Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 Penny, Ignore them. With 18 mm of asymmetry your only option for close to normal correction is a band. Yes, tummy time and repo would help a mild case, but not severe, not enough. Most of us here know that 30 minutes of tummy time a day is not enough. The AAP I think even recommends more than that. They also recommend banding for severe cases. They aren't you and you don't want to takre any chances. Tell them you have done some extensive research inluding the AAP recent guidelines and you just want to do what's best for your child. If he has crooked teeth as a teenage you will get him braces - no difference. mom to na DOC Grad www.thefilyaws.compennylac <pennylac@...> wrote: I know this will only be the beginning of dealing with this issue but wanted to see what others did to educate people and deal with unsolicited advise/comments.This past weekend the neighbors got together with all the kids. I am a first time Mom and like all first timers, we want our children to be perfect and probably over-react to the littlest things. Well all f the neighbors have commented that they don't see what is wrong with his head -- which looks fine when you look at the two halfs separately, put together you can see the plagio and asymmetry. Well one of the ladies basically said to me, and another agreed, you can't tell. Doctors say they only need 30 minutes of tummy time a day. The head would round out. And the hair will cover it. If it were me, I wouldn't do it. Well, that is not exactly what I wanted to hear. As you all know, we struggle with making this decision -- the guilt that we did something wrong, to band or not to band, etc. I am having a dilemma as to whehter or not to bother to tell her that the things she said hurt my feelings or just let it pass. And if I do, what do I say. We are pretty good friends and I am the type of person that if I don't agree with how you are raising your child, and you don't ask my opinion, I am not going to give it. She was trying to sound like she was educated on the topic, whereas I have spent hours pouring over everything I can find out bands, plagio, and repositioning. It just really hurt and it has been bothering me for so many reasons. Obviously, I would not expect a friend to basically tell me I was doing the wrong thing and that I was just being vain about his head (18mm of asymmetry). Second, that I haven't even gotten the helmet yet and I am already having to deal with this. How bad is it going to be when he has it?Pennymom to Jack -- 16 weeksFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 Penny, Ignore them. With 18 mm of asymmetry your only option for close to normal correction is a band. Yes, tummy time and repo would help a mild case, but not severe, not enough. Most of us here know that 30 minutes of tummy time a day is not enough. The AAP I think even recommends more than that. They also recommend banding for severe cases. They aren't you and you don't want to takre any chances. Tell them you have done some extensive research inluding the AAP recent guidelines and you just want to do what's best for your child. If he has crooked teeth as a teenage you will get him braces - no difference. mom to na DOC Grad www.thefilyaws.compennylac <pennylac@...> wrote: I know this will only be the beginning of dealing with this issue but wanted to see what others did to educate people and deal with unsolicited advise/comments.This past weekend the neighbors got together with all the kids. I am a first time Mom and like all first timers, we want our children to be perfect and probably over-react to the littlest things. Well all f the neighbors have commented that they don't see what is wrong with his head -- which looks fine when you look at the two halfs separately, put together you can see the plagio and asymmetry. Well one of the ladies basically said to me, and another agreed, you can't tell. Doctors say they only need 30 minutes of tummy time a day. The head would round out. And the hair will cover it. If it were me, I wouldn't do it. Well, that is not exactly what I wanted to hear. As you all know, we struggle with making this decision -- the guilt that we did something wrong, to band or not to band, etc. I am having a dilemma as to whehter or not to bother to tell her that the things she said hurt my feelings or just let it pass. And if I do, what do I say. We are pretty good friends and I am the type of person that if I don't agree with how you are raising your child, and you don't ask my opinion, I am not going to give it. She was trying to sound like she was educated on the topic, whereas I have spent hours pouring over everything I can find out bands, plagio, and repositioning. It just really hurt and it has been bothering me for so many reasons. Obviously, I would not expect a friend to basically tell me I was doing the wrong thing and that I was just being vain about his head (18mm of asymmetry). Second, that I haven't even gotten the helmet yet and I am already having to deal with this. How bad is it going to be when he has it?Pennymom to Jack -- 16 weeksFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 I agree with most of what everyone has told you. Keep in mind that you probably did ask for thier opinions - or at least they think you did by bringing it up. Regardless, ignore em. If you did nothing, then you'd have to deal with their comments 4 years from now when they ask about how he developed and "why didn't you band???" So - you will have people like this to deal with one way or the other. YOu need to do what you are willing to live with. My son is almost 3 and we didn't know about the banding option. Anyway - YOU are the mom. Don't worry about the others. Charalet Mom to J - unresolved plagio Re: Dilemma Penny, Ignore them. With 18 mm of asymmetry your only option for close to normal correction is a band. Yes, tummy time and repo would help a mild case, but not severe, not enough. Most of us here know that 30 minutes of tummy time a day is not enough. The AAP I think even recommends more than that. They also recommend banding for severe cases. They aren't you and you don't want to takre any chances. Tell them you have done some extensive research inluding the AAP recent guidelines and you just want to do what's best for your child. If he has crooked teeth as a teenage you will get him braces - no difference. mom to na DOC Grad www.thefilyaws.compennylac <pennylac@...> wrote: I know this will only be the beginning of dealing with this issue but wanted to see what others did to educate people and deal with unsolicited advise/comments.This past weekend the neighbors got together with all the kids. I am a first time Mom and like all first timers, we want our children to be perfect and probably over-react to the littlest things. Well all f the neighbors have commented that they don't see what is wrong with his head -- which looks fine when you look at the two halfs separately, put together you can see the plagio and asymmetry. Well one of the ladies basically said to me, and another agreed, you can't tell. Doctors say they only need 30 minutes of tummy time a day. The head would round out. And the hair will cover it. If it were me, I wouldn't do it. Well, that is not exactly what I wanted to hear. As you all know, we struggle with making this decision -- the guilt that we did something wrong, to band or not to band, etc. I am having a dilemma as to whehter or not to bother to tell her that the things she said hurt my feelings or just let it pass. And if I do, what do I say. We are pretty good friends and I am the type of person that if I don't agree with how you are raising your child, and you don't ask my opinion, I am not going to give it. She was trying to sound like she was educated on the topic, whereas I have spent hours pouring over everything I can find out bands, plagio, and repositioning. It just really hurt and it has been bothering me for so many reasons. Obviously, I would not expect a friend to basically tell me I was doing the wrong thing and that I was just being vain about his head (18mm of asymmetry). Second, that I haven't even gotten the helmet yet and I am already having to deal with this. How bad is it going to be when he has it?Pennymom to Jack -- 16 weeksFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 My only suggestion would be to find the documentation that talks about side effects of untreated plagio, and send it to them. There is a lof of info at the American Academy of Pediatrics site, as well as the info you can find on this site. There is also an older plagio kids support group with a lot of children with untreated. All you can do is supply the info. They are the ones who will have to make the decision. Hopefully they will read what you send them and make an educated one. Maybe you could tell them about the free consultations at Cranial Tech? Tell them you'll stop hounding them about it if they go for a consult. No one likes to think anything is wrong with their little one, so maybe they are just hoping it will go away if they ignore it. HTH. Candace, AZ mommy to Tiernan, 5.5 mos tort, plagiowerriedant <werriedant@...> wrote: It is not myself who has the child that has been diagnosed with torticollis and he also has plagiocephaly, it is a family member's son. This family member is too prideful to put his son in one of the helmets or bands. They are doing exercises and physical therapy, but I don't know to what extent. Also, apparently he has one side of his body shorter than the other, so it sounds like a bad case of all three things. I am not on speaking terms with this family member, but I am going to do more research and give it to him anyway. If I had not spent a few days online looking for resources, he still would not have a diagnosis. I just hate the thought of this little boy going through life with any kind of problem just because of his father's pride. It all came about by his parents discovering a knot on his neck, which was from the torticollis. The baby is now almost 8 months old, he was probably around 3-4 months when they discovered it. I have not seen the baby in person, we live a ways away. Ever since I voiced my opinion that they needed to do more for their son, they are not speaking to me. They waited around for 10 days before they took him to the doctor, at first they were afraid it was cancer. Then when I finally was told about it, I started doing research immediately and found out about torticollis. You can tell from pictures of this baby that one side of his skull is different than the other. The one eye looks smaller, one of his ears is badly cupped. I do not know how they couldn't see this when he was born, but they didn't. The pediatrician told them his head would be normal in a few weeks. HA. I have been monitoring this group for a while and it seems like a lot of you were told that. His pediatrician says he does not need a helmet. The physical therapist says he does. The person they took him to last said he does not. It looks like to me that these problems are rampant for babies now. Parents need to be educated about this problem, what to watch for. My question is this: How can I get this person to realize that his son is going to live with this for the rest of his life? Just because he does not want people to see him in a helmet. I have been looking at pictures, I think they are adorable. All you guys who have pictures on this site, your babies are gorgeous. I would have gone to the ends of the earth to rectify any problem that my daughter had, thank God she was healthy and normal. I admire people who can think first of their children and not stop until they know they have done all they possibly can for them. Get your email and see which of your friends are online - Right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Dilemma The bedside candle dripping it's waxy tears, as I relate somewhere in this moment's dilemma; To watch you sleeping, soft all over, dancing in dreams. Butterflies envisioned as I absorbe your breath. One little nudge, a soft caress, to brush your cheek. Any of these snowflake textured gestures would wake you into flaming pasion, mutually savored. The morning sun would rise. Neither of us knowing or caring. Oh how I wish to steal you away from slumber's arms. Your foggy eyes focusing into mine, then into love. Yet part of me continues to resist, to refrain. Because now, the universe gets to feel you as I already do. So I remain silent, basking in your lithesome beauty. Your head nestled in the pillow, yet in the clouds. Who am I to deny heaven of such a grandeur exchanged? The clock hand frozen as I await your morning kiss. Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2009 Report Share Posted October 17, 2009 On Oct 16, 2009, at 2:05 PM, McLaughlin wrote: > The current look of the torticullis in the pictures is a result of > an ear infection this week. He said her neck muscle isn't even > tight and the torticullis is almost gone. Also, this why the ear > asymmetry in the pictures is so significant. Last part doesn't make sense: we are talking about how the ears are placed relative to other skull landmarks, right? A baby's skull doesn't swell with ear infection, does it? And if it did, I wouldn't consult a PT about it! If you stick your fingers in the ears and, looking down from above, hold them parallel, you see whether one ear is more forward than the other. That's the most common " ear asymmetry " in plagio, though I understand the vertical can be affected as well. If a vertical difference is so subtle as to be confounded with head tilt, then indeed, maybe it's not worth it. But then you have to consider the possibility of regression. And torticollis would bear on that, certainly. So, yeah, I guess I can conceive a situation where a PT might think they know better... -- Thad Launderville Montpelier, VT Clara age 18 months, STARband since 8/10 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.