Re: anyone here with Lyme on LDN ?

[Guest guest]

I have Lyme, but have only been on ldn for 2 weeks. So far, so good.

~Mimi

www.iammimi.com

[Guest guest]

Brad,

I have been on LDN since the first of the year 2011, and I was wondering is

there a differnece in the LDN from the various Pharmacy's who make up the

compound. I'm on 4.5 mg right now, and do feel some relief in having more

energy, but not in my balance and the numbness is still in my left hand.I also

still have weakness in myleft leg which cause me to drag my foot. I do physical

therapy 3 days a week for 1 1/2 - 2 hours. Maybe I should be trying something

else to go along with the LDN.

> From: , Bradley J. <stewbj@...>

> Subject: RE: [low dose naltrexone] anyone here with Lyme on LDN ?

> " idesign50 " <Idesign50@...>, low dose naltrexone

> Date: Friday, March 4, 2011, 9:14 AM

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> Yes, there are

> LYMIES out here on LDN, I am a LYMIE on LDN since

> October 2009, and

> update for the LYMIES that may

> be following is below.

>  

> Diagnosed

> with

> MS summer of 2007, 4th LYME test IGENEX Western Blot said

> LYME December 2009,

> have done oral antibiotics 10 months of 2010.  Stopped

> antibiotics

> 10/31/10, but " relapsed " December 2010 (stress

> event OR wasn't all gone yet OR maybe

> both!).  Did IV Rocephin the

> month of January 2011 and feel like back in

> " remission " . 

>

>  

> Doing oral

> Azithromycin now, until I can get a PICC

> LINE and IV antibiotics.  Working through my Lyme

> Literate Medical Doctor

> (LLMD) while trying to deal with all the local doctors

> who don't believe in

> LYME but which are back in " network " .  Just

> got results from a second

> IGENEX Western Blot, which still shows me positive on the

> IGM side of the test after the month of

> IV Rocephin.  LDN might

> be making me feel much much better than I really

> am?

>  

> DOSAGE: I went

> up to 251 lbs at one point, now

> back down to 231 lbs.  Have taken 3 mg all the way

> through because that is

> what the Neuroligist I found to prescribe it gave to all

> his MS patients. 

> I am still on 3 mg.  My LLMD knew of LDN, didn't

> feel the need to change

> from 3 mg if it is still helping.  I do skip LDN 1

> night a

> week.

>  

> SYMPTOMS: Once the

> LDN kicked in, lost the fatigue and

> brain fog.  After " exacerbation 4 weeks in on

> LDN, in addition to the

> varying monthly oral antibiotics of 2010, all other

> symptoms seemed to clear-up,

> the balance problems, and the numbness in the right arm and

> leg.  Several

> months in on antibiotics, I stopped the LDN, felt worse in

> just 2 days, once

> started back on LDN felt better in just 2

> days.

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> I also take NYSTATIN

> daily while on ORAL

> antibiotics!  Some Vitamin C and

> Vitamin D as well more recently.

>  

> I AM CONVINCED LDN

> HAS HELPED ME THROUGH THE LYME, AND

> I HAVE STILL BEEN WORKING THROUGH OUT, HAVE NOT HAD TO

> TAKE ANY TIME OFF

> FOR DISABILITY!  THE ANTIBIOTICS ARE CRITICAL AS WELL,

> LDN WON'T FIX THE

> LYME BY ITSELF!  There were some days that were

> rougher than

> others.

>  

> All my

> other old posts, look up my ID at the LDN blog

> page, OR email me

> direct for ANY other specific

> questions.

>  

> I am

> not a doctor, just an angry engineer, and I can only tell

> you my story....WISH

> EVERYBODY THE BEST ON LDN!

>  

> I get

> my LDN through Dr. Skip, don't know how the others

> compare.

>  

> ALWAYS open to

> corrections or suggestions as to

> what is REALLY happening to me, but still taking the LYME-Antibiotic/LDN

> path right

> now............

>  

>  

> BRAD

> MS

> 07/2007

> LYME

> 12/2009

> LDN, 3 mg,

> since October

> 2009

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> From:

> low dose naltrexone

> [mailto:low dose naltrexone ] On Behalf Of

> idesign50

> Sent: Thursday, March 03, 2011 8:02 AM

> To:

> low dose naltrexone

> Subject: [low dose naltrexone] anyone

> here with Lyme on LDN ?

> Importance: High

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> If so, I would love to know your experience with ti, and

> what dosage you are

> on, and what, if any, symptoms it has helped you with.

> Thank

> you.

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[Guest guest]

I have lyme. I have been on LDN for a couple of years but never feel anything

with it. But, still take it due to cancer in 08 and hashimotos and MCS and and

and.....

PAMI

[Guest guest]

I have Lyme Disease (neuroborreliosis) that was diagnosed as multiple sclerosis

(MS) April 2004. I took Rebif, which darn near killed me.

While I was still really confused as to what was going on inside of me, this

group helped me escape the medical-industrial-complex MS cult. Carefully

following the procedure of 1.5 mg/day at 10pm, for 30 days, 3.0 mg/day, and

experimented with 4.5 mg/day in 2006. I was still getting sick, so I switched

to the German Intravenous Calcium Ethyl amino Phosphate (EAP)in 2007 for one

year.

FINALLY, hired a Lyme Literate Medical Doctor (LLMD), was diagnosed with Lyme

and started antibiotics in 2008. Had to switch LLMDs in 2010. My new LLMD was

keen on trying LDN, so I restarted my LDN.

So far, I feel that I'm so sick that my current script of LDN is not helping me

as much as hoped. The past three of four nights I have been remiss on taking my

LDN.

Today, I am using a four wheel walker to move through the house. Beginning to

think that the yeast in my intestines is my major set challenge. To combat the

yeast, I have changed my diet in an effort to starve the yeast, and also taking

2 Nystatin tablets four times per day.

>

> If so, I would love to know your experience with ti, and what dosage you are

on, and what, if any, symptoms it has helped you with. Thank you.

>

[Guest guest]

Dear

Cat's Claw will NOT cure LYME Disease. It may be a part of a good regime to

heal. I have Lyme and been doing that CC and I am not cured.

I have now gone GRAIN FREE all grains of all kinds. Tested gluten sensitive.

antibodies and genes against. Traditional gluten free did not work as all

grains that proteins in them. So am working to heal this way also.

I am also taking antibiotics to give that a try too.

I am an integrative person so do everything I can find.

Pami