Probably OT ? about Celiac disease

[Guest guest]

Dear All,

My 12 year old son has been suffering from tingling fingers for the last 3-4

years.  I suspect that he has celiac disease or at least a gluten allergy

because (i) I have Hashimoto's disease, my anti-bodies have gone down since

going GF and I have multiple food sensitivities.  I suspect that my gut issues

are the source of my thyroid/adrenal issues.  (ii) I have used a Food

Intolerance Home Testing kit that I bought over the Internet and it has shown up

that he has multiple food sensitivities which makes me think that he has a

damaged gut (iii) Tingling extremities is a symptom of celiac disease.  I also

have burning feet.

I live in France and I would like to find a doctor that is good at diagnosing

celiac disease.  I have tried to get myself diagnosed by my local doctor but it

was really an uphill struggle to get him to admit that it was possible for

someone over the age of 10 to have celiac disease and I have read that the

average period for diagnosing CD is about 10 years.  I also had great fun with

the laboratory that did my tests, who insisted that they knew best when it came

to deciding which tests to give me!  In the end I gave up and just went GF. (And

behold, there was a lowering of my Hashi antibodies!)  I do not want to wait 10

years to get better (I am 48).  For my son, however, I am in a hurry. 

So if anybody could give me the name of a good doctor specialised in treating

and/or diagnosing CD in continental Europe or the U.K. I would be very

grateful.  I would like to get a diagnosis one way or the other and if it is

positive, get him on LDN before he leaves home.

I apologise if this is considered off topic for this group.  If that's the case

please contact me directly.  May be there is a better group to address this

problem to.

MacGilchrist

[Guest guest]

My understanding is you cannot dx celiac unless the person is actively consuming gluten.  Also, the point at which the tests show positive for celiac is when there has already been considerable damage to the intestinal lining.  So, the person can be reactive and symptomatic but not test positive if there hasn't been enough intestinal damage yet.  At least that was what I had read.

 

So ... my 2 cents - if going off gluten helped you keep it up.  Shift your son to a gluten free diet and see if his symptoms improve.  If they do you have your answer.  It will save you a lot of time and headache.

 

Just my 2 cents.

 

Jaxi

On Wed, Jan 5, 2011 at 8:42 AM, MacGilchrist <s.macgilxrist@...> wrote:

Dear All,My 12 year old son has been suffering from tingling fingers for the last 3-4years.  I suspect that he has celiac disease or at least a gluten allergy

because (i) I have Hashimoto's disease, my anti-bodies have gone down sincegoing GF and I have multiple food sensitivities.  I suspect that my gut issuesare the source of my thyroid/adrenal issues.  (ii) I have used a Food

Intolerance Home Testing kit that I bought over the Internet and it has shown upthat he has multiple food sensitivities which makes me think that he has adamaged gut (iii) Tingling extremities is a symptom of celiac disease.  I also

have burning feet.I live in France and I would like to find a doctor that is good at diagnosingceliac disease.  I have tried to get myself diagnosed by my local doctor but itwas really an uphill struggle to get him to admit that it was possible for

someone over the age of 10 to have celiac disease and I have read that theaverage period for diagnosing CD is about 10 years.  I also had great fun withthe laboratory that did my tests, who insisted that they knew best when it came

to deciding which tests to give me!  In the end I gave up and just went GF. (Andbehold, there was a lowering of my Hashi antibodies!)  I do not want to wait 10years to get better (I am 48).  For my son, however, I am in a hurry. 

So if anybody could give me the name of a good doctor specialised in treatingand/or diagnosing CD in continental Europe or the U.K. I would be verygrateful.  I would like to get a diagnosis one way or the other and if it is

positive, get him on LDN before he leaves home.I apologise if this is considered off topic for this group.  If that's the caseplease contact me directly.  May be there is a better group to address this

problem to. MacGilchrist------------------------------------