Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 While in the hospital for my 1st serious MS attack in Spring 2008 I was given 1 IV bag a day for 3 days to stop my attack & speed healing... & after a month's in & out of hospital physical rehabilitation was eventually back to walking without assistance. I still had numbness & tingling in my hands & feet. I went on Rebif per my doctors recommendation. After reaching full dose Rebif, I developed a second attack in the Fall of 2008. I had decided to try LDN just prior to this & my Neurologist & doctors refused to allow me LDN. I eventually found a doctor in another state who...after receiving my MRIs & medical records... & a phone consult...prescribed me steroids in pill form to stop my attack & I quit Rebif cold turkey & began LDN at full dose at the same time. Yeah, I know. It's not advised. I stopped seeing my neurologist. I'm uninsured but have found a hospital willing to work with me regarding payments. I have been MS attack free since. I have had no bad affects from LDN. I love it, as a matter of fact, and am an advocate for it. My issue is that I have not regained my ability to walk without a walker. I wonder if I could find a doctor to prescribe me an IV drip of steroids...would my mobility improve as it did the first time around. Does anyone have any thoughts about that. I realize steroids are not healthy for the body...but I would be willing to take several more IV treatments if I could be free of my walker. From what my neurologist showed/explained to me...most of my scars occur in my spine rather than in my brain & when it has occurred in my brain it is mostly happening in my white matter. I suppose that means that scars in the spine tend to be more permanent (for those on LDN) than those that occur in the brain? I currently have no doctor... & guess I would have to go to a hospital for the IV steroids, I assume. Anyone have any other idea. I exercise every day, meditate, practice yoga nidra, am a vegan (I eat organic whenever I can & take lots of supplements including GABA, Omega Oils & Vit D) & practice kundalini yoga. I have no fatigue. Apart from tingling from the waist down(mostly in my feet), tingling in my hands, moderate difficulty urinating & eventual muscular fatigue after standing for a duration...I feel great. Any suggestion/response would be appreciated. I'm at my ropes end as to what to do to walk again without assistance. Quote Link to comment Share on other sites More sharing options...
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