Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 Steve, thanks for your story of hope and inspiration, I pray this continues, Crystal is wonderful at helping people, sometimes, whatever would we do without her, she is a Godsend. Keep up the good work, and tell me, did the radiation get rid of the spinal met's or do you think it was your combo? Good for you to hit it so hard!!! Keep on keepin' on fellow warrior.. Celia .. Visit Your Group Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2011 Report Share Posted January 14, 2011 Hi all, I just wanted to post an update on my wife, Jo. After an original DCIS diagnosis and bilateral mastectomy in March 1999, Jo was diagnosed with stage 4 breast cancer in October 2007 with spinal mets that were affecting her feeling/control of her limbs. There was almost no choice but to have radiation which provided quick relief to the immediate symptoms. Her onc put her on arimidex and zometa. I had watched Josie's mom die from chemo and promised myself that that would not happen to her. Determined to fight with more than traditional medicine had to offer, we found an LDN aware doctor (with Crystal's help). I had learned about LDN on the web many years ago and I knew it would be part of our fight if there was ever a recurrence. What I didn't know then was the complete protocol that we would undertake - with cancer, you don't have the luxury to test each treatment on it's own - you have to shotgun it and pray for a good result. So far, our prayers have been answered. I believe the single most important component of our arsenal is of course LDN. Jo has been on 4.5 mg for almost 3 years after starting out at 3.0 mg for the 1st month. Our LDN-aware doc widened our view and after a lot of research, we also use IV-C, Paw-Paw, B17, and a variety of nutritional supplements - selenium, tumeric, garlic, vitamin D (blood level now 52 ng/ml - was 28), IP6, and more. The traditional onc is showing signs of surprise that Josie is doing so well. All of her tests (circulating cell, tumor markers) keep coming back perfect, and NO new symptoms. I do give the onc the credit for first making us aware of the importance of vitamin D, although her suggestion of ~ 2000 IU/day is woefully inadequate. The recent death of seemed to bother Josie a lot. Their stage 4 diagnoses occurred at just about the same time. (EE died just a day or 2 after her doctors said there was nothing more that they could do - I can only guess what was in that final lethal chemo cocktail.) We are cautiously optomistic. There are 2 daughters that we need to see graduate from college and start their own lives (Yes, they both supplement 5000IU of vitamin D!... as do I.) We sometimes juice, and try to eat better, but our diet is far from perfect. We enjoy an occasional glass or 2 of wine. I don't post often, but read almost daily. I view may of you as fellow warriors. Thanks for being there. God Bless you and yours, Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2011 Report Share Posted January 14, 2011 Steve This is great news! Have you looked into iodine as a supp? There's a list for it. Breast cancer ranks high in conditions that improve with iodine. FWIW Jaye > > Hi all, > I just wanted to post an update on my wife, Jo. After an original DCIS diagnosis and bilateral mastectomy in March 1999, Jo was diagnosed with stage 4 breast cancer in October 2007 with spinal mets that were affecting her feeling/control of her limbs. > > There was almost no choice but to have radiation which provided quick relief to the immediate symptoms. Her onc put her on arimidex and zometa. I had watched Josie's mom die from chemo and promised myself that that would not happen to her. > > Determined to fight with more than traditional medicine had to offer, we found an LDN aware doctor (with Crystal's help). I had learned about LDN on the web many years ago and I knew it would be part of our fight if there was ever a recurrence. What I didn't know then was the complete protocol that we would undertake - with cancer, you don't have the luxury to test each treatment on it's own - you have to shotgun it and pray for a good result. > > So far, our prayers have been answered. I believe the single most important component of our arsenal is of course LDN. Jo has been on 4.5 mg for almost 3 years after starting out at 3.0 mg for the 1st month. > Our LDN-aware doc widened our view and after a lot of research, we also use IV-C, Paw-Paw, B17, and a variety of nutritional supplements - selenium, tumeric, garlic, vitamin D (blood level now 52 ng/ml - was 28), IP6, and more. > > The traditional onc is showing signs of surprise that Josie is doing so well. All of her tests (circulating cell, tumor markers) keep coming back perfect, and NO new symptoms. I do give the onc the credit for first making us aware of the importance of vitamin D, although her suggestion of ~ 2000 IU/day is woefully inadequate. > > The recent death of seemed to bother Josie a lot. Their stage 4 diagnoses occurred at just about the same time. (EE died just a day or 2 after her doctors said there was nothing more that they could do - I can only guess what was in that final lethal chemo cocktail.) > > We are cautiously optomistic. There are 2 daughters that we need to see graduate from college and start their own lives (Yes, they both supplement 5000IU of vitamin D!... as do I.) > > We sometimes juice, and try to eat better, but our diet is far from perfect. We enjoy an occasional glass or 2 of wine. > > I don't post often, but read almost daily. I view may of you as fellow warriors. Thanks for being there. > God Bless you and yours, > Steve > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 So good to read your report, keep on fighting and good luck. Silvia > > Hi all, > I just wanted to post an update on my wife, Jo. After an original DCIS diagnosis and bilateral mastectomy in March 1999, Jo was diagnosed with stage 4 breast cancer in October 2007 with spinal mets that were affecting her feeling/control of her limbs. > > There was almost no choice but to have radiation which provided quick relief to the immediate symptoms. Her onc put her on arimidex and zometa. I had watched Josie's mom die from chemo and promised myself that that would not happen to her. > > Determined to fight with more than traditional medicine had to offer, we found an LDN aware doctor (with Crystal's help). I had learned about LDN on the web many years ago and I knew it would be part of our fight if there was ever a recurrence. What I didn't know then was the complete protocol that we would undertake - with cancer, you don't have the luxury to test each treatment on it's own - you have to shotgun it and pray for a good result. > > So far, our prayers have been answered. I believe the single most important component of our arsenal is of course LDN. Jo has been on 4.5 mg for almost 3 years after starting out at 3.0 mg for the 1st month. > Our LDN-aware doc widened our view and after a lot of research, we also use IV-C, Paw-Paw, B17, and a variety of nutritional supplements - selenium, tumeric, garlic, vitamin D (blood level now 52 ng/ml - was 28), IP6, and more. > > The traditional onc is showing signs of surprise that Josie is doing so well. All of her tests (circulating cell, tumor markers) keep coming back perfect, and NO new symptoms. I do give the onc the credit for first making us aware of the importance of vitamin D, although her suggestion of ~ 2000 IU/day is woefully inadequate. > > The recent death of seemed to bother Josie a lot. Their stage 4 diagnoses occurred at just about the same time. (EE died just a day or 2 after her doctors said there was nothing more that they could do - I can only guess what was in that final lethal chemo cocktail.) > > We are cautiously optomistic. There are 2 daughters that we need to see graduate from college and start their own lives (Yes, they both supplement 5000IU of vitamin D!... as do I.) > > We sometimes juice, and try to eat better, but our diet is far from perfect. We enjoy an occasional glass or 2 of wine. > > I don't post often, but read almost daily. I view may of you as fellow warriors. Thanks for being there. > God Bless you and yours, > Steve > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 Thanks for stopping in and sharing your story! > > Hi all, > I just wanted to post an update on my wife, Jo. After an original DCIS diagnosis and bilateral mastectomy in March 1999, Jo was diagnosed with stage 4 breast cancer in October 2007 with spinal mets that were affecting her feeling/control of her limbs. > > There was almost no choice but to have radiation which provided quick relief to the immediate symptoms. Her onc put her on arimidex and zometa. I had watched Josie's mom die from chemo and promised myself that that would not happen to her. > > Determined to fight with more than traditional medicine had to offer, we found an LDN aware doctor (with Crystal's help). I had learned about LDN on the web many years ago and I knew it would be part of our fight if there was ever a recurrence. What I didn't know then was the complete protocol that we would undertake - with cancer, you don't have the luxury to test each treatment on it's own - you have to shotgun it and pray for a good result. > > So far, our prayers have been answered. I believe the single most important component of our arsenal is of course LDN. Jo has been on 4.5 mg for almost 3 years after starting out at 3.0 mg for the 1st month. > Our LDN-aware doc widened our view and after a lot of research, we also use IV-C, Paw-Paw, B17, and a variety of nutritional supplements - selenium, tumeric, garlic, vitamin D (blood level now 52 ng/ml - was 28), IP6, and more. > > The traditional onc is showing signs of surprise that Josie is doing so well. All of her tests (circulating cell, tumor markers) keep coming back perfect, and NO new symptoms. I do give the onc the credit for first making us aware of the importance of vitamin D, although her suggestion of ~ 2000 IU/day is woefully inadequate. > > The recent death of seemed to bother Josie a lot. Their stage 4 diagnoses occurred at just about the same time. (EE died just a day or 2 after her doctors said there was nothing more that they could do - I can only guess what was in that final lethal chemo cocktail.) > > We are cautiously optomistic. There are 2 daughters that we need to see graduate from college and start their own lives (Yes, they both supplement 5000IU of vitamin D!... as do I.) > > We sometimes juice, and try to eat better, but our diet is far from perfect. We enjoy an occasional glass or 2 of wine. > > I don't post often, but read almost daily. I view may of you as fellow warriors. Thanks for being there. > God Bless you and yours, > Steve > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 Thank you for the really important report, Steve. Wishing your wife continuing good health. -- At 01:18 AM 1/14/2011, you wrote: >Hi all, >I just wanted to post an update on my wife, Jo. After an original DCIS >diagnosis and bilateral mastectomy in March 1999, Jo was diagnosed with >stage 4 breast cancer in October 2007 with spinal mets that were affecting >her feeling/control of her limbs. > >There was almost no choice but to have radiation which provided quick >relief to the immediate symptoms. Her onc put her on arimidex and >zometa. I had watched Josie's mom die from chemo and promised myself that >that would not happen to her. > >Determined to fight with more than traditional medicine had to offer, we >found an LDN aware doctor (with Crystal's help). I had learned about LDN >on the web many years ago and I knew it would be part of our fight if >there was ever a recurrence. What I didn't know then was the complete >protocol that we would undertake - with cancer, you don't have the luxury >to test each treatment on it's own - you have to shotgun it and pray for a >good result. > >So far, our prayers have been answered. I believe the single most >important component of our arsenal is of course LDN. Jo has been on 4.5 >mg for almost 3 years after starting out at 3.0 mg for the 1st month. >Our LDN-aware doc widened our view and after a lot of research, we also >use IV-C, Paw-Paw, B17, and a variety of nutritional supplements - >selenium, tumeric, garlic, vitamin D (blood level now 52 ng/ml - was 28), >IP6, and more. > >The traditional onc is showing signs of surprise that Josie is doing so >well. All of her tests (circulating cell, tumor markers) keep coming back >perfect, and NO new symptoms. I do give the onc the credit for first >making us aware of the importance of vitamin D, although her suggestion of >~ 2000 IU/day is woefully inadequate. > >The recent death of seemed to bother Josie a lot. Their >stage 4 diagnoses occurred at just about the same time. (EE died just a >day or 2 after her doctors said there was nothing more that they could do >- I can only guess what was in that final lethal chemo cocktail.) > >We are cautiously optomistic. There are 2 daughters that we need to see >graduate from college and start their own lives (Yes, they both supplement >5000IU of vitamin D!... as do I.) > >We sometimes juice, and try to eat better, but our diet is far from >perfect. We enjoy an occasional glass or 2 of wine. > >I don't post often, but read almost daily. I view may of you as fellow >warriors. Thanks for being there. >God Bless you and yours, >Steve ~~~ There is no way to peace; peace is the way ~~~~ --A.J. Muste Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 Hi, I am so happy for your report. I hope to get my health back someday too. It is good to know that others are getting it too. I don't care what the doctors say! I know when I feel good and will keep doing what my body says is good for me. Glowing, grace~As Ghandi taught, the secret to life is to struggle against oppression and to fight for what is needed, but not to be attached to any particular outcome. Therein lies the secret of peace within the chaos."For every failure there's another course of action. When you hit a roadblock, take a detour." - Kay Ash Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 Dear Steve, You and your wife are true fighters. You both are choosing the right path to out smart the cancer! Keep up with it and don’t look back, I believe your wife will get well. Warm Regards, Jim From: STEVEN Sent: Friday, January 14, 2011 2:18 AM low dose naltrexone Subject: [low dose naltrexone] 3 year report... Hi all,I just wanted to post an update on my wife, Jo. After an original DCIS diagnosis and bilateral mastectomy in March 1999, Jo was diagnosed with stage 4 breast cancer in October 2007 with spinal mets that were affecting her feeling/control of her limbs.There was almost no choice but to have radiation which provided quick relief to the immediate symptoms. Her onc put her on arimidex and zometa. I had watched Josie's mom die from chemo and promised myself that that would not happen to her.Determined to fight with more than traditional medicine had to offer, we found an LDN aware doctor (with Crystal's help). I had learned about LDN on the web many years ago and I knew it would be part of our fight if there was ever a recurrence. What I didn't know then was the complete protocol that we would undertake - with cancer, you don't have the luxury to test each treatment on it's own - you have to shotgun it and pray for a good result.So far, our prayers have been answered. I believe the single most important component of our arsenal is of course LDN. Jo has been on 4.5 mg for almost 3 years after starting out at 3.0 mg for the 1st month.Our LDN-aware doc widened our view and after a lot of research, we also use IV-C, Paw-Paw, B17, and a variety of nutritional supplements - selenium, tumeric, garlic, vitamin D (blood level now 52 ng/ml - was 28), IP6, and more.The traditional onc is showing signs of surprise that Josie is doing so well. All of her tests (circulating cell, tumor markers) keep coming back perfect, and NO new symptoms. I do give the onc the credit for first making us aware of the importance of vitamin D, although her suggestion of ~ 2000 IU/day is woefully inadequate.The recent death of seemed to bother Josie a lot. Their stage 4 diagnoses occurred at just about the same time. (EE died just a day or 2 after her doctors said there was nothing more that they could do - I can only guess what was in that final lethal chemo cocktail.)We are cautiously optomistic. There are 2 daughters that we need to see graduate from college and start their own lives (Yes, they both supplement 5000IU of vitamin D!... as do I.)We sometimes juice, and try to eat better, but our diet is far from perfect. We enjoy an occasional glass or 2 of wine.I don't post often, but read almost daily. I view may of you as fellow warriors. Thanks for being there.God Bless you and yours,Steve__________ Information from ESET NOD32 Antivirus, version of virus signature database 5789 (20110115) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 5789 (20110115) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2011 Report Share Posted January 16, 2011 Here is a book about iodine and breast cancer Breast Cancer and Iodine : How to Prevent and How to Survive Breast Cancer I am using the Free version of SPAMfighter.SPAMfighter has removed 1792 of my spam emails to date.Do you have a slow PC? Try free scan! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Francie,We do supplement with ALA - that was included with the "and more" . As far as my daughters, it is a difficult decision to put your teenagers on a lifetime maintenance drug - even one I view as safe as LDN. Dr. Skip's response the other day made me start to think about it. I was planning on discussing it with them, but more like in their mid to late 20s. As for me, I have no reason to be on LDN at this time, but I will not hesitate should one occur.SteveFrom: FrancieS <francie@...>STEVEN <even1@...>Sent: Wed, January 26, 2011 7:36:23 PMSubject: Re: 3 year report... What an outstanding and uplifting report! It is the center of my treatment as well.Two questions: Why have you not added ALA (Alpha Lipoic Acid)? and why are you and your daughters not on the LDN too? My husband and sons take it. I do believe that, had I not been on it BEFORE my cancer diagnosis, that the progression might have been very different. The tumor obviously predated the starting of LDN, but I started it for MS and at the time of diagnosis, had been on it for 18 months, with NO metastasis.Bless you and Josie. I don't mean to challenge your protocol at all, just was wondering if there was a reason for these two points.Sincerely,Francie>> Hi all,> I just wanted to post an update on my wife, Jo. After an original DCIS diagnosis and bilateral mastectomy in March 1999, Jo was diagnosed with stage 4 breast cancer in October 2007 with spinal mets that were affecting her feeling/control of her limbs.>> There was almost no choice but to have radiation which provided quick relief to the immediate symptoms. Her onc put her on arimidex and zometa. I had watched Josie's mom die from chemo and promised myself that that would not happen to her.>> Determined to fight with more than traditional medicine had to offer, we found an LDN aware doctor (with Crystal's help). I had learned about LDN on the web many years ago and I knew it would be part of our fight if there was ever a recurrence. What I didn't know then was the complete protocol that we would undertake - with cancer, you don't have the luxury to test each treatment on it's own - you have to shotgun it and pray for a good result.>> So far, our prayers have been answered. I believe the single most important component of our arsenal is of course LDN. Jo has been on 4.5 mg for almost 3 years after starting out at 3.0 mg for the 1st month.> Our LDN-aware doc widened our view and after a lot of research, we also use IV-C, Paw-Paw, B17, and a variety of nutritional supplements - selenium, tumeric, garlic, vitamin D (blood level now 52 ng/ml - was 28), IP6, and more.>> The traditional onc is showing signs of surprise that Josie is doing so well. All of her tests (circulating cell, tumor markers) keep coming back perfect, and NO new symptoms. I do give the onc the credit for first making us aware of the importance of vitamin D, although her suggestion of ~ 2000 IU/day is woefully inadequate.>> The recent death of seemed to bother Josie a lot. Their stage 4 diagnoses occurred at just about the same time. (EE died just a day or 2 after her doctors said there was nothing more that they could do - I can only guess what was in that final lethal chemo cocktail.)>> We are cautiously optomistic. There are 2 daughters that we need to see graduate from college and start their own lives (Yes, they both supplement 5000IU of vitamin D!... as do I.)>> We sometimes juice, and try to eat better, but our diet is far from perfect. We enjoy an occasional glass or 2 of wine.>> I don't post often, but read almost daily. I view may of you as fellow warriors. Thanks for being there.> God Bless you and yours,> Steve> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.