Guest guest Posted January 30, 2011 Report Share Posted January 30, 2011 I would like to know the same about Parkinson's/parkinsonism. We are considering LDN but I'm not seeing much in the way of success stories, or responses from people who have used it for PD. Is there much evidence out there or personal experience in the way of relieve of symptoms using LDN for PD? If you don't have time to answer, I wouldn't even mind if you just hit " reply " as a positive confirmation that LDN has helped you or a loved one with Parkinson's. Thank you so much, Michele [low dose naltrexone] RA success storys  Hi, Can any of you point me to some RA success storys with LDN?? God Bless, Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 Hello Michele I stumbled on this today while looking for something else: http://forum.ldnresearchtrust.org/index.php?/forum/66-parkinsons-ldn-experiences\ / You might find the kind of info you're looking for here. K.C. > > I would like to know the same about Parkinson's/parkinsonism. > > We are considering LDN but I'm not seeing much in the way of success stories, or responses from people who have used it for PD. Is there much evidence out there or personal experience in the way of relieve of symptoms using LDN for PD? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 My girlfriend in Texas has severe Parkinson's. She saw my success with MS and agreed to try the LDN and I sent her some pills to dissolve. When she started, she was essentially bed bound and nearly paralyzed. Within 2 weeks, she was driving her car and when she visited, nearly jumped out the door with joy to show how much it had helped. She used a cane, but left the walker behind. When she saw her doctor, she excitedly told him what she was taking and he told her that it was a " lethal combination " with some of her other drugs. She quit, went into severe depression, and did not tell me that she quit. The next time I saw her, she was just a ghost of what she had been. She was too depressed and foggy to make good decisions or think straight. Another friend and I convinced her to get back on the LDN and it did help a bit, but by that time, the doctors had her convinced that the only hope was brain surgery to cut the spasm connections. I was saddened and traumatized that the doctors had convinced her to go off of the LDN with asinine fear tactics. Sometimes my anger at the American medical establishment knows no bounds. Yes, they will make $100,000 with her brain surgery, but she will probably never be able to drive again, or thrive as she did for that short time on LDN. I am not sure if you call it a " success story " with Parkinson's, as we don't know how much help it could have been long term, but I think that it could have been. It was not a total " cure " by any means, but there is no down side, no negative side effects, no big expense, and her doctors were liars and fools when they told her that it could not be combined with the other (very destructive) drugs she was taking. It is an old motto around here: " What have you got to lose? " Francie http://LDN-for-MS.com > I would like to know the same about Parkinson's/parkinsonism. > > We are considering LDN but I'm not seeing much in the way of success stories, or responses from people who have used it for PD. Is there much evidence out there or personal experience in the way of relieve of symptoms using LDN for PD? > > If you don't have time to answer, I wouldn't even mind if you just hit " reply " as a positive confirmation that LDN has helped you or a loved one with Parkinson's. > > Thank you so much, > > Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 Wow, thanks for that story! If it hadn't been for the doctor (who is still PRACTICING medicine - will they ever get good at it? :-D) I would call that a success story! Michele [low dose naltrexone] Re: PD success stories  My girlfriend in Texas has severe Parkinson's. She saw my success with MS and agreed to try the LDN and I sent her some pills to dissolve. When she started, she was essentially bed bound and nearly paralyzed. Within 2 weeks, she was driving her car and when she visited, nearly jumped out the door with joy to show how much it had helped. She used a cane, but left the walker behind. When she saw her doctor, she excitedly told him what she was taking and he told her that it was a " lethal combination " with some of her other drugs. She quit, went into severe depression, and did not tell me that she quit. The next time I saw her, she was just a ghost of what she had been. She was too depressed and foggy to make good decisions or think straight. Another friend and I convinced her to get back on the LDN and it did help a bit, but by that time, the doctors had her convinced that the only hope was brain surgery to cut the spasm connections. I was saddened and traumatized that the doctors had convinced her to go off of the LDN with asinine fear tactics. Sometimes my anger at the American medical establishment knows no bounds. Yes, they will make $100,000 with her brain surgery, but she will probably never be able to drive again, or thrive as she did for that short time on LDN. I am not sure if you call it a " success story " with Parkinson's, as we don't know how much help it could have been long term, but I think that it could have been. It was not a total " cure " by any means, but there is no down side, no negative side effects, no big expense, and her doctors were liars and fools when they told her that it could not be combined with the other (very destructive) drugs she was taking. It is an old motto around here: " What have you got to lose? " Francie http://LDN-for-MS.com > I would like to know the same about Parkinson's/parkinsonism. > > We are considering LDN but I'm not seeing much in the way of success stories, or responses from people who have used it for PD. Is there much evidence out there or personal experience in the way of relieve of symptoms using LDN for PD? > > If you don't have time to answer, I wouldn't even mind if you just hit " reply " as a positive confirmation that LDN has helped you or a loved one with Parkinson's. > > Thank you so much, > > Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 Hi There One hell of a success story at the beginning, but it makes me so angry that this doctor could turn the situation around just because of who and what he is. May we wish that the future brings more education to the likes of him, before he destroys someone elses chances and life. All Best Wishes Ness, UK [low dose naltrexone] Re: PD success stories My girlfriend in Texas has severe Parkinson's. She saw my success with MS and agreed to try the LDN and I sent her some pills to dissolve. When she started, she was essentially bed bound and nearly paralyzed. Within 2 weeks, she was driving her car and when she visited, nearly jumped out the door with joy to show how much it had helped. She used a cane, but left the walker behind.When she saw her doctor, she excitedly told him what she was taking and he told her that it was a "lethal combination" with some of her other drugs. She quit, went into severe depression, and did not tell me that she quit. The next time I saw her, she was just a ghost of what she had been. She was too depressed and foggy to make good decisions or think straight. Another friend and I convinced her to get back on the LDN and it did help a bit, but by that time, the doctors had her convinced that the only hope was brain surgery to cut the spasm connections. I was saddened and traumatized that the doctors had convinced her to go off of the LDN with asinine fear tactics. Sometimes my anger at the American medical establishment knows no bounds. Yes, they will make $100,000 with her brain surgery, but she will probably never be able to drive again, or thrive as she did for that short time on LDN.I am not sure if you call it a "success story" with Parkinson's, as we don't know how much help it could have been long term, but I think that it could have been. It was not a total "cure" by any means, but there is no down side, no negative side effects, no big expense, and her doctors were liars and fools when they told her that it could not be combined with the other (very destructive) drugs she was taking.It is an old motto around here: "What have you got to lose?"Franciehttp://LDN-for-MS.com > I would like to know the same about Parkinson's/parkinsonism.> > We are considering LDN but I'm not seeing much in the way of success stories, or responses from people who have used it for PD. Is there much evidence out there or personal experience in the way of relieve of symptoms using LDN for PD?> > If you don't have time to answer, I wouldn't even mind if you just hit "reply" as a positive confirmation that LDN has helped you or a loved one with Parkinson's.> > Thank you so much,> > Michele Quote Link to comment Share on other sites More sharing options...
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