Re: where do you all get yours?

[Guest guest]

This is why many of us just order it from India.  In the long and short run it is less expensive even than insurance paying unless your co-pay is zero.

 

All Day Chemist in India is good.  I have ordered from them twice with no problems.  Just got my second order a week ago.  If you make it yourself by mixing a 50 mg tab with 50 ml of distilled water it makes for very easy adjustment of dose.

 

I suspect I could talk my doctor in to prescribing it, but cannot see my way clear to the increased cost that would entail so I am not going to bother with it. 

 

JM2C,

 

Jaxi (LDN for approx 1 year)

On Mon, Feb 7, 2011 at 1:56 PM, <liv4him@...> wrote:

Hi,I'm already finding my husband's neurologist to be very resistant to prescribing the LDN.  Today, right off they said " No, we don't prescribe that here " .  They referred me to an MS clinic over 2 hours away, and they will fax his records there, but they won't recommend the LDN.  I need it to be prescribed by a dr. so the insurance will pay for it, but for some reason the neurologist my husband first saw (the office people anyway) seem to act like you are offering them a snake.  We really don't want to drive 2 hours (we've already invested hours of driving for other related appointments) just so they can prescribe it.  Does everyone have this trouble getting LDN?

Thanks,Michèle------------------------------------

[Guest guest]

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>

> Hi,

>

> I'm already finding my husband's neurologist to be very resistant to

prescribing the LDN. Today, right off they said " No, we don't prescribe that

here " . They referred me to an MS clinic over 2 hours away, and they will fax

his records there, but they won't recommend the LDN. I need it to be prescribed

by a dr. so the insurance will pay for it, but for some reason the neurologist

my husband first saw (the office people anyway) seem to act like you are

offering them a snake. We really don't want to drive 2 hours (we've already

invested hours of driving for other related appointments) just so they can

prescribe it. Does everyone have this trouble getting LDN?

>

> Thanks,

>

> Michèle

>

[Guest guest]

I would never ask ANY neurologist that I have seen for LDN.  In my experience they are the MOST conservative!!  I went and got it from a local clinic just told the doctor about it (she had never heard of it) & said I wanted it.  She gave it to me.  I am sure Crystal at Crystals MS, ME, LDN website will give you a doctor who will email you a scrip.Trish Hi,I'm already finding my husband's neurologist to be very resistant to prescribing the LDN. Today, right off they said " No, we don't prescribe that here " . They referred me to an MS clinic over 2 hours away, and they will fax his records there, but they won't recommend the LDN. I need it to be prescribed by a dr. so the insurance will pay for it, but for some reason the neurologist my husband first saw (the office people anyway) seem to act like you are offering them a snake. We really don't want to drive 2 hours (we've already invested hours of driving for other related appointments) just so they can prescribe it. Does everyone have this trouble getting LDN? Thanks,Michèle

[Guest guest]

On Mon, 07 Feb 2011 14:56:48 -0500, <liv4him@...> wrote:

> Hi,

>

> I'm already finding my husband's neurologist to be very resistant to

> prescribing the LDN. Today, right off they said " No, we don't prescribe

> that here " . They referred me to an MS clinic over 2 hours away, and

> they will fax his records there, but they won't recommend the LDN. I

> need it to be prescribed by a dr. so the insurance will pay for it,

In my experience it's less expensive NOT to go through insurance. When my

husband and I had Blue Cross they took a $40 co-pay for a month's supply.

I pay $60-something for a three-month's supply without going through

insurance. LDN is a generic drug, as you know. You could order it without

an Rx from All Day Chemist, e.g., as others have suggested. Or you could

get a non-neurologist to prescribe and order it from a compounding

pharmacy like Skip's, as many do here (if you can get your regular MD to

prescribe it ask him/her for a three-month supply, which is very

cost-effective.

I take LDN for Crohn's; my husband takes it for post-polio syndrome. He

initially got it without Rx from All Day Chemist, then asked his

neurologist -- a well-known post-polio specialist -- for a prescription.

The guy is very decent but needed " time to look into it. " That took him a

half-year and then he finally said OK. In the meantime Ed got his regular

MD to prescribe it for him -- then told the neurologist; who was, at that

point, OK with it. (Ed would have kept taking it, regardless, but he was

glad the neurologist did accept it, finally.)

n

______________________________

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[Guest guest]

Yes, nearly all of us. My neurologist flatly refused as well, as did my Mother's

doctor for her Crohn's. We all simply bought it online. It is cheaper than copay

on most insurance, and is worth any penny that you spend. Then, when the doctors

see the positive results and you finally reveal that you have been using LDN,

some of them will come around and prescribe it compounded, where you can have

the insurance pay for it.

There are several sites where you can order it, from India, Canada or Mexico. We

use http://NaltrexoneRx.com.mx , but any of them are safe and accurate. Most

will supply the dilution, if asked, I believe (or it is repeated here multiple

times for those who ask.)

Don't let a silly doctor stop you from finally taking hold of your own health,

or your husband's. Remember LDN can do no harm, and for a lot of us, does a

world of good.

Hang in there,

Francie

http://LDN-for-MS.com

>

> Hi,

>

> I'm already finding my husband's neurologist to be very resistant to

prescribing the LDN. Today, right off they said " No, we don't prescribe that

here " . They referred me to an MS clinic over 2 hours away, and they will fax

his records there, but they won't recommend the LDN. I need it to be prescribed

by a dr. so the insurance will pay for it, but for some reason the neurologist

my husband first saw (the office people anyway) seem to act like you are

offering them a snake. We really don't want to drive 2 hours (we've already

invested hours of driving for other related appointments) just so they can

prescribe it. Does everyone have this trouble getting LDN?

>

> Thanks,

>

> Michèle

>

[Guest guest]

Thanks so much to everyone who is responding to this - VERY helpful, all of you!

I was wondering (and I know you're not doctors, but frankly I trust YOU more

than THEM right now!)....I am thinking I may order from All Day Chemist, in

India, and make a solution from the 50 mg. tablets.

What should I start my husband on? He wants to wait until spring break (he's a

teacher) because I told him of the possible sleep disturbances, but I'd like to

not wait since I think the sooner the better. Could/Should I start him slow to

avoid that possible side effect, or is that what I should do anyway?

He has " parkinsonism " - no left arm swing, lack of dexterity/stiffness in hand

on same side, facial mask (effects his speech), loud swallowing, foot

contractions, some tremors (I feel the bed vibrating at night some

times!)....Cardio-Ion panel showed nothing significant, IGeneX was ++ on one

band and + on another (neither significant, but still could indicate Lyme's),

mercury was elevated but still within normal range otherwise no heavy metals

indicated (never did do the chelation challenge), venous blood gases test showed

not getting enough O2 to tissues, adrenals were suppressed....He's never welded,

lived on a farm, our water tests only positive for choliform (otherwise good),

can't remember any major head injuries (just minor childhood ones), BUT he did

grow up on Long Island!!! :-) We could possible have mold but we never tested

the house or him.

What's the usual protocol for someone starting out - 3 mg? How quickly do you

work up to 4.5?

Thanks, all you " docs " out there! God bless you all - you're a great, helpful

group of people!

In Him,

Michèle

RE: [low dose naltrexone] where do you all get yours?

I would never ask ANY neurologist that I have seen for LDN. In my experience

they are the MOST conservative!! I went and got it from a local clinic just told

the doctor about it (she had never heard of it) & said I wanted it. She gave it

to me. I am sure Crystal at Crystals MS, ME, LDN website will give you a doctor

who will email you a scrip.

Trish

Hi,

I'm already finding my husband's neurologist to be very resistant to prescribing

the LDN. Today, right off they said " No, we don't prescribe that here " . They

referred me to an MS clinic over 2 hours away, and they will fax his records

there, but they won't recommend the LDN. I need it to be prescribed by a dr. so

the insurance will pay for it, but for some reason the neurologist my husband

first saw (the office people anyway) seem to act like you are offering them a

snake. We really don't want to drive 2 hours (we've already invested hours of

driving for other related appointments) just so they can prescribe it. Does

everyone have this trouble getting LDN?

Thanks,

Michèle

[Guest guest]

Crystal keeps a list of prescribing doctors.

angelindisguiseldn@...

some do Telephone consult

I am using the Free version of SPAMfighter.SPAMfighter has removed 1875 of my spam emails to date.Do you have a slow PC? Try free scan!

[Guest guest]

Thanks so much for your help and encouraging words!

Yes, nearly all of us. My neurologist flatly refused as well, as did my Mother's

doctor for her Crohn's. We all simply bought it online. It is cheaper than copay

on most insurance, and is worth any penny that you spend. Then, when the doctors

see the positive results and you finally reveal that you have been using LDN,

some of them will come around and prescribe it compounded, where you can have

the insurance pay for it.

There are several sites where you can order it, from India, Canada or Mexico. We

use http://NaltrexoneRx.com.mx , but any of them are safe and accurate. Most

will supply the dilution, if asked, I believe (or it is repeated here multiple

times for those who ask.)

Don't let a silly doctor stop you from finally taking hold of your own health,

or your husband's. Remember LDN can do no harm, and for a lot of us, does a

world of good.

Hang in there,

Francie

http://LDN-for-MS.com

>

> Hi,

>

> I'm already finding my husband's neurologist to be very resistant to

prescribing the LDN. Today, right off they said " No, we don't prescribe that

here " . They referred me to an MS clinic over 2 hours away, and they will fax his

records there, but they won't recommend the LDN. I need it to be prescribed by a

dr. so the insurance will pay for it, but for some reason the neurologist my

husband first saw (the office people anyway) seem to act like you are offering

them a snake. We really don't want to drive 2 hours (we've already invested

hours of driving for other related appointments) just so they can prescribe it.

Does everyone have this trouble getting LDN?

>

> Thanks,

>

> Michèle

>

[Guest guest]

I started at 4.5, the sleep disturbance was not a problem since I already had sleep disturbance, but it was not bad. I would start at 4.5 and see what happens, as long as you are using the liquid it is easy to change the dosage. I have found Allday to be fine and I usually order 50 tablets at a time to reduce the cost.SterlingFrom: liv4him@... <liv4him@...>Subject: Re: [low dose naltrexone] where do you all get yours?"Trish Kerbel" <pmkerbel@...>Cc: low dose naltrexone Date: Tuesday, February 8, 2011, 7:34 AMThanks so much

to everyone who is responding to this - VERY helpful, all of you!I was wondering (and I know you're not doctors, but frankly I trust YOU more than THEM right now!)....I am thinking I may order from All Day Chemist, in India, and make a solution from the 50 mg. tablets. What should I start my husband on? He wants to wait until spring break (he's a teacher) because I told him of the possible sleep disturbances, but I'd like to not wait since I think the sooner the better. Could/Should I start him slow to avoid that possible side effect, or is that what I should do anyway?He has "parkinsonism" - no left arm swing, lack of dexterity/stiffness in hand on same side, facial mask (effects his speech), loud swallowing, foot contractions, some tremors (I feel the bed vibrating at night some times!)....Cardio-Ion panel showed nothing significant, IGeneX was ++ on one band and + on another (neither significant, but still

could indicate Lyme's), mercury was elevated but still within normal range otherwise no heavy metals indicated (never did do the chelation challenge), venous blood gases test showed not getting enough O2 to tissues, adrenals were suppressed....He's never welded, lived on a farm, our water tests only positive for choliform (otherwise good), can't remember any major head injuries (just minor childhood ones), BUT he did grow up on Long Island!!! :-) We could possible have mold but we never tested the house or him.What's the usual protocol for someone starting out - 3 mg? How quickly do you work up to 4.5?Thanks, all you "docs" out there! God bless you all - you're a great, helpful group of people!In Him,Michèle RE: [low dose naltrexone] where do you all get yours?I would never ask ANY neurologist that I have seen for LDN. In my experience they are the MOST conservative!! I went and got it from a local clinic just told the doctor about it (she had never heard of it) & said I wanted it. She gave it to me. I am sure Crystal at Crystals MS, ME, LDN website will give you a doctor who will email you a scrip. Trish Hi, I'm already finding my husband's neurologist to be very resistant to prescribing the LDN. Today, right off they said "No, we don't prescribe

that here". They referred me to an MS clinic over 2 hours away, and they will fax his records there, but they won't recommend the LDN. I need it to be prescribed by a dr. so the insurance will pay for it, but for some reason the neurologist my husband first saw (the office people anyway) seem to act like you are offering them a snake. We really don't want to drive 2 hours (we've already invested hours of driving for other related appointments) just so they can prescribe it. Does everyone have this trouble getting LDN? Thanks, Michèle

[Guest guest]

I would try sooner than spring break.It's possible your husband won't have sleep disturbances. My son started LDN at the beginning of January. He's on 4.5 mg and hasn't had any sleep problems at all. He was thinking that vivid dreams might be fun (he's 19!) but to his disappointment, his sleep patterns haven't changed at all.

Perhaps start on the Friday of President's Day weekend.Then you'd at least have an extended weekend to try it out.b

[Guest guest]

Now that's funny! :-D I ordered the LDN yesterday, so should have it just

about the time you said!

Thanks to all that responded and encouraged. The order went through fine, they

are processing it, and we will start as soon as we get it. Some advised a

morning dose instead of evening, starting at anywhere from .5 to 1.2 mg.

Anybody differ?

Re: [low dose naltrexone] where do you all get yours?

I would try sooner than spring break.It's possible your husband won't have sleep

disturbances. My son started LDN at the beginning of January. He's on 4.5 mg and

hasn't had any sleep problems at all. He was thinking that vivid dreams might be

fun (he's 19!) but to his disappointment, his sleep patterns haven't changed at

all.

Perhaps start on the Friday of President's Day weekend.Then you'd at least have

an extended weekend to try it out.

b

[Guest guest]

I started ldn two nights ago at 4.5 (crohns) and the first night I woke up a little more frequently through the night, but last night slept really well.  Dreams were not much different than normal (I also thought that sounded pretty cool, and I'm definitely not 19:)

On Thu, Feb 10, 2011 at 5:42 AM, <liv4him@...> wrote:

 

Now that's funny! :-D I ordered the LDN yesterday, so should have it just about the time you said!

Thanks to all that responded and encouraged. The order went through fine, they are processing it, and we will start as soon as we get it. Some advised a morning dose instead of evening, starting at anywhere from .5 to 1.2 mg. Anybody differ?

Re: [low dose naltrexone] where do you all get yours?

I would try sooner than spring break.It's possible your husband won't have sleep disturbances. My son started LDN at the beginning of January. He's on 4.5 mg and hasn't had any sleep problems at all. He was thinking that vivid dreams might be fun (he's 19!) but to his disappointment, his sleep patterns haven't changed at all.

Perhaps start on the Friday of President's Day weekend.Then you'd at least have an extended weekend to try it out.

b

-- Amy Paliwoda213.249.5861amypaliwoda.com