Guest guest Posted August 28, 1999 Report Share Posted August 28, 1999 Lori, Is it possible for you to stop working? Seems like you need a little quality time and your boyfriend probably does too> susan J >From: " Lori Rosenberg " <LoriRosenberg@...> >Reply- onelist >< onelist> >Subject: [ ] Sick again >Date: Sat, 28 Aug 1999 12:39:37 -0700 >MIME-Version: 1.0 >From errors-165537-5683-shireen42 Sat Aug 28 12:31:23 1999 >Received: from [209.207.164.237] by hotmail.com (2.1) with ESMTP id >MHotMailB991840A00A4D820F3C1D1CFA4ED0A710; Sat Aug 28 12:31:23 1999 >Received: (qmail 9075 invoked by alias); 28 Aug 1999 19:31:18 -0000 >Received: (qmail 9039 invoked from network); 28 Aug 1999 19:31:17 -0000 >Received: from unknown (HELO smtp.email.msn.com) (207.46.181.19) by >pop1.onelist.com with SMTP; 28 Aug 1999 19:31:17 -0000 >Received: from lrosenberg.deseretonline.com - 208.250.244.83 by >email.msn.com with Microsoft SMTPSVC; Sat, 28 Aug 1999 12:31:15 -0700 >Message-ID: <005401bef18d$10f92a00$53f4fad0@...> >Organization: Microsoft Corporation >X-Priority: 3 >X-MSMail-Priority: Normal >X-Mailer: Microsoft Outlook Express 5.00.2014.211 >X-MimeOLE: Produced By Microsoft MimeOLE V5.00.2014.211 >Mailing-List: list onelist; contact > -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: " Lori Rosenberg " <LoriRosenberg@...> > >I decided that I would just break down and call my doctor (well, my most >recent one anyway) whenever I felt liver symptoms coming on. I used to just >not do it because there was nothing they could do for me except to draw >blood and say, " yep, you're sick " . > >So I've been experiencing a lot of urq pain, nausea and of course the >accompanying nausea since Monday and I called the doctor that had been >performing my recent ERCP's. He ran the lft's and yes, they were high so >had >me come in yesterday. > >He was the one who recommended getting my gallbladder out, thinking that >might be the cause of my problems (that would be a big NO)- so seemed >almost >mad at me that I became sick again. I actually apologized to him for being >sick!! He then said something to the effect that he and my other liver > " specialists " are missing something- because everytime I have these >symptoms, my enzymes are very high (DUH). He thinks, but he's not a liver >specialist- he's a biliary system specialist, that I might have some >strictures in my liver ducts- but he wanted me to go back to the original >liver specialist that wrote me off last year for treatment. IN the >meantime, >he put me on antibiotics and actigal (actigal thins out the bile, is my >understanding, to make it flow more freely in case I do have strictures in >the liver ducts). I'm not sure what, if anything, they can do for me other >than this if my doctor's suspicions are right. > >I also mentioned the thing about the cold sores (the fact that I get them >on >my arms, ears, nose, face and of course lips!) and he rubbed his chin and >said, " hmmmm- I wonder if you have herpes in your liver... but I don't want >to be the one to tell you you're going to have to get another liver biopsy >to verify it " . I've never heard of such a thing- but honestly, it has >crossed my mind. > >Right now, I KNOW for a fact that they're grasping at straws. I was >actually >feeling almost suicidal- but not really. It's hard to describe... I know I >would never do anything to intentionally kill myself- but at that moment, I >just wanted to give up and die. Please don't worry- I would never do it- >but >I think you all have been there at one time or another. I'm just soooooooo >sick of being so sick and not having any answers. This is no way to live. I >go to work and come home and sleep. I try to go out with my boyfriend- but >I'm too tired to do anything fun. Last night we were just going shopping at >the hardware store and I almost passed out several times. I finally had him >take me home. We were going to rent a movie and just enjoy each others >company, but I was too tired for that. I feel like I'm a drag to be around. >I got a major promotion at work yesterday (this is big league now) and all >I >could think about was how can I possibly handle this. I couldn't even get >excited about the possibilities. After my boyfriend dropped me off at home, >I went to my parents house afterward and cried my eyes out. > >Kathy, I PROMISE I'll go see your doctor. I know I'm dumb to keep giving my >doctor's more chances- but I'll wait and see how this recent 'guess' works >out. Who knows- maybe they guessed right this time. > >Thanks you guys for letting me vent. Even my parents and boyfriend, as >understanding as they are, have no clue what I'm going through. I feel like >such a crybaby when I get upset over this with them because I know they >don't really understand the whole picture. I'm so glad that I found this >group. (Imagine, if you will, I'm sitting here in my flannel jammies- mid >summer- with my laptop crying my eyes out while I type this message.. ha >ha- >it even makes ME laugh!) > >LoriRosenberg@... > >You don't stop laughing because you grow old; you grow old because you stop >laughing > > > > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 1999 Report Share Posted August 28, 1999 Dear Lori, You poor thing, I do know just how you feel... No answers from the medical profession, but please do try out Kathy's MD, there is no reason that you should have to go on like this... Have they ever given you a diagnosis yet? Please stay in touch, we all care about you.. (AIH) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 1999 Report Share Posted August 29, 1999 Lori I feel really bad that you are having all these problems besides being so ill.I hope things soon get better. Hang in there! Pa. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 1999 Report Share Posted August 30, 1999 ---------- Lori, You are right, we do know how you feel. Just the phrase " I am sick of being sick " sounds like one of my own postings when I first started in this group. It does get to you and yes everyone thinks they are being understanding but the group is the only ones that can really understand. I can relate to the mood you are in I have been there many times, but just try and hang in there. Better days will come. I never thought they would but I have the occasional one now and then. Hope you are feeling more on top of it now. SueB. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 1999 Report Share Posted September 5, 1999 Geri, glad you are back, I missed you. J >From: Geri Spang <spangs@...> >Reply- onelist > onelist >Subject: [ ] Sick again >Date: Sun, 05 Sep 1999 03:27:50 -0700 >MIME-Version: 1.0 >From errors-165537-6027-shireen42 Sun Sep 05 03:29:22 1999 >Received: from [209.207.135.229] by hotmail.com (2.1) with ESMTP id >MHotMailB99B910200C2D82197DBD1CF87E534E40; Sun Sep 05 03:29:22 1999 >Received: (qmail 24411 invoked by alias); 5 Sep 1999 10:29:45 -0000 >Received: (qmail 24403 invoked from network); 5 Sep 1999 10:29:44 -0000 >Received: from unknown (HELO mtiwmhc01.worldnet.att.net) (204.127.131.36) >by pop.onelist.com with SMTP; 5 Sep 1999 10:29:44 -0000 >Received: from worldnet ([63.23.75.246]) by mtiwmhc01.worldnet.att.net >(InterMail v03.02.07.07 118-134) with SMTP id ><19990905102953.PIQS6023@worldnet> for < onelist>; Sun, 5 >Sep 1999 10:29:53 +0000 >Message-Id: <4.1.19990905031047.009ac100@...> >X-Sender: spangs@... >X-Mailer: QUALCOMM Windows Eudora Pro Version 4.1 >Mailing-List: list onelist; contact > -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: Geri Spang <spangs@...> > >Lori, >I had something similar to the cold sores you've mentioned, but before was >diagnosed with AIH. Started with what looked like an almost florescent >spot on >my lower lip. At the time so many other things were going on in my life I >didn't bother to follow up when the doctor suggested a biopsy. Almost two >years later, the spot was still there but didn't grow, then I developed >lesions >of some sort on both hands. There were also spots here and there, but >nothing >significant except on my hands. > >I was tested, treated, checked and actually seen by a Dermatologist every >couple of weeks for almost a year while he tried multiple different meds, >including one that had to be " mixed " by the pharmacist. Nothing I used had >any >effect at all. Over the months, I began to develop these same " lesions " >inside >my mouth and I was told that eventually I'd develop them in the genital >area. >I don't know why the doctor reached that conclusion. > >The lesions disappeared spontaneously, almost as rapidly as they started. >Now, >three years later, I've gotten around to getting copy of those Seattle >medical >records and see that he suspected a distinct condition (wish I knew what >it >was) that had to do with a blood disease. > >I've since learned that these lesions can be typical of AIH, especially the >hand lesions (almost always on the palms). I don't have them anymore but >there >are still red blotches like scars on the palms of both hands and >significantly, >every GI doctor and Hepatologist I've seen has looked at the palms of my >hands >and confirmed that the " scars " are typical for liver disease. > >Because I also had a few spots on my face besides my lips, I'm wondering if >what you have is the same thing and your doctors aren't putting the pieces >together? > >About the fatigue, it goes with the program, sorry to say. I thought it >must >be all in my head, but as I write this, I realize that my hopes to try to >catch >up with some of the mail that's collected over the 2 weeks I've been gone >is >out of the question. I'm totally exhausted, as usual, and as I was most of >the >time I was off " enjoying " myself in our trip along the California and >Oregon >coasts and in Portland. > >Tomorrow is another day! > >Take care, >Geri > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 1999 Report Share Posted September 5, 1999 Geri, nice to have you back. Lynn aih Geri Spang wrote: > From: Geri Spang <spangs@...> > > Lori, > I had something similar to the cold sores you've mentioned, but before was > diagnosed with AIH. Started with what looked like an almost florescent spot on > my lower lip. At the time so many other things were going on in my life I > didn't bother to follow up when the doctor suggested a biopsy. Almost two > years later, the spot was still there but didn't grow, then I developed lesions > of some sort on both hands. There were also spots here and there, but nothing > significant except on my hands. > > I was tested, treated, checked and actually seen by a Dermatologist every > couple of weeks for almost a year while he tried multiple different meds, > including one that had to be " mixed " by the pharmacist. Nothing I used had any > effect at all. Over the months, I began to develop these same " lesions " inside > my mouth and I was told that eventually I'd develop them in the genital area. > I don't know why the doctor reached that conclusion. > > The lesions disappeared spontaneously, almost as rapidly as they started. Now, > three years later, I've gotten around to getting copy of those Seattle medical > records and see that he suspected a distinct condition (wish I knew what it > was) that had to do with a blood disease. > > I've since learned that these lesions can be typical of AIH, especially the > hand lesions (almost always on the palms). I don't have them anymore but there > are still red blotches like scars on the palms of both hands and significantly, > every GI doctor and Hepatologist I've seen has looked at the palms of my hands > and confirmed that the " scars " are typical for liver disease. > > Because I also had a few spots on my face besides my lips, I'm wondering if > what you have is the same thing and your doctors aren't putting the pieces > together? > > About the fatigue, it goes with the program, sorry to say. I thought it must > be all in my head, but as I write this, I realize that my hopes to try to catch > up with some of the mail that's collected over the 2 weeks I've been gone is > out of the question. I'm totally exhausted, as usual, and as I was most of the > time I was off " enjoying " myself in our trip along the California and Oregon > coasts and in Portland. > > Tomorrow is another day! > > Take care, > Geri > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2000 Report Share Posted January 4, 2000 > I want to try echinacea drops for the babies. I give them to the older > two in their drinks when they have colds. The adult dose is 10 drops in > water{or whatever} 2-3 x's/day.......I give the older two 3-5 drops > 1x/day...... I want to give the babies about 3 drops in their fruit > 1x/day.......has anyone done this to babies?????????????????????? Gail, yes; I have used Echinacea with my twins when they were young. There are bottles specifically for babies, I wouldn't use the adult stuff on the babes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2000 Report Share Posted January 4, 2000 Gail..I have used it when mine were tots! The adult formula has alcohol...but so does every other meds so unless you are a stickler about that...you can use it. I would use 2-3 drops daily. mom to Katy 10 and Denton 5 both ds --- GVanHouten <rjvh@...> wrote: > Hi everyone! Sorry I missed the chat last night, had > a problem with the > husband, nothing big. > OK, my twins and Tara{Ds} 9.5 months old, are > sick with colds > again! Third cold in about a month and a half's > time. Last one I waited > to the 10 day mark, then took them both in to our > dr., had > bilateral ear infections, Tara DID NOT{didn't > believe that one} > My two older kids are not sick and we in this house > are STICKLERS about > hand washing! > I want to try echinacea drops for the babies. I give > them to the older > two in their drinks when they have colds. The adult > dose is 10 drops in > water{or whatever} 2-3 x's/day.......I give the > older two 3-5 drops > 1x/day...... I want to give the babies about 3 drops > in their fruit > 1x/day.......has anyone done this to > babies?????????????????????? > > Gail mom to Bobby{6 next week}Jillian-3 1/2, > and Tara{Ds}9.5months > > ------------------------------------------------------------------------ > http://DSyndrome.com/Multiples > <HR> <html> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2000 Report Share Posted May 5, 2000 I am sorry you are not doing so well. Wish I could help you out. I will go to the chatroom anytime to talk. Just email me when you liked to. If I am not online I check my email all the time. I went just a few minutes ago but noone was there. Anytime I can help I am here Tina1 >From: " McCrawleigh " <laakari_aliisa@...> >Reply-egroups ><egroups> >Subject: sick again >Date: Fri, 5 May 2000 23:20:23 +0800 > >hi....... does anyone feel like coming to the chatroom? only if you want to >talk though....... > >i am Sonja...i'm 23 and live in perth, WA > >i need help...... i feel like giving up........ this morning i woke up >coughing and had a haemoptysis....... i am getting used to that......... >but >i've only been well for a couple of weeks....... the last chest infection >started as just a head cold and took me almost 4 months to kick...... i had >a course of roxithromycin..........nebulised tobramycin...........then 3 >courses of clindamycin and finally azithromycin before i got better........ >my PFT's went up to about 200 which is excellent for me but today i'm only >getting 80...... i'm terrified that i'll end up in ICU again like last time >(11 respiratory arrests and 1 cardiac arrest in 3 months) .......... i >decided to go NFR/DNR as i am sick of the whole business but i wish i >didn't >have to make that decision......... so i guess they can't really put me in >there anyway........... sorry to dump all this on you but i need to tell >someone...... i can't do it alone anymore > >i have ICQ......my number is 67811928 if anyone wants to contact me > >thanks for listening > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2000 Report Share Posted May 5, 2000 sorry i just got disconnected and couldn't get back on for 15 mins......i'm there now hugs and thanks, Sonja sick again >Date: Fri, 5 May 2000 23:20:23 +0800 > >hi....... does anyone feel like coming to the chatroom? only if you want to >talk though....... > >i am Sonja...i'm 23 and live in perth, WA > >i need help...... i feel like giving up........ this morning i woke up >coughing and had a haemoptysis....... i am getting used to that......... >but >i've only been well for a couple of weeks....... the last chest infection >started as just a head cold and took me almost 4 months to kick...... i had >a course of roxithromycin..........nebulised tobramycin...........then 3 >courses of clindamycin and finally azithromycin before i got better........ >my PFT's went up to about 200 which is excellent for me but today i'm only >getting 80...... i'm terrified that i'll end up in ICU again like last time >(11 respiratory arrests and 1 cardiac arrest in 3 months) .......... i >decided to go NFR/DNR as i am sick of the whole business but i wish i >didn't >have to make that decision......... so i guess they can't really put me in >there anyway........... sorry to dump all this on you but i need to tell >someone...... i can't do it alone anymore > >i have ICQ......my number is 67811928 if anyone wants to contact me > >thanks for listening > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2000 Report Share Posted May 5, 2000 wheew, you are doing it hard kid! Don't give up, we are here for you. What is a haemoptysis? Respiratory and cardiac arrests? What have you been accused of? I am as yet undiagnosed but feel like shit all of the time! I live in the ACT so we are at least in the same country! Do you have family and friends around you? Is there someone you can talk to? You are not doing it alone, we are here :-) That may not sound like much right now, but I think this group is great, there is nowhere else I can go and find a group of individuals who are experiencing the same problems as me, (and much worse) are supportive and informative, who understand what tired and sick really mean, and who are there when you need them. If you ever want to email me off list feel free, I am on line for hours each day, so chances are you could catch me. At least being in the same country we have a chance of being online at the same time, though I do a lot of very late night shifts here :-) (addicted to email) Hang in there buddy, and keep us posted :-) :-) > hi....... does anyone feel like coming to the chatroom? only if you want to > talk though....... > > i am Sonja...i'm 23 and live in perth, WA > > i need help...... i feel like giving up........ this morning i woke up > coughing and had a haemoptysis....... i am getting used to that......... but > i've only been well for a couple of weeks....... the last chest infection > started as just a head cold and took me almost 4 months to kick...... i had > a course of roxithromycin..........nebulised tobramycin...........then 3 > courses of clindamycin and finally azithromycin before i got better........ > my PFT's went up to about 200 which is excellent for me but today i'm only > getting 80...... i'm terrified that i'll end up in ICU again like last time > (11 respiratory arrests and 1 cardiac arrest in 3 months) .......... i > decided to go NFR/DNR as i am sick of the whole business but i wish i didn't > have to make that decision......... so i guess they can't really put me in > there anyway........... sorry to dump all this on you but i need to tell > someone...... i can't do it alone anymore > > i have ICQ......my number is 67811928 if anyone wants to contact me > > thanks for listening > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2000 Report Share Posted May 5, 2000 Hi Sonja Just checked you are not in chat, it is 9:30am here in the ACT you are probably still in bed (lucky you!) will check everytime I get on line (will most probably be back on late tonight, one session on line per day is never enough!) Have a better day :-) > sorry i just got disconnected and couldn't get back on for 15 mins......i'm > there now > > hugs and thanks, > Sonja > sick again > >Date: Fri, 5 May 2000 23:20:23 +0800 > > > >hi....... does anyone feel like coming to the chatroom? only if you want to > >talk though....... > > > >i am Sonja...i'm 23 and live in perth, WA > > > >i need help...... i feel like giving up........ this morning i woke up > >coughing and had a haemoptysis....... i am getting used to that......... > >but > >i've only been well for a couple of weeks....... the last chest infection > >started as just a head cold and took me almost 4 months to kick...... i had > >a course of roxithromycin..........nebulised tobramycin...........then 3 > >courses of clindamycin and finally azithromycin before i got better........ > >my PFT's went up to about 200 which is excellent for me but today i'm only > >getting 80...... i'm terrified that i'll end up in ICU again like last time > >(11 respiratory arrests and 1 cardiac arrest in 3 months) .......... i > >decided to go NFR/DNR as i am sick of the whole business but i wish i > >didn't > >have to make that decision......... so i guess they can't really put me in > >there anyway........... sorry to dump all this on you but i need to tell > >someone...... i can't do it alone anymore > > > >i have ICQ......my number is 67811928 if anyone wants to contact me > > > >thanks for listening > > > > > >__________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2000 Report Share Posted May 5, 2000 Dear Sonja, Sorry I wasn't online when you needed a chat, and more so - I am really sorry to hear that you are sick again. *hug* You sound really little like you need lots and lots of hugs. It must be very very scary. i'm terrified that i'll end up in ICU again like last time(11 respiratory arrests and 1 cardiac arrest in 3 months) .......... idecided to go NFR/DNR as i am sick of the whole business but i wish i didn'thave to make that decision......... so i guess they can't really put me inthere anyway.......... You can change that decision at any time. And I wish you didnt have to make that choice also sweet one. Ohhh...*hug* .. sorry to dump all this on you but i need to tellsomeone...... i can't do it alone anymore You are not dumping Sonja - you are asking for the help that you need and you are not alone!!! If ya want to make a time to chat today let me know. I will be on ICQ this arvo about 3/4 pm my time which is 2 hours ahead of you. So you can catch me then if you would like - you know i am here for you. My icq is 55461955. You dont have to do this alone. Do you live anywhere near Nerys? Just wondering incase you need someone to give you a hug (or chocolate) cause I know she would. Love ya sweet. Aisha. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 Hello honey Poo stains I must have just disconnected before your e-mail came thru! Hope you are doing better today and have managed to talk to someone. Shit that you have got bad again, I am so sorry to hear that. I am catching up on e-mail, on Friday at mo so hoping as read down there will be a message from you saying you are ok. Please don't give up, you have gone thru so much to get this far and you have such a lot to offer us all, hang in there!!!! How are your parents with the NFR/DNR? still fighting it? Have you explained to them why you fell that way? Heard from Brisi' man at all? How are you coping? I am so pissed off I missed you the other day. Take care sweetie and huggs Lots of love Nerys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 Donna, Here's hoping you're better soon! Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 In a message dated 4/2/01 10:39:16 AM Eastern Daylight Time, duffey48@... writes: << Back to bed guys!! Hopefully I'll be back on tomorrow. Donna >> Gosh donna, I'm sorry. (((((hugs))))) Hope you feel better tomorrow. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 > Here I am trying to get fit for this marathon..and I get sick! > > The doc thought it was tonsilitis at first, but now he has confired it is glandular fever (EBV). > > I just pray it isnt a bad case because I cant afford 6 weeks off work! > > Kristy Ah! The Kissing Disease, you lucky girl! I mean, oh, I am sorry, that really sucks! Marta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 In a message dated 1/28/2004 5:45:57 PM Pacific Standard Time, s4052475@... writes: > The doc thought it was tonsilitis at first, but now he has confired it is > glandular fever (EBV). > I'm so sorry to hear you are sick, Kristy. I am praying you'll have a quick recovery and you'll be able to get back to your marathon training! Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 In a message dated 1/29/2004 12:44:32 AM Central Standard Time, mjs93311@... writes: Ah! The Kissing Disease, you lucky girl! I mean, oh, I am sorry, that really sucks! Marta Marta, I started to ask who she'd been kissing....LOL. in Bama VBG 1982 (lost from 433lbs to 270's) VBG to RNY1996 revision(Lost from 343 to 299) RNY to DS revision Dec 2002 -down 118 lbs so far (377.7 to 259.4 and still going Homepage address- http://hometown.aol.com/mdl1031/myhomepage/profile.html Many thanks to Dr. K willing to take on a 3rd timer....LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 In a message dated 1/29/2004 12:44:32 AM Central Standard Time, mjs93311@... writes: Ah! The Kissing Disease, you lucky girl! I mean, oh, I am sorry, that really sucks! Marta Marta, I started to ask who she'd been kissing....LOL. in Bama VBG 1982 (lost from 433lbs to 270's) VBG to RNY1996 revision(Lost from 343 to 299) RNY to DS revision Dec 2002 -down 118 lbs so far (377.7 to 259.4 and still going Homepage address- http://hometown.aol.com/mdl1031/myhomepage/profile.html Many thanks to Dr. K willing to take on a 3rd timer....LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 i have a bacterial infection in my chest that the doctor said is slowly beginning in my lung but that we caught it early enough she thinks i should be okay with at home treatment. however, ive never seen this doctor before (mine were overbooked and i needed to see anyone immediately) and i dont think she understands SMA. the treatment i am getting my mom and i fought for today. im back on the zithromax for the next ten days and i got a nebulizer today with albuterol. i HATE albuterol. i hate being sick. last night and tonight im having a really hard time breathing. im gagging on phlegm and mucus until i vomit. i cant breathe in enough air. i cant cough out enough. im really miserable and really scared. ~kendra > hello everyone. ive been really sick since wednesday night. i was > feeling it that morning and took zinc but its just bad now. ive been > having a really hard time breathing, extremely congested. i am > thankful for the vest machine even though it hurts - its helping with > loosening phlegm and i was able to cough up a lot all by myself! > (myself and my mom get VERY excited about this - its a first and i > believe its all due to the vest.) unfortunately im not getting enough > out - its a temporary fix to get air through immediately, but im still > congested and its building up rapidly. ive had 99-101F temp since > friday night without any luck of bringing it down. ive been on > ibuprofen and that will bring it down a bit and make me pass out but 4 > hours later and im awake again. im also taking a robitussin > expectorant. this just isnt doing enough and my doctor agreed > yesterday just from hearing the symptoms and how i sound over the > phone. my mom and i are going into the hospital tomorrow for an xray > and we're gonna see the doc and maybe find a better med to help me get > better quicker. ive been trying to get as much bed rest as i can but i > just have so many things going on! ive been out staying out of work or > social gatherings that last longer than an hour or two - my head just > starts spinning if i dont. > > i cant remember a time ive been sick so often ever before. this is the > fourth time since december, and theyve all been fairly horrible that > some bed rest, good food and counter meds dont help much. :\ > > ~kendra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 Kendra, I'm praying for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 Kendra, I'm sorry it's so scary. Night is always the worst for me. Would it help to have a vest and/or portable suction machine at home? Drinking enough? Warm water helps me. Hang in there and don't hesitate to go to the hospital if you need to. Alana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 Have you considered getting a Cough Assist devise (http://www.coughassist.com/coughassist.htm )? Mine was actually just delivered late last week and haven't had a chance to try it out. From what I understand it, will take some getting used to but that it is awesome. Mine was approved and delivered to my door in 15 days. Lori Re: sick again i have a bacterial infection in my chest that the doctor said is slowly beginning in my lung but that we caught it early enough she thinks i should be okay with at home treatment. however, ive never seen this doctor before (mine were overbooked and i needed to see anyone immediately) and i dont think she understands SMA. the treatment i am getting my mom and i fought for today. im back on the zithromax for the next ten days and i got a nebulizer today with albuterol. i HATE albuterol. i hate being sick. last night and tonight im having a really hard time breathing. im gagging on phlegm and mucus until i vomit. i cant breathe in enough air. i cant cough out enough. im really miserable and really scared. ~kendra > hello everyone. ive been really sick since wednesday night. i was > feeling it that morning and took zinc but its just bad now. ive been > having a really hard time breathing, extremely congested. i am > thankful for the vest machine even though it hurts - its helping with > loosening phlegm and i was able to cough up a lot all by myself! > (myself and my mom get VERY excited about this - its a first and i > believe its all due to the vest.) unfortunately im not getting enough > out - its a temporary fix to get air through immediately, but im still > congested and its building up rapidly. ive had 99-101F temp since > friday night without any luck of bringing it down. ive been on > ibuprofen and that will bring it down a bit and make me pass out but 4 > hours later and im awake again. im also taking a robitussin > expectorant. this just isnt doing enough and my doctor agreed > yesterday just from hearing the symptoms and how i sound over the > phone. my mom and i are going into the hospital tomorrow for an xray > and we're gonna see the doc and maybe find a better med to help me get > better quicker. ive been trying to get as much bed rest as i can but i > just have so many things going on! ive been out staying out of work or > social gatherings that last longer than an hour or two - my head just > starts spinning if i dont. > > i cant remember a time ive been sick so often ever before. this is the > fourth time since december, and theyve all been fairly horrible that > some bed rest, good food and counter meds dont help much. :\ > > ~kendra A FEW RULES * The list members come from many backgrounds, ages and beliefs So all members most be tolerant and respectful to all members. * Some adult language and topics (like sexual health, swearing..) may occur occasionally in emails. Over use of inappropriate language will not be allowed. If your under 16 ask your parents/gaurdian before you join the list. * No SPAMMING or sending numerous emails unrelated to the topics of spinal muscular atrophy, health, and the daily issues of the disabled. Post message: Subscribe: -subscribe Unsubscribe: -unsubscribe List manager: (Sexy Mature Artist) Email: Esma1999@... oogroups.com List manager: (Sexy Mature Artist) Email: Esma1999@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2004 Report Share Posted April 21, 2004 Hey, Kendra, thinking of you and hoping you are feeling a bit better. I second the advice of the cough assist - it works well at getting the phlegm out. A little bit of oxygen might help too - let you rest better. When Bernie is feverish and coughing and gagging I like to give him tylenol (or an anti-nausea medication if necessary) in a suppository - he doesn't gag that way. This year had been a bad one for flus, it's true. Bernie was terribly ill even tho' he had the flu shot - viral pneumonia, I was pretty scared because it didn't respond at all to the antibiotic. He ran a fever for 10 days. But he recovered good as new and I'm sure you will too with good care. Bettylou Kendra wrote: > i have a bacterial infection in my chest that the doctor said is > slowly beginning in my lung but that we caught it early enough she Quote Link to comment Share on other sites More sharing options...
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