Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 I have been on LDN 4.5 for just over two weeks now for PsA. The first 2 nights I had Great Dreams and I have to say I never enjoyed stretching as much as I did....must be the endorphins kicking in...I also felt much better than I had in months. Was diagnosed this past May with the PsA. Was on prednisone till I started the LDN and quit taking it two days before starting 5mg morning and 5mg night (prednisone). All of a sudden near the end of the first week everything started getting swollen and painful again...while it is no worse than being on the prednisone (the swelling and joint pain) I thought I was on a clear path of recovery. Spoke with the doc that prescribed and he said to give it another 2 weeks. Has anybody had similar setbacks? Most of the people Ive talked to say the effect was immediate.....and I thought my results were too....but it seems I won't be able to go back to my Rheumy and tell her to go fly a kite along with her enbrel!!!!!!! Please let me know any stories you might like to share. Im not gonna give up...but would love to hear Im not alone in this battle and that I might not be a responder. Thanx in advance Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2011 Report Share Posted January 29, 2011 Please be open to using LDN for months and months, not just weeks. Quite often there is an initial immediate " feel good " thing happening and then, quite often it can get worse, or the same as before. But it pretty much always gets better with longer use so try to stick it out if you can. Good luck. > > I have been on LDN 4.5 for just over two weeks now for PsA. The first 2 nights I had Great Dreams and I have to say I never enjoyed stretching as much as I did....must be the endorphins kicking in...I also felt much better than I had in months. Was diagnosed this past May with the PsA. Was on prednisone till I started the LDN and quit taking it two days before starting 5mg morning and 5mg night (prednisone). All of a sudden near the end of the first week everything started getting swollen and painful again...while it is no worse than being on the prednisone (the swelling and joint pain) I thought I was on a clear path of recovery. Spoke with the doc that prescribed and he said to give it another 2 weeks. Has anybody had similar setbacks? Most of the people Ive talked to say the effect was immediate.....and I thought my results were too....but it seems I won't be able to go back to my Rheumy and tell her to go fly a kite along with her enbrel!!!!!!! Please let me know any stories you might like to share. Im not gonna give up...but would love to hear Im not alone in this battle and that I might not be a responder. Thanx in advance > Quote Link to comment Share on other sites More sharing options...
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