Guest guest Posted July 28, 2006 Report Share Posted July 28, 2006 In a message dated 7/28/2006 3:43:21 PM Eastern Standard Time, literacyandslp@... writes: I am newish member, mostly lurking since June. I could have gotten Lyme either at our place up north (house is on 30 acres of woods) or at our archery club which is on 100 acres of woods. Either way, I see many ticks and find them crawling all over me, my hubbie and Hogan, our black Lab. While I remember at least three tick bites in the last year, I don't remember the one I think gifted me with Lyme Disease. My first symptoms (arm pain and cramping) were over Memorial Day weekend. Then the more serious symptoms hit me hard the following week. Migratory joint and muscle pain, to the point it was nearly impossible Hello, yes Edema goes hand and foot with Lyme disease. You sound as if you are terrible infected with the Lyme bacteria and need to stay on Doxy desperately for at least two months to kill off the bacteria in the bloodstream. Since you have only had Lyme since several months ago you might be aqble to prevent yourself from being stricken with chronic Lyme. Two months is not nearly enough time to eliminate the Lyme bacteria that will have hidden itself in your cell membrains and goes into a cyst stage where antiboitics cannot kill it. It just keeps coming out and continuely reinfects one. I have had Lyme since 94 and have had all kind of misadventures. It can cause severe joint difficulties as well as edema. I have never talked with anyone in the Lyme community that seems to know exactly what causes the edema or how best to eliminate it. Killing off the bacteria can probably cause your problem of Edema to end, but it is very hard to kill all of the bacteria or even enough to be better. I believe the bacteria closes off the blood vessels and clogs them to such an extent that it causes edema. All my best wishes and prayers for your complete recovery. Sidney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2006 Report Share Posted July 28, 2006 I have the swelling in hands and feet/ankles a little, not too bad, but noticeable, it comes and goes for me and is not a major complaint but it does act up right on the days when my joints are also aching. My joints don't ache constantly. Sorry you are not finding doctors that believe. I hope you are reading some of the books and also that you understand the difference between the ELISA and the Western Blot. I tested neg on my test. I have lots of symptoms that my kids also had, and they tested positive, we were all sick in the same week, started at the same time.now my symptoms are worse. I am convinced I have it but just am testing negative. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2006 Report Share Posted July 29, 2006 EDEMA can also be signs of other problems such as kidney, liver and heart and doesn't have to be lyme related. If I were you since you can't see an LLMD until Oct I would get this swelling checked out to make SURE it's coming from the lyme and not something else.. Robyn -- [ ] Edema Question Good morning! I am newish member, mostly lurking since June. I could have gotten Lyme either at our place up north (house is on 30 acres of woods) or at our archery club which is on 100 acres of woods. Either way, I see many ticks and find them crawling all over me, my hubbie and Hogan, our black Lab. While I remember at least three tick bites in the last year, I don't remember the one I think gifted me with Lyme Disease. My first symptoms (arm pain and cramping) were over Memorial Day weekend. Then the more serious symptoms hit me hard the following week. Migratory joint and muscle pain, to the point it was nearly impossible to climb the stairs to go to bed. I actually told my husband that I might need to either sleep in the downstairs bedroom or he would have to help me up the stairs. The knee and ankle pain were such that I could not climb the stairs without support from my arms, but my wrists and hands were so inflammed I could not use them for that purpose. I have been to a walkin clinic, my family doctor, a rheumatologist, and a family doctor who practices in the upper peninsula of Michigan. All of them have drawn blood samples and done the Lyme Liter (is that the same as an ?) and all have resulted in a negative result. I figure the first one was negative because it was too early to test positive, but the later tests were negative because I was on antibiotics. I am self treating since the prescription for Doxycycline ran out two weeks ago. Using teasel root as an herbal antibiotic, as per Fox protocol. I have been at maximum dosage for about a week. Yesterday, my symptoms became more uncomfortable than before with migratory pain in my hands, wrist, knees and ankles. And neck. What I am more concerned with is the edema in my ankles and was wondering if there is any mention anywhere about that. I have been reading a lot and thought I read somewhere about edema in the ankles with Lyme Disease. Does anyone know what it is from, why it occurs? I have to wait until October to see a LLMD to find out if no one here knows. Cheryll in Wisconsin For free up to date information about Lyme disease and the known co-infections delivered to your email address see: Robynns_Lyme_List/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2006 Report Share Posted July 29, 2006 Hi Cheryll, I have the exact same problem! When I am swollen I can't even think of stairs! It's horrible isn't it? I just got a picc line put in...YES, insurance FINALLY paid for me to do this! I have had Lyme, Erlichia, Bartonella etc for three years...possibly was a reinfection. Symptoms hit me within three weeks of the bite but I didn't know what it was. I take 25 mgs. of HCTZ daily. I don't know if it helps with the edema, but it sure can't hurt at this point. I drink extra water when I am swollen, then lay on my left side. I think that was what I was told to do when I was pregnant...see if that helps? Good luck to you! Jackie in NH [ ] Edema Question Good morning! I am newish member, mostly lurking since June. I could have gotten Lyme either at our place up north (house is on 30 acres of woods) or at our archery club which is on 100 acres of woods. Either way, I see many ticks and find them crawling all over me, my hubbie and Hogan, our black Lab. While I remember at least three tick bites in the last year, I don't remember the one I think gifted me with Lyme Disease. My first symptoms (arm pain and cramping) were over Memorial Day weekend. Then the more serious symptoms hit me hard the following week. Migratory joint and muscle pain, to the point it was nearly impossible to climb the stairs to go to bed. I actually told my husband that I might need to either sleep in the downstairs bedroom or he would have to help me up the stairs. The knee and ankle pain were such that I could not climb the stairs without support from my arms, but my wrists and hands were so inflammed I could not use them for that purpose. I have been to a walkin clinic, my family doctor, a rheumatologist, and a family doctor who practices in the upper peninsula of Michigan. All of them have drawn blood samples and done the Lyme Liter (is that the same as an ?) and all have resulted in a negative result. I figure the first one was negative because it was too early to test positive, but the later tests were negative because I was on antibiotics. I am self treating since the prescription for Doxycycline ran out two weeks ago. Using teasel root as an herbal antibiotic, as per Fox protocol. I have been at maximum dosage for about a week. Yesterday, my symptoms became more uncomfortable than before with migratory pain in my hands, wrist, knees and ankles. And neck. What I am more concerned with is the edema in my ankles and was wondering if there is any mention anywhere about that. I have been reading a lot and thought I read somewhere about edema in the ankles with Lyme Disease. Does anyone know what it is from, why it occurs? I have to wait until October to see a LLMD to find out if no one here knows. Cheryll in Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 Jacqui wrote: > I take 25 mgs. of HCTZ daily. Jacqui, I also take HCTZ (hydrochlorothyazide -sp? - a diuretic) for full body edema in a combination pill with blood pressure medication (for high BP). The combo helps keep my BP nice and low, but didn't release a drop of water. The doctor who prescribed it said I was carrying at least 20 lbs. of water weight. My allergy/Lyme doctor said it's probably from food allergies. And we also know that it's part of the array of Lyme symptoms for me. Deanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 > > Hi Bee, > > I wonder if you think it's ok if I just ignore my edema in my lower legs for now? I am hoping it's only part of the detox process. > > I tried cutting out the electrolyte drink like you had suggested, but that led to my adrenal fatigue becoming worse, so I had to add it back. It didn't help to change to Celtic sea salt only as it had for another group member. > > My question to you is simply, do you think the edema is due to me doing something wrong or is it just a natural part of this process? > > OR is it unhealthy and I ought to find a solution to the problem (never had edema once in my life before starting to heal on this diet) > > Thanks for your input! > > Also, just to double check, the electrolyte drink should be about 6 ounces per round, so 6 ounces 6 times per day? +++Yes , that is the correct amount of electrolyte drink. I think you should get your edema double-checked by the doctor, just to be safe. You don't " have to " follow any recommendations however. Let me know. Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 > +++Yes , that is the correct amount of electrolyte drink. I think you should get your edema double-checked by the doctor, just to be safe. You don't " have to " follow any recommendations however. Let me know. > > Bee Bee, thanks, but I think it would completely freak me out to go to the doctor. They'd do tests and stuff and I would be a nervous wreck thinking my kidneys or heart had problems etc, not to mention how expensive it would all be with the deductible I've got on my insurance and now I'd possibly get yet another diagnosis that would be an additional Pre-existing condition, making my insurance even more expensive. But, I have been drinking about 10 cups of water per day (with salt) and I realize that is possibly too much. I'll try to gradually reduce it to see if there is any change. Does that sound like a plan to you? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2009 Report Share Posted September 30, 2009 > > > +++Yes , that is the correct amount of electrolyte drink. I think you should get your edema double-checked by the doctor, just to be safe. You don't " have to " follow any recommendations however. Let me know. > > > > Bee > > Bee, thanks, but I think it would completely freak me out to go to the doctor. They'd do tests and stuff and I would be a nervous wreck thinking my kidneys or heart had problems etc, not to mention how expensive it would all be with the deductible I've got on my insurance and now I'd possibly get yet another diagnosis that would be an additional Pre-existing condition, making my insurance even more expensive. > > But, I have been drinking about 10 cups of water per day (with salt) and I realize that is possibly too much. I'll try to gradually reduce it to see if there is any change. Does that sound like a plan to you? +++Hi . That sounds like a good plan to me. Bee Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.