Re: What's a fair trial of LDN, give it more time?

[Guest guest]

I wish I could steer you to the info that you are looking for, but not sure of

where to find such a thing. Since no clinical trials have been done, I don't

think you are going to find " cold hard facts " .

How long have you been on LDN?

I have recently realized that I think the LDN has helped with my digestive

system! I have been on LDN for about 1.5 years.

Not sure how much the LDN is costing you, but I would say give it more time.

Seems like you have been sick for 30years?!

Perhaps something is keeping the LDN from working for you? I see Candida

mentioned a lot, and I would imagine there are other things.

GG

>

> I would like to know who comes up with staying on LDN 6-9-12 months before

> giving up. I would like some hard cold facts on the proof of this if there

> is any. I personally have a hard time believing that it would take that

> long and I am contemplating refilling it one more time before I call it

> quits. My mind says to me , that if you are taking a drug, unless its a

placebo,

> that your body knows. If I am on the 4.5 dose since day one 7 wks ago I

> have not noticed anything, and then you have ALL these people that have

> barely taken the minimum dose and have had major side effects,,,,,,,,,,,,,,,I

> just dont quite get it.

>

> My mind also tells me that I have been in chronic pain for 30 years that it

> is just not going to go away overnight, and then I am also told by some

> intelligent thyroid people that once my thyroid condition gets better then

> all this will get better too. So I am inclined to believe that if fibro is a

> result of hypo then when my hypo is better the fibro will be

> better..................

>

> Just saying......................

>

[Guest guest]

I have only been on LDN for only 7 weeks, but I do believe being in chronic pain for over 30 years and being on every narcotic there is to the point where nothing works anymore unless I go on the duralgesic patch and then I am so out of it that I might as well be dead, that's no life, and those patches are for the end of life, and I have still too much fight in me.

MAD Myra

[Guest guest]

Ouch, yeah. I had a Neuroligist put me on Fentanyl patches, I saw him for 2

years or so, and tried med after med! I went to my good doc, and he was like

what are you going to do about this? I believe he is the one who told me that

Fentanyl is what they give to dying cancer patients. WTF!!

The pain just kept getting worse, the Neurologist diagnosed me with Myofascial

Pain Syndrome and I was eventually diagnosed with Fibro by a Rheumatologist,

although they are rerather useless for this disease also, that's my general take

on things.

So I finally found a good Dr on the co-cure list and he has helped me

tremendously in the last 2+ years! I just went along with the system for the

first 5 years, but have " luckily " found my way to better days!

GG

PS I have my Dr write a script for massages so I can use my FSA to purchase

myofascial release treatments (ie massages).

>

> I have only been on LDN for only 7 weeks, but I do believe being in chronic

> pain for over 30 years and being on every narcotic there is to the point

> where nothing works anymore unless I go on the duralgesic patch and then I

> am so out of it that I might as well be dead, that's no life, and those

> patches are for the end of life, and I have still too much fight in me.

>

> MAD Myra

>