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Amen to that...thanks for sending that...Donna

Patty Bacon <pbacon@...> wrote:

Hi Everyone,Thought this was a good example of the kind of positive thinking thathas been advised for us to try in our battle with PA. Enjoy.GratitudeI had a very special teacher in high school manyyears ago whose husband unexpectedly diedsuddenly of a heart attack. About a week after hisdeath, she shared some of her insight with aclassroom of students. As the late afternoonsunlight came streaming in throughthe classroom windows and the class wasnearly over, she moved a few thingsaside on the edge of her desk and sat down there.With a gentle look of reflection on her face, shepaused and said, " Before class is over, I wouldlike to share with all of you a thought that isunrelated to class, but which I feel is very important.Each of us is put here on earth to learn, share,love, appreciate and give of ourselves. None ofus knows when this fantastic experience will end.It can be taken away at any moment. Perhaps this isGod's way of telling us that we must make themost out of every single day. " Her eyes beginning to water, she went on, " So Iwould like you all to make me a promise. Fromnow on, on your way to school, or on your wayhome, find something beautiful to notice. Itdoesn't have to be something you see - itcould be a scent - perhaps of freshly baked breadwafting out of someone's house, or it could bethe sound of the breeze slightly rustling the leavesin the trees, or the way the morning light catchesone autumn leaf as it falls gently to the ground.Please look for these things, and cherish them.For, although it may sound trite to some, thesethings are the stuff " of life. The little things we areput here on earth to enjoy. The things we oftentake for granted. We must make it important tonotice them, for at any time... it can all be taken away. " The class was completely quiet. We all picked upour books and filed out of the room silently. Thatafternoon, I noticed more things on my way homefrom school than I had that whole semester. Everyonce in a while, I think of that teacher and rememberwhat an impression she made on all of us, andI try to appreciate all of those things thatsometimes we all overlook.Take notice of something special you see on yourlunch hour today. Go barefoot. Or walk on thebeach at sunset. Stop off on the way hometonight to get a double-dip ice cream cone. For aswe get older, it is not the things we did that we oftenregret, but the things we didn't do.--------------------------------------------------------------------Free, Unlimited Calls Anywhere!Conference in the whole family on the same call.Let the fights begin! Visit Firetalk.com - Click below.1/5476/4/_/494167/_/964717149/--------------------------------------------------------------------|e>-Please visit our new web page at:http://www.wpunj.edu/icip/paWe are currently discussing new chat times. moderates a chat on arthritis atwww.about.com on Thursday evenings, so check thatout in the meantime! E mail at RA@... for details.

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  • 2 years later...

<PRE>carol, i am so glad to hear you have finally made it home. sorry we didn't

get a chance to meet. i was so busy trying to fight everyone who has it in

for me. (seems like alot lately!!) did you ever make it to deerfield?? or

meet al??? kathy in il

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Carol,

I have to agree with the things you are so thankful for. As I sat around

the Thanksgiving dinner table, it made me feel so good to be around everyone

that means so much to me.

There is just nothing better.

Sorry your trip was filled with problems. Spirit did that to us when we

were flying home from Florida. There were 6 of us and we were NOT given a

hotel room. I hurt so bad sitting in those seats. The problems started

with mechanical problems, which then turned into having no pilot to fly the

new plane that they had flown it (he was over his time quota), then the

plane bringing our pilot was diverted because of a medical emergency. In

the end, all 6 of us got free round trip tickets. But spending about 18

hours in an airport was no piece of cake.

I¹m glad you are home safe and sound and hope your dinner is good. At least

you have the remicade to look forward to!

a

> Hi All, and Happy Thanksgiving-eve! (written yesterday)

>

> I’m finally headed home (I’m on the flight now), and I”ve been catching up

> on my email. I’ve enjoyed reading everyone’s remarks on gratitude, and I

> think we all have so much to be thankful for, in spite of our daily trials.

>

> I’m thankful for the three F’s: Family, Faith, and Friends.

>

> Family is so important to me, and I can’t imagine my life without the close

> family ties I have. Family, of course, starts with my husband who I love

> very much. He can be trying at times, but he’s my soulmate and there’s

> nobody I’d rather share my life with. My Mom and my brothers mean so much

> to me, also, and I’m grateful that we have such a close relationship.

>

> My Faith is another thing I am enormously grateful for. If I didn’t have my

> Heavenly Father there to lead and guide me, and to help me through the

> difficult times, I again would be lost. There are so many times I’ve faced

> trials and I’ve felt assurance that He was indeed there with me.

>

> Friends: Friends are like the icing on the cake. Sharing experiences with

> people you care about, that give and take process, gives us the extra

> support and understanding we all need. I’m so grateful for the role all of

> you have played in my life during this past year, and for the support you

> have offered me. My wish is that everyone has a healthy, happy and safe

> Thanksgiving.

>

> Oh, there’s one more thing I’m grateful for -------- That I’m FINALLY

> headed home!!!!!!!!!!!!!!!!!!!

>

> We were set to leave on Spirit Air from O’Hare at 10:15 yesterday morning.

> They had mechanical difficulties and kept postponing our departure time.

> The frustration was awful. Finally around 5PM, they cancelled our flight

> and put us up at the Holiday Inn. The most frustrating moment was when I

> was in the front of the line to get the voucher to go to the hotel, then

> they decided to move the line, and I ended up at the very end. My joints

> were killing me, and I just lost it. I told a lady off. The employees of

> the airline would have been better off from the beginning if they had

> treated us with respect, and let us know what was happening, rather than

> just avoiding the passengers. Most of the frustration was caused by the

> inept manner in s know what

>

> Needless to say, between 1300 miles of driving, a day exploring downtown

> Chicago, and a day sitting at O’Hare; my joints are killing me. Even the

> prednisone doesn’t seem to be doing much good. Oh well. Up until yesterday

> I did have a great time. I knew there’d be a price to pay.

>

> (written today)

>

> Well, it’s great to be home. I’ve been trying to catch up on email, but it

> will be a day or two until I pen any replies. I’m preparing the traditional

> thanksgiving feast, just for Stan and I. It seems like a lot of work to go

> to for the two of us (my mom suggested I buy a pre-cooked turkey and the

> trimmings at our local market, Publix), but we always spend Christmas apart

> and I want to do this for him for the one holiday we spend together. My

> joints are doing fairly well, and hopefully that will continue until my

> infusion on Tuesday. I don’t think I told you: I drove for my infusion a

> week ago Tuesday, 120 miles one way, and when I got there she called the

> Rheumy to see if I could have the infusion and he said to wait two weeks

> because I had just gotten over the pancreatitis. I wish she had thought to

> call BEFORE I drove all that way. It isn’t like she checked my vital signs

> or anything. Oh well. Either way, I’m looking forward to my infusion.

>

> I hope everyone is doing well, and having a wonderful and pain free

> Thanksgiving! Try to take it easy…

>

> Love and hugs,

> Carol

>

>

>

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  • 2 years later...
Guest guest

We believe. Happy Easter, Kathy

Love

Annette and Rich

> Dear Groupies:

>

> Just want to echo how uplifting it is to hear everyones' good news.

And to tell all of you how grateful I am for listmates who remind me

that I am not alone, and that cml is not an automatic death sentence.

>

> Happy Easter to those of you who believe and Happy Easter Bunny and

Great Candy to those who do not.

>

> Cheers,

> Kathie in Kentucky (Florida)

>

>

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  • 1 year later...

Ann,

I love your comment:

[esp. the part about let's get over it and on with it!- (smile)]

ellen

I've been thinking lately about how being ill with this all of

these years

> has gotten me to continually develop healthier habits, which in

turn are habits

> that don't hurt the earth. Paradoxically, this may save this

planet. In a way

> it's a very positive way to look at Borrelia and other critters,

as teachers

> of a sort (though maybe more of the type to rap your knuckles with

a ruler).

> Undeneath everything, I've always been a positive person (so much

so that people

> have commented on it) though in the darkest times with this there

were times

> I just couldn't feel positive and hopeful (like when it hurt so

bad to be here

> I just wanted to become non-existent). I think we may be warriors,

in the

> best sense of the word. I also think it would be great to see the

war over, get

> our medals, and get on with it.

>

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  • 1 month later...

WOW!!! Thanks so much for posting your improvement and your gratitude

to the group! That's exactly what we're here for. Good luck to you

and let us know how you continue to do.

Addy

Group co-owner

>

> To all of you;

> I want to thank you for this user group and the service you

perform. I

> had just about decided that I would suffer the effects of evil

candy (I

> think that evil candy is way too nice a term for it) for the rest

of my

> life. I had read about Zolair and understand the mechanism as well

as

> just about anyone, but decided that it probably wasn't worth the

> expense. This because, like most of you, I had tried everything

else

> that there is and evil candy was the only thing that really worked

well

> and consistently. I lurked for a long time, long enough to read

almost

> all of the previous postings and finally, through your influence, I

> started taking Zolair three months ago. I have now been free of the

> evil candy for three weeks. I had been on it nonstop for more than

two

> years with the dosage almost never below 40 mg/day and much of the

time

> over 100 mg/day. I feel great and am breathing better than I have

in

> years. I have already lost 10 lbs. and can go out in the cold with

> impunity. Thank you for the sacrifice you make to provide this

service

> and keep it going.

> Ouicho;

>

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>

> To all of you;

> I want to thank you for this user group and the service you perform. I

> had just about decided that I would suffer the effects of evil candy (I

> think that evil candy is way too nice a term for it) for the rest of my

> life. I had read about Zolair and understand the mechanism as well as

> just about anyone, but decided that it probably wasn't worth the

> expense. This because, like most of you, I had tried everything else

> that there is and evil candy was the only thing that really worked well

> and consistently. I lurked for a long time, long enough to read almost

> all of the previous postings and finally, through your influence, I

> started taking Zolair three months ago. I have now been free of the

> evil candy for three weeks. I had been on it nonstop for more than two

> years with the dosage almost never below 40 mg/day and much of the time

> over 100 mg/day. I feel great and am breathing better than I have in

> years. I have already lost 10 lbs. and can go out in the cold with

> impunity. Thank you for the sacrifice you make to provide this service

> and keep it going.

> Ouicho;

Ouicho,

Thank you so much for the kind words. It blesses my heart to know that

people are benefiting from this board.

When my doctor recommeneed xolair to me in 2003, there was no place on

the internet to look up the new miracle drug or anyone to talk to

about it, thus, I created this group.

Once again thank you,

Doug

Group founder :)

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What is the evil candy? prednisone? you are off of it totally? wow.

uca79iii <uca79iii@...> wrote:

>

> To all of you;

> I want to thank you for this user group and the service you perform. I

> had just about decided that I would suffer the effects of evil candy (I

> think that evil candy is way too nice a term for it) for the rest of my

> life. I had read about Zolair and understand the mechanism as well as

> just about anyone, but decided that it probably wasn't worth the

> expense. This because, like most of you, I had tried everything else

> that there is and evil candy was the only thing that really worked well

> and consistently. I lurked for a long time, long enough to read almost

> all of the previous postings and finally, through your influence, I

> started taking Zolair three months ago. I have now been free of the

> evil candy for three weeks. I had been on it nonstop for more than two

> years with the dosage almost never below 40 mg/day and much of the time

> over 100 mg/day. I feel great and am breathing better than I have in

> years. I have already lost 10 lbs. and can go out in the cold with

> impunity. Thank you for the sacrifice you make to provide this service

> and keep it going.

> Ouicho;

Ouicho,

Thank you so much for the kind words. It blesses my heart to know that

people are benefiting from this board.

When my doctor recommeneed xolair to me in 2003, there was no place on

the internet to look up the new miracle drug or anyone to talk to

about it, thus, I created this group.

Once again thank you,

Doug

Group founder :)

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I have to agree and thank you as well. My doctor had told me about

xolair last dec. I started taking it this past Feb. I have been steroid

free for about a month now. This group has been a great help. I have

referred people to it as well as health professionals. Thank you for

all the info you have provided and for creating this group. Hopefully

the message of xolair will get out and more people every where will be

able to benefit from it. Sharon in Westminster.

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  • 9 months later...

You go girl...............I love you and your positive attitude!!!!!!!!!!!!!

Love,

your lil' bro

Omega Realty <omega@...> wrote:

I know it has been said many of times, but I just want Gretchen, and

all of

you to know how much I appreciate you!

Welcome to all the new members...this is a great place to come with your

questions, and to find answers!

Have a great day!

Kay~ Seaside Oregon

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