Re: MRI/Lesions on brain/White Matter found

[Guest guest]

In my misdiagnosis days, when I was on stuff like steroids

for 'autoimmune illness', with no specified diagnostic blood work to

prove it was ms, lupus etc. I had to go through a bunch of cat scans

and mris, and they showed spots, little specks of what the dr called

white matter. she chalked it up to aging, every body gets it... but

they hadn't been on the mris from a few years earlier. I am sure now

it was the lyme. If I had any energy, I would repeat the mri and see

if the white matter specks are gone now. I bet they are gone

> >

> > I have had several MRI's, and there was no mention of lesions on

my

> brain in the reports.  I have a  pretty severe case, long

> undiagnosed, of neuro-Lyme.  Josie

> >

> >

> >

> >

> >

[Guest guest]

>

> In my misdiagnosis days, when I was on stuff like steroids

> for 'autoimmune illness', with no specified diagnostic blood work

to

> prove it was ms, lupus etc. I had to go through a bunch of cat

scans

> and mris, and they showed spots, little specks of what the dr

called

> white matter. she chalked it up to aging, every body gets it... but

> they hadn't been on the mris from a few years earlier. I am sure

now

> it was the lyme. If I had any energy, I would repeat the mri and

see

> if the white matter specks are gone now. I bet they are gone

>

>

>

>

>

>

>when i was gravely ill and had an MRI done at St 's hospital in

Newtown , PA, my MRI was deemed " essentually (sp?) normal " . i only

had a pos LUAT test (robustly pos!) from IgeneX labs but unbeknownst

to me, most drs here in highly endemic Bucks Co., PA considered that

lab and that test to be totally useless. later i got pos PCR's

including a pos PCR of my spinal fluid from bbi labs when no one was

getting pos results from them anymore ( they had changed the tests by

then , then went out of buisness, then MDL was created ) - pos PCR's

of spinal fluid, even from reputable labs i learned are extremely

rare.

my daughter was negative by on her tests from newtown

pediatrics and the creep at the practice at the neuro i ws seeing in

NJ who was just using me as a research project but not even giving me

symptoms meds. but, she did test pos by ELISA from - my brain has

gone blank, but upstate NY. oh! SUNY. not a good place to go for

treatment, but at the time, thier ELISA test was more accurate than

most. she is the healthiest of us all. her younger brother,

obviously born with the disease, was neg. pos PCR. and both pos

from the test from the lab in FLA. they were ages 6 and 9 when i

found the photos of myself with my baby daughter with a textbook rash

on my leg and how i realized they were sufferined too. some dr knew

but ignored. how can you do that to a child?

lynne dever of holland , pa was thier original pediatrition. very

lazy yet competative person who had social conatacts with the first (

and destructive preschool where in addition to - we'll just say not

doing the right thing. and this was not new. they had behaved worse

towards a toddler and did physical damage and were sued i later

learned - the teacher liked to dump handfuls of leaves on the

children, and somehow, my daughter was reinfected on thier leafstrewn

playground, but lynne did not even want to see her rash, and just

insructed me to give her benidryl. and when my daughter did a yr

later get a deer tick bite, stupid lynne told me to just throw out

the tick, they don't bother testing, and just wait and see if she

gets the flu. well, she did not get the flu, because she already had

what lynne called the " summer flu " after my daughter contracted lyme

from me from breastfeeding at just 9 mos old. lynn was a bit jealous

of me at the time because she was a working mom, and i was home with

my baby. she could have had her daughter at work with her and still

nursing if she really wanted to. i don't think she wanted to

bother. having a " nanny " was a - i forget words, but a " prestige " -

not the word i was looking for, but gets the idea across.

and the thing is , lynne was close friends with a lot of the

area " ladies " - preppy moms with children around my children's ages

that went to the public school my kids eventually went to and

belonged to the small swimclub we belonged to ( where some nice mom's

also were at but never got to know me well because i was too sick,

but liked us and were nice ) and then there was newtown friends

school where " best of philly " anat racheal feingold sent her 3

offspring to and donated lots of money. and was one of the " fellow

moms " i was confiding in as her daughter was also in the after school

program " odessey of the mind " . and newtown friends kid often win

because, at the time we were there, the parents cheated. winning was

THAT important! skanks. wealthy adults cheating against children.

anat and her girlfriend thought my encephalitis headaches were

hilarious. and the fourth yr we were at the school, they alway shut

me up as soon as i started to mention lyme. i am very soft spoken,

so it was easy. and definately did not want anyone to see my photos

or med records. but they knew long before i was dx that i was

seriously ill and my children and husband were sick too. OK, lets

give them the benefit of the doubt. anat, " best of philly pediatric

infectious disease specialist " can't recognize when small children

and their parents are suffering big time from late stage/multiple

infection lyme and co-infections. and even after we were diagnosed,

had no interest in learning what these diseases are. hmmmmm best of

philly?

even more of a coincidence is that our friend, Saft, someone my

husband knew from his school days, probably - we are pretty sure -

suffered from undx lyme disease, and the depression....he a few yrs

ago tied weights to himself and jumped into the delaware river. he

is dead now. his mom's close friend, Carole Saline, for yrs was a

writer/editor for philadelphia magazine. and as i told you, anat

feingold was one of the " fellow moms " i was confiding in, and i told

her i had contacted carole saline and in the spring carole was going

to do an expose on lyme disease. that article never happened.

instead, an article about the " best " pediatric specialists in the

philly area was published instead. anat rachael feingold along with

her cohort were " best " pediatric infectious disease specialists.

grant t. liu - whom i recieved severe abuse from when i was gravely

ill and told the fellow moms at newtown friends school, including

anat, about - was " best pedicatric neuro-opt " . i don't think so. i

am very tired now, but these people just are not human. and claiming

an abnormal test is normal simply because they decide you are old is

just stupid. an abnormal test is abnormal. things do go wrong as you

age, and you do have to accept some stuff, but to write off

everything as " age " is stupid.

upenn drs already " proved " i did not have lyme as thier useless tests

came back negative. turns out i got i so many times in my life we

actually took photos of me with the textbook bullseye rash. even

when i have roger e. neimans, head of infectious disease at abington

hospital mocking me in my records that " no dr ever saw the rash and

she has no photos of it " when at the time of that visit i did have a

recurring rash on my foot he ignored. oh, and my daughter , who was

infected with lyme from me while a nursing baby was attending Newtown

Friends School ( because of symptoms of undx lyme )and being bullied

by the daughter of anat racheal feingold " best of philly " pediatric

infectious disease specialist.

anat is of the variety that says lyme is cured with just tens days of

antibiotics and the outcome for lyme patients and " post lyme "

patients is " excellent " . why didn't she tell me what was at that

point about to kill me and was doing major harm to my children and my

husband was sick with lyme also? i have nothing nice to say about

anat and her now grown daughter mara ( who " won " and expensive

scholarship to an expensive college, but, in elementary school, could

not get a better grade on a test than my then sick and getting sicker

thru the yrs daughter until 4th grade and when mara did manage to

score a higher grade on a minor test, was so mean and bragged so hard

that after that, my daughter refused to tell her classmates when they

asked what grade she got on a test. my daughter despite being sick,

was brilliant.)or newtown friends school. it is suppose to be a

quaker school, but is really just a private school for the ofspring

of wealthy people in bucks co., many drs and lawyers. and many of

thier kids have " issues " . and the rich kids get away with nasty

behaviour while the kids who are on scholarship have to endure

bulling and abuse fron the rich kids and the school looks the other

way. even when parents of the bullied kids speak up.

oh, and even though neither i nor my children were patients of anat,

she saw two of my textbook lyme rashes even if i at the time did not

know what the were. would have been nice if she let me in on the

secret. but no law stating you have to be nice.

oh, forgot what i was originally posting about. my MRI's from st

mary's hospital ( which does not have a good rep ) were normal, even

after some IV treatment, when i was sent to Columbia Presbyterian

hospital in NYC, my brain spect scan came back abnormal - abnormal

blood flow, and white matter leasions consistant with neuro-lyme

disease. white matter leasions are, to my knowlage not " normal " just

because you are getting " old " . upenn drs told me all me severe neuro-

lyme symptoms when i was near death were " normal " due to my age - 38 -

and i was just suffering from anxiety due to being almost 40! total

idiots. ten yrs later i still get carded. back then i was mistaken

for my children's teenage babysitter. idiots! but they most

definately had psychiatric issues. especially peter l. schartz and

his short fat ugly wife a gyn. at a langhorne clinic that did not

bother to tell me i had abnormal heart symptoms when i was just 36

yrs old.

and langhorne eye assoc. angry, manly, sheryl menecker and overgrown

toddler buddy thomas j o'conner who said i did not have double vision

even though i did and you could even just look at me and see that my

eyes were out of alignment. and i think i mention grant t liu who

grew up where we live and benifited off of the excellent education

system - same system that put my brillian son in a " special class "

because he not only was sick, but got reinfected and the school

nurse had no interest in learning about lyme disease and how it

affects children. and enjoyed seeing me suffer. us suffer. she

pretends she " cares " about children. not a nice lady. not nice at

all. and dressed funny. polyester blouse lady. with bandaids.