Guest guest Posted February 4, 2001 Report Share Posted February 4, 2001 i haven't yet today. hate to start the day with codine!!! have to go to a wake today too. thats about a 60 mile round trip too. i'll probably loosen up a bit after a nice hot shower. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 thanks, i'll do that when april comes around!! i just called work and they said it's a very complicated to get an adjustable work station. she said they have contacted the nurse several times for the dimensions with no response. anyone know how they determine this?? i tried to explain to the woman i just can't stay in one place. i want a desk to sit and one to stand. she said bldg services and the other lady's dr's office worked long and hard to get her station done right. didn't look that hard to me. the went and bought some brackets. fixed it to the cubicle wall and hung the desktop instead of resting it on the drawers?!?! i have said for over a year now. let me know what size brackets you need. i'll go to builders square!!! geez!!!! a long time ago i worked for the phone company. they had 2 adjustable desks at every office. with electric lifts so you could raise or lower them as needed. i have no idea how to find out where they got them, or designed them. i have been home for 2 months and no one has done anything to help me!!!!!then on the other hand i am trying to repair my house from the ice dam. i feel really wierd thinking about new carpet and paint while being so broke. sorry needed to vent. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 Kathy, Sounds to me like you need to talk to a rheumatologist about possible fibro. Unfortunatley there are too many doctors who do not recognize it as well as too many doctors who give the diagnosis out without good cause. There are so many people with RA and fibro that I think all of us should take it seriously if a doctor suspects it. I know that a feels so much better since she has been diagnosed and treated - there is something they can do for fibro. I hope today is a good day for you - sounds like you are due for one. Pat At 10:17 PM 02/14/2001 -0500, you wrote: >i went to a new chiro today, because i changed my insurance plan. i brought >the results from my bone scan and mri and my failure letter to get me on >enbrel, he took x-rays and examined me. i am all out of place. (duh, thats >why i went!!) he won't do any adjustments until he and the dr on staff >examine my x-rays. but he asked me if anyone ever mentioned fibromyalgia to >me. that's the 2nd dr that has said that to me since december. i was really >in a fog today. i called it a codene fog because i took some yesterday. > > > > > > > > > > kathy > > >Sponsor<http://rd./M=176325.1312152.2904070.1252795/D=egroupmail/S=170\ 0061498:N/A=567138/R=1/*http://domains.> > > >www. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 the thing you need to remember is that for some reason people need something visual, and since you don't have anything broken and in a cast or are bleeding , " there can't possibly be anything wrong with you " the thing you need too remember is that you do have it, it is there, its not your imagination.and you have to do what is right for you. if that means you need desks a certain height they should be willing to provide them, just to keep you on as an employee. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 Also remember the ADA act was approved for people just like this. Employers are required to make certain adjustments for people with disabilities and not treat them any different than another employee. You might want to remind the HR department about that. Your employer should be grateful you are working regardless of the pain you are in. Keep us posted. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 but i have been home on disability since 12/14 kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 i hope so, but what if they don't?? can they fire me? kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 Kathy, do you work for a large employer (over 20 employees?)I thought the new ADA laws read that if over certain amount they have to make workplace ergonomically correct or you?Judy in AZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 yes i do. it's a fairly large insurance co home office kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2001 Report Share Posted February 16, 2001 You are right Judy- they do and there may be state laws that are even less restrictive regarding employer size. In Michigan there are. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2001 Report Share Posted February 21, 2001 thanks, how do i go? do i call for appt?? just show up? kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 In a message dated 3/4/01 10:24:04 PM Pacific Standard Time, lrb@... writes: .. 8mg of Pred is definitely better than 30 or 40 mg. None would be the best, but at least your labs are normal. LOL Dear Cheryl: Amen to that! Kathy (AIH) Seattle area Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 well we have put that on hold now too. i was fortunate enough to ask the phcs to double check to make sure the dr and facility were part of my plan and they are not!!!! $1000 ded and pymt of 70%!!! so now i've been bleeding at least a week and i can't do this tomorrow!!! i told my son i may just go to the e/r and make them see me. i'd rather pay the $50 e/r fee than $1000 ded!!! kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Kathy, Good luck with your scope tomorrow and your starvation diet today. I think the prep is the worst part of tests like a colonoscopy. You just made my recovery from surgery seem like a breeze - at least I can eat. Pat At 09:28 AM 03/05/2001 -0500, you wrote: >good luck judy!! i am thinking and praying for your speedy recovery!!! i >follow you tomorrow for my colonoscopy. i will be very happy when it is over. >i'll be there at 8:30 tomorrow. liquid diet for me today and the wonderful >laxatives after 6 tonight. yipee!! > > > > > > > > > > kathy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Kathy, Don't let this go. If you go to ER, they will probably get it scheduled right away. These insurance companies are out of line with their restrictions and putting your health at risk but we all go through it anymore. Good Luck, Pat At 11:34 AM 03/05/2001 -0500, you wrote: >well we have put that on hold now too. i was fortunate enough to ask the phcs >to double check to make sure the dr and facility were part of my plan and >they are not!!!! $1000 ded and pymt of 70%!!! so now i've been bleeding at >least a week and i can't do this tomorrow!!! i told my son i may just go to >the e/r and make them see me. i'd rather pay the $50 e/r fee than $1000 ded!!! > > > > > > > > > > kathy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Yes, I agree with Pat, Kathy. Please go in. Sorry about this latest development! ----- Original Message ----- From: " patlinda " <patlinda@...> < > Sent: Monday, March 05, 2001 10:37 AM Subject: Re: [ ] Kathy > Kathy, > > Don't let this go. If you go to ER, they will probably get it scheduled > right away. These insurance companies are out of line with their > restrictions and putting your health at risk but we all go through it anymore. > > Good Luck, > > Pat > > > > kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Cheryl, I was on trazadone for a sleep disorder too and had to discontinue it for the bad fatigue it gave me throughout the rest of the day. Do you have that problem? Debbie (Tommy's Mom) > [Original Message] > From: Cheryl <lrb@...> > Liver Support Group < > > Date: 3/5/01 1:23:23 AM > Subject: [ ] Kathy > > Kathy, I have the insomnia sometimes, but the trazadone 50 mg. > pretty > much takes care of that. I have an occasional night where I still > can't > sleep, but not too many. I did get some grading done last night > which > was nice. Thanks for the information on how long it took for your > labs > to go normal. I know that I was not anywhere near as sick as some > people > were when they got dx. I'm thankful that I wasn't sicker. The weight > loss was pretty startling though. Now that I have put on 10 lbs and > have > bloated a bit in my face, everyone is now telling me how awful I > looked > a few months ago. I guess some of my students went home and told > their > parents that there was something the matter with their English > teacher. > I started getting some letters from some of my former students who > had > heard there was something the matter with me. It would make me cry > every > time I got a letter. Some people are so thoughtful and kind. Glad > that > you are in remission. 8mg of Pred is definitely better than 30 or 40 > mg. > None would be the best, but at least your labs are normal. LOL > Cheryl ID > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Sorry..I stand corrected.. Upon further research I find that EITHER drug can cause a rash as an adverse condition. hate it when I`m wrong. Your humble servant Jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 Kathy, The letter sounds good. I hope it works with your employer. Gee 5/1 is next week, did the time off seem to help? My mind wants to go back to work, but my body won't cooperate. In fact, yesterday, I had an appt with the rheumy, didn't get in until 7:10 pm, so it must have been a long day for him & I caught everything that was wrong with his day. So after his encouraging words of wisdom NOT, I am off ALL medication & won't be returning to him or any other docs for a long time if ever. My employer can contact these guys if they want to. So I guess I will have to find the strength to return to work soon. They still have not made a decision on my long term disability yet, I will probably be dead before a decision comes down. It is a tough day when cold turkey these medications, but somethings just have to be done. I will be thinking of you on 5/1.....Please let us know if you do return & how things are going..... Gentle, tender, angel hugs, Debs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 no the time off really did nothing except maybe let me figure out how to survive. they shorted my last check because i didn't bring the script in until monday. stupid me already put the checks in the mail. so i had to beg, borrow and sell my wedding rings!!! that was kinda depressing. but they sat in a box for 8 years. work now needs time to get my desk ordered. that will take forever. my supervisor asked if anyone called me and i told her no. i told her i was still planning on comming to work on tuesday, so if i'm not supposed to have someone call me. plus i start my remicade infusions on the 8th. that never made sense to me either. lets have her just sit at home for 4 months. send her back to work then the following week lets try a new drug!!!! kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 thanks gina, yes it is nice of her. i was very surprised.she says it will be the last time she can help me as her own expenses are going up. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2001 Report Share Posted May 1, 2001 In a message dated 5/1/01 9:54:20 AM Eastern Daylight Time, kringlemom@... writes: << i told my parents i never wanted to be a burden. they say i am not. but when my father is going back to work after 11 years of retirement to help with bills. makes me feel like crap. >> {{{kathy}}} I am so sorry you are feeling such despair right now. I get like that too. It is so frustrating being trapped in this body and dependent on others so much of the time. I'm working now part time and it is wearing me out terribly. I can totally relate. Add to that my husband gambling away close to half a mil and you could see why I am down! Life can be overwhelming at times. Just take it in small doses and do the best you can. And as for your Dad taking another job, I can only say that as a mother, there is no hardship I would gladly take on to do for my son and be happy about doing it. It gives me a sense of worth to be able to do and help. Let him have that for you. Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2001 Report Share Posted May 2, 2001 thanks rita, well i made it thru my first day. have been home about an hour. couldn't even get on the system until 9:15. so i cleaned my desk and went and said hi to all my friends. just took it easy. i'm telling you my desk is so lopsided!!! my wrists hurt, especially the left one. the muscles right under the elbow. my neck my back my feet. i am gonna go and rest. i will be working 7- 11:30 they figure with all the breaks i take it'll equal out to 4 hrs. they didn't give me any training at all, so if it comes back wrong?? oh well. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2001 Report Share Posted May 4, 2001 Dear Kathy: I guess I missed some emails but I was just wondering, why are you not on disability? I can't understand, working half days sounds crazy to me. If you can't work a full day of work you should be considered disabled and should be collecting from the federal government. You live in the US right? This makes me so angry that someone is allowing a sick person, who should be taking it easy, to work. Have you applied for disability? Have you been rejected? If you have, apply again. I know someone who applied 3 times and finally got it. Don't give up. Good luck and stay in touch. I just wonder why you are working? Sincerely, Colletti Anjillah@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2001 Report Share Posted May 4, 2001 In a message dated 5/4/01 8:29:20 AM Eastern Daylight Time, kringlemom@... writes: << well i made it thru my first day >> Good for you Kathy. This week has been pretty rough on me and I work usually 4-8 hour shifts. I worked Tuesday for 5 hours and was nearly dead when I came home. This has been one of those weeks where I am having pity parties for myself! Hang in there. I know it is not easy, but I know a lot of us feel your pain and suffering. Rita Quote Link to comment Share on other sites More sharing options...
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