Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 , Hello and welcome! I am not of much help in the way of info., I am newly diagnosed. My two children and myself have type 1A. It runs in my family, they didn't watch mine because all my other family members with CMT had very high arches and I had flat feet. No one ever really did much research or did anything to help themselves. So I have been researching it myself and educating my family on CMT and what to look for in their children. I am sorry to hear your birth mother could not bare the burden, I hope you had a wonderful adoptive family who could. Best of Wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 --- Welcome to the group , keep strong and the faith.) Debra from Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 --- Welcome to the group , ) Debra from Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 Hi , Welcome. I'm new, too, and find the group very helpful. Lois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 Thank you for the welcome. I look forward to reading the messages and researching the files in an effort to better handle my obstacle! I look forward to seeing your Ascorbic Acid info. Peace, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 Nice to have you on the list:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 thanks for the welcome:) ________________________________ From: " MommyToJase@... " <MommyToJase@...> Sent: Sunday, July 19, 2009 11:04:44 PM Subject: Re: Welcome Nice to have you on the list:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 Thanks. I am just now getting into the info shown. ________________________________ From: Lois Gallo <loisgallo@...> Sent: Thursday, July 16, 2009 7:01:22 PM Subject: Re: welcome Hi , Welcome. I'm new, too, and find the group very helpful. Lois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2010 Report Share Posted January 9, 2010 , I'm a retired aerospace project engineer which had me dividing my time between sitting and walking. It is very necessary to give our muscles a chance to recover from hard usage. I'm sorry to say it sounds like you are charging all of the time on your feet. The slapping of the feet is an indicator alright. But, how about Varus Heel, Pes Cavus Foot, atrophied muscles between thumb and forefinger (gripping weakness), hammer toes, and progressive loss of sharp feeling from the extremities inward? If it is affordable for you, a DNA profile is probably the most definitive test available. I was lucky that my desired profession matched up with my job requirements. Had I wanted to be a pilot, it would have been a problem as it was in my sport flying which I had to give up. It feel AFOs create some balance and mobility problems. Right now I get along with only one light, fixed AFO on the left. I have two bigger hinged ones that work but limit my mobility a great deal so I won't use them until I have to. EdM from NH (West Ossipee) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2010 Report Share Posted January 10, 2010 Welcome , You can talk CMT anytime with this group, and get opinoins and advice. Hope your job continues to go well for you. Elaine in Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 Hi Everyone, I haven't posted here in a while, but I just wanted to welcome our new members. Here's a warm hello to all or our new family! Welcome, and it's wonderful that you're here :-) And to our 'old' members...... :::::::::::waving hello to you too! Blessings! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 Wanted to add another welcome to a bunch of new members who just joined yesterday/today. So glad that you've come this way.....and once again, it's great to see this family grow Many blessings, > > Hi Everyone, > > I haven't posted here in a while, but I just wanted to welcome our new > members. Here's a warm hello to all of our new family! Welcome, and > it's wonderful that you're here :-) And to our 'old' members...... > > :::::::::::waving hello to you too! > > Blessings! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Hi, Glad to have you on the list [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
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