Herx or Reaction to LDN (1mg) - Help Please!

[Guest guest]

I have Chronic Lyme (10 years+), diagnosed 2 years ago. I posted last night

that I was concerned about taking my first dose of LDN 2 mg due to my weird

allergic reactions. I ended up taking 1 mg and it's a good thing I did! I was

up most of the night with severe leg cramps. My Lyme pain is mostly in my legs

(like an aching toothache) and I am on pain meds. I did follow my doctor's

orders to make sure that there is 6 hours between taking LDN, before and after.

I'm thinking this is a Herx reaction as my legs are also burning now (I have not

taken my paid meds yet).

Sending husband to get bananas as they used to help with occasional calf muscle

cramping.

I think I should cut back to .05 mg? I'll also join the other group that

was posted for various LDN dosages.

Thanks for your help.

Tired Lymie

[Guest guest]

LDN can cause chronic increased pain in those with lyme. Are you currently

treating the lyme, if not, you need to be. Dr. Bihari sometimes had to have a

lyme patient stop LDN until the lyme treatment had kicked in better and Bihari

later would re-introduce LDN.

, LDN user over 7 yrs for progressive Ms

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>

> I have Chronic Lyme (10 years+), diagnosed 2 years ago. I posted last night

that I was concerned about taking my first dose of LDN 2 mg due to my weird

allergic reactions. I ended up taking 1 mg and it's a good thing I did! I was

up most of the night with severe leg cramps. My Lyme pain is mostly in my legs

(like an aching toothache) and I am on pain meds. I did follow my doctor's

orders to make sure that there is 6 hours between taking LDN, before and after.

>

> I'm thinking this is a Herx reaction as my legs are also burning now (I have

not taken my paid meds yet).

>

> Sending husband to get bananas as they used to help with occasional calf

muscle cramping.

>

> I think I should cut back to .05 mg? I'll also join the other group

that was posted for various LDN dosages.

>

> Thanks for your help.

>

> Tired Lymie

>

[Guest guest]

What pain medicine are you taking specificially? Naltrexone is an opiate

agonist. If you are taking any opiate, you must stop it for

10 days to two weeks before starting NDL. If you are not taking an

opiate, I had these responses to LDN, but on the third day. I am going to post

about this. I think it may be too little that causes this. I started taking 3

mgs and that felt much better on Day 1.

Sue

>

> I have Chronic Lyme (10 years+), diagnosed 2 years ago. I posted last night

that I was concerned about taking my first dose of LDN 2 mg due to my weird

allergic reactions. I ended up taking 1 mg and it's a good thing I did! I was

up most of the night with severe leg cramps. My Lyme pain is mostly in my legs

(like an aching toothache) and I am on pain meds. I did follow my doctor's

orders to make sure that there is 6 hours between taking LDN, before and after.

>

> I'm thinking this is a Herx reaction as my legs are also burning now (I have

not taken my paid meds yet).

>

> Sending husband to get bananas as they used to help with occasional calf

muscle cramping.

>

> I think I should cut back to .05 mg? I'll also join the other group

that was posted for various LDN dosages.

>

> Thanks for your help.

>

> Tired Lymie

>