Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 Awesome words of wisdom are written here, lived seventy years, been gluten free three weeks, I feel like a goose, I wake to a new world everyday. I felt so toxic as my mess cleaned up, during these three weeks, emotionally, physically, mentally I am a different person by several degree's. It is a pleasant journey. I can look back into my history and understand, how I became leukemic, how I spent a lot of time and money on therapy, attempting to understand. I am taking sixteen hundred betaine hcl w/ each meal, double dose of enzymes w/ each meal, and drinking Kefir, Avoiding gluten. Sometimes it is not enough to treat the disease, best to find the underlying cause of the problem. Noone, but you will go that far. Is there anything I am missing, or should be doing. stay vertical, david lubbock tx [Any_Other_Dose_LDN] Think outside the Celiac Box http://surefoodsliving.com/2009/04/think-outside-the-celiac-box/ I believe strongly that we need to start looking at gluten sensitivity as a spectrum, with celiac disease at the extreme. I realize the difficulty that doctors face when there are no reliable, accepted, mainstream tests for gluten sensitivity (yet), but it should also be recognized that the celiac tests are not reliable for those that don’t fit into the Celiac Box. It should be acknowledged that non-celiac gluten sensitivity exists and that it has the same treatment as celiac disease: a 100% gluten-free diet. By not being informed of the existence of gluten sensitivity, people are being denied a treatment that works and are becoming dependent on drugs to mask their symptoms rather than treat the cause of their ill health. In my family, I am the only one who was diagnosed with celiac disease, yet besides me, there are 8 people who are on a gluten-free diet. None were advised by their regular doctors to do the diet. 6 of them tested negative on the traditional celiac blood tests. Of those 6, 2 had a biopsy anyway and still tested negative for celiac. 2 people never took any celiac blood tests at all. ALL of them feel dramatically better on a gluten-free diet. ALL of them have had their health problems — gastrointestinal, neurological and behavioral — reversed on a gluten-free diet. NONE of them want to ever eat gluten again. Now, I ask you, where are my family members in the celiac statistics? "Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around." (Leo Buscaglia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 You should try few weeks milk free and soy free.those are also problematics food for many. Choose the right oils like extra virgins coconut oil(the best for frying and cooking)extra virgin olive oil ,real butter or better GHEE and fish oil or even better krill oil I am using the Free version of SPAMfighter.SPAMfighter has removed 2187 of my spam emails to date.Do you have a slow PC? Try free scan! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 Blood tests for gluten issues are worthless; same with intestinal biopsy (unless there is major damage). Genetic testing is the only sure way to know. Either you have the gene(s) or you don’t. Try http://www.enterolab.com or http://cyrexlabs.com for genetic testing. See also: http://www.glutenfreesociety.org/video-tutorial/gluten-sensitivity-what-is-it/. This is the best info on gluten I have seen and I’ve seen a lot. Most folks think gluten is only an issue in wheat, barley, rye & oats. Not so. It’s in ALL grains including corn, rice, amaranth, millet, etc. It’s just that some of these such as rice are less problematic for some folks. Bill From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Holly Sent: Wednesday, March 09, 2011 9:34 AM To: Any_Other_Dose_LDN ; low dose naltrexone ; LDNforFibro Subject: [low dose naltrexone] Re: [Any_Other_Dose_LDN] Think outside the Celiac Box Awesome words of wisdom are written here, lived seventy years, been gluten free three weeks, I feel like a goose, I wake to a new world everyday. I felt so toxic as my mess cleaned up, during these three weeks, emotionally, physically, mentally I am a different person by several degree's. It is a pleasant journey. I can look back into my history and understand, how I became leukemic, how I spent a lot of time and money on therapy, attempting to understand. I am taking sixteen hundred betaine hcl w/ each meal, double dose of enzymes w/ each meal, and drinking Kefir, Avoiding gluten. Sometimes it is not enough to treat the disease, best to find the underlying cause of the problem. Noone, but you will go that far. Is there anything I am missing, or should be doing. stay vertical, david lubbock tx [Any_Other_Dose_LDN] Think outside the Celiac Box http://surefoodsliving.com/2009/04/think-outside-the-celiac-box/ I believe strongly that we need to start looking at gluten sensitivity as a spectrum, with celiac disease at the extreme. I realize the difficulty that doctors face when there are no reliable, accepted, mainstream tests for gluten sensitivity (yet), but it should also be recognized that the celiac tests are not reliable for those that don’t fit into the Celiac Box. It should be acknowledged that non-celiac gluten sensitivity exists and that it has the same treatment as celiac disease: a 100% gluten-free diet. By not being informed of the existence of gluten sensitivity, people are being denied a treatment that works and are becoming dependent on drugs to mask their symptoms rather than treat the cause of their ill health. In my family, I am the only one who was diagnosed with celiac disease, yet besides me, there are 8 people who are on a gluten-free diet. None were advised by their regular doctors to do the diet. 6 of them tested negative on the traditional celiac blood tests. Of those 6, 2 had a biopsy anyway and still tested negative for celiac. 2 people never took any celiac blood tests at all. ALL of them feel dramatically better on a gluten-free diet. ALL of them have had their health problems — gastrointestinal, neurological and behavioral — reversed on a gluten-free diet. NONE of them want to ever eat gluten again. Now, I ask you, where are my family members in the celiac statistics? " Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around. " (Leo Buscaglia) Quote Link to comment Share on other sites More sharing options...
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