Re: Ray Stricker - York 2004 LDA Conference

[Guest guest]

THANK YOU SO MUCH FOR THAT LARA! THAT WAS THE BEST LYME INFO I HAVE

READ! NOW IF WE COULD JUST GET GP'S AND OTHER DRS AND HEALTH CARE

WORKERS TO READ IT!!!!!!!

>

> http://www.lymediseaseaction.org.uk/conference/t_2004_3.htm

>

> If you look at the treatments section of this presentation, there is

> some very useful information on use of different antibiotics - and some

> comments about the use of IV ceftriaxone on its own vs other

> antibiotics.

>

> BW

> Lara

>

[Guest guest]

wonderful info, thanks!

ellen

>

> http://www.lymediseaseaction.org.uk/conference/t_2004_3.htm

>

> If you look at the treatments section of this presentation, there is

> some very useful information on use of different antibiotics - and

some

> comments about the use of IV ceftriaxone on its own vs other

> antibiotics.

>

> BW

> Lara

>

[Guest guest]

Thanks Ellen and Lizzie. I am glad it was of use. I can sympathise

about your doctors. We have the same problem in UK & Europe. My

boyfriend has Lyme Disease (European Strains!) and he was never even

given a test for it by our National Health Service (NHS). If they do

test, they use the Health Protection Agency (NHS) Laboratory in

Southampton. Many people who have positive tests from Bowen or

Igenex, as well as qualifying for a clinical diagnosis of Lyme

borreliosis seem to test negative from the HPA and then do not get

any anti-biotic treatment. Instead they are labelled with ME/CFS

and/or FMS, which is even worse because then quite often health

complications of the Lyme disease are dismissed as untreatable

aspects of those conditions, which in any case are largely viewed by

our health 'profession' as psychological in nature.

My boyfriend we think contracted Lyme borreliosis a long time ago,

but came down with permanent symptoms about 5 years ago. After all

this time, he has only now been able to access anti-biotic therapy

(privately). The issue of IV ceftriaxone vs other therapies has been

a big issue for us, and in the end I think he will have to have IV,

to treat the neurological symptoms, but also because he cannot

tolerate anti-biotics orally.

It is great to have US and European experts (and patients!) coming

together to discuss these issues, I think that they learn a lot from

each other.

Well, I hope to post more useful info in future

Best Wishes

Lara

> >

> > http://www.lymediseaseaction.org.uk/conference/t_2004_3.htm

> >

> > If you look at the treatments section of this presentation, there

is

> > some very useful information on use of different antibiotics -

and

> some

> > comments about the use of IV ceftriaxone on its own vs other

> > antibiotics.

> >

> > BW

> > Lara

> >

>