posting

[Guest guest]

As most of you are very well aware, all posts must contain a subject line

that is indicative of the contents of the message. Thank you's must be sent

privately.

Robin G.

One of the moderators

[Guest guest]

Joanne, for me, I prefer the regular emails...that way I know where I am! I have done the digest several times before, but I couldn't open , or it took forever to open each post! It is funny how we all like the different aspects of the internet!

debby

[ ] Posting

J Hi all.....it seems too many of you are sitting in the background. Please, feel free to post, ask questions, give your thoughts, information etc....join in! We are all just people (who happen to have different liver disease's) and we learn and make new friends by jumping in...yup both feet! NEVER feel shy with us....besides, if no one likes what you wrote you don't even know them so no fretting over spelling and typos... I make typos all the time!!!! Also, if anyone is receiving this as seperate e-mails and finds it overwhelming just go to LiverSupport_L site and switch to Daily Digest...then only one mailing a day of all.. ; )) Unless you have lots of time to be on line this is the best way to go........ Regards, Joanne

[Guest guest]

thast why i send everything to my email account.

sometimes the web address screws up. tis very annoying. i feel your pain.

as it happened to me previously to

_____

From: katielong6 [mailto:katielong6@...]

Sent: Friday, 17 October 2003 12:31 PM

Subject: posting

Is anyone else having problems? I just wrote two long posts and when

I clicked " send " they didn't go through.. and I lost everything I

wrote. Argh!

[Guest guest]

Yes, I just had the exact same problem for 30 mins. Highly annoying! I

thought it was my browser at first.

> Is anyone else having problems? I just wrote two long posts and when

> I clicked " send " they didn't go through.. and I lost everything I

> wrote. Argh!

>

>

[Guest guest]

i've experienced the same thing before, losing a post! i don't use

any of my email accounts at all to read or write posts, just the

website, so i'm vulnerable to this problem. now i just

highlight and " copy " my posts, so i can simply paste them into a new

post if there's a web failure. it's a very quick and painless

solution.

mike parker

> > Is anyone else having problems? I just wrote two long posts and

when

> > I clicked " send " they didn't go through.. and I lost everything I

> > wrote. Argh!

> >

> >

[Guest guest]

I don't remember if I've ever done this on this list, but several times in

the past I've spent upwards of a half hour and maybe an hour writing a long

post, only to have my computer freeze or something during writing or sending, so

I

can feel the pain :-P

What I get from groups a lot is getting posts out of order, having posts

take a whole day to get to the list, or not getting posts in my email at all

that *do* show up on the website.

Chris

In a message dated 10/17/03 1:16:37 AM Eastern Daylight Time, bwp@...

writes:

> i've experienced the same thing before, losing a post! i don't use

> any of my email accounts at all to read or write posts, just the

> website, so i'm vulnerable to this problem. now i just

> highlight and " copy " my posts, so i can simply paste them into a new

> post if there's a web failure. it's a very quick and painless

> solution.

>

" To announce that there must be no criticism of the president, or that we are

to stand by the president, right or wrong, is not only unpatriotic and

servile, but is morally treasonable to the American public. " --Theodore

Roosevelt

[Guest guest]

Right now posting from the site doesn't seem to be working at all, (when I

hit " send " nothing happens. Usually it goes to a " your message has been posted "

page) but posting thru an email is OK. Either that or my post about the milk

trans-fats will show up about 6 times, even tho it didn't show up originally.

And maybe this one too.

> I don't remember if I've ever done this on this list, but several times in

> the past I've spent upwards of a half hour and maybe an hour writing a long

> post, only to have my computer freeze or something during writing or sending,

so I

> can feel the pain :-P

>

> What I get from groups a lot is getting posts out of order, having posts

> take a whole day to get to the list, or not getting posts in my email at all

> that *do* show up on the website.

>

> Chris

>

> In a message dated 10/17/03 1:16:37 AM Eastern Daylight Time, bwp@u...

> writes:

>

> > i've experienced the same thing before, losing a post! i don't use

> > any of my email accounts at all to read or write posts, just the

> > website, so i'm vulnerable to this problem. now i just

> > highlight and " copy " my posts, so i can simply paste them into a new

> > post if there's a web failure. it's a very quick and painless

> > solution.

> >

>

[Guest guest]

Jan, I think you're being unfair here. There's really no need to be so

defensive. I don't know what Chuck does for a living, but he sounds like a

scientist, so I usually believe that he knows what he's talking about. He

wasn't saying that you're wrong, he is just stating the facts as he knows

them and don't think he's intending to piss you off....

----Original Message Follows----

From: " janjv1311 " <janaina@...>

Reply-hypothyroidism

hypothyroidism

Subject: Re: posting

Date: Thu, 16 Oct 2003 22:36:05 -0000

Me too!

Do as I am doing and write the post in Notepad, then copy and paste

it.

The link with the info wouldn't have helped, he was disputing the

sources it came from - Shomon and Dr. Shames. The link

to those sources wouldn't have made a difference. Some people just

have to be right all the time, I guess. Maybe a post

titled " Hypothyroidism is not synonimous with Hashimoto's

Thyroiditis " would have helped. Anyway, from now on, I am adding my

Disclaimer to any post that has an opinion of any sort.

_________________________________________________________________

Get 10MB of e-mail storage! Sign up for Hotmail Extra Storage.

http://join.msn.com/?PAGE=features/es

[Guest guest]

,

You didn't understand my point at all.

I am not disputing the info Chuck posted, whether he is a scientist

or a mailman - I don't believe that affects the validity of what he

posted.

I just don't think that I should be be branded as an " irresponsible "

and " dangerous " poster for relaying info from Dr. Shames. If Dr.

Shames and Shomon aren't being prosecuted for this info, why

should a casual mention in a post about something completely

different here make me dangerous? I certainly believe nobody is

stupid enough to go and change their dosage based on what a non-

doctor says in a newsgroup. They aren't doing it based on what Dr.

Shames himself said on 's site, why should they here?

I also don't appreciate being called a plagiarist who was " trying to

pass off information as her own " because in a post about a completely

unrelated matter I didn't post a link and complete reference to

information I had *learned* years ago. Posts here are not academical

papers. We post, if someone wants a reference, they then request it,

and we provide it.

It is not the info he posted I have a problem with, it is the

whole " I am an irresponsible, dangerous, plagiarist " part. You'd

think I was Saddam Hussein or something, and all I did was post info

about thyroid, in a thyroid group. I didn't make up information or

anything. There is no posting guideline that says " Only information

with references accepted in this group " or anything.

Jan

> Jan, I think you're being unfair here. There's really no need to

be so

> defensive. I don't know what Chuck does for a living, but he

sounds like a

> scientist, so I usually believe that he knows what he's talking

about. He

> wasn't saying that you're wrong, he is just stating the facts as he

knows

> them and don't think he's intending to piss you off....

>

>

> ----Original Message Follows----

> From: " janjv1311 " <janaina@v...>

> Reply-hypothyroidism

> hypothyroidism

> Subject: Re: posting

> Date: Thu, 16 Oct 2003 22:36:05 -0000

>

> Me too!

>

> Do as I am doing and write the post in Notepad, then copy and paste

> it.

>

> The link with the info wouldn't have helped, he was disputing the

> sources it came from - Shomon and Dr. Shames. The link

> to those sources wouldn't have made a difference. Some people just

> have to be right all the time, I guess. Maybe a post

> titled " Hypothyroidism is not synonimous with Hashimoto's

> Thyroiditis " would have helped. Anyway, from now on, I am adding my

> Disclaimer to any post that has an opinion of any sort.

>

> _________________________________________________________________

> Get 10MB of e-mail storage! Sign up for Hotmail Extra Storage.

> http://join.msn.com/?PAGE=features/es

[Guest guest]

Dear June,

I was diagnosed with Fibro about 15 years ago. I remember thinking what bad

news it was, but I learned to deal and live with it. I even could work and

opened a business with my husband. We put in a lot of hours and looking

back I’m not sure how I did it all, but somehow I managed. Then 5 years ago

I fell and the trauma triggered PA and now I really know how bad things can

get. Since PA hit me, I haven’t worked in over 3 years or even driven a car

in 2 years. I feel like I’ve lost all my freedom and the joint pain

continues to worsen. I’ve mainly had problems with finding a medication to

control the arthritis. I seem to be allergic to almost everything I try.

Back to Fibro… Unfortunately with fibro I had to learn all I could about

it. I had it for about 7 years and then my 13-year-old daughter got it and

that’s when I really read up on the disease. It totally stopped her life

for several years. She went from a roller skating nut to someone who couldn

’t get out of bed. We kept hoping she would out grow it, but it never

happened. The school system was a total nightmare since attendance was

really hard on her. She could always do the work, but sitting in class

every day hour after hour was just too difficult for her. We went round and

round with different ways of schooling until she turned 16. She dropped out

then, got her GED and enrolled in community college. Luckily, she has

always been able to learn from books and could do things on her own. She is

getting ready to graduate in 2 weeks and then is going on to the major

university this fall. I’m worried about her living away from home, but I

know she is ready emotionally. It’s just going to be rough on her

physically, but it’s something she has to try.

My daughter has all the other “fun things” that go with fibro, from the IBS,

fibro fog, dry eyes, fatigue, bad cramps, migraines, and just about every

other side effect you can think of. I also had a close friend who had fibro

really bad and never did adjust to all the problems and the pain. From what

I can tell, the best thing you can do to control fibro is sleep well, since

that’s the only real time our muscles get to relax. Most people with fibro

have a sleep disorder that keeps them from getting into the final stage of

sleep, so our muscles never seem to relax and the pain only increases. Try

to keep a routine. Once you get into a good routine, of working or just

exercising some I think that helps big time. Exercising seems almost

impossible at times, and at times it is impossible. The last thing you want

to do when you are hurting all over is get up and go for a bike ride.

Another thing that helped me was massage therapy. On those days when you

can’t do anything, it helps to have someone work your muscles for you and

get rid of the toxins that build up in the muscles. Drink lots of water. I

used to drink tons of soda, tea and everything that had caffeine, but not

anymore. I only drink water and I think that helps flush everything out.

Swimming is good since it supports the joints and muscles while you move.

As far as medication goes, everything seems to work differently on each

person. My daughter does well with Klonopin, Effexor, and pain medication

when she needs it. The antidepressants seem to help the most for everybody.

With fibro normally you have a low level of serotoin, which makes you

depressed, tired and notice pain more. Since most of the antidepressants

boost that level, we normally feel better on antidepressants. I know I do

and so does my daughter. She has depression more than I do, but then her

fibro is worse than mine.

One other thing that helps with fibro is pillows. I feel a lot like the

princess and the pea story. I sleep on a foam bed; you really need a soft

one, and about 8 pillows every night. They help support my arms or whatever

part of me that is hurting the most. I also use cold gel packs and

sometimes go from cold to heat. Sometimes the change in temperature makes a

big difference. There are lots of fibro websites on the Internet. Some of

them are good, but if you find they are too depressing just move on. You

have to stay positive with fibro like all other diseases. Otherwise, it can

really get you down and then your muscles get worse and it just accelerates.

I hope this helps some. There are some great books out too to read that

might help you on supplements. I know a lot of people swear by magnesium

and I think I’ve tried all of them at one time or another. I’m going to

send this direct to you so you get it quicker. Write me anytime and if I

can help or answer a question I’ll do my best. Take care and good luck. I

know it’s overwhelming but it can be controlled. Take care and I’ll be

thinking of you. Sincerely, Fran

PS On the pain medication, I don’t know anyone who doesn’t need them from

time to time with fibro. I ended up in pain management which I know saved

my life, but that was from the PA. I had a bad surgery on my jaw joint and

things just got worse from there. Most of my problems with PA are the damage

already done to my joints. I hope the pain patches work, but if you find

they run out too soon, you might ask your doctor about a time released pain

medication.

[Guest guest]

Hi June,

Yes, I definitely can relate to you. I don't have much in the P

area. Small and usually unnoticable patches. But I do have PA and

I've just received a second confirmation about Fibro. I was

diagnosed in '96 with it but my last rheumy told me NO I don't have

that, I only have PA. Well, after having no success with him I just

saw another rheumy this morning. My appointment was suppose to be on

the 3rd but they had a cancellation. I took it.

Anyway, he confirmed that I do have Fibro big time. I'm not sleeping

so thus the pain has been increasing. For my hip pain, he's pretty

sure, although he's taken x-ray's that the Fibro is on my siatic

nerve thus causing pitching and the hip pain. He wants me to do

physio therapy. Has me still on just NSAID's and sleep med's that

won't get me addicted to. My biggest concern was taking pain med's

or any med's and being addicted to them.

Thus, I will try this round of treatment and see what happens. I am

so tired of pain, I'd give almost anything to have a week pain free.

I'd love for you to email me some of the natural stuff you're taking

I'm even game to give that a try at this point.

Best to you

Quyrah

[Guest guest]

Hi June,

I have both pa and fibro. I have noticed quite a few of the women

who post have both. I don't know if the men don't get it as much or

if it gets diagnosed as FM in women more.

One thought,and it proves somewhat true for me, is that the more you

keep the pa under control the better the fibro will also be. Several

times my fibro has settled down after a remicade treatment for the pa.

Sleep is really important with fibro. The less I get the more I hurt

and the more I hurt the less I sleep...a visious circle. Moist heat

and stretching helps me too. I learned the stretches from a PT.

They also did massage(very lightly) and that helped.

You can learn more about fibro at www.fmaware.com

Feel free to email me with questions too.

Best Wishes,

Marti

[Guest guest]

Hi,

I posted 2 days ago and never saw it either. My mom has

osteoarthritis, she is also in an alzheimers unit. I just wanted to

know how osteoarthritis was treated. I see her alot and have noticed

her hands are more " bent " than usuual. My poor mom ...... My husband

has ra and he is on minocin, vioxx, catsclaw, pau d'arco, sawmento

and a lot of vitamins

and herbs. The minocin has done miracles for him!

a

[Guest guest]

In a message dated 4/16/2004 5:18:17 PM Eastern Daylight Time, mlw402@...

writes:

You can learn more about fibro at www.fmaware.com

Feel free to email me with questions too.

Best Wishes,

Marti

Marti,

That was great website. Thanks for sharing it. I really learned alot about

the fibro. I have been having problems with snoring and my husband is ready

to smother me (only kidding). I saw that fibro and sleep apnea run hand in

hand. I am going to check it out. DO you have this problem as well?

JANET

[Guest guest]

In a message dated 4/17/2004 9:00:39 PM Eastern Daylight Time,

paulajy@... writes:

.. I just wanted to

know how osteoarthritis was treated. I see her alot and have noticed

her hands are more " bent " than usuual

a, I did a nursing rotation in a nursing home and many of the patients

get contractures from not using their muscles. I don't know if this is the case

with your mom. The way you can help her is by doing some range of motion

exercise on her by opening and closing her hands manually and doing it with each

finger. You can do this with her arms and legs as well. Hope this helps

JANET

[Guest guest]

- I saw that fibro and sleep apnea run hand in

> hand. I am going to check it out. DO you have this problem as

well?

>

> JANET

>

Hi Janet,

Glad you got something from the website. YES...I definitely have a

sleep disorder. My internist tried to have me tested for sleep apnea

but the sleep clinic wouldn't take my medicare so I don't know the

extent of my problem. It is interesting how many of us in the group

have fibro along with the pa too.

Best Wishes,

Marti

[Guest guest]

Hi Jane,

Only new members are moderated, meaning their first message can be

delayed by a day or so but this doesn't apply to you so I'm not sure

why your message didn't show up.

Perhaps it got lost in cyberspace? Occasionally, the system does

slow down and post messages a couple of hours late but I haven't

noticed this to be the case recently. If you still have your message

in your outbox, try sending it again and hopefully it will work this

time.

Take care,

Tracey

>

> Hi all

>

> I am a bit confused. I posted a thread on Saturday and I still don't

> see it. What is the usual turn around time these days? When I

joined

> more than a year ago,it used to be much quicker than this but I

haven't

> posted for a while so perhaps things have changed?

>

[Guest guest]

Here-here

[Guest guest]

This would be so helpful!

To delete a whole section, click the first word, it highlites in blue.

Drag the cursor accross or down to keep highlighting till you get to

the bottom of the section you want to remove and then hit the DELETE

key.

Presto it's gone!

Now type in your reply. and send it.

[Guest guest]

thats a great help been trying for the last few posts will give that a go

names on posts are a help as well

lyn

MS

[low dose naltrexone] Re:POSTING

This would be so helpful!

To delete a whole section, click the first word, it highlites in blue.

Drag the cursor accross or down to keep highlighting till you get to

the bottom of the section you want to remove and then hit the DELETE

key.

Presto it's gone!

Now type in your reply. and send it.

Get a FREE AOL Email account with unlimited storage. Plus, share and store photos and experience exclusively recorded live music Sessions from your favourite artists. Click Here for more information.

[Guest guest]

glennyour reply is here-sometimes i have issues because i have multiple emails and i'm using one that is one the one associated with . cyndiOn Jul 20, 2009, at 11:28 AM, Glenn Kemp wrote:Has anyone else had difficulty getting replies posted to this Board?I have written 2 replies and neither has made it to the Board. Do we have censorship here?(If we do, this message won't make it to the Board either!GEK

[Guest guest]

The reply system was changed recently - now after you click on REPLY you then

have to go to the " TO " box and there is a choice of replying directly to the

person that posted the original message or to the whole group (drop down arrow).

Hope that helps!

In low dose naltrexone , " Glenn Kemp " <gekemp@...> wrote:

>

> Has anyone else had difficulty getting replies posted to this Board?

> I have written 2 replies and neither has made it to the Board. Do we have

censorship here?

> (If we do, this message won't make it to the Board either!

>

> GEK

>

[Guest guest]

you must look at the top that it is directed at the group and not a person

>

> Has anyone else had difficulty getting replies posted to this Board?

> I have written 2 replies and neither has made it to the Board. Do we have

censorship here?

> (If we do, this message won't make it to the Board either!

>

> GEK

>

[Guest guest]

No censorship!! Have you just clicked on Reply and sent your replies?

If so they'll have only gone to the person to whose email you are

replying. To send to the group you have to change the field to

low dose naltrexone

Glenn Kemp wrote:

> Has anyone else had difficulty getting replies posted to this Board?

> I have written 2 replies and neither has made it to the Board. Do we have

censorship here?

> (If we do, this message won't make it to the Board either!

>

> GEK

>

[Guest guest]

I

have noticed that when I hit reply, it goes to the individual and not to the

group . . . if I want it to go to the group as well . . . I have to physically

type the LDN group email address in the TO section.

I am not sure why it does this as I am moderator of several dog email groups

and this is not the case with my email groups. Wonder if it was set up this

way for a reason? I am sure those that have been on here longer might be able

to elaborate more??

Sandy

Rimrock Humane Society

http://www.rimrockhumanesociety.org

" In this life, we cannot always do great things,

but we can do small things with great love. " ~ Mother

From:

low dose naltrexone [mailto:low dose naltrexone ] On

Behalf Of Glenn Kemp

Sent: Monday, July 20, 2009 9:28 AM

low dose naltrexone

Subject: [low dose naltrexone] Posting

Has anyone else had difficulty getting replies

posted to this Board?

I have written 2 replies and neither has made it to the Board. Do we have

censorship here?

(If we do, this message won't make it to the Board either!

GEK