Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 Awesome news n!! On 21/01/2011 12:53, n D wrote: .............................. I have been using LDN since mid October last year. It has slowed the progression of my ALS down to the point where I cannot notice any progression at all.................................. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 Hi n I'm sorry you have ALS - I truly am. I can't imagine what it must be like if you're driven to thinking that having 'MS' would be better. I know sooo many 'MS'ers who would disagree loudly with you. Some of them can't now of course because they're no longer with us due to 'MS'. So, whilst Neurologists poison people with their toxic drugs and write each up as a 'result' statistic, there hasn't been anything to TRULY help people until CCSVI apart from Diet, Detox and Supplements. CCSVI isn't a 'get out of jail free' card either - there are no guarantees with it and there are not many who have 'recovered' truly and fully. 'The research I did revealed definitive causes for MS and consequently, just as definitive recovery paths.'I'd be very interested to hear of these paths to recovery. 'As the minute current that is being fed up travels through the brain, its electric charge is attracting ionized water which causes the characteristic MS brain lesions.' There is a heck of a lot more to 'MS' than having had fillings. I have 'MS'. I have no fillings - not a one. 'Another characteristic effect upon the body of MS is an increase in the spinal fluid protein levels. Once a person has been diagnosed with MS, then it has been seen that these elevated spinal fluid protein levels will never drop down to normal levels. Once again, Dr. Huggin's idea that amalgam fillings are a cause for MS has been well and truly verified through this elevated protein level phenomenon.' 'She found out about the amalgam connection and had hers removed properly. Today she is MS free. I have read story after story after story that are very similar. I am not saying that all MS is caused by amalgam fillings, but I do believe that it is by far the major cause.' I know many people who have paid huge money to get their fillings removed too - it didn't help them and they weren't 'MS' free. I'm happy for your friend - happier than you could ever know. But I do have to warn that fillings aren't the cause of 'MS'. 'Many are claiming it to be the "cause" of MS - but I have much doubt about that. If we consider the question of why does someone with five amalgam fillings get MS when someone with fifteen amalgam fillings doesn't? Because we know the mercury will damage the myelin sheath, why doesn't that happen in the person with fifteen fillings as well?' I can only gather that you don't understand the Chronic CerebroSpinal Insufficiency (CCSVI) procedure and theory. It is a vascular condition where the iron in the brain cannot drain out of the brain. It is THIS which causes the plaques in the brain. The condition starts before birth (congenitive) and is a vscular condition. The procedure is a venoplasty and opens the narrowings in the veins to let the blood flow properly and drain the brain of the iron which has been stuck there for so many years. As you've researched so much about 'MS', please tell me how I got 'MS' then. You don't seem to realise that most people who have been tested (so far in Scotland, every 'MS'er has had CCSVI) actually DO have the condition - it has been the fact that people haven't been tested properly which hs altered the results. *shrugs* Carolyn, I suggest that you join the MSCured group if you haven't already, and look into diet and supplements to help with 'MS'. Get your fillings removed if you feel it could be a help and follow n's advice RE: research and familiarising yourself with everything abouit it. n, you've done a lot of work researching the amalgams/mercury fillings theory and I hope it helps you with your ALS. Please, respectfully, do more research on CCSVI, the Vascular theory of 'MS' and how 'MS' actually works in order to comment on it in regards to 'how someone gets MS'. No one 'gets' it - it's a congenital condition. *shrugs* Fantastic research! Most 'MS'ers in Australia know the theory and have had their fillings removed.....without much improvement I'm afraid. Thanks for posting this though - I think getting Mercury filings removed can only be a good thing anyway, but I still doubt that it is the 'cure-all' for 'MS' due to how many I've seen NOT get improvement. Perhaps we should all just ensure we detoxify our bodies and remove anything which can impact on our inner workings. 'What we do in life, echoes through eternity.'MARCUS AURELIUS (121 - 180 A.D.) low dose naltrexone From: burd27@...Date: Thu, 20 Jan 2011 17:53:48 -0800Subject: [low dose naltrexone] Re: Multiple Sclerosis / CCVSI Hello again Carolyn,Thank you for your quick reply to my reply. : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2011 Report Share Posted January 22, 2011 dear rachel content of your email is both very interesting and informative ldn, ccsvi, mercury removal, diet, detox, supplement etc will not cure you of ms but it can go along way to slow the progress, remember the saviour stem cell replacement and the cost all treatments cost and a lot of people cannot afford it i was dx 1995 with p/p with 'specialist neurologist' saying i would be wheelchair bound and in need of care within 5 years, how many neurologists have a neurological problem, i do not know one, so how do they know what it is like, how can they treat ms patients with the same drug when we are all different i feel through removal of all my mercury filings [8], change of diet and lifestyle [no stress] has helped me, still just about walking on a frame and not dependent although caring wife brgds peter From: <rachael.m.thomas@...>LDN Group <low dose naltrexone >Sent: Fri, 21 January, 2011 13:33:09Subject: RE: [low dose naltrexone] Re: Multiple Sclerosis / CCVSI Hi nI'm sorry you have ALS - I truly am. I can't imagine what it must be like if you're driven to thinking that having 'MS' would be better. I know sooo many 'MS'ers who would disagree loudly with you. Some of them can't now of course because they're no longer with us due to 'MS'.So, whilst Neurologists poison people with their toxic drugs and write each up as a 'result' statistic, there hasn't been anything to TRULY help people until CCSVI apart from Diet, Detox and Supplements.CCSVI isn't a 'get out of jail free' card either - there are no guarantees with it and there are not many who have 'recovered' truly and fully. 'The research I did revealed definitive causes for MS and consequently, just as definitive recovery paths.'I'd be very interested to hear of these paths to recovery. 'As the minute current that is being fed up travels through the brain, its electric charge is attracting ionized water which causes the characteristic MS brain lesions.'There is a heck of a lot more to 'MS' than having had fillings.I have 'MS'. I have no fillings - not a one. 'Another characteristic effect upon the body of MS is an increase in the spinal fluid protein levels. Once a person has been diagnosed with MS, then it has been seen that these elevated spinal fluid protein levels will never drop down to normal levels. Once again, Dr. Huggin's idea that amalgam fillings are a cause for MS has been well and truly verified through this elevated protein level phenomenon.''She found out about the amalgam connection and had hers removed properly. Today she is MS free. I have read story after story after story that are very similar. I am not saying that all MS is caused by amalgam fillings, but I do believe that it is by far the major cause.'I know many people who have paid huge money to get their fillings removed too - it didn't help them and they weren't 'MS' free. I'm happy for your friend - happier than you could ever know. :)But I do have to warn that fillings aren't the cause of 'MS'. 'Many are claiming it to be the "cause" of MS - but I have much doubt about that. If we consider the question of why does someone with five amalgam fillings get MS when someone with fifteen amalgam fillings doesn't? Because we know the mercury will damage the myelin sheath, why doesn't that happen in the person with fifteen fillings as well?' I can only gather that you don't understand the Chronic CerebroSpinal Insufficiency (CCSVI) procedure and theory. It is a vascular condition where the iron in the brain cannot drain out of the brain. It is THIS which causes the plaques in the brain.The condition starts before birth (congenitive) and is a vscular condition. The procedure is a venoplasty and opens the narrowings in the veins to let the blood flow properly and drain the brain of the iron which has been stuck there for so many years. As you've researched so much about 'MS', please tell me how I got 'MS' then. You don't seem to realise that most people who have been tested (so far in Scotland, every 'MS'er has had CCSVI) actually DO have the condition - it has been the fact that people haven't been tested properly which hs altered the results.*shrugs* Carolyn, I suggest that you join the MSCured group if you haven't already, and look into diet and supplements to help with 'MS'. Get your fillings removed if you feel it could be a help and follow n's advice RE: research and familiarising yourself with everything abouit it. n, you've done a lot of work researching the amalgams/mercury fillings theory and I hope it helps you with your ALS.Please, respectfully, do more research on CCSVI, the Vascular theory of 'MS' and how 'MS' actually works in order to comment on it in regards to 'how someone gets MS'. No one 'gets' it - it's a congenital condition. *shrugs* Fantastic research! Most 'MS'ers in Australia know the theory and have had their fillings removed.....without much improvement I'm afraid. Thanks for posting this though - I think getting Mercury filings removed can only be a good thing anyway, but I still doubt that it is the 'cure-all' for 'MS' due to how many I've seen NOT get improvement. Perhaps we should all just ensure we detoxify our bodies and remove anything which can impact on our inner workings. 'What we do in life, echoes through eternity.'MARCUS AURELIUS (121 - 180 A.D.) low dose naltrexone From: burd27@...Date: Thu, 20 Jan 2011 17:53:48 -0800Subject: [low dose naltrexone] Re: Multiple Sclerosis / CCVSI Hello again Carolyn,Thank you for your quick reply to my reply. : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2011 Report Share Posted January 22, 2011 http://www.alsforums.com/als-mnd-news/research/20.html For ALS, in addition to LDN, there is some interesting research on ketogenic diets. I'd do a paleo version - www.marksdailyapple.com Not a cure, but it should help. Best of Luck, Alan === Posted through Grouply Create your own group! www.grouply.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2011 Report Share Posted January 22, 2011 Our family dentist has suggested not disturbing old dental work. More specifically, the Mercury. One of great things about this forum is the free exchange of information. This, despite the fact that at times we (as a group) have tendency to beat a subject to death. And as a sidebar, let me also disclose I'm in the middle of a Budweiser. FYI. Sent from my Verizon Wireless BlackBerryFrom: "Nara" <nara19@...>Sender: low dose naltrexone Date: Sat, 22 Jan 2011 20:49:13 -0000<low dose naltrexone >Subject: [low dose naltrexone] Re: Multiple Sclerosis / CCVSI I have had polymyositis, and about 6 months after removing allamalgams, I got considerably worse, bedridden. So, amalgamswithout following a chelation protocol (I suggest Andy Cutler's)may worsen some folks condition by far./Nara>> dear rachel> > content of your email is both very interesting and informative> > ldn, ccsvi, mercury removal, diet, detox, supplement etc will not cure you of ms > but it can go along way to slow the progress, remember the saviour stem cell > replacement and the cost> > all treatments cost and a lot of people cannot afford it> > i was dx 1995 with p/p with 'specialist neurologist' saying i would be > wheelchair bound and in need of care within 5 years, how many neurologists have > a neurological problem, i do not know one, so how do they know what it is like, > how can they treat ms patients with the same drug when we are all different> > i feel through removal of all my mercury filings [8], change of diet and > lifestyle [no stress] has helped me, still just about walking on a frame and not > dependent although caring wife> > brgds peter> > > > >________________________________> From: <rachael.m.thomas@...>> LDN Group <low dose naltrexone >> Sent: Fri, 21 January, 2011 13:33:09> Subject: RE: [low dose naltrexone] Re: Multiple Sclerosis / CCVSI> >  > Hi n> I'm sorry you have ALS - I truly am. I can't imagine what it must be like if > you're driven to thinking that having 'MS' would be better. I know sooo many > 'MS'ers who would disagree loudly with you. Some of them can't now of course > because they're no longer with us due to 'MS'.> So, whilst Neurologists poison people with their toxic drugs and write each up > as a 'result' statistic, there hasn't been anything to TRULY help people until > CCSVI apart from Diet, Detox and Supplements.> CCSVI isn't a 'get out of jail free' card either - there are no guarantees with > it and there are not many who have 'recovered' truly and fully. > >  >  'The research I did revealed definitive causes for MS and consequently, just as > definitive recovery paths.'> I'd be very interested to hear of these paths to recovery.>  > 'As the minute current that is being fed up travels through the brain, its > electric charge is attracting ionized water which causes the characteristic MS > brain lesions.'> There is a heck of a lot more to 'MS' than having had fillings.> I have 'MS'. I have no fillings - not a one.>  > 'Another characteristic effect upon the body of MS is an increase in the spinal > fluid protein levels. Once a person has been diagnosed with MS, then it has > been seen that these elevated spinal fluid protein levels will never drop down > to normal levels.  Once again, Dr. Huggin's idea that amalgam fillings are a > cause for MS has been well and truly verified through this elevated protein > level phenomenon.'> 'She found out about the amalgam connection and had hers removed properly. > Today she is MS free.  I have read story after story after story that are very > similar. I am not saying that all MS is caused by amalgam fillings, but I do > believe that it is by far the major cause.'> I know many people who have paid huge money to get their fillings removed too - > it didn't help them and they weren't 'MS' free. I'm happy for your friend - > happier than you could ever know. > But I do have to warn that fillings aren't the cause of 'MS'.>  > 'Many are claiming it to be the " cause " of MS - but I have much doubt about > that. If we consider the question of why does someone with five amalgam fillings > get MS when someone with fifteen amalgam fillings doesn't? Because we know the > mercury will damage the myelin sheath, why doesn't that happen in the person > with fifteen fillings as well?'>  > I can only gather that you don't understand the Chronic CerebroSpinal > Insufficiency (CCSVI) procedure and theory. It is a vascular condition where the > iron in the brain cannot drain out of the brain. It is THIS which causes the > plaques in the brain.> The condition starts before birth (congenitive) and is a vscular condition. The > procedure is a venoplasty and opens the narrowings in the veins to let the blood > flow properly and drain the brain of the iron which has been stuck there for so > many years.>  > As you've researched so much about 'MS', please tell me how I got 'MS' then. You > don't seem to realise that most people who have been tested (so far in Scotland, > every 'MS'er has had CCSVI) actually DO have the condition - it has been the > fact that people haven't been tested properly which hs altered the results.> *shrugs*>  > Carolyn, I suggest that you join the MSCured group if you haven't already, > and look into diet and supplements to help with 'MS'. Get your fillings removed > if you feel it could be a help and follow n's advice RE: research and > familiarising yourself with everything abouit it.>  > n, you've done a lot of work researching the amalgams/mercury fillings > theory and I hope it helps you with your ALS.> Please, respectfully, do more research on CCSVI, the Vascular theory of 'MS' and > how 'MS' actually works in order to comment on it in regards to 'how > someone gets MS'. No one 'gets' it - it's a congenital condition. *shrugs*>  > Fantastic research! Most 'MS'ers in Australia know the theory and have had > their fillings removed.....without much improvement I'm afraid. > Thanks for posting this though - I think getting Mercury filings removed can > only be a good thing anyway, but I still doubt that it is the 'cure-all' for > 'MS' due to how many I've seen NOT get improvement.>  > Perhaps we should all just ensure we detoxify our bodies and remove anything > which can impact on our inner workings. > > > 'What we do in life, echoes through eternity.'> MARCUS AURELIUS (121 - 180 A.D.)> > > >  > >________________________________> low dose naltrexone > From: burd27@...> Date: Thu, 20 Jan 2011 17:53:48 -0800> Subject: [low dose naltrexone] Re: Multiple Sclerosis / CCVSI> >  > Hello again Carolyn,> > Thank you for your quick reply to my reply. : )> > >  > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2011 Report Share Posted January 22, 2011 Hi Congratulations for proving your 'specialist Neurologist' wrong! I think that's one of my favourite things about not taking their drugs and not being in a wheelchair too (even though he only gave me 6-12 months before I'd be wheelchair bound back in 2006). 'ldn, ccsvi, mercury removal, diet, detox, supplement etc will not cure you of ms but it can go along way to slow the progress, remember the saviour stem cell replacement and the cost all treatments cost and a lot of people cannot afford it' I realise that only too well and I haven't mentined anything as being a 'Cure'. I do not believe in 'Cures' and NEVER suggest that ANY of the things I spoke of as being such. LDN is not expensive and I can vouch for how much it helps as I no longer lay awake at night because of burning and searing pain in my leg thanks to the help of LDN. LDN doesn't have the same affect for everyone and I'm certain you know. CCSVI is the condition and is not the name of the treatment. The treatment is expensive but generally (in those without severe irreparable damage) has fantastic results. Again, it is not a 'Cure' but in addition to correct diet and supplementary aid goes a VERY long way to giving back our 'normal' lives. I have never believed in stem cell treatment and won't until they TRULY know what they're doing! The diet and detoxing doesn't cost a lot - so, we see that quite a few of the treatments don't actually cost the Earth! I was dxd in 2006. I don't take any of the Neurologically-pushed drugs and have had great improvement through CCSVI, LDN, Diet and Detoxing. I am sorry and surprised that you haven't researched the Science behind all of these things as thoroughly as is needed. Even if you're of the thought that things 'are just too expensive', it pays to research them and research what they actually cost too - you might be surprised! I'll be happy to send you any information on these things - just let me know if you'd like to read it. (spelled similarly to the way is spelled) 'What we do in life, echoes through eternity.'MARCUS AURELIUS (121 - 180 A.D.) >> dear rachel> > content of your email is both very interesting and informative> > ldn, ccsvi, mercury removal, diet, detox, supplement etc will not cure you of ms > but it can go along way to slow the progress, remember the saviour stem cell > replacement and the cost> > all treatments cost and a lot of people cannot afford it> > i was dx 1995 with p/p with 'specialist neurologist' saying i would be > wheelchair bound and in need of care within 5 years, how many neurologists have > a neurological problem, i do not know one, so how do they know what it is like, > how can they treat ms patients with the same drug when we are all different> > i feel through removal of all my mercury filings [8], change of diet and > lifestyle [no stress] has helped me, still just about walking on a frame and not > dependent although caring wife> > brgds peter> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2011 Report Share Posted January 23, 2011 H As I wasn't very interested in it, I couldn't say whether they 'followed Huggins' principle' - sorry. I have RRMS too - my English Neuro hasn't said any different (I was dxd in Australia back in 2006), so I'm still RR as far as I'm aware. I understand that we all can't afford certain things - I can't either. I get as much as I can through the NHS and the diet doesn't cost that much extra - especially if you make friends with local farmers! The CCSVI procedure has given me back so much movement an improvement - it has been more than worth the money!! I truly believe that it is a crime that the Government don't assist people get the procedure by putting i on the NHS allowances rather than leaving us as invalids who cannot contribute taxes to the economy!!! Are they that stupid?? lol Regarding amalgum removal, as with ALL other 'MS' treatments, it's just a matter of 'to each their own'. I wish you luck with managing your 'MS'. RachAEL (just like MichAEL is spelled)'What we do in life, echoes through eternity.'MARCUS AURELIUS (121 - 180 A.D.) Subject: Re: [low dose naltrexone] Re: Multiple Sclerosis / CCVSIFrom: karen1974@...Date: Sun, 23 Jan 2011 09:18:24 +0100rachael.m.thomas@... Hi , You said that you have seem many whom have had their amalgam fillings removed, without any benefit to their MS. Do you know what percentage of these people followed the "Huggins protocol" ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2011 Report Share Posted January 23, 2011 Hi The Best Bet Diet isn't a ketogenic diet - if that's the discussion about diet you meant. 'What we do in life, echoes through eternity.'MARCUS AURELIUS (121 - 180 A.D.) low dose naltrexone From: n.arey@...Date: Sun, 23 Jan 2011 16:24:37 -0500Subject: [low dose naltrexone] Re: Multiple Sclerosis / CCVSI Regarding ketogenic diets. I have been reading _Honest Medicine_ by Schopick. She discusses Alpha Lipoic Acid intravenous/ Dr. Burt Berkson, LDN, and the Ketogenic Diet for epilepsy. I am finding it absolutely fascinating! Highly recommended. Quote Link to comment Share on other sites More sharing options...
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