Thank You

[Guest guest]

Hi,

My kids see Dr. Goldberg and I live/work locally in the San Valley

where Dr. Goldberg is located.

I recommend the following for a suite-type hotel. My company frequently

sends business travelers here and using a preferred rate. I will post again

on Monday with the preferred rate info. It is about 5 miles from Dr.

Goldberg's office, very close to Whole Foods Market on Ventura Blvd, two

shopping malls, movies, a nice park, and an indoor playground called Under

the Sea. Email me privately if you want additional info on any of these

places.

Name: Extended Stay America

Address: 20205 Ventura Blvd, Woodland Hills, California, United States,

91364

Areas Served: WOODLAND HILLS,CA

Telephone: 818-710-1170

Fax: 1-818-710-1913

Hotel Type: Extended Stay

Currency: United States Dollars

Cancellation: Cancel 24 hours prior to arrival to avoid a charge of one

night's room and tax. Guarantee: 6PM HOLD ON NON-GUARANTEED RESERVATIONS.

ALL GUARANTEED RESERVATIONS MUST HAVE A CREDIT CARD AT TIME OF BOOKING.

Check In: 1500 Check Out: 1100

Time Zone: PST

Year Built: 2000 Year Renovated: 2000

Click Here: to visit the Extended StayAmerica homepage

----------------------------------------------------------------------------

----

Quick Description:

Extended Stay America is the fastest growing chain of extended stay lodging

facilities designed to appeal to economy-conscious guests. Each room is a

studio suite that offers a full furnished kitchenette which includes a full

size refrigerator, two burner stove, dishes and utensils for two, pots and

pans, a microwave, and a coffee maker.

Re: Thank you

>

>

> Doris,

> The Whole Food Markets are all over the LA area. They really helped me

out

> when we went last year. Also, if you need something specific they might

be

> able to order it for you. I believe there's one right in Torrance.

> Good luck!

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

>

[Guest guest]

In a message dated 7/14/01 4:29:36 AM Central Daylight Time,

dvberrey@... writes:

> I recommend the following for a suite-type hotel. My company frequently

> sends business travelers here and using a preferred rate. I will post again

> on Monday with the preferred rate info. It is about 5 miles from Dr.

> Goldberg's office, very close to Whole Foods Market on Ventura Blvd, two

> shopping malls, movies, a nice park, and an indoor playground called Under

> the Sea. Email me privately if you want additional info on any of these

> places.

> Name: Extended Stay America

>

>

I called this hotel to make a reservation for our last trip out. They could

not " guarantee " our reservation (although they were more than willing to take

my credit card info). The desk clerk told me they wouldn't guarantee any

reservations because they never knew who would be staying/leaving.

Very weird. I told him I wasn't going to chance not having a place to stay

with two kids. This policy is ridiculous. I can't say I would recommend

calling them at all.

They are cheaper, but most of us would like to know we have a room when we

get there. Why take reservations at all if that's the policy?

Sharon

[Guest guest]

That's a very sweet note, Lynn. Thank you very much. It's my pleasure to try

to help you.

I'm glad you asked to a lot of questions and that you feel as if the

surgery is a good option for you. The best thanks I could get would be for

you to come out of the operation feeling well. I'm praying for that.

Although I shouldn't be surprised anymore, I am still amazed when I hear of

physicians who know so little of RA. It's not as if it is an uncommon

disease.

That was nice of Ri to go with you. I'm glad you had someone there to help

you listen and to support you.

Try not to worry about school. Just concentrate on getting better first.

School will always be there. You will do better academically if you feel

better physically.

[ ] thank you

> Hi ,

> I long e-mail will follow this but I wanted to thank you for all your

> help. The list of questions you gave me was excellent. All my questions

> were answered. Dr. to does 75 to 100 Whipples a year. He has been at

> U. of P. for ten years doing this surgery. Before that he was doing them

> at another hospital for years. I did ask since U. of P. is a teaching

> hospital do I have a guarantee that he will operate. I ask this of his

> nurse practicerner and to himself. He will do the operation himself.

> He will not make the original cut and he will not close. The chief

> surgical resident will do this and he has been doing it for 8 years. I

> came away with all my questions answered. Rick was not able to go with me

> but my friend Ri did. I felt four ears were better than two, plus I have

> the short term memory of a flea. I am very grateful that she was with me.

> Anyway this note was to thank you for all your help. You belong in

> research, the abilities you have in this field are amazing. Plus your

> compassion is remarkable. I am so fortunate to have had the good fortune

> to have met you.

> Lynn (MeMom)

[Guest guest]

Hi ,

I made a mistake the surgery will be on August 31. Good thing my friend

was with me. This is not what I want to do, but after thinking about

everything, no matter what I do all roads lead to the whipple. So I need

to pray a lot. How are you feeling? Hope this day is good for you./

Lynn (MeMom)

----------

> From: <Matsumura_Clan@...>

>

> Subject: Re: [ ] thank you

> Date: Monday, August 06, 2001 2:15 AM

>

> That's a very sweet note, Lynn. Thank you very much. It's my pleasure to

try

> to help you.

>

> I'm glad you asked to a lot of questions and that you feel as if the

> surgery is a good option for you. The best thanks I could get would be

for

> you to come out of the operation feeling well. I'm praying for that.

>

> Although I shouldn't be surprised anymore, I am still amazed when I hear

of

> physicians who know so little of RA. It's not as if it is an uncommon

> disease.

>

> That was nice of Ri to go with you. I'm glad you had someone there to

help

> you listen and to support you.

>

> Try not to worry about school. Just concentrate on getting better first.

> School will always be there. You will do better academically if you feel

> better physically.

>

>

>

>

>

>

> [ ] thank you

>

>

> > Hi ,

> > I long e-mail will follow this but I wanted to thank you for all your

> > help. The list of questions you gave me was excellent. All my

questions

> > were answered. Dr. to does 75 to 100 Whipples a year. He has been

at

> > U. of P. for ten years doing this surgery. Before that he was doing

them

> > at another hospital for years. I did ask since U. of P. is a teaching

> > hospital do I have a guarantee that he will operate. I ask this of his

> > nurse practicerner and to himself. He will do the operation

himself.

> > He will not make the original cut and he will not close. The chief

> > surgical resident will do this and he has been doing it for 8 years. I

> > came away with all my questions answered. Rick was not able to go with

me

> > but my friend Ri did. I felt four ears were better than two, plus I

have

> > the short term memory of a flea. I am very grateful that she was with

me.

> > Anyway this note was to thank you for all your help. You belong in

> > research, the abilities you have in this field are amazing. Plus your

> > compassion is remarkable. I am so fortunate to have had the good

fortune

> > to have met you.

> > Lynn (MeMom)

>

>

>

>

>

[Guest guest]

Thank you S.Surfus. That is what we are working on

with the pictures. She really doesn't like it. She

is stubborn about being like everyone else aand

talking. But yes I think it is a great idea (it is

mine too so of course I think it is great lol). Thanks

Deb Lea

[Guest guest]

You're very welcome!! I can only imagine what our children are going

through; knowing what they want and not being able to communicate their

wants and needs to us. I actually admire them, because they have more

patience than I will ever have.

You're very welcome again,

Sheila

>From: deborah lea <Hisvryown@...>

>Reply-

>

>Subject: Re: [ ] Thank you

>Date: Sun, 4 Nov 2001 17:24:08 -0800 (PST)

>

>Thank you S.Surfus. That is what we are working on

>with the pictures. She really doesn't like it. She

>is stubborn about being like everyone else aand

>talking. But yes I think it is a great idea (it is

>mine too so of course I think it is great lol). Thanks

>Deb Lea

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Oh Sheila, I " ditto " your words. They are the true

saints. Especially when they finally get to choose or

do in some area for themselves--such pure joy and even

" so there " attitude!!

Deb

>I can only imagine what our

> children are going

> through; knowing what they want and not being able

> to communicate their

> wants and needs to us. I actually admire them,

> because they have more

> patience than I will ever have.

[Guest guest]

-

Wow! That is wonderful! I'm so happy to hear that MIL has come around and is

supporting your decision. I'm glad that this group was able to help you out!

Hooray!

Marci (Mom to )

Oklahoma

[Guest guest]

,

I totally relate- my parents thought I was being "too dramatic" about the misalignment of my son's ears. And when I held him to a mirror to see the facial asymmetry, I was reading too much into it! UNTIL, they saw his head mold and started really looking! I guess you really can teach an old school dog new tricks! Thanks to this group, I was able to understand plagio far more than my ped ever explained or made issue of, and thanks to these great parents online, I had a built in support system when it all seemed overwhelming! Good for you for being such a good mom and scouring the internet to benefit your child! Good luck to you all!

' Mom

[Guest guest]

:

That is great you got your mom in law's opinion to change for the

better. I am glad our group helped you & your family.

Now, how bout giving my mom in law a phone call to change some of her

views huh???? hehehe Yeah right, like anyone could change that

woman's opinions!!!! LOL (in case you're wondering, my mom in law &

I aren't exactly best friends!!!).

Debbie Abby's mom DOCGrad 6/22/01

MI

> Hi Everyone,

>

> I just wanted to send a huge thank you to all of you at this site.

My

> mother in law's first reaction to hearing about our son's diagnosis

and

> decision to band, was of complete skepticism. In fact, she felt is

was a

> scam for doctors and insurance companies to make money- and how

could this

> be true as she's never heard of it before. I decided to hold off

talking to

> her for a few days and sent her printed copies of the frequently

asked

> questions and several of the posts (to further emphasize this is not

> something our Doctor " made up " for an insurance claim). Last

night, she

> called to tell me that she felt we were definitely making the right

decision

> for our little guy and that we (my husband and I) would have a

much harder

> time with this than will. I am still in shock I think at her

> turnaround in attitude, but very grateful to have her support and

> encouragement. Without a doubt- I owe this drastic change to the

support of

> all of you!

>

> ~, 's mom

[Guest guest]

I for one am glad you told the story painful as it is to hear. It is good to

remember that we should be very thankful for all the people in our lives that

we love because you never know when they will be gone.

Thanks again and I'm glad that the recent unpleasantness has not " chased " you

away from this group.

Marci (Mom to )

Oklahoma

[Guest guest]

I'm glad that problem was addressed so professionally by the great moderators of this group. My heart goes out to your friend as well, and please do give hugs from the group, an extra squeeze to let her know we all care and are points of light all over the world that are saddened to hear her story and we pray for her and her family to endure the holidays as best as possible.

' Mom

[Guest guest]

No, thank you for being so understanding and sharing your friend's

story. I can't imagine how hard it is on her. You sound like a

wonderful friend who is doing everything you can to help her in such

a horrible time.

I'm glad you won't let one bad apple spoil our great bunch! (is that

how the saying goes?) Thanks again.

Debbie Abby's mom DOCgrad

MI

> I just wanted to say thank you to all that had sent messages. I do

> not know why I told my friends story it is just very hard for her

> this holiday and I tend to feel as if there is nothing I can do

> except be there for her! I am sure if she were able to read the

> messages that have been sent she would be very appreciative as

well!

> As far as this group I personally feel that it is a wonderful group

> that has answered a lot of my questions before I even thought to

ask

> them! There is always one or two people in a group that have a

> tendency to cross the line but that would certainly not deter me

from

> this site. I hope everyone has a very happy holiday and a safe New

> Year! I would like to thank everyone on my friends behalf

[Guest guest]

I pray for your friend this season, I can't even

imagine... well I can imagine, and I know I would be

totally heart broken. Give her hugs, and be the very

best friend you can, she needs it this season.

Kel

__________________________________________________

[Guest guest]

This must be such a difficult time for both of you I had a friend that's brother lost his daughter to SIDS it really effects the whole family and all of those connected to them. You cant help but to feel helpless during these situations and so very bad. My heart goes out to the Mom- I cant ever imagine and pray that I never have to. We will say an extra prayer that this holiday season is one full of happy memories for the both of you. I am also sorry you and your friend cant spend as much time together- I am sure it is so very painful for her and a constant reminder but it must be just as difficult for you not to be with her during all of the good and bad times. My heart and prayers to you!

Beck

[Guest guest]

Good Luck Staci-let us know how it goes!

Beck

[Guest guest]

Staci:

You are very welcome. Be sure to let us know how the ortho appt goes

Monday! Good luck.

DEbbie Abby's mom DOCGrad

MI

HAPPY NEW YEAR!

> Hi everyone,

> I wanted to say thanks for all of the advice about to graduate or

not to

> graduate from Adam's helmet. We have an appointment with the ortho

on monday

> and plan to discuss our options there. Thanks again!!

> Staci & Adam

[Guest guest]

no need to thank me mindy. i have been down lately, alot of it is i have cut

my buspar in 1/2 trying to wean off it before starting effexor. sometimes i

wonder if it is worth it. i was cooking breakfast yesterday. my son came out

and said i thought we were having a donut this morning. of coarse trying to

do too many things at once i heated the oil too soon and it burned. next

thing i know i'm crying and the whole breakfast was in the garbage. today i

just took my normal dose. i was feeling kinda good before that. or at least i

was managing. i will wait til my next appt. hang in there mindy. kathy in il

[Guest guest]

Kathy,

I have had this sinse my son was born and it still hangs in his room...he is

11 now and when I get down or worried about my son I read it...I am praying

this for you now

I said a prayer for you today and I know God must have heard. I felt the

answer in my heart although He spoke no word. I didn't ask for wealth or

fame, I know you wouldn't mind, I ask him to send you treasures of a far more

lasting kind.

I asked that he be near you at the start of each new day, to grant you health

and blessings and friends to share your way.I asked for happiness in all

things great and small, but it was for his loving care I prayed the most of

all.

Hugs,

Mindy

[Guest guest]

thanks mindy

[Guest guest]

Yes, thanks from me too.

ldugua wrote:

>  I would like to go on record as a member of the list to thank

> " raptor 1 " for the invaluable service she provides  posting relevant

> articles from credible medical journals. I cannot say I

> understand all of them, certainly, but I understand enough of them to

> realize their relevance and affirmation to our cause.  Thank you

> " raptor b " .

>  

>

>

[Guest guest]

It is tough to know what is right or what is wrong, but giving the boys the

closure they needed was the best choose. My oldest was 5 when my mom passed

away 12 years ago and they were very close. I took him to say good

bye......Today he is 17 and a well adjusted young man. I know the mother

bear has come out many times here being a mom of 5 boys and many times they

have been hit by a baseball during a baseball game ( I have to learn it was

a accident cause otherwise I would of yelled at the innocent boy who hit the

ball that had hit my child). or when someone asked " doesn't it upset you

that your youngest talks so much better then " Then I would count to 3

and say " No it doesn't bother me cause each and everyone one of my boys are

smart in their own special way " BTW Where do you live?

Diane.....Mom, taxi, coach, friend, and referee,

too 17, 15, 13, 11

10,

There is a special place in Heaven for mom's of Boys

[Guest guest]

As President of SAFE and Husband of CT, I can't express my heartfelt thanks

and inspiration that all of you gave us We received more than we gave or ever

expected. sends his love too. I was truly overwhelmed when several of

the attendees came up to me with flowers CT's ( Theresa's) grave. Since

she is buried directly south, 2 miles on the same street as the Ramada, I

asked if they would like to do it themselves. They were enthusiastic. At 8pm

on Friday a 4 car caravan arrived at her final resting place. To see the

emotion of these dedicated newly " adopted " family members, was the most

moving experience of the 3 days for me. I know you all would have been there

given the opportunity. You were! It was not planned but totally spontaneous.

Someone found a dime. You have made the future brighter and manageable for

and me. You have given hope to us all, the best of all lessons and

missions. Let's try for the end of April 2003 to see your beautiful faces and

share your inspirational spirits. Please stay in touch and

" Never,never,never.....give up " !

[Guest guest]

Trisha:

I was so hoping to hear your Grandma was already done with surgery &

well. I'm sure she will be soon though. Hang in there hun! Let us

know

Prayers & Hugs

Debbie & Abby

MI

> To everyone who is sending prayers and well wishes...my Grandma is

in surgery now and I am just waiting to hear that she made it

w/flying colors...Thanks so much all of the support brought tears to

my eyes...Trisha

> Trisha s

>

> Project Administrator

>

> (972)-620-9438 - Office

>

> Trisham @abstractmail.com <mailto:Trisham@a...>

[Guest guest]

Trisha,

Keep us posted! Prayer is a powerful thing indeed.

Marci