Guest guest Posted June 26, 1999 Report Share Posted June 26, 1999 I'd like to hear about pwc's who experience true vertigo (room spinning, inabiltiy to walk or move head). I've had vertigo on and off for seven years; it was my first symptom along with severe exhaustion. mri's captured nothing. all neurologist said was to take " antivert. " i wonder if there are other pwc's who experience severe dizziness and what they do about it. i've heard from many pwc's who say they also have dizziness but it ends up being the kind one gets from nmh, pots, or low blood sugar. (i get those too but they're nothing compared to true vertigo). i'd love support with this because it's my worst symptom and there's nothing i've ever tried that aleviates it. i've now had vertigo for a full week, my longest, and wonder if anyone out there has had it this long too. i usually get it for several hours, but never for more than a day or two. thanks, mayra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 1999 Report Share Posted June 26, 1999 DJIMBE17@... wrote: > From: DJIMBE17@... > > I'd like to hear about pwc's who experience true vertigo (room spinning, > inabiltiy to walk or move head). I've had vertigo on and off for seven > years; it was my first symptom along with severe exhaustion. mri's captured > nothing. all neurologist said was to take " antivert. " > > i wonder if there are other pwc's who experience severe dizziness and what > they do about it. i've heard from many pwc's who say they also have > dizziness but it ends up being the kind one gets from nmh, pots, or low blood > sugar. (i get those too but they're nothing compared to true vertigo). i'd > love support with this because it's my worst symptom and there's nothing i've > ever tried that aleviates it. i've now had vertigo for a full week, my > longest, and wonder if anyone out there has had it this long too. i usually > get it for several hours, but never for more than a day or two. > > thanks, > mayra > , I have had the kind of vertigo you are talking about only as a reaction to certain supplements. It got so bad I couldn't even get up! Its terrifying! I do feel for you if this is a regular part of your life. I think I read that Ginkgo Biloba is helpful with dizziness. I got it from taking doses of Choline, L Carntine, glandular supplements, and many others I can't remember. (these were at different times over the years, didn't take them all at once) My most recent episode was with the Mannatech (Ambrotose, Phyt- Aloe, etc.). It seems that things that are supposed to " flush out toxins " make me terribly dizzy. Does the antivert help??. My Mom also had dizziness in her elderly years, was never explained and had to take the Dramamine equivalent nearly every day, which makes you drowsy!!! We don't need that. Good luck finding the cause and (hopefully soon)the cure!!!! Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 1999 Report Share Posted June 26, 1999 I had an experience of NMH the other day. When I was tested for HGH they gave me a drug that made my blood pressure go down. When I tried to stand up I would get dizzy. When I went for lunch I could not stand in line. Every time I tried I would feel like I was going to faint. My heart goes out to all of you that must deal with this on a day by day basis. take care Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 1999 Report Share Posted July 7, 1999 I experienced vertigo when I first started on prednisone. It went away after awhile. I think it is listed as a side effect. Kaye Gillis wrote: > > From: Kaye Gillis <kgillis@...> > > : > > I, too, have lots of problems with dizziness. I don't know if it is a side > effect of prednisone but I don't take imuran. Does anyone else know? > > Kaye Ohio > > S9457@... wrote: > > > From: S9457@... > > > > Kaye, > > > > The heat is very bothersome to me now, I can't tolerate humidity at all. > > Right now, NJ is having brown outs every four hours, 101 degrees yesterday > > and no air. Two little ones suffering with me. (7and 4 ). Is dizziness a side > > effect of Pred or Imuran. I feel very light headed, dizzy at times. > > > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2011 Report Share Posted January 9, 2011 I have been taking LDN for 7 weeks and am still experiencing dizziness. When standing in the morning getting out of bed and at odd times during the day. Will there be anytime in the future that I can hope this will go away? I almost did fall over the other day when looking up picking some fruit high from a tree. A little update on my condition...I have follicular lymphoma diagnosed in April 2009 and have been in the " wait-and-see " mode. No chemo or radition. On December 22nd of this year I had three tumors removed from my right groin. (Dealing with the lymph drainage is a real bitch). The biopsy said that they were all the same as they were in April 2009, no change from indolent to aggressive. Good news. The reason I had them removed is that they were starting to hurt, got quite large. Now, I am thinking that the LDN will be better able to keep in check any tumors in the rest of my lymph system without having to cope with the 3 large tumors that were removed. Along with the LDN, I am also taking DCA, so let's hope I will see some inprovement from now on. I am looking forward to hearing from someone about the dizziness and if there is anything to do about it. Chuck Kona, Hawaii Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2011 Report Share Posted January 9, 2011 what is the filler used in your LDN capsules, sometimes an allergy to filler could be a problem. Below was written by Dr. Jaquelyn McCandless, one of our LDN clinical trial research doctors. Be sure you eliminate sugar from your diet, sugar fuels cancer growth. By Dr. McCandless..... As usual, I need to emphasize that seldom is LDN a stand-alone treatment, but accompanies other strategies their body needs, especially a healthy diet. No sugar, dairy or gluten. If you are having adverse symptoms caused by LDN.... Would you be willing to stop all casein (milk products) and gluten (wheat, rye, barley and oats) for a week and see if you feel better? A study done several years ago showed that 30% of us have some degree of celiac disease(intolerance/allegy to wheat) even though the clinical symptoms may not be obvious enough to alert most people to that. When anyone in that 30% of persons stops eating wheat, they feel a lot better. The LDN may be acting like the opioid antagonist it is and causing a withdrawal reaction from taking away your fix, even if only for a few hours. JAQUELYN MCCANDLESS <JMcCandless@...> wrote: : Celiac disease (allergy to gluten protein) which most people do not know does not come in an " all or none " fashion; there are many degrees of celiac intolerance. Untold numbers of people eat wheat since it is a staple food in our society and never feel good - they have indigestion, stool irregularities, weight issues, depression and never know that if they would eliminate wheat and casein they would feel like new people. Many people who eat wheat and milk do not even know what " feeling good " is like until they remove these foods from their diet. As I have said many times before on this board, anytime someone has a negative reaction to LDN the first question I would ask is, " What is the diet like? " If I had a disease such as ALS or MS or other autoimmune disease, I would be more than willing to see if my dietary exogenous opioids could be causing the negative reaction to a drug that is helping most of these people get off all their other drugs without progression of their disease. The reason this is a worthwhile trial is that this intolerance is affecting their general health and immunity in a negative way. Unfortunately, sometimes it takes up to 6 months to get gluten out of the system, so it is not so easy to test. Food is so emotionally entrenched in most people's notions of love and inner security, you would be amazed at what people will endure to eat the foods to which they are addicted! I have a huge respect for the power of addiction to foods and the difficulty in making radical changes from the diet we are accustomed to. Usually it takes an evaluation in the context of a serious illness for people to even consider changing, and even then many will not. Dr. JM It takes some people longer to respond to LDN, and they may be colonized with pathogenic yeast and bacteria that could be slowing response. These setbacks usually do not last long unless something like a yeast infection is stubborn without specific treatment. Dr. JM MORE BELOW There is a phenomenon that happens to some people that as the immune system is shifting (usually from T2 to T1) right after starting LDN, the immune system drops and people get an infection, cold, flu, cold sore, etc. which is usually short lived. Candida tends to overgrow or a virus will flare up. These infections are usually short-lived unless something like candida and gut bacteria needs treatment. As usual, I need to emphasize that seldom is LDN a stand-alone treatment, but accompanies other strategies their body needs, especially a healthy diet. Are you a big bread/carbohydrate/sugar eater? Ever been tested for candida (yeast) or gut bacterial infestation? Ever been checked for hypothyroidism? Would you be willing to stop all casein (milk products) and gluten (wheat, rye, barley and oats) for a week and see if you feel better? A study done several years ago showed that 30% of us have some degree of celiac disease (intolerance/allegy to wheat) even though the clinical symptoms may not be obvious enough to alert most people to that. When anyone in that 30% of persons stops eating wheat, they feel a lot better. The LDN may be acting like the opioid antagonist it is and causing a withdrawal reaction from taking away your fix, even if only for a few hours. Try to hang in for awhile longer, and it will probably get better. These setbacks usually do not last long unless something like a yeast infection is stubborn without specific treatment. Dr. JM Q: Dr. JM or anyone- Does LDN cause candida? A: LDN has been noted to aggravate yeast infections and other latent pathogens, viruses, etc. as the immune system is making early adjustments. It is good to have natural yeast remedies on board when LDN is started (grapefruit seed extract, Candex, lauricidin, hi-potency probiotics, etc) to help offset this possibility. (And of course a good dietary regime that does not encourage gut inflammation which is usually the predecessor to pathogen invasion). Dr. Jaquelyn McCandless posted by , LDN user over 7 yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2011 Report Share Posted January 9, 2011 You can try a smaller dose,but the main reason probably is adrenal fatigue. Your body experience the extra endorphines as extra stress. Adrenal Fatigue: The 21st Century Stress Syndrome I am using the Free version of SPAMfighter.SPAMfighter has removed 1770 of my spam emails to date.Do you have a slow PC? Try free scan! Quote Link to comment Share on other sites More sharing options...
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