Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 can anyone help with treatments for scleroderma? Scleroderma is the autoimmune disease from hell. I have seen success stories from people using colonics and dietary changes. If it were me, I would read these two books, I would be on coral calcium to keep the body alkalized and I would be under the care of an advanced clinical kinesiologist. In addition, I would be on power natural antioxidants like ellagic acid. I wish you well. Steve P.S. Scleroderma is mentioned in one of these books. Colon Cleansing The Best Kept Secret By Weiss and Vena Burnett Tissue Cleansing Through Bowel Management By Bernard Jensen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 Mr. Steve Look the web page www.sdclinic.com and under auto-immune diseases you will find a lot of information for this Sclerodermia and other Auto-immune diseases. --- healerstouch1@... wrote: > can anyone help with treatments for scleroderma? > > Scleroderma is the autoimmune disease from hell. I > have > seen success stories from people using colonics and > dietary changes. If it were me, I would read these > two > books, I would be on coral calcium to keep the body > alkalized and I would be under the care of an > advanced > clinical kinesiologist. In addition, I would be on > power > natural antioxidants like ellagic acid. > > I wish you well. > > Steve > P.S. Scleroderma is mentioned in one of these > books. > > Colon Cleansing The Best Kept Secret > By Weiss and Vena Burnett > > Tissue Cleansing Through Bowel Management > By Bernard Jensen > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 Please unsubscribe me. thank you. Laurie Wisdom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 Dear Steve, Have you contacted the Oasis of Hope Hospital in Mexico, and also now the Gerson therapy is being done there as well, you could phone or e-mail and see if they have had any positive results with it. Sometimes an IV of an antibiotic is given. A Dr. Browne back in the 50's has a book about curing Rhematoid arthritis, Scleroderma and Lupus, he said something along the lines of ' the body is not declaring war on itself by reacting against its own tissues, its reacting against a mycoplasma which is so small that its hard to detect THAT is what the body is trying to kill' if you do a search thru Amazon you will probably get the book I am talking about. good luck, Jane in UK Re: scleroderma >can anyone help with treatments for scleroderma? > >Scleroderma is the autoimmune disease from hell. I have >seen success stories from people using colonics and >dietary changes. If it were me, I would read these two >books, I would be on coral calcium to keep the body >alkalized and I would be under the care of an advanced >clinical kinesiologist. In addition, I would be on power >natural antioxidants like ellagic acid. > >I wish you well. > >Steve >P.S. Scleroderma is mentioned in one of these books. > >Colon Cleansing The Best Kept Secret >By Weiss and Vena Burnett > >Tissue Cleansing Through Bowel Management >By Bernard Jensen > > >------------------------------------------------------------------------ >Whatever you want, chances are you'll find it at one of the hundreds >of sites in The PointClick Network--like Disney.com, eCost.com, >FogDog.com and many more. You get paid as you shop and an additional >10% off any purchase, anytime. >1/2994/7/_/378/_/956113954/ >------------------------------------------------------------------------ > >Get HUGE info at http://cures for cancer.evangelist.net, and post your own links there. Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by visiting http://www.bobhurt.com/subunsub.mv > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2000 Report Share Posted April 20, 2000 Hello, I have some information about something helping scleroderma. A man in Seattle has had WONDERFUL SUCCESS. Contact me at mannadadeo@... if you would like. GOD BLESS & HAVE A HEALTHY DAY!!! Eddie ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ scleroderma > can anyone help with treatments for scleroderma? > > ------------------------------------------------------------------------ > Whatever you want, chances are you'll find it at one of the hundreds > of sites in The PointClick Network--like Disney.com, eCost.com, > FogDog.com and many more. You get paid as you shop and an additional > 10% off any purchase, anytime. > 1/2994/7/_/378/_/956105980/ > ------------------------------------------------------------------------ > > Get HUGE info at http://cures for cancer.evangelist.net, and post your own links there. Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by visiting http://www.bobhurt.com/subunsub.mv Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 > > Anyone knows anything about treating this? I have a protocol that works, > > but I'm looking for as much info and ideas as I can find. > > Thank you! > > Ronen. I am assuming you meant scleroderma...I have heard of healings of this terrible autoimmune disease with the use of copious amounts of aloe vera juice drunk daily, along with high Vit E dosages, and lots and lots of fresh raw juices--no processed foods. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 The protocol I developed with the patient includes high oxygen intake (MSO), intensive magnetic treatment, liver cleanse, and macrobiotic diet. There is a gradual improvement that goes on now for a month, after a very obvious improvement on the first week. I do wish for all info I can get, especially treatments which don't require mega dose of $$$... Ronen. Re: Fw: Scleroderma > > > > Anyone knows anything about treating this? I have a protocol that > works, > > > but I'm looking for as much info and ideas as I can find. > > > Thank you! > > > Ronen. > I am assuming you meant scleroderma...I have heard of healings of this > terrible autoimmune disease with the use of copious amounts of aloe vera > juice drunk daily, along with high Vit E dosages, and lots and lots of fresh > raw juices--no processed foods. > Patty > > > > OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self-help subjects. > > THERE IS NO MEDICAL ADVICE HERE! > > This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. By joining the list you agree to hold yourself FULLY responsible FOR yourself. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider. > > You can unsubscribe via e-mail by sending A NEW e-mail to the following address - NOT TO THE OXYPLUS LIST! - > DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the message! : > > oxyplus-unsubscribeegroups > > oxyplus-normalonelist - switch your subscription to normal mode. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 The protocol I developed with the patient includes high oxygen intake (MSO), intensive magnetic treatment, liver cleanse, and macrobiotic diet. There is a gradual improvement that goes on now for a month, after a very obvious improvement on the first week. I do wish for all info I can get, especially treatments which don't require mega dose of $$$... Ronen. Re: Fw: Scleroderma > > > > Anyone knows anything about treating this? I have a protocol that > works, > > > but I'm looking for as much info and ideas as I can find. > > > Thank you! > > > Ronen. > I am assuming you meant scleroderma...I have heard of healings of this > terrible autoimmune disease with the use of copious amounts of aloe vera > juice drunk daily, along with high Vit E dosages, and lots and lots of fresh > raw juices--no processed foods. > Patty > > > > OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self-help subjects. > > THERE IS NO MEDICAL ADVICE HERE! > > This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. By joining the list you agree to hold yourself FULLY responsible FOR yourself. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider. > > You can unsubscribe via e-mail by sending A NEW e-mail to the following address - NOT TO THE OXYPLUS LIST! - > DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the message! : > > oxyplus-unsubscribeegroups > > oxyplus-normalonelist - switch your subscription to normal mode. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 The protocol I developed with the patient includes high oxygen intake (MSO), intensive magnetic treatment, liver cleanse, and macrobiotic diet. There is a gradual improvement that goes on now for a month, after a very obvious improvement on the first week. I do wish for all info I can get, especially treatments which don't require mega dose of $$$... Ronen. Re: Fw: Scleroderma > > > > Anyone knows anything about treating this? I have a protocol that > works, > > > but I'm looking for as much info and ideas as I can find. > > > Thank you! > > > Ronen. > I am assuming you meant scleroderma...I have heard of healings of this > terrible autoimmune disease with the use of copious amounts of aloe vera > juice drunk daily, along with high Vit E dosages, and lots and lots of fresh > raw juices--no processed foods. > Patty > > > > OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self-help subjects. > > THERE IS NO MEDICAL ADVICE HERE! > > This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. By joining the list you agree to hold yourself FULLY responsible FOR yourself. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider. > > You can unsubscribe via e-mail by sending A NEW e-mail to the following address - NOT TO THE OXYPLUS LIST! - > DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the message! : > > oxyplus-unsubscribeegroups > > oxyplus-normalonelist - switch your subscription to normal mode. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 DMSO works. SaraLou Re: Fw: Scleroderma > > Anyone knows anything about treating this? I have a protocol that works, > > but I'm looking for as much info and ideas as I can find. > > Thank you! > > Ronen. I am assuming you meant scleroderma...I have heard of healings of this terrible autoimmune disease with the use of copious amounts of aloe vera juice drunk daily, along with high Vit E dosages, and lots and lots of fresh raw juices--no processed foods. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 How? With what? Where (to get)? What (does it do)? Any side-effects, counter-indications, cautions, etc? Thank you. Ronen. Re: Fw: Scleroderma > > > Anyone knows anything about treating this? I have a protocol that > works, > > > but I'm looking for as much info and ideas as I can find. > > > Thank you! > > > Ronen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2001 Report Share Posted October 14, 2001 DMSO : nature's healer by Morton is the first place I heard of scleroderma. Dr s, who is THE researcher on DMSO (perhaps the discoverer) has done much with DMSO and scleroderma. One of my Bishops traveled florida to oregon with his mom who had scleroderma to work at s' clinic. When she died of pneumonia she was symptom free of scleroderma--previously had been unable to clench her fist or move much of the rest of her body with ease. Her internal organs were dramatically affected. And it fixed her. s has a web page. Do a net search of DMSo and you'll find him Dr. Stan s or perhaps it's . SaraLou ======================== http://www.best.com/~handpen/Cancell/nathan.htm#HOPE Other Diseases Cancell has been effective against viruses including AIDS, herpes, Chronic Fatigue syndrome, lupus, endimetriosis, Crohn's disease, fibromyalgia, and has some success treating: ALS, Multiple Sclerosis, Muscular Dystrophy, Parkinson's, Alzheimer's, Leukemia, and Scleroderma. Information about these diseases and Cancell will be added I continue my research. For the above diseases above that don't have a link, please contact HOPE for more information. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2001 Report Share Posted October 14, 2001 a few URLs from dogpile.com. search for " dmso and scleroderma " or " Dr. Stanley " or click on some of the links below. There are more articles than you want to read. To find mention of a word within an article, usually your browser will have a find function under edit or under tools...you can type the word into the " find word on this page " blank and that helps narrow the field. SaraLou http://www.dmso.org/index.html http://www.dmso.org/articles/scleroderma/index.htm http://www.lef.org/protocols/abstracts/abstr-127.html 3. Scleroderma International Foundation The Scleroderma International Foundation (SIF), a voluntary membership organization with State chapters and local support groups, was founded in 1971 to provide scleroderma patients with information and support and to fund research into the disease. Scleroderma (also known as progressive systematic sclerosi) is a chronic and degenerative disease of the connective tissue. The Foundation keeps its members informed of medical, legal, and political developments relevant to the disease and brings patients together for mutual support. SIF also raises funds for research and is associated particularly with research into the use of dimethyl sulfoxide (DMSO) to treat scleroderma. It also allocates funds for non-DMSO research. http://mentalhealth.about.com/library/h/orgs/bl1761.htm?iam=dpile & terms=%2Bdmso 1. Scleroderma Index Scleroderma Index: Studies: " Further Observations on the Effect of Dimethyl Sulfoxide in Patients with Generalized Scleroderma (Progressive Systemic Sclerosis) " Authur L. Scherbel, Lawrence J. McCormack, and K. Layle " The Efficacy of Long-Term www.dmso.org 6. SCLERODERMA RESOURCES HELLENIC ASSOCIATION DERMATOLOGY - VENEREOLOGY SCLERODERMA RESOURCES A Case of Bleomycin-induced Scleroderrna A page with great " News " links A page with information about Raynaud's Disease A page with Scleroderma links About Scleroderma ADA & Dis www.edae.gr 7. Oxytherapy.com - OxyFile #438 - The Reversal of Scleroderma Report of Two Cases Ozone Insufflation Bags & Catheters - Innovative Multi-Chamber Custom Design OxyFile #438 The Reversal of Scleroderma Report of Two Cases Description: The procedures used for the arresting of the progress of two cases of severe scleroderma and the www.oxytherapy.com 9. Ask Dr Stoll - DMSO post archive Dr Stoll Home | Dr Stoll BB DMSO Posts to Ask Dr Stoll BB regarding DMSO There have been a few posts to the Ask Dr Stoll Bulletin Board (BB) regarding DMSO. Many of them have been archived here. The archive is roughly chronological. I hope you f bcn.net 10. Ask the Experts - Treatment for Linear Scleroderma Please discuss the treatment options for linear scleroderma. www.medscape.com 2. SurviveSD-Medical Pages-Treatment SurviveSD Medical Pages, Treatment http://www.sclerodermasupport.com/medical/treatment-research/index.htm 3. Action And Clinical Pharmacology: The mode of action of dimethylsulfoxide (DMSO) as a treatment for scleroderma is unknown. DMSO is metabolized to dimethylsulfone in the liver. Levels of the metabolite were detected in serum and urine 2 hours following application, with...... (iii)......... http://www.rxmed.com/monographs/kemsol.html 1. Scleroderma Links to information and resources for scleroderma, including CREST Syndrome. http://rarediseases.about.com/cs/scleroderma/index.htm?iam=dpile & terms=%2Bdmso+%\ 2Bscleroderma 7. s, Lawrence, Zucker - contents Part 1: ABC's of MSM 1 Amazing MSM 2 Roots of MSM - ther DMSO connection 3 How to take MSM 4 MSM and Pain 5 MSM and Inflammation Part 2: How MSM helps relieve common pain problems 6 Arthritis (Osteo arthritis) 7 Back Pain 8 Headaches 9 Fibromyalgia 10... http://www.msm-uk.net/contents.htm 8. DMSO, Nature's Healer Dr. Morton , Medical Journalist, D.P.M. DMSO - Dimethyl Sulfoxide - is a simple by-product of wood that has been found to be capable of relieving pain, reducing inflammation, encouraging healing and restoring normal function. In this book,... http://www.drmortonwalker.com/dmso.html Re: Fw: Scleroderma > DMSO works. > > SaraLou Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Dear Therese, Oh, I'm sorry about your sister-in -law. I hope she feels well most of the time. I guess the red spots come from collagen building up on the skin. And she had sensitive teeth too -uh oh! [ ] Scleroderma ,My sister-in-law has scleroderma and Reynauds Disease, unfortunately were not that close, so I don't have much info for you . She has had it for many years and you can see the skin tightening on her, now she is having a problem with the esophagus.I remember her complaining of the sensitive teeth, but I don't know anything about the red spots. Sorry. Therese from CT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 Dear : I checked it out on the medlineplus.gov site (someone posted earlier) and it sounds confusing. The symptoms sound about the same. There are apparently more tests they can run to check this out though, besides the ANA. I'm sorry you're being put on such a rollercoster ride. Just when you think you're going to get a handle on one disease and then a new one is thrown at you. Perhaps your dr. can run some further tests to rule this out for you and ease your mind. You're in my prayers, Rhonda/TN > Hi friends..... > > Just got back from a great vacation in TN mountains. A bit of a > damper was put on it though. I had a call from my GI. they ran some > more blood work to see if I could try to get pg. They said everything > looked great with my liver.....enzymes and proteins. They said that > they, now after 1 yr, do not think it is AIH. I was so relieved. The > next thing they told me petrified me. They said that my ANA is now > positive. It had been negative all along. It was 1:80?? Not too sure > about the range on that test. They then told me that it looks like > Scleroderma. I felt like I was going to faint. I am not sure how they > can tell just from that one test. I do have the severe gastroparesis, > and I know that is found in that disease. I have read a bit about > that disease, and it seems worse than AIH!! I just can't seem to > catch a break. I am not sure if it's the stress or not, but I have > been having pins and needles over my entire body. My face is driving > me bonkers! I have an appt with the Rheumy on Wednesday. I don't > think I have ever dreaded an appt as much as this one. I am soooo > scared. Please keep me in your prayers! > > I looked thru all the posts and could not find anything on Tony. Is > there anyway to find our how he is doing?? > > Hugs and prayers to you all..... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 .... Just wanted to let you know that I will be thinking of you on Wed..... Just to ease you alittle bit...Tys ANA is positive...has been for quite a while...he RA....and just a couple of months ago they also tested him for Scleroderma....yes ....very scary....but this time he actually had a test come back with a good outcome... so lets hope for the best for you too..... I hate the way they just keep adding diseases to the list of auto-immune problems....YIKES.... take care and talk soon Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Hi my Aunt had sclaraderma for years before anyone new what it was. She lived a long life and ended up dying from somethingelse. My sisters mother-in-law also has sclaraderme and she has had it for a long time. This disease is a lot like AIH in that you most often die from something else. Meds are available and good diet, rest and exercise are important. There is a web site about this disease but I don't know the address. Good luck, the WV hillbilly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 Bug.. Please let us know the outcome. I hope all turns out well for you. Diane M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 Oh Bug! I hope that you don't have to deal with this too! But, just because they're testing for it doesn't mean that you have it. Good Luck! Let us know what happens and take good care of yourself! Lynne >hi this is bug. i went to the dr. yesterday and i >am being checked for scleroderma. this is all i need. >i have read stuff about it, and it is some bad stuff. >my skin stared looking older doing the summer. the dr. >told me i look older than her 80 year patients. this can >hit the heart, lungs, kidneys, and even gastrointestinal >tract as well as the skin. i alredy have candida in my >whole body, i sure dont need this. i have been reading >that some of you women are having burning , but don'nt >have infection. i want to tell you what i have and it >doesn'nt show infection. i have interstiual cystist >i may not have spelled this right, but it is one of >the systems of candida. i have had it for 26yrs. >you ladies look it up and read about it. > >you all have a good day and god bless >bug512003 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Bugs, I'm sorry this is all happening to you. I really think that you need to start adding bentonite and psyllium shakes to your daily regimen. Begin with one or two. They really help to remove a lot of floating toxins so that they can't be reabsorbed and they also help to begin cleaning your digestive tract. My shakes really help minimize my die off episodes. Good luck, scleroderma hi this is bug. i went to the dr. yesterday and i am being checked for scleroderma. this is all i need. i have read stuff about it, and it is some bad stuff. my skin stared looking older doing the summer. the dr. told me i look older than her 80 year patients. this can hit the heart, lungs, kidneys, and even gastrointestinal tract as well as the skin. i alredy have candida in my whole body, i sure dont need this. i have been reading that some of you women are having burning , but don'nt have infection. i want to tell you what i have and it doesn'nt show infection. i have interstiual cystist i may not have spelled this right, but it is one of the systems of candida. i have had it for 26yrs. you ladies look it up and read about it. you all have a good day and god bless bug512003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Ron, I have treated a lady for 26 yr. with Scleroderma, I see her once a week, I manually manipulate her spine and all joints in upper and lower extremities. She gets massage also. This keeps her pain level down and less cramping. She also sees a Naturopath for some therapies. She has been in a wheel chair for about 22 yr... Dan Beeson DC Scleroderma I have a 71 year old female patient who has recently been dx with Scleroderma. It appears to be limited to her arms and hands, but the full workup has not been completed to see if there is lung or kidney involvement yet. Anyone have any tried and tested treatments for this disease? Her hands itch and hurt, and we have put her on moisturizing cream and she is taking pain med for the associated shin pain. I am looking for anything you might be able to offer her to make her life more comfortable while the rest of the dx workup is being done. Grice, DCAlbany, OR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Hi Ron, I have several of these and have had some to minimal effect on the skin hardening tho keepin the arthritic component at bay has been relatively successful. the liquid minerals seem to help as well as anything else although the 5 grams of C/day seems tohave slowed the progression of the skin factor. Nattokinase would be somehting I am going to recommend to my next case .... enzymatic cleansing on a strong level. Sunny Sunny Kierstyn, RN DC Fibromyalgia Care Center of Oregon 2677 Willakenzie Road, 7C Eugene, Oregon, 97401 541- 344- 0509; Fx; 541- 344- 0955 From: "rongrice01" <rongrice@...> Subject: SclerodermaDate: Tue, 05 Dec 2006 18:54:42 -0000 I have a 71 year old female patient who has recently been dx with Scleroderma. It appears to be limited to her arms and hands, but the full workup has not been completed to see if there is lung or kidney involvement yet. Anyone have any tried and tested treatments for this disease? Her hands itch and hurt, and we have put her on moisturizing cream and she is taking pain med for the associated shin pain. I am looking for anything you might be able to offer her to make her life more comfortable while the rest of the dx workup is being done. Grice, DCAlbany, OR WIN up to $10,000 in cash or prizes – enter the Microsoft Office Live Sweepstakes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2006 Report Share Posted December 24, 2006 My sister-in-law has had scleroderma for some years, which is now becoming critical, with weight loss and inability to swallow food. Doctors are throwing up their hands. My question - has scleroderma been treated with energy devices and what is the outcome? Any suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2006 Report Share Posted December 24, 2006 Here's a study mentioning 4 out of 6 got well with an anti-biotic. If that is so, perhaps they had some infection that the immune system was fighting against " too hard " and tearing up the rest of the body??? just guessing here, but it's interesting... ---------------- There is no cure for every patient with scleroderma, though there is treatment for some of the symptoms, including drugs that soften the skin and reduce inflammation. Some patients may benefit from exposure to heat. In 1998 a clinical trial conducted by Harvard and sponsored by The Road Back Foundation and the National Institute of Health found that of the 6 initial patients with early diffuse scleroderma enrolled that finished the trial, 4 went into complete remission with the antibiotic Minocycline. [18] A range of NSAIDs (nonsteroidal anti-inflammatory drugs) can be used to ease symptoms, such as Naproxen. If there is oesophageal dysmotility (in CREST or systemic sclerosis), care must be taken with NSAIDs as they are gastric irritants, and so a proton pump inhibitor (PPI) such as omeprazole can be given in conjunction. Immunosuppressant drugs, such as mycophenolate mofetil (Cellcept®) or cyclophosphamide are sometimes used to slow the progress. Digital ulcerations can be helped by prostacyclin (iloprost) infusion. Iloprost being a drug which increases blood flow by relaxing the arterial wall. > > My sister-in-law has had scleroderma for some years, which is now becoming > critical, with weight loss and inability to swallow food. Doctors are > throwing up their hands. My question - has scleroderma been treated with > energy devices and what is the outcome? Any suggestions? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2006 Report Share Posted December 24, 2006 Is she willing and open to trying the paddles and the wrist device? I'd think you couldn't lose with both of those, make em..that is if she is willing. Go slow at first because if it is a virus or something germy, it can cause a dieoff symptom like the flu and be unpleasant. Still it usually goes away in a few hours to a day. bG > > > > My sister-in-law has had scleroderma for some years, which is now > becoming > > critical, with weight loss and inability to swallow food. Doctors > are > > throwing up their hands. My question - has scleroderma been > treated with > > energy devices and what is the outcome? Any suggestions? > > > Quote Link to comment Share on other sites More sharing options...
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