Does my PCP run a substantial liability risk for prescribing off label LDN?

[Guest guest]

I have UC. The current flare-up has lasted over six months. I am taking

Amacort and, for the last two months, I have been observing the select

carbohydrate diet regimen, that has helped considerably but not stopped the

flare-up. Last month I found out about LDN as a promising treatment for my

condition.

Before taking any action on my own, I wanted to get reactions from my doctors.

My GI would not even discuss it. Through a nurse who called me back, the answer

to my questions were A) yes, she was familiar with LDN and no, she would not

prescribe it. That's the end of my relationship with her.

My relationship with my PCP has been quite positive over the years. I discussed

LDN with him. He was not familiar with it but said he'd look into it. After he

had done so, he said that LDN, as discussed every day on this site, was an " off

label " use of naltrexone and that he would run a serious liability risk if he

prescribed it. This, he said, he was not willing to do. (I believe but don't

know for a fact that he knew I would probably obtain LDN by other means which is

true, although my first shipment has not yet arrived.) My question is, is his

concern about liability well founded? Is it true? I doubt that it is because

doctors across the country are writing scripts for it every day. But that is

speculation on my part. What are the facts? Anybody know about this liability

issue?

Thanks in advance. And thanks to all who share their experience, strength and

hope here.

Nixon

[Guest guest]

Lots of drugs are used off label, Off-label use of drugs to manage pain and other symptoms is common, is essential to effective medical

management of patients with pain, and is supported by clinical experience, published literature, case law, and

FDA policy statements. These off-label uses of FDA-approved drugs include

antidepressants for insomnia and pain;

opioid analgesics for pediatric pain;

anticonvulsants for a variety of pain problems;

corticosteroids for cancer pain;

antiarrythmics for neuropathic pain;

beta-blockers for migraine prophylaxis;

certain NSAIDs for nonarthritic pain;

amphetamines for opioid-induced sedation;

clonazepam for anxiety.

Bottom line, the doctor is wrong, I would confront him before I dump him and see what he says.SterlingFrom: dnixon@... <dnixon6937@...>Subject: [low dose naltrexone] Does my PCP run a substantial liability risk for prescribing "off label" LDN?low dose naltrexone Date: Sunday, March 6, 2011, 9:09 AM

I have UC. The current flare-up has lasted over six months. I am taking Amacort and, for the last two months, I have been observing the select carbohydrate diet regimen, that has helped considerably but not stopped the flare-up. Last month I found out about LDN as a promising treatment for my condition.

Before taking any action on my own, I wanted to get reactions from my doctors. My GI would not even discuss it. Through a nurse who called me back, the answer to my questions were A) yes, she was familiar with LDN and no, she would not prescribe it. That's the end of my relationship with her.

My relationship with my PCP has been quite positive over the years. I discussed LDN with him. He was not familiar with it but said he'd look into it. After he had done so, he said that LDN, as discussed every day on this site, was an "off label" use of naltrexone and that he would run a serious liability risk if he prescribed it. This, he said, he was not willing to do. (I believe but don't know for a fact that he knew I would probably obtain LDN by other means which is true, although my first shipment has not yet arrived.) My question is, is his concern about liability well founded? Is it true? I doubt that it is because doctors across the country are writing scripts for it every day. But that is speculation on my part. What are the facts? Anybody know about this liability issue?

Thanks in advance. And thanks to all who share their experience, strength and hope here.

Nixon

[Guest guest]

I don't think there is any actual risk. Doctors write for off-label use all the

time. This is just a handy excuse for not doing something they don't want to do,

without bothering to engage in conversation about their real reasons, which

might not be convincing.

..

>

> I have UC. The current flare-up has lasted over six months. I am taking

Amacort and, for the last two months, I have been observing the select

carbohydrate diet regimen, that has helped considerably but not stopped the

flare-up. Last month I found out about LDN as a promising treatment for my

condition.

>

> Before taking any action on my own, I wanted to get reactions from my doctors.

My GI would not even discuss it. Through a nurse who called me back, the answer

to my questions were A) yes, she was familiar with LDN and no, she would not

prescribe it. That's the end of my relationship with her.

>

> My relationship with my PCP has been quite positive over the years. I

discussed LDN with him. He was not familiar with it but said he'd look into it.

After he had done so, he said that LDN, as discussed every day on this site, was

an " off label " use of naltrexone and that he would run a serious liability risk

if he prescribed it. This, he said, he was not willing to do. (I believe but

don't know for a fact that he knew I would probably obtain LDN by other means

which is true, although my first shipment has not yet arrived.) My question is,

is his concern about liability well founded? Is it true? I doubt that it is

because doctors across the country are writing scripts for it every day. But

that is speculation on my part. What are the facts? Anybody know about this

liability issue?

>

> Thanks in advance. And thanks to all who share their experience, strength and

hope here.

>

> Nixon

>

[Guest guest]

Hear, hear, quite agree. It's just a cop-out.

Silvia

>

>

> I don't think there is any actual risk. Doctors write for off-label use all

the time. This is just a handy excuse for not doing something they don't want to

do, without bothering to engage in conversation about their real reasons, which

might not be convincing.

[Guest guest]

I third this!On Mon, Mar 7, 2011 at 4:25 PM, lucretia1419 <lucretia14@...> wrote:

Hear, hear, quite agree.  It's just a cop-out.

Silvia

>

>

> I don't think there is any actual risk. Doctors write for off-label use all the time. This is just a handy excuse for not doing something they don't want to do, without bothering to engage in conversation about their real reasons, which might not be convincing.

------------------------------------

[Guest guest]

, my own GP was wary of prescribing LDN until I told him that he could prescribe it on 'compassionate' grounds. I told him as much as i could about it, he looked in his little book which says Nalraxone is for Drug abuse treatment, so then I handed him sheaves of paperwork, he took one look at them and he said I believe you have done your research and will prescribe it for you..... I did have one hiccup when the computers at the surgery were being updated and my LDN vanished from my prescription, so I went in and saw one of the other Dr's who again was wary, I told her what's the problem when this surgery has been prescribing for the last four years, but she still dithered, so I thought sod it, I will see my usual Doc' the following week, but then, mysteriously, LDN was put back on my repeat script, in fact, it is on my repeat twice. My advice, go to a Dr you have known for a long time, who knows you have a brain, offer him sheaves of paper, and he will not have time to look through it all, and as with me, may well appreciate you know what you are about and will prescribe. As I understand it, If it can be said that LDN is given on compassionate grounds as nothing else will help this patient, then they can prescribe off label, but otherwise along with the dispensing pharamacy both in theory can be held responsible if something went wrong. One can offer to sign a waver as I did initially, but my GP said no, he believed I had done my research.... I believe though, that many Dr's just think, as do we, that 'off label' covers many drugs....Others are just scared shitless about change.......

Celia

[Guest guest]

I think they read " opiate receptors " on the descriptions and immediately think they are prescribing some whacky narcotic. Sigh. No problem for them to RX a bunch of steroids though. :-\

On Tue, Mar 8, 2011 at 5:01 PM, Celia Danks <celia@...> wrote:

, my own GP was wary of prescribing LDN until I told him that he could prescribe it on 'compassionate' grounds.  I told him as much as i could about it, he looked in his little book which says Nalraxone is for Drug abuse treatment, so then I handed him sheaves of paperwork, he took one look at them and he said I believe you have done your research and will prescribe it for you.....  I did have one hiccup when the computers at the surgery were being updated and my LDN vanished from my prescription, so I went in and saw one of the other Dr's who again was wary, I told her what's the problem when this surgery has been prescribing for the last four years, but she still dithered, so I thought sod it, I will see my usual Doc' the following week, but then, mysteriously, LDN was put back on my repeat script, in fact, it is on my repeat twice.  My advice, go to a Dr you have known for a long time, who knows you have a brain, offer him sheaves of paper, and he will not have time to look through it all, and as with me, may well appreciate you know what you are about and will prescribe.  As I understand it, If it can be said that LDN is given on compassionate grounds as nothing else will help this patient, then they can prescribe off label, but  otherwise along with the dispensing pharamacy both in theory can be held responsible if something went wrong.  One can offer to sign a waver as I did initially, but my GP said no, he believed I had done my research....  I believe though, that many Dr's just think, as do we, that 'off label' covers many drugs....Others are just scared shitless about change.......

Celia

 

 

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]



, why not get an LDN prescriber. You could always buy online like many do, and I presume that is what you have been doing?

Celia

I went to see my GP. I had loads of info on LDN. I explained it all to him. Only to be told NO! Even though I had been on LDN for 6 months at the time, with fantastic results!

Apparently he could only prescribe drugs that were on the computer system!

Any ideas on how to get around that one?

Thanks in advance of any advice.

[Guest guest]



Here is a popular supplier - http://www.alldaychemist.com/ because the postage is the same for a larger order, many get ample stocks in, but others who use this supplier may be able to tell you more......

Cheers

Celia

Do you have a link to where it can be bought online?

Thanks.