new diagnosis

[Guest guest]

gg,

You wrote:

>

> I was on only 50mcg of Synthroid for almost 3 years. ... I discovered I

> had Hasti's! I've been taking Levoxyl, (100mcg) for over 3 months now ...

The manufacturers (both Synthroid and generics) clearly recommend a

replacement dose of _200 mcg_ per day for average weight females. Unless

you are an underweight child or over 70 years old, your doctors have not

yet come close to the recommended treatment. As we have discussed many

times before, a patient will continue to have hypoT symptoms, and

general deterioration, until the dose is close, within a few mcg, to the

full replacement.

I would suggest that instead of blaming this continuing failure on the

medication, you should recognize that you never really tried it. Or

rather, your doctors never really tried it. T4 alone might still be the

simplest option for you, although prolonged undertreatment seems to

bring on a constellation of other problems that may require T3 to get

back on track.

Chuck

[Guest guest]

Chuck,

So if I understand correctly, for the most part unless your

started out at around 200 mcg, you most likely will continue to have

some symptons if not all and probably not notice much difference? If

thats right, then I want to thank you for letting me know that and

making me feel better. I started out at 100 mcg, and apparently my

test started to " regulate " because then my doc dropped me to 75mcg.

The only sympton that I had noticed to go away was the leg cramps when

going up stairs etc. But I still couldn't get any weight off, still

tired all the time etc. I was getting very discouraged. I've moved

recently and I have an appt with a doc on the 28th. I'm looking

forward to starting with someone new and letting him know how I still

never felt much better since I've been on this medication. I'm hoping

he will pay more attention to me and not just what the tests are

showing. Thanks for that piece of information.

>

> The manufacturers (both Synthroid and generics) clearly recommend a

> replacement dose of _200 mcg_ per day for average weight females.

Unless

> you are an underweight child or over 70 years old, your doctors have

not

> yet come close to the recommended treatment.

[Guest guest]

,

You wrote:

>

> So if I understand correctly, for the most part unless your

> started out at around 200 mcg, you most likely will continue to have

> some symptons if not all and probably not notice much difference? ...

Sort of. The recommended safe protocol is to increase gradually. I

started at 75 mcg; then five weeks later went to 100. That is a full

replacement for a male. Two years later, after the usual weight gain, I

am at 125 mcg. You should probably have started around 100 or 125, then

increased to 200. Unless your TSH dropped below 2, the dose should have

continued to increase. The only reason to stop at a lower level is if

you have partial thyroid function, as indicated by tests.

Chuck

[Guest guest]

(gg?),

You wrote:

>

> ... For those of us who are a bit larger than

> average weight females, could an appropriate dose be estimated on the basis

> of weight?

The recommended full replacement dose is directly proportional to

weight. The 200 mcg value is for " average " adult weight. Your mileage

may vary.

Chuck

[Guest guest]

Look up Celiac and Spur on the Internet. That is what I did and found out that I

have that disease. It is an allergy to Gluten and Wheat and other grains.

Hypothyroidism is a symptom of Celiac. Symptoms of Celiac are, IBS, Itching,

numbness in hands and feet. Arthritis in the joints, Hypothyroidism, extended

stomach, bloating. nausea, people in the family coming from Europe, etc.Go to

the Dr. and let him/her take the test for Celiac. They will send you to another

Dr. and they will put you on a gluten free diet. If your test is positive for

Celiac. I hope that helps you, D999

sesimplyme <sesimplyme@...> wrote: I was just diagnosed with a

hypothyroid just over five weeks ago. I

was having a lot of arthritis type pain when I went in to see my

doctor. I have been having a lot of medical problems for the last few

years with no diagnosis.

Approximately ten years ago my goiter blew up overnight and I looked

like a bullfrog. Even though I went to see a doctor, I was never

diagnosed with a thyroid illness. It was about this time I lost the

ability to lose weight and gradually started gaining. I am about 40-

50 lbs overweight now, even though I eat very little and my husband

and I eat healthy, low fat meals. I have also exercised a lot and

regularly in the past.

Before being diagnosed I had regular stomach problems alternating

between loose stools and constipation. My legs get so itchy they

drive me crazy. The Levothyroid (generic Synthroid)that I am on now

seems to help with this. For the past few years my blood work has

shown a high sed rate. I dont know if that is related or not. The

Dr's have never found a source for it.

I would just like to hear from others who can tell me if my symptoms

are typical of a hypothyroid and your own experiences. Also, an idea

of what I can expect. Has anyone had luck with weight loss while on

Synthroid? I have a lot of questions, especially about diet.

Thanks and I'm sorry for the wordiness...

[Guest guest]

they'll probably want to cut in to take a tiny sample of the liver to

analyze....a biopsy.

normally not a big deal for most people, there does exist some danger that

if you have liver cancer some cells could escape into the body from doing

that. if you ask them about it they'll say the chances are so very very

small...which is true, depending upon how they put it, but risk is there &

real, & your luck with the docs hasn't been good and that could be an

ongoing pattern (or a passing one) you don't need to find out which the hard

way.

if it were me, i'd get blood work but no biopsy. then act on the assumption

that cirhossis and/or cancer are happening and use an array of alternative

treatments for both. as long as serious progress is being made in reduction

of symptoms i'd keep it up, and get fresh blood work every couple months.

if i couldn't bring the symptoms under control within a couple months, with

relief starting the first week, i'd get the biopsy.

you just might need a new (recycled) liver already, time might be a big

factor, so you better move with whatever you decide.

my liver area nver go to the point o pain you descibe, but was getting

there, and i was being dragged down with a lot other symptoms too.

colloidal silver has eliminated all symptoms almost completely in a couple

months. i've written a lot about it on this list, so if interested search

the message archives for " colloidal " & " CS " .

the inflammation causing the pain might also be gall bladder, so see if the

docs can diagnose that without cutting. don't let them cut it out untill

other means of clearing obstructions like stones are tried. again, search

archives o " gall " " gallstones " " gallblader " " enema " there's a lot of good

reading.

cheers,

bobL

myspace: http://www.myspace.com/bob021147

ebay: http://stores.ebay.com/bobLs-fine-flotsam

homepage: http://www.toad.net/~blarson/

> New Diagnosis

>

>

> Hi all, My name is Jana. I had surgery in 1991 where I received a

> blood transfusion, and when I read my reports i saw that they knew i

> had contracted Hep C then, but never told me. I am 52 yrs old now, and

> have other chronic illnesses. My doc has made an appt for me at a

> Gastro group can anyone tell me what they might possibly want to do to

> me. From what I have read I am not a candidate for the drug treatments,

> and I am scared they are going to want to go inside of me. I want to

> find out how bad my liver is, but not to make it worse. I can't even

> touch where my liver is it hurts so bad, but I am very skeptical of

> docs since it was their fault I have any of this. They cut my ureter

> during a hystorectomy. I have so much scar tissue they say I am

> imoperable unless matter of life and death. So can anyone tell me how

> they test to see how bad it is? Any help is greatly appreciated.

> God Bless you all. JANa Pensacola, FL

>

>

>

>

>

[Guest guest]

Jana,

The Gastro will probably want to do a CAT Scan and an Ultrasound.

With those two images, the doctor will be able to make a pretty good

guess about the condition of your liver. If you do not want a

biopsy, do not have one.

If you just got those reports and they knew then and didn't advise

you, you will want to call a Personal Injury attorney who

specializes in malpractice.

If you have just gotten the diagnosis, there is a lot of literature

on the web about managing Hep C. I got it by transfusion in 1969 and

didn't find out until 1996.

If I had known I had it, I would have stopped any alcohol or

medications. I would have changed to a vegetarian diet immediately

since animal protein is harder on the liver.

There are a number of us here who have had the disease for a long

time.

In my case, Interferon did not kill the Hep C and I am headed to the

University of Texas Medical Branch in Galveston to have an

experimental treatment.

Please feel free to ask questions here. You will find a great group

of folks.

Beck

>

> Hi all, My name is Jana. I had surgery in 1991 where I received a

> blood transfusion, and when I read my reports i saw that they knew

i

> had contracted Hep C then, but never told me. I am 52 yrs old now,

and

> have other chronic illnesses. My doc has made an appt for me at a

> Gastro group can anyone tell me what they might possibly want to

do to

> me. From what I have read I am not a candidate for the drug

treatments,

> and I am scared they are going to want to go inside of me. I want

to

> find out how bad my liver is, but not to make it worse. I can't

even

> touch where my liver is it hurts so bad, but I am very skeptical

of

> docs since it was their fault I have any of this. They cut my

ureter

> during a hystorectomy. I have so much scar tissue they say I am

> imoperable unless matter of life and death. So can anyone tell me

how

> they test to see how bad it is? Any help is greatly appreciated.

> God Bless you all. JANa Pensacola, FL

>

[Guest guest]

Hiall.... since having this lovely dragon for such a long time and being a

nurse, I have

found that the ultrasound is usually useless....... biopsy nec to find out how

long what

stage..... if sick need to know genotype. I found the best best test ever done

was a nuclear

scan with a dye that showed the functioning part of the liver.... ultrasound

only penetrates

soft tissue and really is outdated and every one I ever had even when stomach

was forty

five inches came back normal......... my 2 cents. sally

I have had friends who had their gall bladders removed and other things and were

much

better....... have to know more about what you are going through... just

switched to

individual mail...... I need you guys, sally

hope you Jana are doing better... Hi there Bob

>

> they'll probably want to cut in to take a tiny sample of the liver to

> analyze....a biopsy.

> normally not a big deal for most people, there does exist some danger that

> if you have liver cancer some cells could escape into the body from doing

> that. if you ask them about it they'll say the chances are so very very

> small...which is true, depending upon how they put it, but risk is there &

> real, & your luck with the docs hasn't been good and that could be an

> ongoing pattern (or a passing one) you don't need to find out which the hard

> way.

> if it were me, i'd get blood work but no biopsy. then act on the assumption

> that cirhossis and/or cancer are happening and use an array of alternative

> treatments for both. as long as serious progress is being made in reduction

> of symptoms i'd keep it up, and get fresh blood work every couple months.

> if i couldn't bring the symptoms under control within a couple months, with

> relief starting the first week, i'd get the biopsy.

> you just might need a new (recycled) liver already, time might be a big

> factor, so you better move with whatever you decide.

>

> my liver area nver go to the point o pain you descibe, but was getting

> there, and i was being dragged down with a lot other symptoms too.

> colloidal silver has eliminated all symptoms almost completely in a couple

> months. i've written a lot about it on this list, so if interested search

> the message archives for " colloidal " & " CS " .

> the inflammation causing the pain might also be gall bladder, so see if the

> docs can diagnose that without cutting. don't let them cut it out untill

> other means of clearing obstructions like stones are tried. again, search

> archives o " gall " " gallstones " " gallblader " " enema " there's a lot of good

> reading.

>

> cheers,

> bobL

>

> myspace: http://www.myspace.com/bob021147

> ebay: http://stores.ebay.com/bobLs-fine-flotsam

> homepage: http://www.toad.net/~blarson/

>

> > New Diagnosis

> >

> >

> > Hi all, My name is Jana. I had surgery in 1991 where I received a

> > blood transfusion, and when I read my reports i saw that they knew i

> > had contracted Hep C then, but never told me. I am 52 yrs old now, and

> > have other chronic illnesses. My doc has made an appt for me at a

> > Gastro group can anyone tell me what they might possibly want to do to

> > me. From what I have read I am not a candidate for the drug treatments,

> > and I am scared they are going to want to go inside of me. I want to

> > find out how bad my liver is, but not to make it worse. I can't even

> > touch where my liver is it hurts so bad, but I am very skeptical of

> > docs since it was their fault I have any of this. They cut my ureter

> > during a hystorectomy. I have so much scar tissue they say I am

> > imoperable unless matter of life and death. So can anyone tell me how

> > they test to see how bad it is? Any help is greatly appreciated.

> > God Bless you all. JANa Pensacola, FL

> >

> >

> >

> >

> >

[Guest guest]

Hi Jana, what other illnesses are you experiencing?

What was your original surgery in 91 for?

Was there ever a time when you were on precription meds, antibiotics or

using recreational drugs?

How was it they knew that you were positive for the virus after surgery?

[Guest guest]

Hi- I am really glad you are going to Cleveland to see DR Rice!!!

He is a specialist who knows this surgery very well and can give you

names and numbers of other patients for you to contact for reference

if you like.Several other members here also have used him and are

doing very well.My son can eat whatever he wants and his spasms

are nearly gone! Only a few since his surgery and they have been mild-

nothing like before THANK GOD!!

When is your appointment? What questions do you have,please ask and I

will answer.You can even call me if you like.I know your scared and

thats normal but you are going to one of the best known surgeons for

this disease.Let me know if ya want to talk over the phone or you can

e amil me all your questions and I can try to answer them.

Hugs to you- Tonia

>

> Hi,

> I'm newly diagnosed with achalasia. Thanks to Tonya (who is in this

> group) I have decided to go to Dr. Rice in Cleveland. Can anyone

give

> me information on their experience in Cleveland. I'm not sure what

> procedure I will have. I'm scared and not really sure what I should

do.

> Any advice and information will be greatly appreciated. I am very

glad

> to have found this site.

>

[Guest guest]

Hello and I am glad you have found our family. Go to your appointment with an open mind and listen to Dr. Rice. He seems very up to date on how to treat this disease. In my own oppinion the surgery is the be way to go for long term management of this disease. in Georgiaco-founder www.achalasia.us jomascarenas <jomascarenas@...> wrote: Hi,I'm newly diagnosed with

achalasia. Thanks to Tonya (who is in this group) I have decided to go to Dr. Rice in Cleveland. Can anyone give me information on their experience in Cleveland. I'm not sure what procedure I will have. I'm scared and not really sure what I should do.Any advice and information will be greatly appreciated. I am very glad to have found this site.<FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" ">

We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list.

[Guest guest]

Hi and welcome Dana. Sorry your family has this new diagnosis; however

it can be a relief to know what is wrong and begin treatment. We have

members here from where you are located now and where you are headed, so

hopefully someone can help you out if you have any questions. This is a

great group with lots of info and support. Georgina, one of the folks

who started this list, often posts medical info which is very helpful.

Glad to hear your son is getting some improvement already, that is so

important. The steroids do make them crabby and hopefully your son will

be able to get off them quickly.

Feel free to ask any questions you may have. You have found a place

where the people do know what you are going through, Michele ( 21,

spondy)

________________________________

From: [mailto: ] On

Behalf Of Dana

Sent: Wednesday, April 29, 2009 7:31 PM

Subject: New diagnosis

Hi I'm new here to this group. My 2-year-old son was officially

diagnosed with Polyarticular JIA last Tuesday. We figured out what was

" wrong " with him about a 1 1/2 months ago (my husband is in the medical

field), but I had sensed that something wasn't right for several months

before. I am relieved to finally have an official diagnosis. He was

admitted to Seattle Children's Hospital last Tuesday and was given 2

pulse steroid shots. He responded so well to the two treatments, that

they decided not to give him his third dose, and sent us home with oral

prednisone and methotrexate shots. The Prednisone makes him extremely

cranky, but his joint swelling has descreased dramatically, especially

in his hands.

I was diagnosed with Localized Scleroderma (aka CREST syndrome) last

Wednesday, so it was a pretty crazy week for us.

We currently live in Washington State, but we are moving to the UK in

July. It's not the most ideal weather situation, but we are already

looking into medical care there.

I'm happy to be a part of this group. I haven't had a chance to look

through the old messages, and don't have any specific questions yet. I

look forward to learning more about JIA, and how to help my son cope

with his pain.

Thanks,

Dana S.

[Guest guest]

I'm so sorry about your troubles and hope that with the diagnosis you

are able to find relief. Thank goodness it was caught before your levels

reached 1000!

I think it's a crime that ferritin levels aren't made a part of

standard labs. My father in law was diagnosed with hemochromitosis

because the lab threw in the test for free as a promotion about 12 years

ago. He of course has had no problems since treatment and still

periodically has blood taken to keep his levels down. He goes to the

local Red Cross although they can't keep the blood its cheaper/easier.

Best of luck,

Beth

2a.

New Diagnosis

<hypothyroidism/message/52047;_ylc=X3oDMTJ

xbDBxb2o5BF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXN

nSWQDNTIwNDcEc2VjA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTI3OTE4OTM3Mw-->

Posted by: " luv4myrocky " luv4myrocky@...

<mailto:luv4myrocky@...?Subject=%20Re%3ANew%20Diagnosis>

luv4myrocky <luv4myrocky>

Wed Jul 14, 2010 7:21 pm (PDT)

I have been struggling for diagnosis and treatment to return to my " old "

healthy self since 2006. First, I was diagnosed with sleep apnea, then

Gastroparesis, then Hashimoto's (which treatment reversed the

Gastroparesis). then adrenal fatique, then progesterone deficient and

Growth Hormone. Two weeks ago I came out of knee surgery on both knees

for advanced arthritis!

The Dr asked if I had an accident prior to symptoms starting and I had

where I hit my head in a horse riding fall. She then diagnosed

hypopituitary.

I was concerned because my FT3 was always high and I did not feel

hyperthyroid at all. If I tried to decrease to get the FT3 in range I

became raging hypothyroid.

I asked the Dr to test Ferritin to see if low ferritin was causing a

problem with T3 uptake.

The Ferritin test came back 595 with a range of 20-150!!!

New diagnosis Hemochromatosis a genetic disease that causes your body to

absorb too much Iron. It can damage your pituitary and cause advanced

arthritis at an early age (I have grade 4 arthritis at 45 yrs old) as

well as damage the thyroid and adrenal gland.

If you have a diagnosis of hypopituitary and early onset arthritis it is

recommended you test for Hemochromatosis. Not ONE doctor recommended

this test.

When the ferritin level rises above 1000 it starts to damage your liver

and heart.

Undiagnosed death comes within 5-15 yrs. If diagnosed before damage it

is treatable by phlebotomy. Once damage occurs the damage is

irreversible.

So relieved I got diagnosed before liver/heart damage!!! Many doctors do

not even think to check for Hemochromatosis.

I have been suffering from fatique and this is the number one symptom. I

am anxious to get into a Hematologist and start treatment, I am hoping

this is the last piece of the puzzle and I can live my life again

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1OA--> (12)

[Guest guest]

I'm so glad to hear that you seem to now have a handle on a very complex

situation; congratulations. I hope it goes well from now on.

Best,

..

..

> Posted by: " luv4myrocky " luv4myrocky@...

> <mailto:luv4myrocky@...?Subject=%20Re%3ANew%20Diagnosis>

> luv4myrocky <luv4myrocky>

>

>

> Wed Jul 14, 2010 7:21 pm (PDT)

>

>

>

> I have been struggling for diagnosis and treatment to return to my

> " old " healthy self since 2006. First, I was diagnosed with sleep

> apnea, then Gastroparesis, then Hashimoto's (which treatment reversed

> the Gastroparesis)

> . then adrenal fatique, then progesterone deficient and Growth

> Hormone. Two weeks ago I came out of knee surgery on both knees for

> advanced arthritis!

>

> The Dr asked if I had an accident prior to symptoms starting and I had

> where I hit my head in a horse riding fall. She then diagnosed

> hypopituitary.

>

> I was concerned because my FT3 was always high and I did not feel

> hyperthyroid at all. If I tried to decrease to get the FT3 in range I

> became raging hypothyroid.

>

> I asked the Dr to test Ferritin to see if low ferritin was causing a

> problem with T3 uptake.

>

> The Ferritin test came back 595 with a range of 20-150!!!

>

> New diagnosis Hemochromatosis a genetic disease that causes your body

> to absorb too much Iron. It can damage your pituitary and cause

> advanced arthritis at an early age (I have grade 4 arthritis at 45 yrs

> old) as well as damage the thyroid and adrenal gland.

>

> If you have a diagnosis of hypopituitary and early onset arthritis it

> is recommended you test for Hemochromatosis. Not ONE doctor

> recommended this test.

>

> When the ferritin level rises above 1000 it starts to damage your

> liver and heart.

>

> Undiagnosed death comes within 5-15 yrs. If diagnosed before damage it

> is treatable by phlebotomy. Once damage occurs the damage is irreversible.

>

> So relieved I got diagnosed before liver/heart damage!!! Many doctors

> do not even think to check for Hemochromatosis.

>

> I have been suffering from fatique and this is the number one symptom.

> I am anxious to get into a Hematologist and start treatment, I am

> hoping this is the last piece of the puzzle and I can live my life

> again

[Guest guest]

My daughter (13) was just diagnosed with Lupus (SLE).

She was put on prednisone which i am not a fan of. Her ailment symptoms have

been very mild. I'm even suspicious if it is even Lupus. (Facial rash, mouth

sores, slight fevers and fatigue.) Her blood work showed an autoimmune illness

of which I and my dad both have one too.

I am looking for alternatives and several friends referred me to LDN.

I live in the chicago area. Can you please tell me what doctors are in the area

that will look at her and perscribe?

thanks. amy

[Guest guest]

Crystal keeps a list of prescribing doctors

angelindisguiseldn@...

I am using the Free version of SPAMfighter.SPAMfighter has removed 1924 of my spam emails to date.Do you have a slow PC? Try free scan!

[Guest guest]

Amy,

since autoimmunity runs in the family, have your family checked for lyme via a

lyme literate doctor to be on the safe side. Here is a link to my lyme info.

thread on my LDN website. Click on link below and scroll past the google

advertisement. This has much info. so take your time reading it.

Lyme mimics so many autoimmune system illnesses (Read 3,967 times)

http://ldn.proboards.com/index.cgi?board=links & action=display & thread=926

, LDN user over 7 years for progressive MS

==========================

>

> My daughter (13) was just diagnosed with Lupus (SLE).

> She was put on prednisone which i am not a fan of. Her ailment symptoms have

been very mild. I'm even suspicious if it is even Lupus. (Facial rash, mouth

sores, slight fevers and fatigue.) Her blood work showed an autoimmune illness

of which I and my dad both have one too.

> I am looking for alternatives and several friends referred me to LDN.

>

> I live in the chicago area. Can you please tell me what doctors are in the

area that will look at her and perscribe?

>

> thanks. amy

>

[Guest guest]

Lymie here. Took LDN while still a " typical " MS pateint. Was unsure of the

effects. Switched to intravenous EAP. Was still losing strength. After much

library research, felt that neuroborreliosis (aka Lyme disease) was a better

match for me.

My EAP physician signed for my Fry Laboratories and IgeneX blood tests. A

CRITICAL portion of this disease / treatment is the selection of a Lyme Literate

Medical Doctor (LLMD). For me, I tend to place full faith in my docs and follow

to the letter what they say, regardless of the outcome.

My new physician guideline is: use them for six months. reevaluate. if no

progress, move onto the next doc. It's not a personal thing against the doc, we

just want our health.

Lyme disease is a personalized disease. Everyone is unique.

I'm up to LLMD #3 now. Not always on this board. Send me a note to wake me up.

The midwest is a challenging area to find a LLMD. email me for suggestions. My

LLMD #1 was on the east coast. My LLMD #2 is west / not quite mid west.

For symptoms

www.CanLyme.com

Lyme disease documentary " Under Our Skin "

News Expose' that also has a GOOD story on LDN

http://vimeo.com/2354218

Canadian television two part Lyme disease story

http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20091113/w5_lyme_091114/2009\

1114?s_name=W5

How Lyme Disease and it's Treatments Work

cool 3D animations. I feel the best description of why I am so sick. I don't

quite understand their charts at the end.

This Low Dose Naltrexone (LDN) board freed me from the clutches of the

medical-industrial-complex MS cult. My new open mind afforded to my by this

group let me consider a disease model different than the profitable " confused

immune system " model.

>

>

> Amy,

>

> since autoimmunity runs in the family, have your family checked for lyme via a

lyme literate doctor to be on the safe side. Here is a link to my lyme info.

thread on my LDN website. Click on link below and scroll past the google

advertisement. This has much info. so take your time reading it.