Greetings!

[Guest guest]

Hey ~

Nice of you to join the group. I am Jillian and I am a 22 year old and was

diagnosed with full onset adult RA at the age of 16. So i know how it is to be

young and dealing with RA. Lately this whole RA thing seems to be getting in my

way a lot and it has been getting me down. Be thankful that you are only on a

low does of RA medication, but make sure that it is doing you good, because if

it begins to flare up real bad it is going to be harder to control. Unfortunatly

with RA you kind of have to be aggressive.

But again welcome to the group and it is kind of nice to have somewhere here

close to my age. Have agood night.

Jillian in IL

Nat222448 <Nat222448@...> wrote:

I'm new to the group, so I thought I would say hello to everyone and

tell you a bit about myself. I was diagnosed with JRA six years ago

when I was fifteen, and have, thankfully, remained realatively

healthy since then. Currently, I am on 1 ML sug-q injections of

methotrexate once a week...let me say, in the beginning it was a

miracle. I was feeling 100% better for at least a year, although

things seem to be going a bit downhill these days. Unfortunately, I

am still seeing my juvenille rheumy and he is not very agressive

with treatment...can be extremely frustrating at times when I see

firsthand how wonderful other treatments can be. Will see how

things go when I see him again...

My main conern at the moment is with some of the complications of

RA...mostly lung and heard inflammation. Any information you guys

have regarding would be much appreciated!

[Guest guest]

Hi ,

I haven't been feeling to good so just trying to catch up. I just

want to welcome you to the group. I hope to get to know you, Tawny

> I'm new to the group, so I thought I would say hello to everyone

and

> tell you a bit about myself. I was diagnosed with JRA six years

ago

> when I was fifteen, and have, thankfully, remained realatively

> healthy since then. Currently, I am on 1 ML sug-q injections of

> methotrexate once a week...let me say, in the beginning it was a

> miracle. I was feeling 100% better for at least a year, although

> things seem to be going a bit downhill these days. Unfortunately,

I

> am still seeing my juvenille rheumy and he is not very agressive

> with treatment...can be extremely frustrating at times when I see

> firsthand how wonderful other treatments can be. Will see how

> things go when I see him again...

>

> My main conern at the moment is with some of the complications of

> RA...mostly lung and heard inflammation. Any information you guys

> have regarding would be much appreciated!

>

>

[Guest guest]

Hello everyone at Humanity Healing. I am very impressed with your site and the

voice of Isabelle which is truly amazing. I see that messages are coming to my

inbox when I requested web only. Any ideas? Anyway, keep up the good work.

Perhaps soon I can become an ambassador as well. That would be great. Sincerely,

A.

http://www.myspace.com/jamesactor

http://www.freewebs.com/spiritualwork

[Guest guest]

Hello Heidi,

*Hugs* You sound like you need them. I can relate about the Christmas tree at least. We did ours on Friday. My oldest son (Who does NOT have Aspergers) was very eager and excited to do the tree. He was going for it full gusto. My younger, Aiden (My Aspie) didn't want to get off the computer and join us. I wanted the family to be in on doing the tree. This really upset Aiden. Then, when I played some Christmas music (quietly) he got even MORE upset, and left to his room, with very angry words.

I was at a loss. It wasn't fair to stop doing the tree, as my oldest son had behaved well all day and was doing the tree so eagerly. So, I let Aiden calm down in his room while we did the tree.

I felt so sad. The happy picture in my mind kind of disolved. Aiden isn't even bothered he missed out on doing the tree. I am for him.

That's kind of one of the things I'm learning. Just because *I* picture something for him, doesn't mean he himself, wants or needs it.

From: Troy Ward <heidie_ward@...>Subject: ( ) Greetings! Date: Sunday, November 28, 2010, 3:45 PM

Hi! I am a SAH mom to 2 girls DD9 with Aspergers and DD11 with failing vision. It is the former that obviously caused me to seek this group- although ironically, they both struggle with blindness-one physical, the Aspie mind blindness.

Has anyone else had as "fun" of a long-weekend as we have? School was out Wed. and then the fun began. Our theory is that the lack of structure was DD's ungluing- as it is every weekend. But this weekend left us reeling....she came apart waiting to go out on THanksgiving Day- meltdown after meltdown. All in the comfort of home. THen Friday, after getting to put up the Christmas tree by her request, came unglued again and left me verbally abused and hurt, wondering what had hit me. I feel very much alone in parenting her. I tried reaching out to a friend who then compared her neurotypical children of same ages to mine in a sweeping (and feeling like dismissive) statement. No-one really knows what to say, so they say nothing or hurtful things.

I look forward to hearing from anyone who can relate. Looking for some companionship and a safe place.

Fondest regards to all of you

Heidie

[Guest guest]

I can so relate to your struggles. My son is 18 and diagnosed with Aspergers. He has regular explosions, sometimes throwing things and knocking chairs over. Last week he threw his cell phone and it broke. He then smashed a picture to the floor and glass shattered everywhere. When he verbally abuses me, it comes so fast and is such pretzel logic that I can never figure out how it started or how it progressed, in other words, I’m constantly wondering what hit me. These episodes are so bizarre that I can never reconstruct them later to explain them to people. And when I am able to, like you, people misunderstand and are either dismissive or not very empathetic. It really takes a lot out of me emotionally, which I’m sure is the same for you. Warmly, Kay From: [mailto: ] On Behalf Of Troy WardSent: Sunday, November 28, 2010 3:45 PM Subject: ( ) Greetings! Hi! I am a SAH mom to 2 girls DD9 with Aspergers and DD11 with failing vision. It is the former that obviously caused me to seek this group- although ironically, they both struggle with blindness-one physical, the Aspie mind blindness. Has anyone else had as " fun " of a long-weekend as we have? School was out Wed. and then the fun began. Our theory is that the lack of structure was DD's ungluing- as it is every weekend. But this weekend left us reeling....she came apart waiting to go out on THanksgiving Day- meltdown after meltdown. All in the comfort of home. THen Friday, after getting to put up the Christmas tree by her request, came unglued again and left me verbally abused and hurt, wondering what had hit me. I feel very much alone in parenting her. I tried reaching out to a friend who then compared her neurotypical children of same ages to mine in a sweeping (and feeling like dismissive) statement. No-one really knows what to say, so they say nothing or hurtful things. I look forward to hearing from anyone who can relate. Looking for some companionship and a safe place. Fondest regards to all of youHeidie

[Guest guest]

Kay- thanks for the encouragement that I am not alone. I keep thinking that if I could just cross the divide from cognitively knowing to intuitively remembering the truth about the Aspie mind and that I don't need to take her verbal attacks personally, I think I would be better off. But it is hard. I am neurotypical. And her Mom. And it hurts.

I like the pretzel logic.

Warmly back

Heidie

From: Kay Hansen <ebony.ivory@...>Subject: RE: ( ) Greetings! Date: Sunday, November 28, 2010, 7:50 PM

I can so relate to your struggles. My son is 18 and diagnosed with Aspergers. He has regular explosions, sometimes throwing things and knocking chairs over. Last week he threw his cell phone and it broke. He then smashed a picture to the floor and glass shattered everywhere. When he verbally abuses me, it comes so fast and is such pretzel logic that I can never figure out how it started or how it progressed, in other words, I’m constantly wondering what hit me. These episodes are so bizarre that I can never reconstruct them later to explain them to people. And when I am able to, like you, people misunderstand and are either dismissive or not very empathetic.

It really takes a lot out of me emotionally, which I’m sure is the same for you.

Warmly,

Kay

From: [mailto: ] On Behalf Of Troy WardSent: Sunday, November 28, 2010 3:45 PM ! Subject: ( ) Greetings!

Hi! I am a SAH mom to 2 girls DD9 with Aspergers and DD11 with failing vision. It is the former that obviously caused me to seek this group- although ironically, they both struggle with blindness-one physical, the Aspie mind blindness.

Has anyone else had as "fun" of a long-weekend as we have? School was out Wed. and then the fun began. Our theory is that the lack of structure was DD's ungluing- as it is every weekend. But this weekend left us reeling....she came apart waiting to go out on THanksgiving Day- meltdown after meltdown. All in the comfort of home. THen Friday, after getting to put up the Christmas tree by her request, came unglued again and left me verbally abused and hurt, wondering what had hit me. I feel very much alone in parenting her. I tried reaching out to a friend who then compared her neurotypical children of same ages to mine in a sweeping (and feeling like dismissive) statement. No-one really knows what to say, so they say nothing or hurtful things.

I look forward to hearing from anyone who can relate. Looking for some companionship and a safe place.

Fondest regards to all of you

Heidie

[Guest guest]

Hello Heidi,

Welcome to the group and I hope you find comfort in knowing you are not alone in

your struggles. We all know too well what you are going through. My son did

pretty well all weekend until this afternoon when he was told to clean his room

that he totally trashed over the last three days. We cut him some slack because

we had guests, but today we told him he had to get it clean which ended up in a

meltdown with him throwing things around his room. I didn't cut him any slack on

it though, not only did he have to clean the mess he already had but he then had

to clean up all the additional mess he made. Just lessened his time to go

outside. I was an ending to the holidays I could have done without. Not to

mention my husband coming unglued with my son for throwing his stuff around. I

still give thanks that it wasn't worse.

I don't go to friends anymore to vent or family because they just don't get it.

They usually say all the wrong things and it just makes me feel more alone and

isolated in my situation.

I like coming here, even though I don't get the time to often, because I know

I'll be understood here and it helps.

<<hugs>>

ne

>

> Hi! I am a SAH mom to 2 girls DD9 with Aspergers and DD11 with failing vision.

It is the former that obviously caused me to seek this group- although

ironically, they both struggle with blindness-one physical, the Aspie mind

blindness.

>  

> Has anyone else had as " fun " of a long-weekend as we have? School was out Wed.

and then the fun began. Our theory is that the lack of structure was DD's

ungluing- as it is every weekend. But this weekend left us reeling....she came

apart waiting to go out on THanksgiving Day- meltdown after meltdown. All in the

comfort of home. THen Friday, after getting to put up the Christmas tree by her

request, came unglued again and left me verbally abused and hurt, wondering what

had hit me. I feel very much alone in parenting her. I tried reaching out to a

friend who then compared her neurotypical children of same ages to mine in a

sweeping (and feeling like dismissive) statement. No-one really knows what to

say, so they say nothing or hurtful things.

>  

> I look forward to hearing from anyone who can relate. Looking for some

companionship and a safe place.

>  

> Fondest regards to all of you

> Heidie

>

[Guest guest]

My dj. He like pig pen. I'm trying treat him to be neater such a struggle. His room a nitemare. Plus now when you ask him to do things. He growls now. He wants watch tv nite and day and do nothing I understand youvabout messy room thing. This group helps a lotSent via BlackBerry from T-MobileFrom: "s_hansen34" <s_hansen34@...>Sender: Date: Mon, 29 Nov 2010 04:03:00 -0000< >Reply Subject: ( ) Re: Greetings! Hello Heidi,Welcome to the group and I hope you find comfort in knowing you are not alone in your struggles. We all know too well what you are going through. My son did pretty well all weekend until this afternoon when he was told to clean his room that he totally trashed over the last three days. We cut him some slack because we had guests, but today we told him he had to get it clean which ended up in a meltdown with him throwing things around his room. I didn't cut him any slack on it though, not only did he have to clean the mess he already had but he then had to clean up all the additional mess he made. Just lessened his time to go outside. I was an ending to the holidays I could have done without. Not to mention my husband coming unglued with my son for throwing his stuff around. I still give thanks that it wasn't worse. I don't go to friends anymore to vent or family because they just don't get it. They usually say all the wrong things and it just makes me feel more alone and isolated in my situation. I like coming here, even though I don't get the time to often, because I know I'll be understood here and it helps. <<hugs>>ne>> Hi! I am a SAH mom to 2 girls DD9 with Aspergers and DD11 with failing vision. It is the former that obviously caused me to seek this group- although ironically, they both struggle with blindness-one physical, the Aspie mind blindness.>  > Has anyone else had as " fun " of a long-weekend as we have? School was out Wed. and then the fun began. Our theory is that the lack of structure was DD's ungluing- as it is every weekend. But this weekend left us reeling....she came apart waiting to go out on THanksgiving Day- meltdown after meltdown. All in the comfort of home. THen Friday, after getting to put up the Christmas tree by her request, came unglued again and left me verbally abused and hurt, wondering what had hit me. I feel very much alone in parenting her. I tried reaching out to a friend who then compared her neurotypical children of same ages to mine in a sweeping (and feeling like dismissive) statement. No-one really knows what to say, so they say nothing or hurtful things. >  > I look forward to hearing from anyone who can relate. Looking for some companionship and a safe place.>  > Fondest regards to all of you> Heidie>

[Guest guest]

I can relate to the room cleaning... and the OPs fustration. Just yesterday we had a meltdown about his room. It leterally takes me standing over him repeating clean this up, clean that up, This needs to go to its home or I will have to take it away. The norm. My son also growls. i have no clue why but he does.

From: "denise092769@..." <denise092769@...> Sent: Mon, November 29, 2010 12:24:46 PMSubject: Re: ( ) Re: Greetings!

My dj. He like pig pen. I'm trying treat him to be neater such a struggle. His room a nitemare. Plus now when you ask him to do things. He growls now. He wants watch tv nite and day and do nothing I understand youvabout messy room thing. This group helps a lot Sent via BlackBerry from T-Mobile

From: "s_hansen34" <s_hansen34@...>

Sender:

Date: Mon, 29 Nov 2010 04:03:00 -0000

< >

Reply

Subject: ( ) Re: Greetings!

Hello Heidi,Welcome to the group and I hope you find comfort in knowing you are not alone in your struggles. We all know too well what you are going through. My son did pretty well all weekend until this afternoon when he was told to clean his room that he totally trashed over the last three days. We cut him some slack because we had guests, but today we told him he had to get it clean which ended up in a meltdown with him throwing things around his room. I didn't cut him any slack on it though, not only did he have to clean the mess he already had but he then had to clean up all the additional mess he made. Just lessened his time to go outside. I was an ending to the holidays I could have done without. Not to mention my husband coming unglued with my son for throwing his stuff around. I still give thanks that it wasn't worse. I don't go to friends anymore to vent or family because they just don't get it. They usually say all the wrong things

and it just makes me feel more alone and isolated in my situation. I like coming here, even though I don't get the time to often, because I know I'll be understood here and it helps. <<hugs>>ne>> Hi! I am a SAH mom to 2 girls DD9 with Aspergers and DD11 with failing vision. It is the former that obviously caused me to seek this group- although ironically, they both struggle with blindness-one physical, the Aspie mind blindness.> > Has anyone else had as "fun" of a long-weekend as we have? School was out Wed. and then the fun began. Our theory is that the lack of structure was DD's ungluing- as it is every weekend. But this weekend left us reeling....she came apart

waiting to go out on THanksgiving Day- meltdown after meltdown. All in the comfort of home. THen Friday, after getting to put up the Christmas tree by her request, came unglued again and left me verbally abused and hurt, wondering what had hit me. I feel very much alone in parenting her. I tried reaching out to a friend who then compared her neurotypical children of same ages to mine in a sweeping (and feeling like dismissive) statement. No-one really knows what to say, so they say nothing or hurtful things. > > I look forward to hearing from anyone who can relate. Looking for some companionship and a safe place.> > Fondest regards to all of you> Heidie>