RE: MS pain/LDN/Baclofen/gabapentian

[Guest guest]

Hi Cathe I had extreme pain/spasms and spasticity and now have a baclofen pump and the lowest dose gives me total relief from the skin pain, spasms and a lot of spasticity. I could manage without it. BUT I got the pump before I started LDN and I know a lot of people get relief just through taking LDN. Dr Bob Lawrence is very anti baclofen and says he has got so much relief from gabapentian that he only has to take it once a week now. So I would try that first. Keep up the LDN. Trish Hi all, and Happy New Year.I was diagnosed with RR MS in 1996 and have tried Avonex, Copaxone, Betaseron, and mitoxantrone at different times. Recently found LDN through a friend with IBS who has had success.Currently, I am in a power chair all day, and having a lot of trouble sleeping at night. During the last year I have started having spasms at times in my hip flexors, and sometimes in my knee. These have gotten more painful as time has gone on. I take 20mg baclofen morning and night for this. Sometimes take some zanaflex as well when really bad.When I sleep I do not move much, except that during the night my legs tend to draw up more. Before starting LDN I was waking up about every hour to go to the bathroom. Since LDN I am sleeping sometimes 3-4 hours at a time. My bladder seems to be more behaved overall.Started LDN at 3 mg at night in mid November. By the end of the 1st month, was starting to feel some tingling in my legs, and standing up was getting a little easier. Missed a few days because of Rx problem going into 2nd month. Since then, the spasms have been much worse and more painful, especially when I first wake up in the morning. The more I can make myself move around a little, the less it hurts afterward. I sleep on my side, and I get pain in my hips during the night. In the past, this happened occasionally, and I would use Darvocet for a day or two and it would pass. Now all I am taking is Tylenol, which takes the edge off sometimes, but certainly doesn't knock it out. It has been really bad the past 10 days. Any suggestions for what I could try for pain?Also, I have a touch of asthma, and had started using Advair. I know this has steroids in it, and was wondering if anyone else has used this with success with LDN, or if you have other suggestions.Thanks in advance for input.Cathe