Pain

[Guest guest]

Sue,

I think that you must have a very nice family. It makes things easier, I

know, when there are family members who understand and who help.

You become used to having pain all the time. I hardly notice it anymore

and when I do notice it, it's no big deal. Fosamax seems to be causing

more pain, which surprises me. I hope that it stops when my body adjusts

to it or I may change my mind and decide to accept osteoporosis.

Take care,

Geri

[Guest guest]

Elena

When i was decreasing Prednisolone i experienced pain to the left under

the rib cage, but sometimes on the right. A couple of time it was so

intense i had to lay down. My doctor said the left side pain was in the

bowel area and it was important to keep the bowels moving (drink lots

of water). He did not make any statements about the right side pain.

Within two months the pain subsided. Hope this helps.

Have a good day.

AIH

_____________________________________________________________

[Guest guest]

I was wondering about that right ~sided pain, I am on a prednisone taper and

am at 1 mg per day and will be off of it Sept. 29th I have had a pain where

my liver is and I have had my transplant, so it always scares me. My liver

enzymes have been normal as I have bloodwork done every 3 weeks until I have

been off prednisone for 1 month. So you others have had right~sided pain

when you decreased prenisone? I was almost getting ready to call my

transplant coordinator and tell her about it. It is more of an ache than a

pain.

Thanks!! Lori C. AIH Liver Tx 3~11~97

[ ] Re:Pain

>From: =?iso-8859-1?q?brenda=20maguire?= <bmag21@...>

>

>Elena

>

>When i was decreasing Prednisolone i experienced pain to the left under

>the rib cage, but sometimes on the right. A couple of time it was so

>intense i had to lay down. My doctor said the left side pain was in the

>bowel area and it was important to keep the bowels moving (drink lots

>of water). He did not make any statements about the right side pain.

>Within two months the pain subsided. Hope this helps.

>

>Have a good day.

> AIH

>

>

>_____________________________________________________________

>

[Guest guest]

Lori

I did have right pain when i was decreasing prednisolone but my doctor

didn't say it was due to that. I would ask your transplant coordinators

advice about your pain it could be something different to what i

experienced. Better to be safe than sorry.

Have a good day

AIH

_____________________________________________________________

[Guest guest]

Hi,

That seems to be the question of the day " what pain med can we take? " . I'll

post the answer if I can find it! Take care,

(AIH)

[Guest guest]

Hi all, the big question of the day is what pain medicine can you take?? Well I

am post~tx almost 3 years and my hepatologist allows me to use Tylenol and only

regular strength only as needed. Yes, Tylenol can be damaging to the liver if

over~used and if taken along with consumption of more than 3 alcoholic beverages

per day, but should be safe to use if you take 1 for a headache or other pains

ocassionally. I know every doctor or specialist is different, but this comes

from the Drs. at Mayo and so far they have done me no wrong. Barbara Ann, what

can you take for pain post~tx??? Trouble is I cannot use Tylenol, it gives me

heart palpitaitons for some reason, so I use an occasional Darvocett for pain,

that is also approved by my hepatologist. I guess as in all things if used in

moderation, it is O.K. TTFN Lori Cummins AIH liver tx 3~11~97

[ ] pain

Is there anything we could take for pain? My liver doctor said I could take

a Tylenol for fever ,like once or twice a year and no aspirin because it's hard

on the stomach and the Pred. is too., save the stomach for the Pred. I have

called nurse advice (they check with a pharmacist) and they say just use ice.

[Guest guest]

Barb,

On the subject of exercise - what exactly is a " weight bearing exercise " ?

That's what's recommended for osteoporosis but do they mean that you need to go

to a gym or someplace with special equipment? I don't see me in a gym, that's

for sure.

I mentioned that yesterday, the day after we returned from our vacation, I got

up feeling like I'd been run over by a truck and the truck had parked on my

body. I hurt all day and was worried that this was how it was going to be from

now on. I think that I'd actually just overstressed myself physically, by

moving boxes around and trying to play Wonder Woman around the house. This

morning I woke up feeling normal again, though normal for me means I still have

plenty of aches and pains but I hardly think about them anymore. Now, tonight,

I've been sitting at the computer for a couple of hours and just got up and

walked around, to discover all that pain again. Just from sitting? I do need

to see if exercise will help because this is intolerable. I can't believe that

6 hours ago I was telling my son I feel good enough to try to work again

part-time and that I'm ready to post my resume on monster.com.

I see my new Internist again Friday but I don't know how much he knows about

osteoporosis. My Hepatologist knows nil and for some reason he wants me to

see the Internist about the osteoporosis problem instead of a Rheumatologist

he'd referred me to earlier. I wonder if he feels guilty for not having me

tested for bone density loss after almost 2 years of Prednisone.

In a normal day, even now, I'm on my feet virtually non-stop from the time I

get up until we eat dinner - usually after 8:00 PM. My personality isn't built

for taking it easy. But, I've always been resistant to organized exercise. I

may have to rethink my stance on that. Do you or does anyone know of a website

where I can get exercise information?

Thanks and take care,

Geri

[Guest guest]

Hi all-

Just got the word from my hepatologist today while we discussed my recent liver

biopsy. He needs to lower the Prednisone and when I asked what I could take for

the back/knee problems pre-dx, (which of course feel wonderful on Prednisone) he

said that up to 4 Advil a day was fine. Kinda surprised me. I told me I would

use that only if I couldn't stand the pain. I have to keep working and

functioning.

Hope all is well with all of you.

Warmly,

P.S. Geri, it is GREAT to have you back.

, thanks a bunch for the websites.

[Guest guest]

For all of you trying to live with pain -- there are alternatives. There are

drugs you can take, even with liver disease. If your doctor doesn't agree,

find another doctor.

My son, now 9, was dx with PSC after two years of screaming. We eventually

found a pediatric pain clinic, which has made a world of difference in both

our lives.

Here are some resources for finding a pain clinic near you:

American Academy of Pain Management

http://www.aapainmanage.org

searchable database to find a pain clinic:

http://www.aapainmanage.org/aapm/ppdsrcht.html

search to find a pain management professional:

http://www.aapainmanage.org/aapm/memsrcht.html

American Pain Society

searchable database of facilities

http://www.ampainsoc.org/cgi-bin/facility/search.pl

American Pain Society

searchable database of facilities

http://www.ampainsoc.org/cgi-bin/facility/search.pl

Directory of Pain Organizations

street addresses and phone numbers; not links

http://www.edc.org/PainLink/plorgr.html

Pain Resources for Patients and Their Families

an extensive, organized list of links

http://weber.u.washington.edu/~crc/CRCpage/patients.html

Worldwide Congress on Pain

international listing of pain clinics; searchable by country/state; street

addresses and phone numbers, not links

http://www.pain.com/defaultcon.cfm?direct=cl

Pam (mom to Quantell, 9, dx PSC 1996)

[Guest guest]

Hi ,

About pain, Friday I commented to my doctor that I didn't have much pain

until my Prednisone was under 10 mgs. and he laughed. He said that it was

acting as a painkiller for me. I realize that it does mask pain but I'd

never thought of it as an actual painkiller. Now that I know that it could

make a difference, there are some " bad " joint and muscle pain days when I'm

tempted to up my pred to 10 mgs., just for that day. Don't worry, though,

I won't give in to the temptation.

Take care,

Geri

[Guest guest]

Geri I have noticed a big increase in joint and muscle pain since I

have reduced Pred. to 5 mg. I don't know if I am imagining it but it

seems to get worse all the time. I have never seen a Rhemotoligist but I

am consideding it.

Pa.

[Guest guest]

,

The increased pain is undoubtedly because of the reduced Prednisone. I was

withdrawn entirely from pred, much too rapidly and I could hardly walk and

couldn't bend my knees at all. No strength and terrible pain. When a

Rheumatologist put me back on 10 mgs. of Prendisone it was like magic. The

pain was gone in a couple of days. However, I now have to make the choice

between living with joint pain and realizing that my osteoporosis will

increase from the Prednisone. Nice choice. I understand that some

people's natural adrenal system doesn't " wake up " when Prednisone is

decreased. Sometimes it takes a long time and for others, it never returns

to normal. Others have no problem at all. A Rheumatologist would be a

good idea, but if he or she doesn't suggest an adrenal sufficiency test, be

sure to ask about one. The Rheumatologist was amazed that my Hepatologist

who prescribed then reduced the Prednisone hadn't thought of it on his own.

Take care,

Geri

[Guest guest]

Thanks Geri I will take your advice.

Pa.

[Guest guest]

Hi Geri

I am feeling quiet well at the moment thank you, just

experiencing stiff and painful knees. Could be due to

the Prednisolone reduction. I was expecting to

experience the same side effects as i did when i

reduced Prednisolone from 30mg.(I suffered with

painful joints and left and right upper quadrant pain

for a few weeks.) But this Prednisolone reduction is

very slow and i can put up with stiff and painful

knees. I can walk fine once i get moving. Must get out

and do some exersize, its finding the time thats the

problem. But as they say to us oldies, if you don't

use it, you loose it. Hope you and yours are having a

good day.

Take Care

AIH

=====

[Guest guest]

Hi Geri

I am feeling quiet well at the moment thank you, just

experiencing stiff and painful knees. Could be due to

the Prednisolone reduction. I was expecting to

experience the same side effects as i did when i

reduced Prednisolone from 30mg.(I suffered with

painful joints and left and right upper quadrant pain

for a few weeks.) But this Prednisolone reduction is

very slow and i can put up with stiff and painful

knees. I can walk fine once i get moving. Must get out

and do some exersize, its finding the time thats the

problem. But as they say to us oldies, if you don't

use it, you loose it. Hope you and yours are having a

good day.

Take Care

AIH

=====

[Guest guest]

Hi ,

Isn't it great when you have those periods of feeling good? Each time it

happens to me, I wonder if maybe the nightmare is over and I'm going to be

okay from now on. Maybe one time that's how it's going to work out.

Wonder why doctors don't acknowledge the knee problem? Not many of us have

mentioned it but I had major problems with painful and weak knees during

Prednisone withdrawal. I still have the pain occasionally, but it's been a

lot worse. Now my problem is with one hip and I won't know the cause until

I have an MRI. Hope it's just another mysterious Prednisone thing.

Generally, life is pretty good. This is my favorite time of year. It's

just going into summer for you now, isn't it? I feel like I'm on hold all

summer, just biding time, waiting for fall and winter. I look forward to

the first time I have to wear a sweater or jacket, but I don't enjoy the

chronically frozen feet that seem to go with AIH.

Take care,

Geri

[Guest guest]

Hi Matty,

I too have had this type of pain and I think mine is from my fascia

being so constricted. I am not on a cleanse at the moment but I really do

need to get on something mild to start the process of cleansing my body. Has

anyone ever tried milk thistle and what are your thought on it for the liver

since it is suppose to help with it. I am on meds and I don't want the meds

to destroy my liver...Tonya

In a message dated 9/27/00 4:39:29 PM Central Daylight Time,

mattyoshea@... writes:

<< I have had such pains in my lower right side mostly

after cleansing, cause my liver and gallbladder could

not handle the strain a parasite cleanse was putting

on them. I had to do a liver flush a couple times

before I was able to do another parasite cleanse.

Don't know if this is applicable. My pain is lower

right side, a kind of constant tugging or

constriction.

Best to you

>>

[Guest guest]

In a message dated 09/27/2000 5:10:39 PM Central Daylight Time,

DWigg54545@... writes:

<< Hi Matty,

I too have had this type of pain and I think mine is from my fascia

being so constricted. >>

***********************

What and where is a fascia?

ej

[Guest guest]

I have had such pains in my lower right side mostly

after cleansing, cause my liver and gallbladder could

not handle the strain a parasite cleanse was putting

on them. I had to do a liver flush a couple times

before I was able to do another parasite cleanse.

Don't know if this is applicable. My pain is lower

right side, a kind of constant tugging or

constriction.

Best to you

Matty

--- Patty <faussettdp@...> wrote:

> I think he felt pain on both sides, and he keeps

> asking me about the possibility of a kidney

> infection. I am pretty sure it is not that, as it

> is not an acute type of pain that is getting

> worse--it is a dull constant ache. He gets it if he

> drinks soda or eats chocolate, so I know he is

> reactive to the oxalic acids in foods. But I don't

> know if black walnut hulls/wormwood tinctures would

> have oxalic acid in them or not...he has not taken

> anything else that might have contributed to this

> pain. Thanks for your insights. ..

> Patty

> kidneys and black walnut

> hull tincture

>

>

> Hey anybody,

> My huband recently took some black

> walnut/wormwood tincture in order to help rid his

> body of parasites, but he ended up with some really

> bad flank pain--most likely his kidneys. Does

> anyone have any info on the effect of this stuff on

> the kidneys, and if it a bit strong for them?

> Thanks ,

> Patty

>

>

> Subscription email:

> mailto:bowel cleanse-subscribeegroups

>

[Guest guest]

Hi Matty,

Fascia is like a thin film like substance that surrounds your entire

body. You know when you sometimes get stiff in your neck or shoulders that

could possible be the constriction or your muscles contracted and tightening

up. I am not saying that is what your problem is but I know it is a big part

of my problem, I have myofascial syndrome and fibromyalgia

[Guest guest]

Has

> anyone ever tried milk thistle and what are your thought on it for the

liver

> since it is suppose to help with it.

Milk thistle is absolutely safe and you can use it indefinately three times

a day, and it is one of the very, very best herbs you can use to support

your liver. I have taken it for 3 years and I will never stop--our poor

livers are overloaded and need all the help they can get. And if you are

taking meds, you really do need liver support. Try to get off the meds as

soon as possible.

Patty

[Guest guest]

I have a friend who has numerous maladies, especially arthritis. A lot of the

meds she has taken for it have really done a number on her liver. At one point

she was so sick she couldn't

keep food down for days and her liver was swelled badly. I gave her some milk

thistle extract and it was almost miraculous how quickly she got better.

DWigg54545@... wrote:

> Hi Matty,

> I too have had this type of pain and I think mine is from my fascia

> being so constricted. I am not on a cleanse at the moment but I really do

> need to get on something mild to start the process of cleansing my body. Has

> anyone ever tried milk thistle and what are your thought on it for the liver

> since it is suppose to help with it. I am on meds and I don't want the meds

> to destroy my liver...Tonya

>

> In a message dated 9/27/00 4:39:29 PM Central Daylight Time,

> mattyoshea@... writes:

>

> << I have had such pains in my lower right side mostly

> after cleansing, cause my liver and gallbladder could

> not handle the strain a parasite cleanse was putting

> on them. I had to do a liver flush a couple times

> before I was able to do another parasite cleanse.

>

> Don't know if this is applicable. My pain is lower

> right side, a kind of constant tugging or

> constriction.

>

> Best to you

> >>

>

>

> Subscription email:

> mailto:bowel cleanse-subscribeegroups

>

[Guest guest]

milk thistle taken with l-glutamine is even better.

>I have a friend who has numerous maladies, especially arthritis. A lot of

>the meds she has taken for it have really done a number on her liver. At

>one point she was so sick she couldn't

>keep food down for days and her liver was swelled badly. I gave her some

>milk thistle extract and it was almost miraculous how quickly she got

>better.

>

>

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[Guest guest]

Are you saying Milk Thistle is goo for arthritis?

Bernadette

[Guest guest]

I'm a big believer in milk thistle, esp. taken with L-glutamine

.. Has

>anyone ever tried milk thistle and what are your thought on it for the

>liver

>since it is suppose to help with it. I am on meds and I don't want the meds

>to destroy my liver...Tonya

>

>In a message dated 9/27/00 4:39:29 PM Central Daylight Time,

>mattyoshea@... writes:

>

><< I have had such pains in my lower right side mostly

> after cleansing, cause my liver and gallbladder could

> not handle the strain a parasite cleanse was putting

> on them. I had to do a liver flush a couple times

> before I was able to do another parasite cleanse.

>

> Don't know if this is applicable. My pain is lower

> right side, a kind of constant tugging or

> constriction.

>

> Best to you

> >>

>

>

>Subscription email:

>mailto:bowel cleanse-subscribeegroups

>