 but when we went last August it was $144 - in the middle of

> the Democrat Convention!!

>

> We've done three trips now, and now we know the area a bit better, will

> consider cheaper accommodation where we might have a small kitchenette or

> something. The first time is a bit daunting, but each tripe gets easier.

>

> regards,

>

> Re: Thank you

>

>

> Doris,

> The Whole Food Markets are all over the LA area. They really helped me

out

> when we went last year. Also, if you need something specific they might

be

> able to order it for you. I believe there's one right in Torrance.

> Good luck!

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

>