New Member

[Guest guest]

I had called the doctor that prescribed the cymbalta

She told me that it will not bring down the inflamation

Which I knew already but would help with the pain..

I took the lower dose I had just now.. I am having a lot

Of pain in my arms and neck that I didn't notice before

I quit..

I am a full time grandma of 2 active kids and on the go all the time.. Tucker just came and asked if I will be able to

Take him to martial arts after school.. I said yes I am not

Sick that I cant do that.. He is very conserned when I am not feeling well and when he found out this he was visibaly

Worried.. I tried to tell him I will be ok just that he will have to help me more.. Being abandoned when he want quite

4 yrs old my husband and I are his lifeline.. Especially me for some reason.. He also has just be dx with ADD so we are dealing with that also.. Kylie is 14 and a big help but most of what I have to do is haul them around.. We live in small town so it isnt too bad.. Mike my husband I don't know if he fully realizes what this is yet..

-------Original Message-------

From: glokay20022002

Date: 3/6/2007 7:16:09 AM

Rheumatoid Arthritis

Subject: Re: New member

Hi again Bet,

I am on paxil. I think that it helps alot with the stress that comes

with ra, and stress can make you have flares. I tried to go off it

once, and I was hurting like crazy within 2 wks. I have alot of

stress in my life right now, so the paxil does help with that, and

it keeps me from having so many flares because of the stress. I hope

that this helps. Sometimes I am just plain jibberish in the

mornings:)

Hugs, Gloria

[Guest guest]

> >

> > Thank you for the welcome Gloria..

> > Hot tub sounds great.. We had one years ago.. I can go

> > To the recreation center and do the walking machines

> > And use the pool they have some exercise every week

> > For women there in the pool.. Being in Wyoming it is all

inside..

> I plan to

> > do some walking too.. Drive down to the green belt by the river

> and walk

> > with my fat poodle that is starting to look like a cinderblock

> lol..

> > Does anyone use medications like anti depressants for the pain..

I

> know they

> > prescribe them for fibromyalgia and I noticed when I went off

anti

> > depressants is when I really started to feel the pain where I

> havent before.

> >

> > Bet

> >

> > -------Original Message-------

> >

> > From: glokay20022002

> > Date: 03/06/07 06:15:47

> > Rheumatoid Arthritis

> > Subject: Re: New member

> >

> > Hi Bet,

> > My name is Gloria and I am from Ok. I was dxd with ra in 2004. I

> agree with

> > Deb as far as the exercise goes. My kids are always telling me

to

> get some

> > exercise and I would get better. They are right, but you have to

> do low

> > impact or water exercise because if you do the wrong kind of

> exercise you

> > will do your body more harm than good. My rheumy says that she

can

> write me

> > a script for a hot tub, and my insurance won't pay for it , but

I

> could

> > write it off my taxes. I am sure considering it.

> > This group has been a God send for me. They are all very

> compassionate and

> > informative. When I am feeling depressed about all this, I get

on

> here and

> > whine and everyone understands. Anyway, welcome to the group

> sweetie. We are

> > all here to listen and help.

> > Hugs from Oklahoma, Gloria

> >

>

[Guest guest]

> >

> > Thank you for the welcome Gloria..

> > Hot tub sounds great.. We had one years ago.. I can go

> > To the recreation center and do the walking machines

> > And use the pool they have some exercise every week

> > For women there in the pool.. Being in Wyoming it is all

inside..

> I plan to

> > do some walking too.. Drive down to the green belt by the river

> and walk

> > with my fat poodle that is starting to look like a cinderblock

> lol..

> > Does anyone use medications like anti depressants for the pain..

I

> know they

> > prescribe them for fibromyalgia and I noticed when I went off

anti

> > depressants is when I really started to feel the pain where I

> havent before.

> >

> > Bet

> >

> > -------Original Message-------

> >

> > From: glokay20022002

> > Date: 03/06/07 06:15:47

> > Rheumatoid Arthritis

> > Subject: Re: New member

> >

> > Hi Bet,

> > My name is Gloria and I am from Ok. I was dxd with ra in 2004. I

> agree with

> > Deb as far as the exercise goes. My kids are always telling me

to

> get some

> > exercise and I would get better. They are right, but you have to

> do low

> > impact or water exercise because if you do the wrong kind of

> exercise you

> > will do your body more harm than good. My rheumy says that she

can

> write me

> > a script for a hot tub, and my insurance won't pay for it , but

I

> could

> > write it off my taxes. I am sure considering it.

> > This group has been a God send for me. They are all very

> compassionate and

> > informative. When I am feeling depressed about all this, I get

on

> here and

> > whine and everyone understands. Anyway, welcome to the group

> sweetie. We are

> > all here to listen and help.

> > Hugs from Oklahoma, Gloria

> >

>

[Guest guest]

Welcome, Therese! We are happy to have you and thrilled that you

have found this site helpful. Please keep us posted and let us know

how you are doing.

Addy

Group co-owner

>

> Hi All

>

> My name is Therese from Ireland, and this is my first time to post

on

> the site. I just want to take the opporunity to introduce mysef.

I

> have had asthma for 9 years now and was diagnosed with

bronchiectasis

> in May 2006. After a year of continuous antibiotics, steroids,

> inhalers and hospital visits and stays, my consultant has

> recommendded Xolair. I was at first very apprehensive when I read

> about the adverse effects it can have and the FDA Black Box Warning.

>

> However after visiting this site and hearing what you all have to

> say, I have made my decision this weekend to take the Xolair. It

> seems that Xolair has had a dramatic effect on improving the

quality

> of life of some of the users. I am staying positive and I am

hoping

> that I will have the same positive outcome

>

> Finding this site has been a great blessing. It has taken the

> mystery out of the treatment and has giving me the confidence to

make

> an informed decision.

>

> I have to go for some tests next week, prior to commencing the

> injections. I will keep you posted.

>

> A big thank-you to you all for sharing your experiences on this

site.

> It is great to have a forum for sharing information with others who

> are going through a similar life experienc.

>

> Warmest Wishes

>

> Therese

>

[Guest guest]

Good luck with altenative medicine. I tried that for

a while (herbal meds) and it did nothing. Worst

mistake I ever did b/c I was in remission at the time

and when I went to herbal meds, the RA came back full

force and I'm still paying for it 2 yrs later. Now I

take pred only b/c I'm trying to get pregnant. My

rheumy wants me on either Enbrel or Humira (whichever

my insurance will pay for) and methotrexate (MTX) as

soon as I have a baby. I've read scientific studies

on acupuncture for RA and it basically doesn't help.

Then again, the mind is powerful so if someone thinks

it's working, they may actually " feel better " .

That's my 2 cents.

Northern Virginia

30 yr old

Diagnosed 15yrs ago.

--- msalthema <althemany83@...> wrote:

> Good Day All,

>

> My name is Althema and I'm from NY. I am 24 years

> old the doctor's

> believe that i Have RA. The pain is rapidly

> increasing and I just want

> to know some tips and things besides taking

> traditional medicine that I

> can do to ease the pain. I am also looking into

> alternative medicine

> as well. I look forward to speaking with you all..

>

>

> have a good day

>

> althema

>

>

__________________________________________________

[Guest guest]

Welcome to the group, and so sorry you have to join us. I have found

compression gloves to be a great help. I am still working, as a high

school secretary, and keyboard most of the day. Also, heat works best

for me, although ice seems to help some of the others. gentle hugs!

Marcia (also in New York State)

--- msalthema <althemany83@...> wrote:

> Good Day All,

>

> My name is Althema and I'm from NY. I am 24 years old the doctor's

> believe that i Have RA. The pain is rapidly increasing and I just

> want

> to know some tips and things besides taking traditional medicine that

> I

> can do to ease the pain. I am also looking into alternative medicine

>

> as well. I look forward to speaking with you all..

>

>

> have a good day

>

> althema

>

>

__________________________________________________

[Guest guest]

Welcome to the group - to all of the new members who've recently

joined.

Even after a year, some folks have continued to see further

improvement. We're not sure why, possibly because our lungs are able

to get out of " reactive " mode thanks to fewer overall reactions or

fewer as severe reactions after being on Xolair for a year or more.

Good luck and let us know how you are doing.

Addy

(PS I've been on Xolair since 2003 and I still can't go in Kirkland's

or any of those other overly-scented stores.)

>

> Hi everyone, I am a new member to this group. I started my Xolair

last February 2007 and

> get three shots every two weeks (450 mg. every two weeks). My

highest IgE level was around

> 6,000 when I started and then they had me on 60 mg of prednisone

starting in December

> 2006 continuing through May 2007 when I started to taper. That was

the worst - I went into

> full Cushing's with the swelling and bruising and vertigo and major

depression. My asthma

> had become chronic and nothing seemed to help. I was using my

nebulizer more than three

> times a day and rarely slept through the night. I also had to

take OTC antihistamines in

> addition to my regular meds - singulair, zyrtec, fexofenodine plus

all my inhalers. Things are

> certainly different since starting the Xolair. I still have asthma

symptoms but not as frequent

> and still cannot go shopping in crowded stores or go into anyones

home who has cats or

> dogs. I thought that I might be able to reduce my dosage after a

year or so, but my allergist

> seems to think that I will be on this dose for the rest of my

life. My IgE levels have gone

> down to around 4,000 but he said that they are not able to tell

what portion is bound and

> which is unbound so they just follow my symptoms. I live in

Connecticut. Anyone out there

> from New England.

> Anne

>

[Guest guest]

Welcome! For a little over two years I've been going down to Yale New

Haven Hospital for my Xolair. Off all pneumonary meds, including

prednisone. go anywhere, do everything. I breath like anyone who has

battered lungs. It's wonderful.

> >

> > Hi everyone, I am a new member to this group. I started my Xolair

> last February 2007 and

> > get three shots every two weeks (450 mg. every two weeks). My

> highest IgE level was around

> > 6,000 when I started and then they had me on 60 mg of prednisone

> starting in December

> > 2006 continuing through May 2007 when I started to taper. That was

> the worst - I went into

> > full Cushing's with the swelling and bruising and vertigo and major

> depression. My asthma

> > had become chronic and nothing seemed to help. I was using my

> nebulizer more than three

> > times a day and rarely slept through the night. I also had to

> take OTC antihistamines in

> > addition to my regular meds - singulair, zyrtec, fexofenodine plus

> all my inhalers. Things are

> > certainly different since starting the Xolair. I still have asthma

> symptoms but not as frequent

> > and still cannot go shopping in crowded stores or go into anyones

> home who has cats or

> > dogs. I thought that I might be able to reduce my dosage after a

> year or so, but my allergist

> > seems to think that I will be on this dose for the rest of my

> life. My IgE levels have gone

> > down to around 4,000 but he said that they are not able to tell

> what portion is bound and

> > which is unbound so they just follow my symptoms. I live in

> Connecticut. Anyone out there

> > from New England.

> > Anne

> >

>

[Guest guest]

________________________________

>

> From: p3pool@...

> Date: Mon, 7 Jan 2008 01:20:10 +0000

> Subject: [ ] Re: New Member

>

>

> Welcome! For a little over two years I've been going down to Yale New

> Haven Hospital for my Xolair. Off all pneumonary meds, including

> prednisone. go anywhere, do everything. I breath like anyone who has

> battered lungs. It's wonderful.

>

>>>

>>> Hi everyone, I am a new member to this group. I started my Xolair

>> last February 2007 and

>>> get three shots every two weeks (450 mg. every two weeks). My

>> highest IgE level was around

>>> 6,000 when I started and then they had me on 60 mg of prednisone

>> starting in December

>>> 2006 continuing through May 2007 when I started to taper. That was

>> the worst - I went into

>>> full Cushing's with the swelling and bruising and vertigo and major

>> depression. My asthma

>>> had become chronic and nothing seemed to help. I was using my

>> nebulizer more than three

>>> times a day and rarely slept through the night. I also had to

>> take OTC antihistamines in

>>> addition to my regular meds - singulair, zyrtec, fexofenodine plus

>> all my inhalers. Things are

>>> certainly different since starting the Xolair. I still have asthma

>> symptoms but not as frequent

>>> and still cannot go shopping in crowded stores or go into anyones

>> home who has cats or

>>> dogs. I thought that I might be able to reduce my dosage after a

>> year or so, but my allergist

>>> seems to think that I will be on this dose for the rest of my

>> life. My IgE levels have gone

>>> down to around 4,000 but he said that they are not able to tell

>> what portion is bound and

>>> which is unbound so they just follow my symptoms. I live in

>> Connecticut. Anyone out there

>>> from New England.

>>> Anne

>>>

>>

>

>

>

So happy you feel better, I wish you continued good health ENJOY

_________________________________________________________________

Put your friends on the big screen with Windows Vista® + Windows Live™.

http://www.microsoft.com/windows/shop/specialoffers.mspx?ocid=TXT_TAGLM_CPC_Medi\

aCtr_bigscreen_012008

[Guest guest]

Hi , I am being followed by Dr. Lobo at Yale for my Xolair treatments. I

think that I am going to go into

their monitoring program because of my very high IgE levels (one reading was

6,000) - I am on three shots every two weeks. I am finally off

prednisone - thank god - except for my inhaler that has it. I still have to

take anti histamines - but I am not waking up in the

middle of the night coughing and wheezing. I sleep in a " clean room " with an

air cleaner - no rugs and everything is washable

and gets washed once a week. I also add a vegetable based rinse to my laundry -

that binds to things like dust mite stuff

and makes it so my body doesn't recognize it. My lung capacity however is shot

- but my oxygen levels remain up when I am

tested so I guess that's good.

Anne

----- Original Message ----

From: Innes <Kathy33@...>

Sent: Monday, January 7, 2008 8:54:33 PM

Subject: RE: [ ] Re: New Member

________________________________

>

> From: p3pool@...

> Date: Mon, 7 Jan 2008 01:20:10 +0000

> Subject: [ ] Re: New Member

>

>

> Welcome! For a little over two years I've been going down to Yale New

> Haven Hospital for my Xolair. Off all pneumonary meds, including

> prednisone. go anywhere, do everything. I breath like anyone who has

> battered lungs. It's wonderful.

>

>>>

>>> Hi everyone, I am a new member to this group. I started my Xolair

>> last February 2007 and

>>> get three shots every two weeks (450 mg. every two weeks). My

>> highest IgE level was around

>>> 6,000 when I started and then they had me on 60 mg of prednisone

>> starting in December

>>> 2006 continuing through May 2007 when I started to taper. That was

>> the worst - I went into

>>> full Cushing's with the swelling and bruising and vertigo and major

>> depression. My asthma

>>> had become chronic and nothing seemed to help. I was using my

>> nebulizer more than three

>>> times a day and rarely slept through the night. I also had to

>> take OTC antihistamines in

>>> addition to my regular meds - singulair, zyrtec, fexofenodine plus

>> all my inhalers. Things are

>>> certainly different since starting the Xolair. I still have asthma

>> symptoms but not as frequent

>>> and still cannot go shopping in crowded stores or go into anyones

>> home who has cats or

>>> dogs. I thought that I might be able to reduce my dosage after a

>> year or so, but my allergist

>>> seems to think that I will be on this dose for the rest of my

>> life. My IgE levels have gone

>>> down to around 4,000 but he said that they are not able to tell

>> what portion is bound and

>>> which is unbound so they just follow my symptoms. I live in

>> Connecticut. Anyone out there

>>> from New England.

>>> Anne

>>>

>>

>

>

>

So happy you feel better, I wish you continued good health ENJOY

_________________________________________________________________

Put your friends on the big screen with Windows Vista® + Windows

Live™.

http://www.microsoft.com/windows/shop/specialoffers.mspx?ocid=TXT_TAGLM_CPC_Medi\

aCtr_bigscreen_012008

[Guest guest]

I’m glad you found such good success

with a new food regimen. I have read about a lot of others who have had

similar success but with different diet changes. From my reading I think

there are many food sensitivities and some are more common than others.

Many of these diet changes include avoidance of the most common sources of food

sensitivity so they work for some but not for others. A more

comprehensive way to determine if you have a food sensitivity is to use an

elimination diet to first cleanse the body of any foods known to cause

sensitivities in anyone to see if you improve. If you get better then add

in one food group at a time to see if you are sensitive to that group. It

is a long process that requires a lot of discipline so I have not been willing

to try it because I am pretty well controlled in other ways (Remicade and

Methotrexate). Here is one site that has one version of an elimination

diet but there are many others. (This might not benefit Marsha because

she has found a good food regimen for her but it might help others.) God

bless.

http://www.drcranton.com/elimination_diet.htm

From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of Marsha Hostetler

Sent: Wednesday, July 02, 2008

11:36 AM

Rheumatoid Arthritis

Subject: New

Member

Hello Everyone,

My name is Marsha I am an RA

surviver! I am a friend of that is a member on this list, she asked

me to join.

I am no longer on any

medications (I was on Methrotrexate and plaquil) I was also on medications for

Hashimoto's disease (thyroid disease), allergies, asthma and

estrogen. I was in such pain from the moment my feet hit the floor

my life seemed to change over night. In the beginning of 2007 I was using

a cane and at times a wheel chair I seem to keep getting worse, pain medication

did not work unless I took one strong enough to put me under then I lost a day

of my life.

One day I was searching for a

diet that might help me since I was a runner and body builder I knew how

powerful diet could be. I happened across the Master Cleanse which is a

detox diet the more I read the more I wanted to try it. I did 18 days on

the detox diet as I was on this diet I lost weight but the best part my pain

slowly left which was amazing since I went off all medication. I

could not remember how long it was since I had so much energy.

My RA doctor saw me 8 days into

the detox was amazed that I had no joint swelling at all and look

healthy. He said it would be great if it would keep working

come back in two months I will check you then. I did come back in three

months I was 20 lbs lighter and you could see my ankle bones which my doctor

kept checking the whole appointment. When he asked me what I was doing I

told him I was eating a vegan raw diet he said he had never seen someone come

back from where I was in RA. He dismissed me saying I did not need him

but he thought it would come back, so far I am in remission.

This diet (I hate that word)

has proved to a blessing to me. I have knee damage from before I changed

but I still can walk and run. When I get out of bed my feet do not feel

broken anymore I feel young again and I can smile without forcing it due to

pain. I know what you all are going through I wondered were my life had

went how did this illness take so much so fast did I want to walk the rest of

my life in pain, but I found what works for me.

Well sorry this is so long but this is

my story.

Marsha Hostetler

[Guest guest]

>

> hello Marsha

I am very impressed you did write.When I resd it I said to me That

is this what ý am looking for. Because I don't belivein medicine and

doctors like you.

I would like to know from you what is vegan. ýs that some vegetable

or something else. ýf possibble can you share us your diet.

Thank You

Yurdagül

> Hello Everyone,

>

> My name is Marsha I am an RA surviver! I am a friend of

that is

> a member on this list, she asked me to join.

>

> I am no longer on any medications (I was on Methrotrexate and

plaquil)

> I was also on medications for Hashimoto's disease (thyroid disease),

> allergies, asthma and estrogen. I was in such pain from the

moment my

> feet hit the floor my life seemed to change over night. In the

> beginning of 2007 I was using a cane and at times a wheel chair I

seem

> to keep getting worse, pain medication did not work unless I took

one

> strong enough to put me under then I lost a day of my life.

>

> One day I was searching for a diet that might help me since I

was a

> runner and body builder I knew how powerful diet could be. I

happened

> across the Master Cleanse which is a detox diet the more I read the

more

> I wanted to try it. I did 18 days on the detox diet as I was on

this

> diet I lost weight but the best part my pain slowly left which was

> amazing since I went off all medication. I could not remember how

long

> it was since I had so much energy.

>

> My RA doctor saw me 8 days into the detox was amazed that I had

no

> joint swelling at all and look healthy. He said it would be great

if it

> would keep working come back in two months I will check you then.

I did

> come back in three months I was 20 lbs lighter and you could see my

> ankle bones which my doctor kept checking the whole appointment.

When

> he asked me what I was doing I told him I was eating a vegan raw

diet he

> said he had never seen someone come back from where I was in RA. He

> dismissed me saying I did not need him but he thought it would come

> back, so far I am in remission.

>

> This diet (I hate that word) has proved to a blessing to me. I

have

> knee damage from before I changed but I still can walk and run.

When I

> get out of bed my feet do not feel broken anymore I feel young

again and

> I can smile without forcing it due to pain. I know what you all are

> going through I wondered were my life had went how did this illness

take

> so much so fast did I want to walk the rest of my life in pain, but

I

> found what works for me.

>

> Well sorry this is so long but this is my story.

>

> Marsha Hostetler

>

[Guest guest]

Yurdagul I am a raw vegan I started on a detox system called Master cleanse ( you can google it and find info) and then I went on a Raw Vegan diet. I do not cook anything I eat no meat, eggs or cheese. To heat things I use a dehydrater. I was very lucky I had a great doctor that supported me and was amazed at my progress. I know a lady that had cancer she did chemo but went on a raw diet she had energy and felt good through the treatment her doctor could not believe how great she looked when she told her she was doing raw she told her to quit I do not worry what doctors think I have learned one thing listen to my body.

The moderator gets upset when I give links but www.therawfoodsite.com is where it all started for me.

I hope I have helped you

Marsha

On Sun, Jul 27, 2008 at 10:34 AM, yursozener <yursozener@...> wrote:

>> hello Marsha

I am very impressed you did write.When I resd it I said to me That is this what ý am looking for. Because I don't belivein medicine and doctors like you.I would like to know from you what is vegan. ýs that some vegetable

or something else. ýf possibble can you share us your diet.Thank YouYurdagül> Hello Everyone,> > My name is Marsha I am an RA surviver! I am a friend of that is> a member on this list, she asked me to join.

> > I am no longer on any medications (I was on Methrotrexate and plaquil)> I was also on medications for Hashimoto's disease (thyroid disease),> allergies, asthma and estrogen. I was in such pain from the

moment my> feet hit the floor my life seemed to change over night. In the> beginning of 2007 I was using a cane and at times a wheel chair I seem> to keep getting worse, pain medication did not work unless I took

one> strong enough to put me under then I lost a day of my life.> > One day I was searching for a diet that might help me since I was a> runner and body builder I knew how powerful diet could be. I

happened> across the Master Cleanse which is a detox diet the more I read the more> I wanted to try it. I did 18 days on the detox diet as I was on this> diet I lost weight but the best part my pain slowly left which was

> amazing since I went off all medication. I could not remember how long> it was since I had so much energy.> > My RA doctor saw me 8 days into the detox was amazed that I had no> joint swelling at all and look healthy. He said it would be great

if it> would keep working come back in two months I will check you then. I did> come back in three months I was 20 lbs lighter and you could see my> ankle bones which my doctor kept checking the whole appointment.

When> he asked me what I was doing I told him I was eating a vegan raw diet he> said he had never seen someone come back from where I was in RA. He> dismissed me saying I did not need him but he thought it would come

> back, so far I am in remission.> > This diet (I hate that word) has proved to a blessing to me. I have> knee damage from before I changed but I still can walk and run. When I> get out of bed my feet do not feel broken anymore I feel young

again and> I can smile without forcing it due to pain. I know what you all are> going through I wondered were my life had went how did this illness take> so much so fast did I want to walk the rest of my life in pain, but

I> found what works for me.> > Well sorry this is so long but this is my story.> > Marsha Hostetler>

[Guest guest]

I have to say Van's has one of the largest selections of GF foods I

have ever seen in one store. And they will order pretty much anything

you ask for. I run by there every time I visit my friends who live in

Livermore, cause its amazing.

[Guest guest]

In a message dated 5/20/09 3:45:38 PM, srvivr_2001@... writes:

Either way, we decided to

start me on Plaquenil as soon as I get the OK from the eye doctor.

__________________________

At some point, after you start the plaquenil, you may want to have a baseline hearing test. Although it's rare, plaquenil can cause hearing loss. I am having problems with hearing loss right now, so rare or not it happens.

Good luck.

Clear skies,

BeingIrish

**************Dell Inspiron 15 Laptop: Now in 6 vibrant colors! Shop Dell’s full line of laptops. (http://pr.atwola.com/promoclk/100126575x1222399266x1201456865/aol?redir=http:%2F%2Fad.doubleclick.net%2Fclk%3B215073777%3B37034343%3Bf)

[Guest guest]

Welcome to the group.

From: <srvivr_2001@...>Subject: New MemberRheumatoid Arthritis Date: Thursday, April 23, 2009, 8:17 PM

Hi everybody!I just joined the group and thought I would introduce myself before diving intothe message archives.I'm a 22 year old college student and was finally diagnosed with RA on Tuesday,though I've had symptoms for quite a few years now. My lab values are onlyslightly higher than normal, but my rheumatologist thinks that may be becauseit's in really early stages or that I may be one of those few people who don'thave increased values even though they do have RA. Either way, we decided tostart me on Plaquenil as soon as I get the OK from the eye doctor. The earliestappointment I could get is May 7 and it seems like such a long way away! I knowthe Plaquenil takes a while to start working so I want to start ASAP. Noquestions yet, but I'm sure as I read more they'll pop up.~

[Guest guest]

Hello Chintia

I would ask your Dr about Methotrexate first.

it sure worked for me, it takes a while to kick in, but it is worth the wait,I

never ever had side effects, other than a little stomach ache once in a while.

plus my hair is just as full as it has ben , Folic acid will help wit the mouth

sores , what i also did not have,

But my problem is, i have ben taking this medication for so long, it is starting

to wear off,I am unable to take those powerfull medications, so i don`t know

what will happen to me.I wish my Dr would more care.

PLEASE TAKE CARE

Marika

[Guest guest]

>

> Hey there! My name is and I live in Arizona.

Hi, and welcome to the group. I, too, live in AZ, and I, too, had an overnight

onset. It has been five years, and I am on methotrexate and remicade. I am

about 95% functional now.

Are you in Phoenix?

Sharon

[Guest guest]

For whatever reason it took almost a month for your post to show

up for me. You are wise to want to start aggressive treatment early to reduce

the risk of permanent joint damage. I hope you have already started, and that

future posts won’t take so long to show up. God bless.

From:

Rheumatoid Arthritis

[mailto:Rheumatoid Arthritis ] On Behalf Of

Sent: Thursday, April 23, 2009 6:17 PM

Rheumatoid Arthritis

Subject: New Member

Hi everybody!

I just joined the group and thought I would introduce myself before diving into

the message archives.

I'm a 22 year old college student and was finally diagnosed with RA on Tuesday,

though I've had symptoms for quite a few years now. My lab values are only

slightly higher than normal, but my rheumatologist thinks that may be because

it's in really early stages or that I may be one of those few people who don't

have increased values even though they do have RA. Either way, we decided to

start me on Plaquenil as soon as I get the OK from the eye doctor. The earliest

appointment I could get is May 7 and it seems like such a long way away! I know

the Plaquenil takes a while to start working so I want to start ASAP. No

questions yet, but I'm sure as I read more they'll pop up.

~

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.339 / Virus Database: 270.12.35/2123 - Release Date: 05/20/09

06:22:00

[Guest guest]

Hi my name is Etta and I live in Arkansas welcome

From: Sharon Wertz <sbwertz@...>Subject: Re: New MemberRheumatoid Arthritis Date: Thursday, May 21, 2009, 12:10 PM

>> Hey there! My name is and I live in Arizona. Hi, and welcome to the group. I, too, live in AZ, and I, too, had an overnight onset. It has been five years, and I am on methotrexate and remicade. I am about 95% functional now. Are you in Phoenix? Sharon

[Guest guest]

What people don,t realize is arthritis is a crippling disease and more people should take it seriously and get more money for research. I have contacted my point of contact house person Senfronia in my area where I reside but I,m not sure if it will make a difference. Maybe we need to have a walk on Washington for all the people that suffer from this crippling disease and see what can come about it. The people that have spinal cord injuries, diabetes, cancer etc they get the monies they need for treatment and prevention. And arthritis is just as bad as a disease as cancer. So any suggestions anyone.

From: <srvivr_2001>Subject: [rheumatoid_ arthritis] New Memberrheumatoid_arthriti sgroups (DOT) comDate: Thursday, April 23, 2009, 8:17 PM

Hi everybody!I just joined the group and thought I would introduce myself before diving intothe message archives.I'm a 22 year old college student and was finally diagnosed with RA on Tuesday,though I've had symptoms for quite a few years now. My lab values are onlyslightly higher than normal, but my rheumatologist thinks that may be becauseit's in really early stages or that I may be one of those few people who don'thave increased values even though they do have RA. Either way, we decided tostart me on Plaquenil as soon as I get the OK from the eye doctor. The earliestappointment I could get is May 7 and it seems like such a long way away! I knowthe Plaquenil takes a while to start working so I want to start ASAP. Noquestions yet, but I'm sure as I read more they'll pop

up.~

[Guest guest]

Welcome Elaine!

Plenty goin on here on the east side too - Cleveland Clinic, Milestones

organization in Cleveland Hts, parent training on " the system " through

Mc House and Sussex Early Childhood. But this is still Cuyahoga County

whereas your daughter is in Lake - if I see/hear of anything out there I'll post

it here!

>

> Hello Everyone,

>

> My name is Elaine and I am the grandmother of two, Ethan and Amber. Ethan is

4 and was diagnosed PDD-NOS when he was 18 mo. and his sister is Amber, 3, who

is somewhat delayed in many aspects but doesn't have autism. Ethan is

non-verbal and attends school in the Willoughby-Eastlake School District. I

live 750 miles away in South Carolina and have joined your group so I may pass

along info, events, etc. to my daughter, Beth who lives in Willoughby. I am

just learning how to navigate your site but so far I am finding so much to print

out and pass along to Beth. You families who live on the West Side seem to have

more going on for you than the Eastsiders---I am impressed... I know Beth would

really benefit from having other moms to talk with so I will be passing along

your contact list to her. If it is O.K., could I add her name to your list even

though she is a member of your group by proxy?

> She and I have so many questions and no one to really go to for answers and

because Ethan is still young there is still time to get him on the right path.

I look forward to reading your postings and maybe even will submit some of my

own from time to time.

>

[Guest guest]

I wished to give my sincerest gratitude to for referring myself to this

loving community. Thank you for giving me the opportunity to become apart of

this truly Divine Family; plus I look forward to getting to know everyone. Love,

Shay

[Guest guest]

Thanks so much for the info. I had heard about this program and am very excited about what I learned from the web site. Would love to come and visit.

In a message dated 8/6/2009 9:58:50 A.M. Eastern Daylight Time, na_paulm@... writes:

hi all. ill be working at hiram farm, in northern portage county, and i want to extend invites to all adult autistics who may be interested in joining the program. its very interactive and rewarding for the participants, and andy is very knowledgable on treatment protocols. it's a great opportunity for anyone with asd to interact and be productive. here's the website www.hiramfarm.org .

[Guest guest]

here's a video of the hiram farm.

http://www.wkyc.com/news/news_article.aspx?storyid=116284. the number is

330-569-3441. that's logan talking, and andy is the ceo, in the tie dye. please

check us out!