Guest guest Posted January 23, 2011 Report Share Posted January 23, 2011 In this group I have heard different opinions about whether you can take them or not. I am having horrible back pain and do not want to go off LDN because it is helping my Sjogrens, connective tissue symptoms, but now I am having horrible low back pain. (SI joint and disc maybe?). All the literature I have read said you cannot take it, but some people in the group said you could. Can you or can't you? I have tramadol and wondered. Also, I have heard differing opinions about plaquenil. I see my rheumatologist on Tuesday and I can't wait to hear what she says and see the results of my blood work. I just wish my lower back pain would go away.Take care all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2011 Report Share Posted January 24, 2011 You can take it IF YOU ARE NOT already DEPENDENT/ADDICTED to the narcotic. If addicted or dependent on any narcotic, LDN WILL put you into WITHDRAWAL SYMPTOMS. From what you have written, you are not dependent, so all you need to do is be sure to separate your pain med far away from your LDN, otherwise, LDN will block the effect of the pain med. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Was she also taking LDN?Thanks.From: Kathy Papazian <kpapaz@...> Debruycker <debruyckerm@...>Sent: Sun, January 23, 2011 5:15:54 PMSubject: Re: [low dose naltrexone] Opiate pain killers or not, I have a dear friend that has Sjogrens and she had horrible pain and swelling of her legs and knees. She started on Plaquenil and got huge relief on it. [low dose naltrexone] Opiate pain killers or not In this group I have heard different opinions about whether you can take them or not. I am having horrible back pain and do not want to go off LDN because it is helping my Sjogrens, connective tissue symptoms, but now I am having horrible low back pain. (SI joint and disc maybe?). All the literature I have read said you cannot take it, but some people in the group said you could. Can you or can't you? I have tramadol and wondered. Also, I have heard differing opinions about plaquenil. I see my rheumatologist on Tuesday and I can't wait to hear what she says and see the results of my blood work. I just wish my lower back pain would go away. Take care all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 True - I have never even taken any opiate type pain killers. Have always tried using natural anti inflammatory medicine but the pain in my SI joint, lower back, and muscles have been so bad that I have had to take alleve, or tylenol or ibuprofen, but sometimes that does not do the trick and I cannot work because I cannot sit at my desk.Hope this is not part of my auto-immune issues. It may just be Degenerative. Thanks for your help.From: bren_ldn <TwisterAlley2@...>low dose naltrexone Sent: Mon, January 24, 2011 6:03:24 PMSubject: [low dose naltrexone] Re: Opiate pain killers or not You can take it IF YOU ARE NOT already DEPENDENT/ADDICTED to the narcotic. If addicted or dependent on any narcotic, LDN WILL put you into WITHDRAWAL SYMPTOMS. From what you have written, you are not dependent, so all you need to do is be sure to separate your pain med far away from your LDN, otherwise, LDN will block the effect of the pain med. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Beware of Plaquenil, one of the side effects is damage to your vision - it happened to my brother. Needless to say, he no longer takes Plaquenil. He is now a happy LDNer.SteveFrom: Kathy Papazian <kpapaz@...> Debruycker <debruyckerm@...>Sent: Sun, January 23, 2011 5:15:54 PMSubject: Re: [low dose naltrexone] Opiate pain killers or not, I have a dear friend that has Sjogrens and she had horrible pain and swelling of her legs and knees. She started on Plaquenil and got huge relief on it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 I took Plaquenil for 2.5 yrs, but quit---not because of vision side effects---other stuff. My Sjogren's forum is always discussing this topic. If you take Plaquenil, you must be seen by a retina specialist at least twice a year. Retinal toxicity is rare in the doses given for auto-immune, and reversible. People find that it greatly helps their joint pain and fatigue (with Sjogren's), with similar results for Lupus, and Rheumatoid Arthritis. It comes down to weighing the benefits and risks. Of all the medications used to treat these conditions, Plaquenil is perhaps the least dangerous----there are many (like prednisone and methotrexate) that have more toxic effects, on the liver, kidneys, bones, etc. So if one has an autoimmune condition, I feel that Plaquenil is at least worth a trial. The positive effects are not immediate--it can take 6-8 months to see them. Of course, some people simply cannot tolerate it (gastrointestinal) or are even allergic. The retinal toxicity usually builds over time, and at the higher doses that one might take for malaria. Calli > > Beware of Plaquenil, one of the side effects is damage to your vision - it > happened to my brother. Needless to say, he no longer takes Plaquenil. He is > now a happy LDNer. > Steve > > From: Kathy Papazian <kpapaz@...> > Debruycker <debruyckerm@...> > Sent: Sun, January 23, 2011 5:15:54 PM > Subject: Re: [low dose naltrexone] Opiate pain killers or not > > , I have a dear friend that has Sjogrens and she had horrible pain and > swelling of her legs and knees. She started on Plaquenil and got huge relief on > it. > Quote Link to comment Share on other sites More sharing options...
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