Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 > > > Hi Wesley, Its amazing how a small dose can cause side effects. I > > also had the sleep disturbances for about the first 2 weeks. The > > vivid dreams continued but it wasn't an issue. > > > > I'm feeling very crappy now with a cold. Once its gone and I feel > > better I will think about trying again. > > Thanks! > > Take Care ========= I still from time to time have vivid dreams on LDN and I've been on it nearly 3 years, just like last night I dreamed my aunt got shot in the heart and was dead and my grandmother was missing. Alot of this has to do with the fact I watch too much Cold Case Files on TV, LOL. I can deal with the vivid dreams 100% over the horrific MS pain I was in before LDN. if you do not have high blood pressure try taking DL-Phenylalanine 500mg 2 to 3 times daily for the depression and mood swings. Many have found their depression lift after going on DL-P. Solaray has a fantastic brand of DL-Phenylalanine. Dr. Bihari recommends DL-P for those who can take it to compliment the LDN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 It's hard to describe. I personally used to be a *very* light sleeper. Now I sleep so hard I apparently don't move much and sometimes wake up stiff from sleeping in a bad position and sleeping through the pain of it. I wake up twice up to 6 (?) times per night dreaming very colorful, detailed, intense dreams, but they're never nightmares. Vaccaro wrote: >Theses vivid dreams, are they bad? Like Nightmares? > >JAson >On Mar 22, 2006, at 10:42 AM, wrote: > > > >>Hi Wesley, Its amazing how a small dose can cause side effects. I >>also had the sleep disturbances for about the first 2 weeks. The >>vivid dreams continued but it wasn't an issue. >> >>I'm feeling very crappy now with a cold. Once its gone and I feel >>better I will think about trying again. >>Thanks! >>Take Care >> >> >>>, I can second the notion that small changes in dosage *can* >>> >>> >>make >> >> >>>a big difference. I started LDN taking 3.0 mg dissolved in water >>> >>> >>and it >> >> >>>was causing *horrible* joint pain, elbows especially, bizarre sleep >>> >>> >>and >> >> >>>a drugged sleepy feeling that lasted most of the day. >>> >>> >> >> >>! GROUPS LINKS >> >> Visit your group " low dose naltrexone " on the web. >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 At 06:13 PM 9/7/06 -0700, you wrote: >i am looking for someone to help me with info on CML; my husband has had >it since 10-2003; he took Gleevec for 1 yr.(10-2004 to 12-2004) but >couldn't tolerate the many side effects. He is too ill for bone marrow >transplant, anyone out there who can give me some encouragement?? Any >suggestions on diet or good reciepes?? Hi , How has your husband been treating his CML since 12-2004? What were his side effects with Gleevec? maybe someone can tell you what they did for those particular side effects. There is a new approved drug and some who did not tolerate Gleevec are doing much better on this drug....it is called Sprycel and it just got approved by the FDA. Where is your husband treated? Only the new inhibitors can slow down the progression of CML or put you in remission. If he is being treated by hydrea (hydroxyurea).....this will not usually prevent the disease from progressing. No diet is going to make a difference for the CML......it might help with side effects. People need a bit more information to be helpful to you. C. dx 9-1998 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 : Thank you for your prompt reply! My husband has been on Anagrelide HCL and Hydroxyurea will be 3 years next month.(Been off these two for one month) The Gleevec made him so ill he couldn't keep food on his stomach and he lost so much weight that he got down to 102 pounds, platelet transfusions and also, blood. But in July 2006 he has started Spycel twice a day, now he is off it counts got too low. He gets a shot every three weeks, Aranesp. He has a lot of night sweats and legs hurt so much he can hardly walk. We don't know how far this has progressed and what prognosis is; or what to look for in the near future.( I have been on the Internet and been to the Library, maybe I am looking in the wrong places.) He is losing his ability to remember so we don't know all the time if he is in a lot of pain or not. Is there anyone else like this? He was seeing a cancer Dr. here but he moved away and we lost his health insurance when he could not work anymore, so now he sees a Cancer Dr. through the VA. Thanks Again, Cogan <ncogan@...> wrote: At 06:13 PM 9/7/06 -0700, you wrote: >i am looking for someone to help me with info on CML; my husband has had >it since 10-2003; he took Gleevec for 1 yr.(10-2004 to 12-2004) but >couldn't tolerate the many side effects. He is too ill for bone marrow >transplant, anyone out there who can give me some encouragement?? Any >suggestions on diet or good reciepes?? Hi , How has your husband been treating his CML since 12-2004? What were his side effects with Gleevec? maybe someone can tell you what they did for those particular side effects. There is a new approved drug and some who did not tolerate Gleevec are doing much better on this drug....it is called Sprycel and it just got approved by the FDA. Where is your husband treated? Only the new inhibitors can slow down the progression of CML or put you in remission. If he is being treated by hydrea (hydroxyurea).....this will not usually prevent the disease from progressing. No diet is going to make a difference for the CML......it might help with side effects. People need a bit more information to be helpful to you. C. dx 9-1998 --------------------------------- Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2ยข/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 , I saw my rheumy today, and asked him these questions. He said, " I don't believe there have been any studies on that. " So he didn't have a clue, LOL. Sue On Friday, January 11, 2008, at 09:30 AM, wrote: >> A recent allergy attack peaked my curiosity. Since allergies are >> disorders of the immune system, what effect would RA meds such as >> Enbrel (which I'm on) have on allergies? >> >> Would the meds, since they suppress the immune system, make us more >> susceptible to allergy attacks, just as they make us more susceptible >> to infections such as colds and pneumonia? >> >> Or would the meds help our allergies, too, just as they help the RA? >> >> Or, the third choice, would they have no effect on allergies at all? >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2008 Report Share Posted January 30, 2008 Oh, well! It's a good thing you asked anyway, Sue. Maybe your rheumatologist will be on the lookout for related information from now on. Not an MD > Re: [ ] for > > , I saw my rheumy today, and asked him these questions. He said, " I > don't believe there have been any studies on that. " So he didn't have a > clue, LOL. > > Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2008 Report Share Posted January 30, 2008 Maybe I gave him something to wonder about, anyway. I thought they were very good questions, LOL. Sue On Wednesday, January 30, 2008, at 08:46 AM, wrote: > Oh, well! It's a good thing you asked anyway, Sue. Maybe your > rheumatologist > will be on the lookout for related information from now on. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 I loved PA when I was there how beautiful I'm gonna be there from July 16-25 for the lavender festival. All by myself no hubby no dog just a well needed rest From my life and 3 jobs Sequim! I am in Port Angeles which is just 15 miles west of Sequim. I am actually going to be in your area in July. My husband and I are taking Amtrak back to the New England states and will Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 HEy , The email post from JibJab is your birthday card. Happy Birthday! Blessings, Peacie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 Hi - I don't think I've read all of the posts or either I have too quickly as I get behind from time to time, but may I ask what is wrong with your neck? I ask because I'm having problems and the pain is becoming unbearable here lately........... Thanks! in SC From: eandsspivey <emilyspivey@...> Subject: [ ] Re: New ortho doc Date: Friday, September 4, 2009, 4:59 PM ย Thanks > > > Hi : That is good your neck disc will be repaired. I know you > will feel so much better then. I am glad you don't have to wait too > long to have it done. > > It seems like it is always something with all of us. I am wishing you > many pain free days ahead. > > Hugs, > > Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2009 Report Share Posted September 5, 2009 One of the discs has ruptured. It has been herniated for years but too much lifting this summer caused it to rupture. > > Hi - > I don't think I've read all of the posts or either I have too quickly as I get behind from time to time, but may I ask what is wrong with your neck? I ask because I'm having problems and the pain is becoming unbearable here lately........... > Thanks! > in SC > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 hi erin! yep, my hair fell out in clumps. after explantation, hair grew back in. when I wash my hair now, just a few hairs are in my hand, as is normal. before, oh wow... I was freaked out. so, your hair will get back to its normal state after explantation. hang in there. xxoo -L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 Hi , Thanks for that encouragement! It's good to know that your hair came back to normal! Patty > > hi erin! yep, my hair fell out in clumps. after explantation, hair grew > back in. when I wash my hair now, just a few hairs are in my hand, as is > normal. before, oh wow... I was freaked out. so, your hair will get back > to its normal state after explantation. hang in there. xxoo -L > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 thankyou!!!! I really hope that it all calms back down. bye From: glory2glory1401 <glory2glory1401@...> Sent: Thu, June 3, 2010 12:30:40 PMSubject: Re: For Hi ,Thanks for that encouragement! It's good to know that your hair came back to normal!Patty>> hi erin! yep, my hair fell out in clumps. after explantation, hair grew > back in. when I wash my hair now, just a few hairs are in my hand, as is > normal. before, oh wow... I was freaked out. so, your hair will get back > to its normal state after explantation. hang in there. xxoo -L>------------------------------------ Quote Link to comment Share on other sites More sharing options...
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