Guest guest Posted May 5, 2001 Report Share Posted May 5, 2001 the people at work told my dr's office they thought i was giving up. they told them they would give me whatever equiptment i needed. of coarse nothing has changed, they told me it takes longer than 3 days to get it all. i felt if i said i couldn't, they would thing i didn't Want to work. i sure didn't want them to think that. so i figured my next step was to try it. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2001 Report Share Posted May 5, 2001 thanks gina, i hope some day i feel up to going out again. i am really hoping the remicade will bring me back again. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2001 Report Share Posted May 5, 2001 Kathy, I agree with about your parents helping you. As a parent of a child that will not out grow his RA or Lung Disaese, I plan on being there for no matter what the need is. I encourage him to think about his future and what kind of a career he would like to do where he could have some control over his illness. The list is very small to say the least. He is looking into being a dr himself and there is some flexability for him there. They like to have disabled people be drs. too. Don't know how well med school or interships would be for him but he is strong. That is one thing that is good for jesse. He is young enough to make choices where you aren't (not saying that you are old or anything. lol ) I can understand you feeling lost. So basicly iam saying let your parents help and try not to feel so discouraged. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2001 Report Share Posted May 6, 2001 Kathy, If I were you, I would find another doctor that will say you are disabled. I can't see why not! Hope all goes well on Tues. Hang in there. Regards, Sylvia > yes i have filed for disability, my dr said i was not disabled. thats why i > decided to go ahead and try to work. i seem to be getting worse though, i am > praying that my 1st remicade infusion goes well on tuesday. > kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2001 Report Share Posted May 6, 2001 Those people at work should be ashamed of themselves. First of all they should have had all the right equip ready and waiting for you. Not the other way around. They knew WHEN you were coming back. They are also covering their butts in case you decide to file a law suit against them claiming that you have suffered more because they did not comply in a timely manner. This is another factor to consider. I'm sorry, but I get very defensive and rebellious when I read and hear about companies having this kind of policy and procedures. It just infuriates me to no end. Hope you have a restful weekend and next week will not be as bad as last. Regards, Sylvia > the people at work told my dr's office they thought i was giving up. they > told them they would give me whatever equiptment i needed. of coarse nothing > has changed, they told me it takes longer than 3 days to get it all. i felt > if i said i couldn't, they would thing i didn't Want to work. i sure didn't > want them to think that. so i figured my next step was to try it. > > > > > > kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2001 Report Share Posted May 6, 2001 they are also the insurance company. you'd think they know. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 Kathy, I am so happy that you have found a new life with the remicade. It almost makes you remember what life used to be like. You have been suffering for such a long time. How are things going at work? I am scheduled to go back to part time work on 5/23/01. They did approve my long term disability & I called for the SSI disability package but they will not send out anything until I do a phone or in person interview, which is where i chickend out I guess I feel that I don't have all my docs support. My manager says that if I don't have a firm return to work date, 3 months after being approved for long term disabilty, you are terminated from the company. Now they give us 6 months of short term disabilty, which we don't pay for, yet they only give us an additional 3 months of long term disability, which we do pay for...Something doesn't sound right here. When I questioned her about what happens to the long term disability, she could not answer that. I am afraid that I will not be able to return to work, but I may have not other choice as I need the benefits very badly for my family. No decision is ever easy with this disease. Hang in there & enjoy the new found life....... As always, Debs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 hi bonnie, thanks welcome to our little group.i am just not feeling well today. it'll be better tomorrow. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 thanks gina kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Hi Kathy: Sorry to hear you are feeling so low. Hope you will perk up soon. I'm kind of new to the group but love to send email so feel free to write to me at my other addy grandma007@.... It does not take real long letters or attachments but I can send email from anywhere and that is why I bought it. Hope to hear from some of you real soon. God Bless, Bonnie -------------------------------------------------- ICQ #14826055 Name: nana_bonnie AIM Name: gmabonny PalTalk name 007grandma BeeCall name 007grandma Birthday 1-16-47 ___________________________________________________________________ To get your own FREE ZDNet Onebox - FREE voicemail, email, and fax, all in one place - sign up today at http://www.zdnetonebox.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 yes that would be fun kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2001 Report Share Posted May 15, 2001 I'm jealous! I wish we lived closer, , I'd love to go out to lunch with ya and meet you! =) ~Rainy Sue =) ----- Original Message ----- From: " Matsumura " <Matsumura_Clan@...> < > Sent: Saturday, May 05, 2001 11:41 AM Subject: [ ] Kathy > Kathy, > > I've read about all of your latest frustrations. I'm so sorry. Of course you > feel lost! > > It's great that you made it back to work, even though the situation is less > than ideal. Maybe something unexpectedly good will come of your persistence. > > I agree with everyone who told you that you shouldn't worry about letting > your parents help you financially and otherwise. Any good parent would want > to do the same. If they can't fix your body, at least let them give you > money. > > You deserve happier times in your future, and I truly hope you get them. If > you ever want me to drive out your way and take you out, just let me know. > I'd like to meet you sometime. > > Thinking of you, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Yeah! Me too, . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 thanks gina, i am not so worried anymore. i really think it was the relafan kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 I'm glad to hear that you aren't terribly worried anymore. It's hard not to be where a child is concerned. I don't think it is unreasonable to think it was the Relafen, Kathy. Hope today is a better day for you and your son. What's with this weather? It would help if the rain and cold would give us a little break, too. The morning was beautiful at about 6:00 AM, but now we have the doom and gloom again. At 11:15 my youngest has a picnic with his whole third grade class scheduled. I don't think it's even 50 degrees yet. They couldn't bear to cancel it, so I am hoping that they will find a way to keep the whole hoard of us inside instead of letting us sit on the soaked, cold ground, shivering while we eat. ----- Original Message ----- From: <kringlemom@...> < > Sent: Thursday, May 24, 2001 7:52 AM Subject: Re: [ ] Kathy > thanks gina, i am not so worried anymore. i really think it was the relafan > kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 my son is feeling better today and is planning on going to his nite school for his finals tonight. actually i have felt ok. not great like the last time. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Kathy, You also have a very handsome family. Both of your sons are beautiful. Thanks for sharing. I am saving them all so i can refer back. God Bless you Rosemary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 hey gina, aol is my only option. it's what my parents give me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 i went to work today, really don't know why. i was very dizzy and feelin wierd. just because it was thursday i guess. so i am so dizzy i feel like i'm gonna pass out at work and one of the supervisors come up to me and said. you need to get in your dr's face. tell him we want to know who to file a lawsuit with when i die driving to work someday. not that i really want to lose my driving privelidges. but i totally understand where she is comming from. i came home and i am waiting for the dr to call me back. i am so sick of this!! i almost just drove to the hospital, but dan has an appt at 3pm today. i did call the dr and i am waiting for his call. something really needs to change. i can't keep doing this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 Sorry to hear you are feeling so badly. But it's nice that your supervisor is so caring and sent you home. There aren't a lot of bosses who would go that far. We are all with you - I think if we did a poll and asked how many people were sick of this, we'd get 100% or almost. So, remember, you are not alone; we all understand and celebrate every victory, even the tiniest. While waiting for things to get better, we just pray and send good thoughts and love your way. If Dan is your hubby, that's another thing we have in common! Hope the weather in the north boonies is good today; the south boonies are having a downpour. And of course, this is the day I'd planned to go grocery shopping. Keep us posted on what your doc says and how you are feeling. Caring and concerned, Jo Re: [ ] Kathy i went to work today, really don't know why. i was very dizzy and feelin wierd. just because it was thursday i guess. so i am so dizzy i feel like i'm gonna pass out at work and one of the supervisors come up to me and said. you need to get in your dr's face. tell him we want to know who to file a lawsuit with when i die driving to work someday. not that i really want to lose my driving privelidges. but i totally understand where she is comming from. i came home and i am waiting for the dr to call me back. i am so sick of this!! i almost just drove to the hospital, but dan has an appt at 3pm today. i did call the dr and i am waiting for his call. something really needs to change. i can't keep doing this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 well i am home from the hospital, they did find something on my right kidney, about 1 1/2 inches, unsure if it is a cyst or what. also they did see something on the nuclear medicine scan of my heart. again they said more test need to be run. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2001 Report Share Posted June 22, 2001 well i am home from my 2nd visit to the e/r tonight. the 2nd run i got to take the ambulance. they are not going to run anymore test in the e/r. basically i was told my dizzyness is a previous problem and no reason to do them all again. he was kicking everyone out tonight. they were swamped. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2001 Report Share Posted June 23, 2001 well i really liked it until i ran myself out of memory, still going on under my mom. but my son stored his password and doesn't knw it and can't get in at all. i guess when he went to the dr (while i was in the e/r) the dr told him if not better in 6 weeks they were going to open up his knee. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2001 Report Share Posted June 26, 2001 i know it's not that far, my dad went. my fear is being put up in a room for up to 6 days. they cancelled my remicade tomorrow because of my recent happenings. i still go see the dr. just no drugs!!! eiyee!!! she says i may still get it, just not tomorrow. i also see a new foot dr tomorrow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2001 Report Share Posted June 26, 2001 The Mayo people don't want you to stay longer than you have to, Kathy. If you and all of your doctors can figure out what specialists need to be seen, you can try, with the help of your local physicians, to schedule your appointments close together, even possibly on one day. Now it's true that if during the visit and after certain tests that if something is discovered that needs further testing and consultation, you could have to stay longer than planned. Good luck with your appointments today! Re: [ ] Kathy > i know it's not that far, my dad went. my fear is being put up in a room for > up to 6 days. they cancelled my remicade tomorrow because of my recent > happenings. i still go see the dr. just no drugs!!! eiyee!!! she says i may > still get it, just not tomorrow. i also see a new foot dr tomorrow Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.