Chronic Lyme & co infections

[Guest guest]

Hi everyone,I just joined. Does anyone here have Lyme and co-infections and

doing LDN. If so could you please share your experience? What dose to start,did

u herx? Thanks Joyce

[Guest guest]

I have Lyme and had cancer in 2008. I am doing LDN but don't know if it is doing

anything or not. I never have felt different with it. I cannot do it at night as

I have so many sleep issues. Current thought is that you can do it at other

times. So, I do it in the morning and do the 4.5 as it is standard but that is

also up for debate these days. Feel free to contact me directly so we can chat

about the Lyme.

Pami, Louisville KY

[Guest guest]

The endorphin boost is much larger at night, the reason you may not be noticing

much is from the lower endorphin boost of daytime dosing. try switching back to

night now that you've gotten used to LDN and see what happens.

, LDN user over 7 yrs.

[Guest guest]

Have neuroborreliosis, aka Lyme disease plus several coinfections such as Rocky

Mountain Spotted Fever, mononucleosis, Herpes VI, and a couple others. Have

taken LDN Twice. Once about 2005 / 2006 while I was still a " traditional " MS

patient. this board helped me jump away from the standard " confused immune

system " disease model, and I started LDN. Took it for a year. Eventually hired

a Lyme Literate Medical Doctor (LLMD) and started antibiotics and other drugs.

My second LLMD was interested in LDN, so I decided to try it again. Followed

the treatment protocol exactly. Started at 1.5 mg / night, currently on

4.5mg/night. Tonight, unsure if I'll do any refills on the product.

The Rebif made mu much worse. The LDN didn't make me sicker, therefore, I truly

feel it is better than the $1600 / month CRAB drugs! Never herxed w/ the LDN.

Did have a Jarisch-Herxheimer reaction to doxycycline, which was confirmation of

my Lyme diagnosis.

Feel free to send me a message directly to wake me up ;-)

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> Hi everyone,I just joined. Does anyone here have Lyme and co-infections and

doing LDN. If so could you please share your experience? What dose to start,did

u herx? Thanks Joyce

>